GHARAUNDA
(Group Home And Rehabilitation Activities Under National Trust Act for Disabled Adults)
A Life Long Shelter & Care Scheme
- Objective
The National Trust was setup in the context of parents’ worries that what will happen to their childrenwith special needs when they are no more. In order to provide a sustainable solution to this rather difficult problem, GHARAUNDA -a scheme of Lifelong Shelter & Care is conceived with the following objectives :
1.1.To provide an assured minimum quality of care services throughout the life of the persons with Autism, Cerebral Palsy, Mental Retardation & Multiple Disabilities
1.2.To encourage assisted living with independence and dignity
1.3.To facilitate establishment of requisite infrastructure for the assured care system throughout the country
1.4.To provide the care services at an affordable price on a sustainable basis
- Justification
Persons with disabilities in general face several barriers-physical, financial, psychological in leading a life with dignity and independence. The situation is worse in case of persons with the aforesaid four developmental disabilities who may require lifelong care & shelter services even long after their parents are no more. Unfortunately, such a reliable & affordable service at present is not available in the country even though there is a huge demand & need for it.
- Salient Feature
The salient features of the Scheme is as following
3.1.There will be an assured minimum quality of Care Serviceas per the need assessment of everyCare-seeker.
3.2.Care Services under the Scheme will be on payment basis only. BPL Care-seekers can be fully sponsored by different funding agencies including National Trust, State Govt. etc.
3.3.The payee will givea guarantee to the Care-seekers or to their sponsors of providing such Care Service throughout the life of the Care-seekers. A sample Memorandum of Agreement (MoA) to provide such a guarantee by the National Trust (payee) is annexed at “A”. Other payees, if any, such as the State Govt., may adopt the same with/without modification.
3.4.The payee, in turn, will “own” suchCare Service from a specially empanelled Service Provider against payment of service charges. A sample MoA between the National Trust (owner) and the Service Provider is annexed at “B”. Other owners, if any, such as the State Govt., may adopt the same with/without modification.
3.5.National Trust, with the support from State Govt. & other stakeholders will facilitate setting up requisite infrastructure and other support systemson a long lasting basis for running the Group Home.
3.6.Such facilities can be created first and then handed over to the Service Provider for running the Group Home. Alternatively, existing facility available with the Service Provider itself can be improved for running the Group Home. In either case, funding rate per seat will remain sameand net amount for meeting running cost will be available to the Service Provider only after adjusting such construction/improvement costs.
3.7.The Scheme will also aim to build a Corpus through contributions from different stakeholders in order to cross subsidise the Care Service for larger number of poor persons.
3.8.All financial transactions under the Scheme will be done through this Corpus only.
- Eligibility
4.1.Any adult person with Autism, Cerebral Palsy, Mental Retardation and Multiple Disabilities will be eligible to avail the benefits of the Scheme.
4.2.The scheme will be available to eligible persons only on payment of requisite amount as determined under the Scheme from time to time.
- Implementation
5.1Care-seeker
5.1.1Applications, in prescribed format, can be submitted throughout the year, by the Care-seeker.
5.1.2Care-seeker will have a choice of payment plan & location of care service.
5.1.3There may be options to choose the desired Care Service and optimum Payment Plan depending on the needs and income level of individual Care-seeker. But as far as practicable, all the Care-seekers at one Group Home will be provided same quality & standard of care services without any discrimination irrespective of their income levels.
5.1.4Care-seeker will however have the option to book seat in advance by deferring the actual availing of the care service.
5.2 Service Provider
5.2.1Only such organisations which have adequate experience & capacity of working in the relevant disabilities sector and have sound finances will be eligible for empanelment as Service Providers.
5.2.2Preference will be given to Organisations registered with the National Trust.
5.2.3Applications for empanelment as Service Provider will be submitted to the National Trust on invitation.
5.2.4Professional Agency or a group of professionals may be engaged for screening and rating all applications for empanelment.
5.2.5Selection of Service Provider will be done by the National Trust preferably in consultation with the State Govt.
5.2.6Every Service Provider will have to set up a Management Committee for every Group Home with atleast 50% of its members from parents of care-seekers in that Group Home. The Management Committee so set up shall have all the powers and responsibilities to manage all the affairs of the Group Home and take all decisions under the Scheme independent of the internal organisational management of the Care Service Provider.
5.2.7In case the Group Home under the Scheme is set up in the existing facility of the Service Provider, for every seat owned under the Scheme by the National Trust & the State Govt.there should be atleast another 5seats to ensure sense of belongingness and participation of adequate number of parents in the affairs of the Group Home.
5.2.8Parents involvement in the Management Committee or the above seat ratios may not strictly apply in case where the Group Home is not set up in the existing premises/facilities of the Service Provider.
5.2.9Every Service Provider will have to maintain the desired minimum quality of services and carry out necessary improvements, if any, to the satisfaction of the “owner” of seats such as the National Trust and State Govt.
5.2.10Advance payment can be given to the Service Providerfor carrying out such improvements against adequate security. Such advance payments will however be adjusted against the service charges for the Care Services.
5.2.11 In case the construction of facilities is done first and then handed over to the Service Provider only for running Group Home, payment to the Service Provider may be done on a recurring basis instead of lump sum out of the interest earned from the corresponding Corpus amount.
5.3 Nodal Agency
5.3.1In order to effectively monitor and implement the scheme, a Nodal Agency or Third Party Administrator (TPA) may be appointed by the National Trust.
