BIL: 204

RTN: 261

ACN: 225

TYP: General Bill GB

INB: Senate

IND: 20010124

PSP: Hawkins

SPO: Hawkins, Richardson

DDN: l:\s-res\jdh\004fami.whb.doc

DPB: 20020418

LAD: 20020410

GOV: S

DGA: 20020501

SUB: Family Privacy Protection Act of 2002

HST:

Body Date Action Description Com Leg Involved

______

------20020514 Act No. A225

------20020501 Signed by Governor

------20020425 Ratified R261

House 20020418 Concurred in Senate amendment,

enrolled for ratification

Senate 20020410 Amended

House 20020320 Read third time, returned to Senate

with amendment

House 20020307 Amended, read second time

House 20020227 Debate adjourned until

Thursday, 20020228

House 20020227 Amended

House 20020214 Request for debate withdrawn

by Representative Loftis

McGee

Perry

House 20020214 Request for debate withdrawn

by Representative Robinson

House 20020212 Request for debate by Representative Loftis

Robinson

Perry

House 20020212 Amended

House 20020207 Request for debate withdrawn

by Representative Merrill

Whatley

Law

Gourdine

Dantzler

Perry

Haskins

Owens

Knotts

Bowers

Moody-

Lawrence

House 20020206 Request for debate by Representative Merrill

Moody-

Lawrence

Law

Dantzler

Haskins

Perry

Owens

Harrell

Gourdine

Knotts

Whatley

Bowers

Bales

McGee

House 20020206 Amended

------20020131 Scrivener's error corrected

House 20020130 Committee report: Favorable with 25 HJ

amendment

House 20010321 Introduced, read first time, 25 HJ

referred to Committee

------20010321 Scrivener's error corrected

Senate 20010320 Amended, read third time,

sent to House

Senate 20010315 Debate interrupted by adjournment

Senate 20010314 Debate interrupted by adjournment

Senate 20010313 Debate interrupted by adjournment

Senate 20010308 Debate interrupted

------20010302 Scrivener's error corrected

Senate 20010301 Amended, read second time,

notice of general amendments

Senate 20010227 Co-Sponsor added by Senator Richardson

Senate 20010222 Debate interrupted by adjournment

Senate 20010220 Debate interrupted by adjournment

Senate 20010215 Made Special Order

------20010201 Scrivener's error corrected

Senate 20010131 Committee report: Favorable 11 SJ

Senate 20010124 Introduced, read first time, 11 SJ

referred to Committee

Versions of This Bill

Revised on 20010131

Revised on 20010201

Revised on 20010301

Revised on 20010302

Revised on 20010320

Revised on 20010321

Revised on 20020130

Revised on 20020131

Revised on 20020206

Revised on 20020212

Revised on 20020227

Revised on 20020307

Revised on 20020410

TXT:

(A225, R261, S204)

AN ACT TO AMEND TITLE 30, CODE OF LAWS OF SOUTH CAROLINA, 1976, BY ADDING CHAPTER 2, SO AS TO CREATE THE “FAMILY PRIVACY PROTECTION ACT OF 2002” TO ESTABLISH STATE POLICY REGARDING THE USE AND DISSEMINATION OF PERSONAL INFORMATION, TO DEFINE CERTAIN TERMS, TO ESTABLISH CERTAIN DISCLOSURE AND NOTIFICATION REQUIREMENTS, TO PROHIBIT A PERSON OR PRIVATE ENTITY FROM USING PERSONAL INFORMATION OBTAINED FROM A PUBLIC BODY FOR COMMERCIAL SOLICITATION DIRECTED TO A RESIDENT OF THIS STATE, AND TO PROVIDE PENALTIES FOR VIOLATIONS OF THESE PROVISIONS; AND TO AMEND SECTION 443730, RELATING TO TESTING OF NEWBORN BLOOD SAMPLES BY THE DEPARTMENT OF HEALTH AND ENVIRONMENTAL CONTROL, SO AS TO SPECIFY THAT THESE BLOOD SAMPLES ARE CONFIDENTIAL, TO PROVIDE THAT THE PARENTS OR GUARDIAN OF THE CHILD, OR THE CHILD AFTER REACHING AGE EIGHTEEN, SHALL DIRECT, ON FORMS PROVIDED BY THE DEPARTMENT, WHETHER THE SAMPLE MAY BE USED FOR ANONYMOUS STUDIES, RETURNED, OR DESTROYED, AND TO PROVIDE PENALTIES FOR VIOLATIONS.

Be it enacted by the General Assembly of the State of South Carolina:

Family Privacy Protection Act created

SECTION 1. Title 30 of the 1976 Code is amended by adding:

“CHAPTER 2

Family Privacy Protection Act of 2002

Section 30210. This chapter shall be designated as the ‘Family Privacy Protection Act of 2002’.

Section 30220. All state agencies, boards, commissions, institutions, departments, and other state entities, by whatever name known, must develop privacy policies and procedures to ensure that the collection of personal information pertaining to citizens of the State is limited to such personal information required by any such agency, board, commission, institution, department, or other state entity and necessary to fulfill a legitimate public purpose.

Section 30230. For purposes of this act, the following terms have the following meanings:

(1) ‘Personal information’ means information that identifies or describes an individual including, but not limited to, an individual’s photograph or digitized image, social security number, date of birth, driver’s identification number, name, home address, home telephone number, medical or disability information, education level, financial status, bank account(s) number(s), account or identification number issued by and/or used by any federal or state governmental agency or private financial institution, employment history, height, weight, race, other physical details, signature, biometric identifiers, and any credit records or reports.

‘Personal information’ does not mean information about boating accidents, vehicular accidents, driving violations, boating violations, or driver status.

