PSRT 4271: The Family Role In Rehabilitation Course Schedule and Reading List
Unit & Date / Subject / Topics / Readings(Required readings in bold. Others are recommended.) / Web/Project Activity / Class
2014PSRT 4271: The Family Role In Rehabilitation
Course Schedule and Reading List(v.2.0)
Last updated: June 8, 2014. Subject to further updating.
Questions: T.H. Pyle, t. 609-658-2008, e.
Adapted from Muhlbauer’s Six Phases of a Family’s Journey:
Phase One: Storm Warnings
Phase Two:Crisis: The Storm
Phase Three: Adrift
Phase Four:Stabilization
Phase Five: Mastery
Phase Six: Transcendence
Please buy or rent this requiredtextbook for the course:
Power, Paul W., & Dell Orto, Arthur E. (2004).Families living with chronic illness and disability. New York: Springer Publishing Company, Inc.
Amazon:
Barnes & Noble:
All other texts are found in the Linked Reference List below. To access linked references:
- Note the citations in bold for each week, e.g.,
(Muhlbauer, 2002).
- Scroll down to Linked Reference Links section below.
- Find the linked reference that relates to the citation, e.g.,
Muhlbauer, Susan A. (2002). Navigating the storm of mental illness: Phases in the family’s journey. Qualitative Health Research, 12(8), 1076-1092.
- Click on the linked reference.
Please also bring your laptop computers to class. From time to time we will access material together in class via the internet.
Phase One: Storm WarningsWeek 1:
Sun, May 25 to Sat., May 31.
Class: Thu, May 29 / The New Reality: Aspects of Illness / Course Framework: The Phases of a Family Journey
How to Read Research Articles for This Course
What is SMI?
What are its effects?
What is illness like? Who is involved? / How to read a research article:
(Western University, 2012), video, 2 minutes
(Dunifon, n.d.), 5 pp.
(Reese and Cox, 1999), 7 pp.
(Greenhalgh, 1997), 4 pp.
Schizophrenia:
(Moss-Coane, 2009b) [15 min. video: What is schizophrenia?Be patient with download. When activation bar for video appears, click play button.]
Family “Journey” Phases:
(Muhlbauer, 2002), 14 pp. / 1st web assignment: Welcome to Moodle [Practice Session], due Thu, Jun 7. / Introductions and Preliminaries
“Moodle in Five”
Unit 1 presentation: A Family’s New Reality
Introduction to the Six Phases of the Journey (Muhlbauer, 2002)
How to Read a Research Article for This Class
Video: True Life: I Have Schizophrenia(MTV, 2008).
Week 2:
Sun., Jun 1 to Sat., June 7
Class: Thu, Jun 5 / History of The System and Its Perception of the Family / How did and does psychiatry view the family? Why?
“Schizophrenogenic mother”
“Double bind”
”Expressed emotion”
How are these views evolving? Why?
What challenges remain? / Overview:
(Power & Dell Orto, 2004), chapter 1, 27 pp.
(Swarbrick, 2009)
.
Psychiatry History:
(Atkinson & Coia, 1995), p. 1-22 only.
Schizophrenia:
(Kyziridis, 2005), 6 pp.
(DeDisto, Harding, McCormick, Ashikaga, & Brooks, 1995), 5 pp.[This and its companion articles below are among the most important articles about psychiatric rehabilitation even written.
(DeDisto et al., 1995a), 7 pp.
(Harding et al., 1987a), 9 pp.
(Harding et al., 1987b), 9 pp.]
(Harding & Zahniser, 1994), 6 pp.
History of Causal Theories:
(Fromm-Reichmann, 1948), 10 pp.
(Bateson, Haley, & Weakland, 1956), 16 pp.
(Gibney, 2006), 7 pp.
(Hartwell, 1996), 16 pp.
(Neill, 1990), 6 pp.
Institutional and Community Based Treatment History:
(Geller, 2000), 17 pp.
(Cutler, Bevilacqua, & McFarland, 2003), 16 pp.
