Setting up services for young people:
Perspectives, Practice and Planning
First national meeting of the British Renal Society Transition/ Shared Decision Making Special Interest Group
Introduction
The first national meeting of the British Renal Society Transition and Shared Decision making Special Interest Group took place at Salford Royal Hospital on 1st December 2016.
The Objectives of the event were to highlight, share and explore the practical aspects of improving health outcomes for renal transition and young adult patients and learn from good examples of person centred care.
The event was all about sharing good practice and experiences across the multidisciplinary team including young adults.
The event commenced with an over view of the Transition/SDM Special Interest Network followed by a young adult sharing her experience of living with a kidney condition.
Current projects establishing national data for renal young adults were shared with the audience
The afternoon focused on local experiences of good practice as well as using social media effectively.
The event provided opportunities for young adults and health care professionals to share and learn from one another’s experiences.
The Programme
Welcome and Overview of Transition/ SDM network
Dr Tina Chrysochou, Adult Nephrologist, Salford Royal Hospitals NHS Foundation Trust
‘Local dialysis girl on tour’
Miss Kate Kenyon, Patient and blogger
Infecting the NHS with energy of youth
Kath Evans, Head of Patient Experience for Maternity, Children and Young People atNHS England
National data for renal young adults
Dr Alex Hamilton, Tony Wing Clinical Research Fellow, Southmead Hospital – Bristol
Salford Royal Hospital Young Adult renal model
Dr Tina Chrysochou, Adult Nephrologist, Salford Royal Hospitals NHS Foundation Trust
Ten Step Pathway to Transforming Transition
TBC, Quality Improvement Lead, Children Strategic Clinical Network, NHS England – North
Shared decision making, patient experience and peer review in the London Renal Network
Dr Rob Elias, Adult Nephrologist, King’s College Hospital NHS Foundation Trust
Using social media to understand and respond to unmetpatient needsDr Matt Graham-Brown, Renal Specialist Registrar
University Hospitals of Leicester
Impact of social media on patient information provision, networking and communication
Dr Cristina Vasilica, Research Fellow
University of Salford
Impact of a Youth worker on young adult outcomes
Gemma Hockey, Youth development worker, Royal Free London NHS Foundation Trust
Panel discussion- Practicalities of setting up Transition and Young Person friendly services
Having a Wales of a time
Brett Dowds, patient
Several young adults attended the event and provided cooking demonstrations at lunch time as well as aromatherapy and ‘makeovers’ for the attendees. They also ensured that there was plenty of tweeting happening.
Feedback
Ninety five people attended the event including all members of the MDT and young people.
4 CPD points are available if you attended event.
The twitter analytics were as follows :
@BRSYoungAdults had 12 users contact it, tweeting 73 times and reaching 26,486 timelines.
17 people tweeted #BRSYoungAdults generating approx 150 tweets onto 26,145 timelines!
Feedback forms – 33 forms received
- How useful did you find this event: 29 Excellent, 4 Useful
- What was your overall impression of the
- Programme: 24 Excellent, 6 Very Good, 2 Good
- Organisation: 22 Excellent, 2 Very Good, 3 Good (with 2 comments in the latter column regarding time keeping)
- Catering: 20 Excellent, 5 Very Good, 5 Good, 2 Average
A makeover!
The Speakers.
First national meeting of the British Renal Society Transition/ Shared Decision Making Special Interest Group