Towards a life Without Bleeds
SCIENTIFIC AGENDA , 8-10 May 2013 Budapest
8.05.2013 / Arrival
9 May 2013
9.00- 10.45 / I Session
Hemophilia – Status in CE Region
9.00- 9.15 / Welcome/Introduction / Paweł Żelewski / Laszlo Nemes
9.15- 9.45 / FVIII IUper cap >6
Hemophilia in the Hungary / Leszlo Nemes
( Budapest, Hungary)
9.45- 10.15 / FVIII IUper cap app 4
Hemophilia in the Poland / Magdalena Łętowska
( Warsaw, Poland)
10.15- 10.45 / FVIII IUper cap <2
Hemophilia in the Bulgaria / Dr. Maria Spasova
(Plovdiv. Bulgara )
10.45-11.15 / Break
11.15- 13.30 / II Session
Hemophilia without inhibitors
Real life studies related to everyday practice ( voting system )
Chairmans: P. Collins ( UK ) , J.Blatny ( Czech Republic )
5 -cases: ( each case 20 min. with Q & A )
11.15 -11.45 / Personalized prophylaxis regiment / P. Collins
( UK )
11:45-12:05 / Hungarian experiences with early low dose prophylaxis in PUP with severe haemophilia A / Maria Kardos
(Mohacs, Hungary)
12:05 – 12:25 / Prophylaxis in children - Quality of Life Index / Tomasz Urasiński
(Szczecin, Poland )
12:25- 12:45 / Clinical experieces with Advate prophylaxis in adult patients with severe haemophilia / Speaker from Slovenia
12:45-13:05 / Prophylaxis in patients with severe hemophilia undergoing surgery / Jan Blatny ???
( Czech Republic )
13:05- 13:30 / Cardiovascular disease in patient with hemophilia / Maria Podolak-Dawidziak (Wrocław, Poland )
13.30- 14.30 / 13.30- 14.30 Lunch
14.30- 17.00 / III Session
Hemophilia with inhibitors
Real life studies related to everyday practice (voting system )
Chairmans: C.G.Negrier ( France ) L. Nemes ( Hungary )
5 cases: ( each case 20 min. with Q & A )
14.30- 15.00 / Personalized prophylaxis regiment / C.G. Negrier
(France )
15:00-15:20 / ITI in hemophilia children with inhibitors : good/poor response – prognostic factors / Anna Klukowska
( Warsaw,Poland)
15:20-15:40 / Surgery for older patient with concomitant diseases with Feiba, / R.Gerbutavicius
( Baltics )
15:40-16:00 / Sequential therapy in hemophilia patients with inhibitors undergoing surgery / Jerzy Windyga (Warsaw,Poland)
16:00-16:20 / Break
16:20-16:40 / Long-term FEIBA prophylaxis in patient with high titre inhibitor after unsuccessful ITI / Zoltan Boda
(Debrecen, Hungary)
16:40-17:00 / Aquired hemophilia- proper diagnosis and treatment / Silva Zupančić
( Croatia )
17:00 -17:20 / Prophylaxis In patient with acquired hemophilia after failure of immunosuppression / Krystyna Zawilska
(Poznan ,Poland)
19:00 / Dinner
10 May 2013
9.00- 12.30 / Optimizing hemophilia treatment standards in Central Europe (workshop)
Chairman: Brian O’Mahony ( Ireland)& Angelika Batorova (Slovakia)
& Peter Vanovertveld & Alessandro Gringeri
9:00 – 9:20
9:20- 9:40 / TBC
TBC / Brian O’Mahony
(Ireland)
Angelika Batorova (Slovakia)
9:40 – 10:40 / CE Country breakout Session (country roundtables)
European Principle of Hemophilia Care Europe– where are we in CE? / Country breakout
- Anna Klukowska
- Laszlo Nemes;
- Ligita Malciute;
- Jan Blatny
- Angelika Bátorová
- Dobrin Konstantinov
- Silva Zupancic
- Romania tbd
10:40-11:00 / Break
11:00 -12:00 / Discussion / ( 10 minutes per table/ country)
12: 00-12:30 / Workshop summary / Brian O’Mahony
(Irland)
Angelika Batorova (Slovakia)
12.30 -13:15 / Baxter – new drugs in hemophilia / EMEA Medical Person
13:15 -13:30 / Closing remarks
Alessandro Gringeri ( Italy)
13.30- 14.30 / Lunch