(Drake, Green, Mueser, & Goldman, 2003), 10 pp. / Unit Two presentation:
Week 3:
Sun., Jun 8 – Sat., Jun 14
Class: Thu, Jun 12 / What Is Family? / Complexity Theory
Closed and Open Systems
General Systems Theory
Family Systems Theory
What Is A Family System?
What Is A Medical System?
Tension between the Sciences: Psychiatry vs. Family Therapy / General Systems:
Google… “systems theory” and read an overview
(Boulding, 1956), 12 pp.
Family Systems:
(Bavelas & Segal, 1982), 5 pp.
(J. Brown, 1999) [Bowen System], 9 pp.
(Auerswald, 1987)
(Rabstejnek, n.d.)
(Fingerman & Berman, 2000) [Gerontology; good review of family systems theory], 24 pp.
(Also skim: “Family Therapy” on Wikipedia) / Unit Three presentation:
What Is Family?
Phase Two: Crisis: The Storm
Week 4:
Sun, Jun 15 to Sat, Jun 21
Class: Thu, Jun 19 / The Family’s Crisis Moment / Crisis Theory
What does a psychiatric crisis look like?
How does it affect a family?
How does the system respond? / (Poal, 1990), 19 pp.
(Clarke & Winsor, 2010), 6 pp.
Video: Bellevue Inside Out (DeLeo, 2001), 75 mins. / Unit Four presentation: The Family Crisis Moment and The Impact of Mental Illness on Families
Video clip from Bellevue Inside Out [5 minutes]
Guest Speaker (to be invited): a representative of a county psychiatric emergencies (“crisis screening”) department
Impact on Families and Providers / What are the effects on families and their individual members?
Through what phases does a family in the maelstrom of mental illness pass?
What difficulties do providers have working with families? / Families:
(Power & Dell Orto, 2004), Chapter 3, 19 pp.
(Moss-Coane, 2009a): Schizophrenia, The Family, and Society (15 minute video)
(Atkinson & Coia, 1995), p. 23-44 only.
(Jones, 2004) [Loss and Ambivalence], 15 pp.
(Karp & Tanarugsachock, 2000), 19 pp.
Mothers:
(Copeland & Heilemann, 2011), 11 pp.
(Johansson, Anderzen-Carlsson, Åhlin, & Andershed, 2010) [Sweden]
Fathers:
(Wiens & Daniluk, 2009), 8 pp.
Siblings:
(Lukens, Thorning, & Lohrer, 2002), 8 pp.
Grandparents:
(Seeman, 2009)
Providers:
(Kim & Salyers, 2008)
Phase Three: Adrift
Week 5:
Sun, Jun 22 to Sat, Jun 28
Class: Thu, Jun 26 / Special Topics: Grief, Burden, Stigma, Violence / Grief:
Elements of family grief?
How does grief differ between the loss of a loved one to death and to mental illness?
Chronic sorrow theory.
How can and should providers respond? / (Mohr & Regan-Kubinski, 2001), 8 pp.
(Eakes, Burke, & Hainsworth, 1998) / 2nd Web assignment: source, summarize, discuss article on Family Burden. Due Thu, Jul 5.
TERM PAPER AND PRESENTATION: Family Experience Interview Assignment:
Assignment posted.
1 / Unit 5 presentation: Special Topics: Grief, Burden, Stigma, Violence
Class Field Trip to Greystone Psychiatric Hospital. Visit with Concerned Families of Greystone. RoomH205.
Please arrive by 5 pm to complete check-in and badge issuance in sufficient time for 5:30 starting time.
Burden:
Subjective burden?
Objective burden?
How to address it? / (Cook, Cohler, Pickett, & Beeler, 1997) [Social Time], 6 pp.
(H. Lefley, 1989), 5 pp.
(Doornbos, 2001), 14 pp.
Stigma:
Kinds of stigma
Manifestations
Effects of stigma / (Gray, 2002) [In psychiatry]
(Heflinger & Hinshaw, 2010), 7 pp.
