RESOURCES for Dementia Roundtable Series 2014 - 2015
For Medical Directors
Quality Improvement in Neurology: Dementia Management Quality Measures (available in 2014) from AAN, AGS, AMDA, APA, and AMA.
Dementia Special Care Units in Residential Care Communities: United States, 2010. NCHS Data Brief No. 134. November 2013. US DHHS, Centers for Disease Control and Prevention, National Center for Health Statistics.
Reston JC & Schoelies KM. (2013) In-Facility Delirium Prevention Programs as a Patient Safety Strategy: A systematic review. Annals of Internal Medicine 158: 5 (Part 2) 375-380. 2013.
Han JH, Wilson A, Vasilevskis EE et al. (2013) Diagnosing Delirium in Older Emergency Department Patients: Validity and Reliability of the Delirium Triage Screen and the Brief Confusion Assessment Method. Annals of Emergency Medicine 62:5 457-465. 2013.
Gitlin LN, Kales HC and Lyketsos, CG.(2012) Nonpharmacologic Management of Behavioral Symptoms in Dementia.JAMA Care of the Aging Patient: From Evidence to Action.
Mitchell SL, Miller SC, Teno JM, Kiely DK, Davis RB, Shaffer ML. (2010)
Prediction of 6-month survival of nursing home residents with advanced dementia using ADEPT vs hospice eligibility guidelines.JAMA. 2010 Nov 3;304(17):1929-35. doi: 10.1001/jama.2010.1572
Advanced Stage Dementia and Palliative Care
2013 NIH/ACL Alzheimer’s Webinar Series. (September 24, 2013) Susan L. Mitchell, MD, MPH. Hebrew Senior Life.
Improving nursing home care for dementia: Is the environment the answer? (2013) Aging & Mental Health (Editorial) 17: 7. 785-787.
Hanson LC. Tube feeding versus Assisted Oral Feeding for Persons with Dementia: Using Evidence to Support Decision-Making. Annals of Long-Term Care. Jan 2013, 36-39.
Forrest J, Long CO, Kuhn D, Alonzo TR, 7 Frazier AL. (2012) Palliative Care Practice for Advanced Dementia: Regulatory Friend or Foe? Annals of Long-Term Care. 17-26.
Gordon M & Clements-Cortes A. (2013)Music at the End of Life: Bringing Comfort and Saying Goodbye Through Song and Story. Annals of Long-Term Care.24-29.
What’s New of General Interest?
Love, Loss and Laughter: Seeing Alzheimer’s Differently. (2011) by Cathy Greenblat
“Dementia Village Inspires New Care” by Ben Tinker, CNN Dec. 27, 2013. us.cnn.com/2013/07/11/world/Europe/wus-holland-dementia-village/index.html?sr=sharebar_linkedin&goback=.gde_126335_member_258072753
Mead R. (2013) The Sense of an ending: An Arizona Nursing Home Offers New Ways to Care for People with Dementia. The New Yorker. May 20, 2013.
National organization promoting personalized music with donated iPods in residential care.
For Residential Care Staff Training
CARES online dementia care training program and essentiALZ individual certification from the Alzheimer’s Association. Recommended by CMS/Medicare to meet ACA requirements.Winner of the 2012 Silver eHealthCare Leadership Award.
Care without a Battle training package for residential long-term care.
Without A Battle training package for residential long-term care.
Newsletters for assisted living and nursing home providers. See pain, incontinence, roaming, hyperorality, etc.
2013 CMS Nursing Home Training to reduce inappropriate prescribing of antipsychotics.
Try this: Communication Difficulties: Assessment and Interventions in Hospitalized Older Adults with Dementia (2013) 2pp. Consultgerirn.org/uploads/File/trythis/try_this_d7.pdf
Try this: Assessing and Managing Delirium in Older Adults with Dementia (2013) 2pp. Consultgerirn.org/uploads/File/trythis/try_this_d8.pdf
Person-Centered Care for People with Dementia. (2013) Generations: Journal of the American Society on Aging, 37:3, Fall 2013 (Katie Maslow and Sam Fazio, editors).
The End-of-Life Namaste Care Program for People with Dementia. Second Edition (2013) by Joyce Simard.
Late-Stage Dementia: Promoting Comfort, Compassion and Care. (2011) by Michael Gordon and Natalie Baker.
For Families of Residents
End-of-life comfort care explained for families from the National Institute on Aging.
Hospitalization Happens. (2009) nia.nih.gov/sites/default/files/hospitalization_happens.pdf A booklet preparing families for emergency room admissions to hospitals.
Delirium: Unique to Older Adults. (2012) Healthinaging.org (American Geriatrics Society).
Next Step in Care Family Caregiver Guide (2012): Emergency Room (ER) Visits: A Family Caregiver’s Guide from the United Hospital Fund. nextstepincare.org (See all family/consumer guides for care transitions as well)
Advanced Dementia – A Guide for Families (2013):
Feeding tubes for people with Alzheimer’s disease: When you need them-and when you don’t (2013) Choosing Wisely: An initiative of the ABIM Foundation. ConsumerHealthChoices.org/about-us/
70 pp 2013 pdf includes “Advanced Dementia: A Guide for Families” and “How to Talk to Families about Advanced Dementia”
well-written site to help families start conversations about advanced care with the individual earlier in the disease process. Not dementia-specific but based on Ellen Goodman’s experience with her mother which was very much about dementia.
2011 Guide to Giving Someone a health care power of attorney.
Download your state’s health care power of attorney form. NHPCO caringinfo site is also excellent in general.
13 pp. Excellent review of the later stages of dementia from Alzheimer’s Society in UK
REASSURE for DELIRIUM (Poer, 2011)
Delirium: Unique to Older Adults (2012)
10 Warning Signs:
NIA publication – “Talking with your Older Patient”
Age Page:
Understanding Serious Memory Loss:
Dignified diagnosis:
Common dementias Explained:
Gun safety in the elderly:
Seniors and Driving:
AMA Physician's Guide to Assessing and Counseling Older Drivers, June, 2003. Daigneault, G., Joly, P., & Frignon, J. (2002). “Previous convictions or accidents and the risk of subsequent accidents of older drivers.” Accident Analysis and Prevention, 34, 257-261. National Highway Traffic Safety Association (NHTSA), Traffic Safety Facts, 2009.
Family Caregiver Education on Behavior Management:
For Challenging Behaviors:
Coping with Agitation and Aggression: Alzheimer's Caregiving Tips
Hallucinations, Delusions, and Paranoia: Alzheimer's Caregiving Tips
Managing Personality and Behavior Changes: Alzheimer's Caregiving Tips
Rummaging and Hiding Things: Alzheimer's Caregiving Tips
Sundowning: Alzheimer's Caregiving Tips
Wandering: Alzheimer's Caregiving Tips
Transitions of Care:
Video:
(Play video #14 up to 3:05.)
Resources List for Dementia Roundtable 2014 - 2015