Small Scale Projects

Final Report

Title of project:

Promoting Learner Autonomy through Mentoring

Module/programme of study/student group to which project relates:

Students who have Asperger Syndrome

Faculty / Division/Service Department:

Autism Centre,D&S, and Disabled Student Support Team (DSST), SAS

Project team: Nicola Martin (Autism Centre), Cathy Sellars (Autism Centre)and Arlene Moore (DSST) working closely with staff in Disabled Student Support and the Autism Centre

Abstract

This project was concerned with evaluating existing mentoring provision for students with AS working with students who have Asperger Syndrome (AS) andthe Disabled Student Support Team (including mentors).As a result, a training programme for mentorsas well as a framework for students to mentor their peers was developed.The specific focus of this project was on inclusive practice. Students with AS were the catalyst for development,while the project itself was governed by sound inclusive practices and principles.While this project focused on enhancing the student learning experience of students with AS, it has wider application beyond those who carry this particular label.

Dissemination took place internally, as well as externally via journals, conference presentations and consultancy in Australia and New Zealand.

Background

Students with AS are present in all UK universities and their numbers are increasing. The Disabled Student Allowance, which is provided by the UK government, can be used to fund mentoring. While research evidence suggests that students with AS find mentoring useful in other contexts, there is little evidence in the existing literature of a systematic interrogation of whether this promotes learner autonomy. Research which has asked students to reflect on how far mentoring has developed learner autonomy is therefore lacking. The project aimed to introduce the idea of mentoring for learner autonomy into mentor training and to develop paperwork which mentors and mentees can use to guide careful reflective work towards greater autonomy within the mentoring context.

Aims

  • to evaluate mentoring arrangements with a view to ascertaining the extent to which they promote learner autonomy
  • to develop, deliver and evaluate mentor training to promote learner autonomy
  • to draw up, implement and evaluate guidelines and a format for mentor/mentee agreements which are explicit about the aim to promote learner autonomy
  • to share good practice locally, nationally and internationally

Approach

As this project was concerned with people, it was necessary to obtain ethical clearance prior to commencing the project. The process of identifying participants was easy and more than twenty took part in training and evaluation.

Structured questionnaires were developed and implemented for students and mentors. These focused on three parts of the year; the first week, the end of the first semester and the year end. Questionnaires were sent to eight participants, but resulted only in two responses from students. This indicated that there was a need to find another method, and so email contact was maintained with the two students who have AS, and who indicated willingness to take part.

The plan was to hold focus mentor-mentee groups at the stages outlined above. However, Students with AS did not want to work in this way so evaluative discussions took place between mentors, mentor co-ordinators and students participating by email.

In August-September 2009 (a year after commencing the project) good practice guidance and a training event was developed on the basis of previous year's evaluation and outcomes. In the current academic year, training events have taken place and mentoring materials have been developed and refined based on feedback from mentors and mentees. The materials are being used within and beyond the university. Staff working in Student Services, Education Guidance, Learner Support have participated in the project, and during the next academic year intend to trial the materials with groups of students who do not necessarily have AS. Feedback from beyond the University took place during a workshop at the National Association of Disability Practitioners conference, and at a similar event in Australia (Pathways conference) and as part of consultancy in New Zealand. In addition, the materials are being used as part of a project at The University of Cambridge which is evaluating services for students who have AS.

Evaluation

Training

After the initial training session, only two students who have AS provided comments, and others cited pressure of work as a reason not to engage with the evaluation.A structured questionnaire was used to evaluate mentor training.

Mentoring process

For the reasons outlined above, evaluative discussions took place via email.It was not possible to fully evaluate mentoring arrangements with a view to ascertaining the extent to which they promote learner autonomy because student participation was difficult to secure. However, plans submitted by The Disabled Student Support Team to develop the project further have been agreed, and further evaluation is built into their methodology.

Feedback and comments

The mentor training was judged by participants to be effective and beneficial with the potential to enhance the professional practice of mentors in the future, to the benefit of students.

Comments from students:

  • ..this is just exactly what I have been looking for all my life…
  • .. I can use this to organise myself, it's what I need..
  • ..sorry I can not participate in your project because I have got shed loads of my own work to do, but I will probably find it useful when meeting with my mentor
  • ..thanks for emailing me the paperwork-I can use it myself and-is it ok to change things in it at all?...