(Larson & Corrigan, 2008), 4 pp.
Violence:
Family members as victims of domestic violence by a loved one
Loved ones as victims of excessive police force
Families’ reactions / (Vaddadi, Gilleard, & Fryer, 2002), 7 pp.
(Pyle, 2012) [33 min. and 5 min. videos about Kelly Thomas death]
(Baxter, 2012)[4 min. and 5 min. videos about NJ police]
(McClelland, 2013), 20 pp.
(Ponto, 2012)[10 min. video about Laura Wilcox murder]
(Elborgen & Johnson, 2009), 9 pp.
Week 6:
Sun, Jun 29 to Sat, Jul 5
Class: Thu, Jul 3
(Class online?) / Special Topic: Expressed Emotion / What is Expressed Emotion?
What is the cause of EE?
How is it addressed?
What is the family’s role and responsibility?
Is EE in case managers a problem? / Overview:
(H. P. Lefley, 2009), Chapter 8, 15 pp.
Expressed emotion:
(G. W. Brown, Birley, & Wing, 1972), 17 pp. {The first study of EE.]
(Hatfield, Spaniol, & Zipple, 1987), 5 pp.
(Hooley, 2004), 3 pp.
(Pharoah, Mari, Rathbone, & W., 2006) [Cochrane Review], 17 pp.
(Solomon, Alexander, & Uhl, 2010) [case managers], 8 pp.
(McDonagh, 2005) / Unit 6 presentation: 1. Expressed Emotion, 2. Ethnic & Cultural Issues, 3. The “System”
Special Topic: Ethnic and cultural considerations / A five-stage process model for Asian American families
Latino responses to family psychoeducation for
Schizophrenia
Comparing rich and poor country responses / (Sauceda, 2011), 13 pp.
(Tyson & Flaskerud, 2009), 2 pp.
Response: Dealing with The System / System 101.
What are the barriers to family care in mental health? / (Power & Dell Orto, 2004), Chapter 8, 15 pp.
(Pyle, 2009), 2 pp.
(Jensen, 2004), 8 pp.
(Rose, Mallinson, & Walton-Moss, 2004), 8 pp.
(Askey, Holmshaw, Gamble, & Gray, 2009), 17 pp.
Phase Four: Stabilization
Week 7:
Sun, Jul 6 to Sat, Jul 12
Class: Thu, Jul 10 / Regaining equilibrium / Returning to a new normality
Coping, Burden, Resiliency, Social Support, / Overview:
(Power & Dell Orto, 2004), Chapters 6 and 7
(H. P. Lefley, 2009), Chapters 2, 4, and 5
(Rose, Mallinson, & Walton-Moss, 2002), 20 pp.
(Saunders, 2003) / Unit 7 presentation: Family Education, Psychoeducation, Consultation
Video: Family Psychoeducation: Introductory Video [15 minutes] (New Hampshire-Dartmouth Psychiatric Research Center, 2009)
Review of SAMHSA Family Psychoeducation Toolkit
Modality: Assertive Community Treatment and Families / (Chen, 2008) / Video: Out of the Shadow (Smiley, 2005), 75 mins.
Modality: Family Psychoeducation / What is family psychoeducation?
What forms can it take?
What are its recommended elements?
What are its objectives and standards? / (Lucksted, McFarlane, Downing, Dixon, & Adams, 2012), 15 pp.
(Bae & Kung, 2000), 7 pp.
(SAMHSA, 2009)
(Dixon et al., 2010) [PORT], 15 pp.
Modality: Family Consultation / What is family consultation?
What are effective models for it? / (Schmidt & Monaghan, 2012)[about IFSS in NJ], 16 pp. / Presentation: A representative of NAMI Family to Family Education
Modality: Family Intervention for Dual Disorders (FIDD) / (Mueser & Fox, 2002), 15 pp.