(2) ‘Legitimate public purpose’ means a purpose or use which falls clearly within the statutory charge or mandates of an agency, board, commission, institution, department, or other state entity.

(3) ‘Commercial solicitation’ means contact by telephone, mail, or electronic mail for the purpose of selling or marketing a consumer product or service. ‘Commercial solicitation’ does not include contact by whatever means for the purpose of:

(a) offering membership in a credit union;

(b) notification of continuing education opportunities sponsored by notforprofit professional associations;

(c) selling or marketing banking, insurance, securities, or commodities services provided by an institution or entity defined in or required to comply with the Federal GrammLeachBliley Financial Modernization Act, 113 Stat. 1338; or

(d) contacting persons for political purposes using information on file with state or local voter registration offices.

(4) ‘Medical information’ includes, but is not limited to, blood samples and test results obtained and kept by the Department of Health and Environmental Control pursuant to Section 443730.

Section 30240. (A) Any state agency, board, commission, institution, department, or other state entity which hosts, supports, or provides a link to page or site accessible through the world wide web must clearly display its privacy policy and the name and telephone number of the agency, board, commission, institution, department, or other state entity person responsible for administration of the policy.

(B) Where personal information is authorized to be collected by an entity covered by this section, the entity must at the time of collection advise the citizen to whom the information pertains that the information is subject to public scrutiny or release.

(C) Subsection (B) does not apply to criminal justice or judicial agencies, or both.

Section 30250. (A) A person or private entity shall not knowingly obtain or use any personal information obtained from a public body for commercial solicitation directed to any person in this State.

(B) Every public body shall provide a notice to all requestors of records under this chapter and to all persons who obtain records under this chapter that obtaining or using public records for commercial solicitation directed to any person in this State is prohibited.

(C) All state agencies shall take reasonable measures to ensure that no person or private entity obtains or distributes personal information obtained from a public record for commercial solicitation.

(D) A person knowingly violating the provisions of subsection (A) is guilty of a misdemeanor and, upon conviction, must be fined an amount not to exceed five hundred dollars or imprisoned for a term not to exceed one year, or both.”

Newborn screenings; procedures for retaining and releasing samples revised

SECTION 2. Section 443730 of the 1976 Code is amended to read:

“Section 443730. (A) A child born in this State, except a child born of a parent who objects on religious grounds and indicates this objection before testing on a form promulgated in regulation by the Department of Health and Environmental Control, shall have neonatal testing to detect inborn metabolic errors and hemoglobinopathies.

(B) Information obtained as a result of the tests conducted pursuant to this section is confidential and may be released only to a parent or legal guardian of the child, the child’s physician, and the child when eighteen years of age or older when requested on a form promulgated in regulation by the department.

(C) A blood sample obtained pursuant to this section is confidential and may be released only as the parent or legal guardian of the child from whom a blood sample was obtained, or the child when eighteen years of age or older, directs the department at the time of testing or at any time after that on a form promulgated in regulation by the department.

(D)(1) Unless otherwise directed pursuant to this subsection, a blood sample obtained pursuant to this section must be stored by the department at minus 20º centigrade and may be released for purposes of confidential, anonymous scientific study. The release of a blood sample must conform with regulations promulgated by the department. At the time of testing or at any time after that, on a form promulgated in regulation by the department, the parent or legal guardian of the child from whom a blood sample was obtained, or the child when eighteen years of age or older, may direct the department to:

(a) return a blood sample in its entirety and any test results not less than two years after the date of testing;

(b) destroy a blood sample in a scientifically acceptable manner not less than two years after the date of the testing; or

(c) store a blood sample at minus 20º centigrade but not release the blood sample for confidential, anonymous scientific study.

(2) A blood sample released for confidential, anonymous study pursuant to this section must not contain information which may be used to determine the identity of the donor. A blood sample released pursuant to this section may contain demographic or other statistical information. If scientific study identifies genetic information that may benefit the child, the department may notify confidentially the parent or legal guardian, or the child if eighteen years of age or older, of this information.

(E)(1) A blood sample that has not been stored at minus 20° centigrade before the effective date of this section must be destroyed in a scientifically acceptable manner six months from the effective date of this section unless a parent or legal guardian of a child from whom a blood sample was obtained, or the child if eighteen years of age or older, requests return of the blood sample on a form provided by the department.

(2) A blood sample stored at minus 20° centigrade pursuant to this section before the effective date of this section must be retained as prescribed in subsection (D) unless directed by the parent or legal guardian of the child from whom a blood sample was obtained to destroy or return the blood sample.

(F) The department shall promulgate regulations necessary for the implementation of this section. All forms must include information concerning the benefits of neonatal testing and storage of a blood sample.

(G) A person who violates this section or the regulations promulgated pursuant to this section or who provides or obtains or otherwise tampers with a blood sample collected pursuant to this section is guilty of a misdemeanor and, upon conviction, may be fined not more than fifty thousand dollars or imprisoned for not more than three years.”

Severability

SECTION 3. If any section, subsection, paragraph, subparagraph, sentence, clause, phrase, or word of this act is for any reason held to be unconstitutional or invalid, such holding shall not affect the constitutionality or the validity of the remaining portions of this act, the General Assembly hereby declaring that it would have passed this act, and each and every section, subsection, paragraph, subparagraph, sentence, clause, phrase, and word thereof, irrespective of the fact that any one or more other sections, paragraphs, subparagraphs, sentences, clauses, phrases, or words thereof may be declared to be unconstitutional, invalid, or otherwise ineffective.

Time effective

SECTION 4. This act takes effect upon approval by the Governor.

Ratified the 25th day of April, 2002.

Approved the 1st day of May, 2002.

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