Comments from mentors:

  • .. this is really useful and not just for working with students who have AS…
  • …it's really good to get a clear idea about the barriers faced by students who have AS as part of the mentor training…
  • ..a very positive and straightforward approach..
  • ..not having Asperger syndrome written anywhere on the mentoring paperwork makes things a lot easier - it's a sensitive way of making it more ordinary and -of course - other students who don't have AS would be more likely to use it.
  • ..Having the resource electronically is useful so it can be customised for individuals and can be used in email communication, which some students with AS prefer of course.

Benefits

It was originally envisaged that students with AS would have access to mentoring which was more precisely geared to developing learner autonomy,because it was felt that mentors were better placed to deliver on this agenda. In practice, a broader agenda has been realised in that systems for mentoring with a wider application have been refined and developed via training for mentors in inclusive methodologies designed to promote learner autonomy in more general terms. Mentor training was developed, delivered and evaluated and a model for mentor training to promote learner autonomy has been devised which has application beyond work with students who have AS.

The project is in keeping with the participatory, social model research ethos which has been developed by both the DSST and Autism Centreteams. Closer working relationships between parts of central services and part of the Facultyof Development and Society emerged wasa further benefit.

Limitations

During the project Arlene Moore left the University and Cathy Sellars picked up some of Arlene's engagement with the work. The link with DSST was not broken but pressures of time etc. meant that without a named person in DSST we were relying on goodwill on their part (which was abundant).

Further development

Materials have been developed to support the process, and the next stage has been planned and will be taken forward by the Disabled Student Support Team in the academic year. DSST are taking the project forward in-house, and other teams in Student Services (e.g. Learner Support) intend to adapt the paperwork for their purposes. The team leader, Nicola Martin, is currently a Visiting Fellow at Cambridge University, and is working on aproject which is building in part on the work from this project. She is also working with colleagues in New Zealand and London in order to develop further work on this theme.

The Autism Centre continues to be involved internationally in consultancy around themes related to this project.

Mentor training details can be accessed from Nick Hobson in The Disabled Student Support Team and the mentoring paperwork is available on the Autism Centre website for those wishing to make use of the work of the project so far.

References

Arnold. L. (2005) 'Neurological Difference Page'.

accessed 02-02-08

Asperger H (1944) 'Autistic psychopathy in childhood'. A translation of the paper by Frith U (1991) ed Autism and Asperger syndrome. Cambridge University Press

Attwood, T (2007) 'The complete guide to Asperger's syndrome'. London. Jessica Kingsley

Barnes ( (2008) Generating change, Disability culture and art. Journal of disability and international development. 1-2008:4-13 Ansgabe.

Baron-Cohen. S. (2000) 'Is Asperger's syndrome / High Functioning Autism necessarily a disability?' Development and Psychopathology Millennium Edition :489-500

Baron-Cohen S. Sweettenham J (1997). 'Theory of mind in autism. Its relationship to central coherence'. Cohen D. Volkmar F (eds). Handbook of autism and pervasive developmental disorders) 2nd Edition. John Wiley and sons

Beardon, L. (2008). 'Is Autism really a disorder part two - theory of mind? Rethink how we think'. Journal of Inclusive Practice in Further and higher Education, 1: 19 - 21

Beardon L. and Edmonds G. (2007) 'ASPECT consultancy report. A national report on the needs of adults with Asperger syndrome'. accessed 02-01-08

Beaumont R Newcombe P (2006) 'Theory of Mind and central coherence in adults with High Functioning Autism and Asperger syndrome'. Autism 10 .4 :365-382

Bogdashina O (2003) 'Sensory perceptual issues in autism and Asperger syndrome. Different sensory experiences. Different perceptual worlds'. London Jessica Kingsley

Bogdashina O (2005) 'Communication issues in autism and Asperger syndrome. Do we speak the same language?' London Jessica Kingsley

Disability Equality Duty (2006) accessed 04-06-07

Edmonds G Worton D. 'The Asperger love guide. A practical guide for adults with Asperger's syndrome to seeking, establishing and maintaining successful relationships'. London. Jessica Kingsley

Frith U (1989) 'Autism. Explaining the enigma.' Oxford. Blackwell

Gillberg C (1989) in Wing L (ed) 'Diagnosis and treatment of Autism'. New York. Plenum

Grandin T (1996) 'Thinking in pictures and other reports on my life'. New York. Vintage

Goode J (2007) Managing Disability . 'Early experiences of university students with disabilities'. Disability and Society. 22. 1. Jan 2007: 35-49

Haddon M (2003) 'The curious incident of the dog in the night '.Oxford /New York. David Ficking Books

Happe F Booth R Charlton R Hughes C (2006) 'Executive function deficits in ASD and AD/HD. Examining profiles across domains and ages'. Brain and Cognition. 61 1 June 2006. :25-39