(Mueser et al., 2009)
(Gottlieb, Mueser, & Glynn, 2012)
Modality: Self-care / Recognizing co-dependence
Support groups
MID TERM EXAM / Available from Fri., Jul. 12, 12 noon to Mon., Jul. 15, 1 am)
Phase Five: Mastery
Week 8:
Sun, Jul 13to Sat, Jul 19
Class: Thu, Jul 17 / System Topics: Family Advocacy / The founding of NAMI
Question: Is the public uninformed or misinformed? / (Finkle, 2004), 2 pp.
(Alliance for the Mentally Ill of San Mateo County [CA], 1985)9 pp.
(Lamb & Oliphant, 1978), 4 pp.
(Lamb & Oliphant, 1979), 7 pp.
(Willis, 1982), 3 pp.
(Lamb, Hoffman, Hoffman, & Oliphant, 1986), 5 pp.
(Seifert, 1999) / Unit 8 presentation
Video: When Medicine Got It Wrong (K. Cadigan & Murray, 2009), 75mins
Guest Speaker: a state expert on legislative matters affecting psychiatric rehabilitation and families.
Week 9:
Sun, Jul 20 to Sun, Jul 26
Class: Thu, Jul 24 / Special Topic: Finance and Planning / Disability benefits: What are SSI and SSDI? / (HensonFuerst, 2011)[Video, 4 mins.]
(HensonFuerst, 2010a) [Video, 4 mins.]
(HensonFuerst, 2010b) [Video, 4 mins.]
(Social Security Administration, 2013) [Webpage] / Unit 9 presentation:
Guest Speaker: anIFSS Program Supervisor .
Student presentations
What is a Planned Network Assistance Network?
Estate Planning and Special Needs Trusts / (Hewitt et al., 2010), 12 pp.
(Obloy & Hutcheson, 2002), 4 pp.
(National PLAN Alliance, 2013) [Website]
(PLANNJ, 2013) [Website]
(Hinkles, Fingles & Prior, 2013) [9 min. video]
Special Topic: Confidentiality / HIPAA
Advanced Directives / (Marshall & Solomon, 2003), 5 pp.
(Solomon, Molinaro, Mannion, & Cantwell, 2012), 16 pp.
Recommendations for Providers / Family involvement in mental health services
Expectations and requirements for providers:
What can they or should they do?
How can things be improved? / (Marshall & Solomon, 2004), 2 pp.
(McGinty, Worthington, & Dennison, 2008) [About DD], 9 pp.
(Mottaghipour & Bickerton, 2005) [Pyramid of Family Care], 7 pp.
(Spaniol, Zipple, & Lockwood, 1992), 6 pp.
Phase Six: Transcendence (Growth and Advocacy)
Week 10:
Sun, Jul 27 to Sun, Aug 2
Class: Thu, Jul 31 / Finance Topics (ctd.) / Medicaid: What Every Provider Should Know / (Garfield, 2011) pp. i-v only
(Pyle, 2013), 64 pp. / Medicaid Lecture
Week 11:
Sun, Aug 3 to Sat, Aug 9
Class: Thu, Aug 7 / Response: Family Issues
Training for Providers / What do providers need to know about families?
What should medical schools teach their students about families?
Review of UMDNJ Medical School Course Catalogue / (Power & Dell Orto, 2004), Chapter 12
(Riebschleger et al., 2008), 7 pp.
(Schmetzer & Lafuze, 2008), 4 pp. / Video: People Say I’m Crazy (J. Cadigan, 2004), 60 mins
Special Topic: Spirituality / The effects of mental illness on families of faith.
The use of faith as a family intervention.
The role of spirituality in mental health treatment / (Reeves & Reynolds, 2009), 2 pp.
(Rogers, Stanford, & Garland, 2012), 10 pp.
(Spaniol, 2002), 2 pp.
1
PSRT 4271: The Family Role In Rehabilitation Course Schedule and Reading List
Linked Reference List
Alliance for the Mentally Ill of San Mateo County [CA] (1985). History, 1974-1984.
