HL7 Clnical Interoperability Council Common Clinical Registry Framwork Literature Review

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HL7 Clnical Interoperability Council – Common Clinical Registry Framwork Literature Review

HL7 CCRF DAM Whitepaper

Literature review

Last updated: February 21, 2017

Adler-Milstein, Julia, Sunny C. Lin, and Ashish K. Jha. "The number of health information exchange efforts is declining, leaving the viability of broad clinical data exchange uncertain."Health Affairs35.7 (2016): 1278-1285.

Batalden, Paul, et al. "Enabling Uptake of a Registry-Supported Care and Learning System in the United States: A Report to the Robert Wood Johnson Foundation from."Hanover, NH: Dartmouth Institute for Health Policy & Clinical Practice.

Berwick, Donald M. "Measuring surgical outcomes for improvement: was Codman wrong?."Jama313.5 (2015): 469-470.

Bhatt, Deepak L., et al. "ACC/AHA/STS Statement on the Future of Registries and the Performance Measurement Enterprise A Report of the American College of Cardiology/American Heart Association Task Force on Performance Measures and The Society of Thoracic Surgeons."Circulation: Cardiovascular Quality and Outcomes(2015): HCQ-0000000000000013.

Carroll, John D., et al. "Transcatheter valve therapy registry is a model for medical device innovation and surveillance."Health Affairs34.2 (2015): 328-334.

Coffron, M., and Frank Opelka. "Big promise and big challenges for big health care data."Bulletin of the American College of Surgeons100.4 (2015): 10-16.

Etzioni, David A., et al. "Association of hospital participation in a surgical outcomes monitoring program with inpatient complications and mortality."Jama313.5 (2015): 505-511.

Gliklich, Richard E., Nancy A. Dreyer, and Michelle B. Leavy, eds.Registries for evaluating patient outcomes: a user’s guide. No. 13. Government Printing Office, 2014.

Gliklich, Richard E., et al. "Research Report-Final–Options for Developing a Web-based Forum on Patient Registries” (2014)

Gliklich, Richard E., et al. "Identification of Future Research Needs in the Comparative Management of Uterine Fibroid Disease A Report on the Priority-Setting Process, Preliminary Data Analysis, and Research Plan." (2011).

Gray, Bradford H. "Registries as a Knowledge-Development Tool: The Experience of Sweden and England." (2013).

ICAL, T. "Health IT-Enabled Quality Measurement." (2013).

Kappel, Michael L. "It's Not the Model that Matters—Still Lost in Transition."Journal of Oncology Practice9.3 (2013): 128-129.

King, Marjorie L. "Affordability, accountability, and accessibility in health care reform: implications for cardiovascular and pulmonary rehabilitation."Journal of cardiopulmonary rehabilitation and prevention33.3 (2013): 144-152.

Klaiman, Tamar, et al. "Leveraging effective clinical registries to advance medical care quality and transparency."Population health management17.2 (2014): 127-133.

Krucoff, Mitchell W., Art Sedrakyan, and Sharon-Lise T. Normand. "Bridging unmet medical device ecosystem needs with strategically coordinated registries networks."Jama314.16 (2015): 1691-1692.

Levay, C. "Policies to foster quality improvement registries: lessons from the Swedish case."Journal of internal medicine(2015).

Nelson, Eugene C., et al. "Patient focused registries can improve health, care, and science." (2016).

Osborne, Nicholas H., et al. "Association of hospital participation in a quality reporting program with surgical outcomes and expenditures for Medicare beneficiaries."Jama313.5 (2015): 496-504.

Ovretveit, John, et al. "Building a learning health system using clinical registers: a non-technical introduction."Journal of Health Organization and Management30.7 (2016): 1105-1118.

Parker, Scott L., et al. "Quality Improvement in Neurological Surgery Graduate Medical Education."Neurosurgery clinics of North America26.2 (2015): 231-238.

Pasquali, Sara K., et al. "Linking clinical registry data with administrative data using indirect identifiers: implementation and validation in the congenital heart surgery population."American heart journal160.6 (2010): 1099-1104.

Pawlson, L. Gregory. "The evolving role of physician organizations in quality related activities."Israel journal of health policy research3.1 (2014): 18.

Roski, Joachim, George W. Bo-Linn, and Timothy A. Andrews. "Creating value in health care through big data: opportunities and policy implications."Health Affairs33.7 (2014): 1115-1122.

Roth, Carol P., et al. "The challenge of measuring quality of care from the electronic health record."American Journal of Medical Quality24.5 (2009): 385-394. Sedrakyan, Art, et al. "Surgical registries for advancing quality and device surveillance."The Lancet388.10052 (2016): 1358-1360.

Shahian, David M., and Frederick L. Grover. "Biomarkers and Risk Models in Cardiac Surgery."Circulation130.12 (2014): 932-935.

Shahian, David M., et al. "Predictors of long-term survival following coronary artery bypass grafting surgery: results from The Society of Thoracic Surgeons Adult Cardiac Surgery Database (The ASCERT Study)."Circulation(2012): CIRCULATIONAHA-111.

Shelly, Jill. "The ACS and the ABCs of how quality measures are established and implemented."Bulletin of the American College of Surgeons97.9 (2012): 49-55.