Haller B, Dorries B, Rhan J (2006) Media labelling versus the US disability community identity: A study of shifting cultural language. disability and society 21.1 January 2006:61-75

HESA. Higher Education Statistical Agency. accessed 14-01-08

Hughes PJ (2007)'Reflections. Me and planet weirdo'. Chipmunk publishing

Jackson V and Martin N (2007) 'Towards a smooth transition into higher education for disabled students in South Yorkshire'. NADP News 13. Autumn 2007 :23-25

Lawson W (2001) Understanding and working with the spectrum of autism. An insider's view. Jessica Kingsley. London

Madriaga, M. (2006) Research report on transition of disabled learners from further to higher education. European Access Network Newsletter 3. Feb 2006 accessed 14-02-08

Madriaga M., Goodley D., Hodge N., Martin N (2008) 'Experiences and identities of UK students with Asperger syndrome' seminar/07feb08 'Inclusive practice. Rhetoric or reality'. accessed 14-02-08

Martin N (2008) REAL services to assist students who have Asperger syndrome. NADP Technical Briefing 2008/04

Martin N (2008) 'A template for improving provision for students with Asperger syndrome' in further and higher education. NADP Technical briefing 2008/05

Murray S (2008) 'Representing Autism. Culture, narrative and fascination’ Representations. Health, disability, culture and society. Liverpool University Press

Perner L (2008) 'Autism and Asperger syndrome. Personal reflections' accessed 07-02-08

Purdam K Afkhami R Olsen W Thornton P (2008) 'Disability in the UK. Measuring equality'. Disability and Society 23 1 Jan 08:53-65

Richards R (2008) Writing the Othered Self. Autoethnography and the problem of objectification in writing about disability and illness. The journal of qualitative health research. 18 12 1717-1728

Rosenblatt. M. (2008) ‘I exist. The message from adults with autism in England’ London the National Autistic Society.

Shore, S. (2003) Beyond the wall: personal experiences with autism and Asperger syndrome. Autism Asperger Publishing Company.

Further Reading

The publications marked **** are directly relevant.

1 / Martin N (2000) Widening opportunities for students with Asperger's syndrome. Widening participation and lifelong learning. The Journal of the Institute for Access Studies and The European Access Network. 2 (2) August 2000: 42-48
2 / Martin N (2002) A studies of possible indicators for specific learning difficulties in children with Asperger's syndrome. Good Autism Practice 3. 1. 2002:58-62
3 / Martin N (2005) Asperger's syndrome in the workplace. Potential difficulties and straight forward solutions. The SKILL Journal. 81. March 2005: 30-34
4 / Martin N (2006) Strategies which increase the likelihood of success at university of students with Asperger's syndrome. GAP. Good Autism Practice.7(2)2006:51-60
5 / Martin N (2007) Personal Statements. Helping transition to further education and employment. GAP. Good Autism Practice 8 (2) October 2007:17-21
6 / Madriaga M Goodley D Hodge N Martin N (2008) Enabling transitions into higher education for students with Asperger syndrome. Higher Education Academy
7*** / Martin N (2008) REAL services to assist university students who have Asperger syndrome. NADP Technical Briefing 10/08
8*** / Martin N (2008) A template for improving provision for students with Asperger syndrome in further and higher education. NADP 11/ 08
9*** / Martin N, Beardon L, Hodge N, Goodley D, Madriaga M Towards an inclusive environment for university students who have Asperger syndrome (AS) Journal of Inclusive Practice in Further and Higher Education. 1.1 July 2008 : 3-14
10*** / Martin N (2008) Empathy is a two way street in Pollak D (ed) Neurodiversity in Higher Education: positive responses to specific learning differences. Oxford, John Wiley
11.***
12. / Martin N (2006) At ruste studerende med Aspergers syndrome til at klare en universitetsuddannelse-god praksis for de ansatte. Autismebladet 2:2006:14-18
12.*** / Martin (2008)Inclusive practice in the workplace. The Employers Handbook (2009) British Dyslexia Association. Reading BDA

******article accepted for GAP, others in progress in collaboration with colleagues in New Zealand and London.

Presentations

Consultancy New Zealand Nov 2008

Pathways conference Australia Dec 2008

NADP conference June 2009

Presentations and consultancy at various universities during 08 and 09 including: Cambridge, Cardiff UWIC,Central Lancs, Coventry, Huddersfield, Oxford.

Moving on

Nicola Martin is taking up the post of Director of Wellbeing at LSE in October 2009

Atttachments-powerpoint and mentoring paperwork