Askey, Ryan, Holmshaw, Janet, Gamble, Catherine, & Gray, Richard. (2009). What do carers of people with psychosis need from mental health services? Exploring the views of carers, service users and professionals.Journal of Family Therapy, 31(3), 310-331. doi: 10.1111/j.1467-6427.2009.00470.x
Atkinson, Jacqueline M., & Coia, Denise A. (1995).Families coping with schizophrenia: A practitioner’s guide to family groups. New York: John Wiley & Sons. [Chapters 1 and 2]
Baxter, C. (2012). Three years later, State police admit to using unreasonable force on NJ man's disabled son. [Online newspaper article with video]. Video 1: State police video captures troopers punching man repeatedly, longer version. Video 2: Father describes incident that found his son being punched repeatedly by state troopers, Newark Star-Ledger. Retrieved from .
Bae, S.-W., & Kung, W. W.-M.(2000). Family intervention for Asian Americans with a schizophrenic patient in the family.American Journal of Orthopsychiatry, 70(4), 532-541. doi: 10.1037/h0087789
Bateson, G. D. , Haley, J. J., & Weakland, J. (1956). Toward a theory of schizophrenia.Behavioural Science, 1(4), 251-254.
Bavelas, J. B., & Segal, L. (1982). Family systems theory: Background and implications. Journal of Communication, 32(3), 99-107.
Baxter, E. A., & Diehl, S. (1998). Emotional stages: Consumers and family members recovering from the trauma of mental illness. Psychiatric Rehabilitation Journal, 21(4).
Boulding, K. E. .(1956). General systems theory – the skeleton of science.Management Science, 2, 197-208.
Brown, G. W., Birley, J. L. T., & Wing, J. K. (1972). Influence of family life on the course of schizophrenic disorders: A replication. British Journal of Psychiatry, 121, 241-258. doi: 0.1192/bjp.121.3.241
Brown, J. (1999). Bowen family systems theory and practice: Illustration and critique. Australian & New Zealand Family Therapy, 20(2), 94-103.
Cadigan, John. (2004). People say I’m crazy [Video documentary]. San Francisco: Palo Alto Pictures. [More information at
Cadigan, Katie, & Murray, Laura. (2009). When medicine got it wrong [Documentary Film]: imageReal Pictures, KQED & the Independent Television Service (TVS), with funding by the Corporation for Public Broadcasting.
Chen, Fang-pei. (2008). Working with families in Assertive Community Treatment (ACT): The case manager’s perspective. American Journal of Orthopsychiatry, 78(4), 456-465. doi: 10.1037/a0014380
Clarke, D., & Winsor, J. (2010). Perceptions and needs of parents during a young adult’s first psychiatric hospitalization: “We’re all on this little island and we’re going to drown real soon”. Issues in Mental Health Nursing, 31(4), 242-247. doi: 10.3109/01612840903383992
Cook, J. A., Cohler, B. J., Pickett, S. A., & Beeler, J. A. (1997). Life-course and severe mental illness: Implications for caregiving within the family of later life. Family Relations, 46(4), 427-436.
Copeland, D. A., & Heilemann, M. V. (2011). Choosing “the best of the hells”: Mothers face housing dilemmas for their adult children with mental illness and a history of violence. Qualitative Health Research, 21(4), 520-533. doi: 10.1177/1049732310387936
Cradock, Julie A., Young, Alexander S., & Forquer, Sandra L. (2002).Evaluating client and family preferences regarding outcomes in severe mental illness.Administration and Policy in Mental Health and Mental Health Services Research, 29(3), 257-261. doi: 10.1023/A:1015195626742
Cutler, D. L., Bevilacqua, J., & McFarland, B. H. (2003). Four decades of community mental health: A symphony in four movements. Community Mental Health Journal, 39(5), 381.
DeDisto, M., Harding, C. M., McCormick, R. V., Ashikaga, T., & Brooks, G. W. (1995). The Maine and Vermont three-decade studies of serious mental illness: 1. Matched comparison of cross-sectional outcome. British Journal of Psychiatry, 167, 331-338.