5.3.2Nodal Agency will assist the National Trust and ensure co-ordination among different stakeholders including Service Providers.
5.3.3It will ensure proper record keeping, accounting, processing of applications and optimum allocation of seats to Care-seekers keeping in mind about their diverse background of language, culture or food habit etc. ,
5.3.4It will also manageall the assets & fund createdunder the Scheme.
5.4 State Level Co-ordination Committee
5.4.1There will be a State Level Co-ordination Committee (SLCC) to review, co-ordinate, guide & direct the implementation of the Scheme in the State.
5.4.2Since an SLCChas already been constituted for all other schemes of the National Trust, the same SLCC will similarly work for this Scheme also.
5.4.3Chairperson of SLCC may include other stakeholders such as representatives of a Parents’ Association, Nodal Agency or Service Providers as special invitees as and when needed.
5.5 National Level Steering Committee
5.5.1There will be a National Level Steering Committee (NLSC) to give policy directions & guidelines. It will also be the regulator and quality controller under the Scheme.
5.5.2National Level Steering Committee will comprise of the following
- Chairperson of the National Trust : Chairperson
- JS & CEO of the National Trust:Member
- A Board Member of the National Trust: Member
- A Professional/ Activist nominated by the National Trust: Member
- Representative of a Parents’ Association:Member
(nominated by the National Trust)
- Nodal Agency Representative:Member
- National Trust Representatives in SLSC:Member(s)
- It will meet as often as required but at least once every six months.
6Clarification
Unless the context otherwise provides for, all the above features of the scheme will apply only to seats “owned” by the National Trust and the State Govt. as the case may be.
7. Corpus
To kick start the scheme, a sum of Rs. 5 crore will be made available to build the required Corpus which alone should be adequate to “own” 62 seats forCare-seekers. Leveraging it with minimum seat ratio of 5:1, total number of seats under the scheme with this startup Corpus will be 372. So the per capita effective cost of funding (interest loss @ 10% interest rate) will be 500*10%/372 lakh Rs. pa i.e. Rs. 1120 per month.
The utilisation breakup of this initialCorpus will be as following
1 / For “owning” seats within the existing facilities/premises of Service Providers / @ Rs. 8 lakh per seat for 22 seats / 176 lakh Rs.2 / For New Construction & setting up Group Home on land provided by the State Govts. / @ Rs. 8 lakh per seat for 40 seats in different States / 320 lakh Rs.
3 / Total / 496 lakh Rs.
4 / Administrative & Other Expenses / 4 lakh Rs.
5 / Grand Total / 500 lakh Rs.
Subsequently, the scheme will be extended and expanded in all the States depending upon peoples response and State Govts.’ participation.
8. Scheme Projection for Future years
A tentative projection for 5 years is given as below:
SN / Particulars / Year 1 / Year 2 / Year 3 / Year 4 / Year 5A / Basic Parameters
1 / NGO : NT Seats Ratio / 5 / 5 / 5 / 5 / 5
2 / No. of National Trust seats / 40 / 40 / 40 / 40 / 40
3 / No. of NT Sponsored (BPL) Beneficiaries / 40 / 36 / 32 / 28 / 24
4 / No of APL Beneficiaries thru' National Trust / 0 / 4 / 8 / 12 / 16
5 / Other Beneficiaries / 200 / 200 / 200 / 200 / 200
6 / Total Beneficiaries / 240 / 240 / 240 / 240 / 240
7 / Cumulative No. of Beneficiaries / 240 / 480 / 720 / 960 / 1200
8 / Cost per NT seat (in lakh Rs.) / 8.00 / 8.00 / 8.00 / 8.00 / 8.00
9 / Fees per APL (NT) Beneficary (in lakh Rs.) / 9.60 / 9.60 / 9.60 / 9.60 / 9.60
B / Financial Implications for National Trust
1 / Cost to National Trust (in lakh Rs.) / 320.00 / 320.00 / 320.00 / 320.00 / 320.00
2 / Revenue from APL (NT) Beneficiaries (in lakh Rs.) / 0.00 / 38.40 / 76.80 / 115.20 / 153.60
3 / Net Cost to National Trust (in lakh Rs.) / 320.00 / 281.60 / 243.20 / 204.80 / 166.40
4 / Monthly Cost (Intt Loss @ 10%) per Beneficiary (in Rs.) / 1167 / 1027 / 887 / 747 / 607
5 / Cumulative Monthly Cost per Beneficiary (in Rs.) / 1167 / 1097 / 1027 / 957 / 887
C / Financial Implications for NGO (Service Provider)
1 / Fund from National Trust (in lakh Rs.) / 320.00 / 320.00 / 320.00 / 320.00 / 320.00
2 / Running Cost pm per Beneficiary (in Rs.) / 4000 / 4000 / 4000 / 4000 / 4000
3 / Running Cost pa for NT Beneficiaries (in lakh Rs.) / 19.20 / 19.20 / 19.20 / 19.20 / 19.20
4 / Corpus Reqd for meeting running cost @ 10% intt rate / 192.00 / 192.00 / 192.00 / 192.00 / 192.00
5 / Surplus Fund Available for Development, Inflation etc / 128.00 / 128.00 / 128.00 / 128.00 / 128.00
6 / Surplus Fund Available per NT seat (in lakh Rs.) / 3.20 / 3.20 / 3.20 / 3.20 / 3.20