A REFLECTION ON A PRACTICAL THEOLOGY OF DISABILITY
By Fr. Alan Gibson cm
Introduction
On Tuesday evening 25 June I, along with a few other parishioners and the Principal from St Vincent’s Primary School, attended a lecture entitled “A Practical Theology of Disability.” There were several things in this lecture that stood out to me and I have decided to write as I believe the thoughts offered in his lecture have much to offer in how to view the body, ways of communicating, time and offering and receiving hospitality. I believe these things in turn inform how we are to act as a Christian community. The following by no means does full justice to what was presented that night but my hope is that something here may be of some help.
What does it mean to be human?
Dietrich Bonhoeffer was a Lutheran Pastor who lived in Germany during the time of the Second World War. He set up the Bethel Community which provided a place for the homeless and people will kinds of disabilities. He viewed the Nazi’s vision of a super human as a form of madness. For Bonhoeffer the task was not being seen as successful or powerful but rather to be faithful to the tasks given. The tasks given to theologians who write and reflect on disability s to always look at what does it mean to be a human being?
Naming
The right place to begin. Disability is way of naming things. This starts from the Book of Genesis where Adam is given the responsibility to name things. The act of naming brings into existence something new. This brings to the point about diagnosis. Once you get a diagnosis you get a name eg. schizophrenic, manic depressive etc. This raises the question who is diagnosis for? Specialists make judgements on the stories given to them by the patient. The diagnosis is only meant for that group of people. Diagnosis is not meant for others who are not mental health specialists.
Disability
What is disability? Disability is the diversity of humanness and the holiness of our bodies. We are reminded in scripture that our bodies are temples of the Holy Spirit. What does it mean to be a human being living inside a human body? The soulfulness of the body -we are embodied human beings held together by the breath of God. All human encounters are holy encounters. All people are holy people inspired by God. That means our bodies are holy. Attending to God’s creatures is in fact a mode of attending to God.
Perspective
John Hull’s theology of blindness. He was blind himself in his 50’s. In adjusting to the blindness he had to adjust to the way he saw himself. He realized he had to see himself not in terms of what he had lost but ratherin who he was. His body encountered the world in a different way through his blindness. Initially he felt trapped inside his body. The way he perceived colour became different as he now had to rely on people describing them to him. Hands became a way of sensing the world. A sighted perspective is just a perspective. It is just one way of sensing the world. The implications are what would it look like if someone with a disability or dementia gave their view of the world and we all took it seriously? None of us encounter the world in the same way.
The body
God chose disabled bodies to carry out the keys tasks of the kingdom. In Corinthians 12:7-10 Paul speaks about a “thorn in the flesh.” What is Paul’s disability here? Paul’s theology is all about how God’s grace can heal in the face of all of this. Paul is saying that it was through his brokenness that enabled him to do what he needed to do. A disabled body is the source of our salvation. Resurrection came about through Christ’s broken body on the cross. Write at the heart of our tradition in telling the story of Jesus’ broken body being redeemed is that all wounds are healed.
Time
Most of our lives are ruled by time. There is something weird about time and the way we use time. St Augustine spoke of a timeless God. When God created the world he created time. The task is to bring time to its proper purpose. One of the things when working with people with dementia is that one needs to slow down. Things that may seem insignificant like small gestures and brief glances can be so important. We all need to recognize that each moment is given to us and we need to value each second and each breath.
Hospitality
There is a picture of Pope Francis kissing the feet of a young man dying with AIDS. In this gesture Francis offers to become a guest in the house of this young man. The movement from guest to host was a reality in the life of Jesus. He both gave and received hospitality. What would it be like to be a guest in the home of someone with dementia, cystic fibrosis or profound disability? We need to be guests in one another’s homes to understand people in a body vastly different from ours. We tend to think our spirituality is personal but it is always something we do together. Through this we become more than if we remained by ourselves.
Belonging
We talk a lot about inclusion. It is enshrined in law. Under the Disability Act it is a legal requirement that disabled people are entitled to be in the room. However there is no law about caring once they are there. To be included you have to be there but to belong you have to be missed. We need to form communities where people belong.
Conclusion
The task of the Church is not world transformation. That is God’s task. The task of the Church is to be faithful to the tasks that God gives her;
-naming things properly
-giving hospitality
-accepting different bodies
-creating communities where people can be both guests and hosts.