DeDisto, M., Harding, C. M., McCormick, R. V., Ashikaga, T., & Brooks, G. W. (1995). The Maine and Vermont three-decade studies of serious mental illness: 2. Longitudinal course comparisons. British Journal of Psychiatry, 167, 338-342.
DeLeo, Maryanne [Director]. (2001). American undercover: Bellevue inside out [TV documentary film]. New York: Teale-Edwards Productions. Distributed by Home Box Office. Retrieved from
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Dixon, Lisa B., Lucksted, Alicia, Medoff, Deborah R., Burland, Joyce, Stewart, Bette, Lehman, Anthony F., . . . Murray-Swank, Aaron. (2011). Outcomes of a randomized study of a peer-taught Family-to-Family Education Program for mental illness.Psychiatric Services, 62(6), 591-597. doi: 10.1176/appi.ps.62.6.591
Doornbos, M. M. (2001). The 24-7-52 job: Family caregiving for young adults with serious and persistent mental illness. Journal of Family Nursing, 7(4), 328-344. doi: 10.1177/107484070100700402
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Dunifon, Rachel. (n.d.).How to read a research article.College for Human Ecology.Ithaca, NY, Cornell University.Retrieved from:
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Fingerman, K. L., & Berman, E. (2000).Applications of family systems theory to the study of adulthood.International Journal of Aging and Human Development, 51(1), 5-29.
Finkle, Linda. (2004). Families: The forgotten resource for individuals with mental illness. Journal of Child and Adolescent Psychiatric Nursing, 17(1), 3-4. doi: 10.1111/j.1744-6171.2004.00003.x
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Gibney, Paul. (2006). The double-bind theory: Still crazy-making after all these years. Psychotherapy in Australia, 12(3), 48-55.
Gray, A. J. (2002). Stigma in psychiatry.Journal of the Royal Society of Medicine, 95, 72-76.
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Harding, Courtenay M., Brooks, George W., Ashikaga, Takamaru, Strauss, John S., & Breier, Alan. (1987). The Vermont longitudinal study of persons with severe mental illness, I: Methodology, study sample, and overall status 32 years later. American Journal of Psychiatry, 144, 718-726.
Harding, Courtenay M., Brooks, George W., Ashikaga, Takamaru, Strauss, John S., & Breier, Alan. (1987). The Vermont longitudinal study of persons with severe mental illness, II: Long-term outcome of subjects who retropsectively met DSM-III criteria for schizophrenia. American Journal of Psychiatry, 144, 727-735.
Harding, Courtenay M., & Zahniser, James H. (1994).Empirical correction of seven myths about schizophrenia with implications for treatment.ActaPsychiatricaScandinavica, 90 (supplement 384), 140-146.
Hartwell, C. E. (1996). The schizophrenogenic mother concept in American psychiatry.Psychiatry, 59(3), 274-297.
Hatfield, Agnes B., Spaniol, Leroy, & Zipple, Anthony M. (1987). Expressed emotion: A family perspective.Schizophrenia Bulletin, 13(2), 221-226.
Heflinger, C. A., & Hinshaw, S. P. (2010). Stigma in child and adolescent mental health services research: Understanding professional and institutional stigmatization of youth with mental health problems and their families. Administration and Policy in Mental Health and Mental Health Services Research, 37(1-2), 61-70. doi: 10.1007/s10488-010-0294-z
HensonFuerst (2010a). Apply For Benefits: Social Security [Video, 4 mins.]. Retrieved on May 28, 2013 from
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Hooley, Jill M. (2004). Do psychiatric patients do better clinically if they live with certain kinds of families? Current Directions in Psychological Science, 13(5), 202-205. doi: 10.1111/j.0963-7214.2004.00308.x
Jensen, Linda E. (2004). Mental Health Care Experiences: Listening to Families. Journal of the American Psychiatric Nurses Association, 10(1), 33-41. doi: 10.1177/1078390303262054