ESNA Executive Meeting 20/07/17
Agenda
Members Present: Phil Tittensor (Chair) Apologies: Caryn Jory
Sarah Tittensor Erica Chisanga
Marie Hooper Catherine Doherty
Jan Bagshaw
Carrie Burke
1. Minutes of Previous Meeting
Agreed as accurate.
2. AGM Minutes 2017
Reviewed and agreed as accurate.
3. SWAT Analysis of ESNA
This was introduced briefly by Caryn at the AGM. It was agreed that it would
be useful to ask Caryn for her slides to accompany the AGM minutes. The
item will be carried forward to the next executive meeting when Caryn can go
through her ideas.
4. Membership
We currently have 320 members. Our presence on social media has
increased and there are more posts now going on to Twitter. All executive
members are encouraged to contribute to this. There is also a presence on
Facebook and Linkedin. Sarah has been coordinating the social media
presence.
There have been suggestions about taking out advertisements for ESNA in
BILD, DRCN bulletin or Nursing Times. Phil has recently completed an article
for the latter publication and will ask about posting an advertisement. Marie
will approach BILD and the RCN.
Action: Marie and Phil
Advertisements will also be placed in the delegate packs for the up and
coming ILAE conference in October 2017.
Action: Sarah and Phil
5. Paediatric Competencies
There is still no progress on this. The executive are not clear whether Chris
Bennett would be prepared to lead a working party. Marie is going to
approach her again.
Action: Marie
6. Website
This is continuing to cause some difficulties. NET BIZ who designed the
website, will be invited to the next executive meeting to show the executive
team how to solve certain problems.
Action: Phil to organise
Presentations from locality groups could be posted on to locality specific
pages on the website. Carrie is going to try to encourage the locality leads
with this and to make more use of the website in general.
Action: Carrie
7. Locality Groups
Carrie is continuing to liaise with the locality leads. There has been a
suggestion that a member of the executive team tries to attend a locality
meeting once a year to answer questions and promote the organisation. The
north west group has permanent representation through Carrie with SWENG
enjoying Caryn in the same capacity. Carrie will try to get dates for other
locality meetings where executive members can try to attend.
Action: Carrie
As mentioned above, a page per locality group will be set-up on the website.
Lisa is going to try to do this but may need help from NET BIZ at the next
executive meeting.
Action: Lisa and Phil
Carrie will approach locality leads to see if they would be willing to distribute
ESNA information leaflets and application forms at their meetings. Sarah will
then keep them supplied.
Action: Carrie and Sarah
8. Finance
There is £2,570 in the current account with £8,532.54 in the savings
account. We have a potential income of £4,000 from unpaid conference
sponsorship. The recent conference cost us £4,486 for the venue, £1,401 for
travel costs and speaker fees and £535 for committee costs (printing, travel,
etc).
9. Epilepsy Care
This had now moved to a spring and autumn release date. Next issue is
expected in October/November 2017. Jan will write an editorial and ESNA
news and help Brian to edit the article.
Action: Jan
10. Epilepsia
Unfortunately, there have still been difficulties accessing the journal. Marie
feels that she is very close to an agreement with the publishers and Epilepsia
should be available by the end of August 2017.
Action: Marie
11. 2017 Prescribing Day Feedback
The feedback has been the best that we have ever received at any meeting in
terms of the quality of speakers. However, the venue was less well received
for a variety of reasons ranging from quality of refreshments to sound systems
in the conference rooms. The committee felt the feedback was very fair and
we will probably not use that venue in future.
Feedback thank yous and request for slides for the website will be distributed
to our faculty.
Action: Phil
12.. JEC Guidelines, Epilepsy Awareness and Rescue Medication Project
This is moving forward. Presentations will be made at the upcoming
International League Against Epilepsy conference.
Action: Phil
The two focus groups led by Sarah and Erica have produced questions and
draft guidelines respectively. Versions are now out for comment. We hope to
launch the whole package by the end of the year.
Action: Sarah, Erica and Phil
13. Conference 2018
Most of the discussion was around the location of the conference. Based on
previous discussions, we felt that venue along the M4 corridor should be
sought. Options might include Bristol, Bath, Oxford or Reading. Marie has
kindly offered to look at some hotel options. It was felt strongly that a member
of the executive would need to visit any potential venue given our experience
from the prescribing day.
Action: Marie
Potential topics for conference have been lifted from members views who
attended the prescribing day. These might include pregnancy (planned
versus unplanned), treatment of non-epileptic attack disorder, surgery,
comorbidities (for example diabetes, sleep, bone health), transition (elderly
and paediatric), discrimination, research (basics of how to do it and perhaps a
workshop of ideas for research projects – how to work up a question),
contraception to menopause – managing women with epilepsy,
elderly/dementia, managing anxiety and depression in epilepsy.
14. Any Other Business
Epilepsy Alliance
Epilepsy Alliance training days have been popular in the past and plan to
continue under the banner of the Epilepsy Alliance. There was a suggestion
that the next ESNA conference could be a joint event with Epilepsy Action.
There could then be an extra meeting for new in post nurses.
The next new in post epilepsy nurses study day is happening on 13th and 14th
September 2017. This course is full, but a waiting list is already open for the
next course. Sarah has spoken about ESNA at these days in the past and
Carrie, Jan and Marie all offered to cover that session going forward if
needed.
Catherine will continue to be the liaison person between the Epilepsy Alliance
and the ESNA executive.
Action: Catherine
Patient Self Management Course, Epilepsy and You
This was set-up by Epilepsy Action and has been evaluated by Coventry
University with positive outcomes. There is a £40 charge for individuals.
There are plans to try to engage with commissioners. We have agreed to
advertise this on the ESNA website when it becomes available.
Action: Catherine
Online Training Courses from Epilepsy Action
There is concern about this may fit with ESNA’s guidelines and emphasis on
face to face training as the gold standard. The courses run by Epilepsy Action
will cost £30. We will need to see how this develops alongside the ESNA
guidelines and online test.
Action: Catherine to continue to provide a conduit. She will also pass
ESNA guidelines to Epilepsy Action for comment.
Epilepsy Action National Perspective of Services
Encouragement for everyone to fill in the request for information.
Epilepsy 12Paediatric
Third round of work should be complete by Epilepsy Action towards the end of
2017. It was emphasized that we still need paediatric representation on the
ESNA executive.
ESNA Competencies
Mel Goodwin has coordinated the review of the adult group, but we do not yet
have feedback. Phil will chase her.
Action: Phil
Learning disability competencies require updating and a focus group meeting
needs to be set up. Advertisement will go out via the website and the weekly
round-up.
Action: Catherine to write an advert for Lisa to post
Joint Membership between ESNA and Epilepsy Action
There has been more discussion about this but no firm conclusions.
Catherine continues to negotiate. Perhaps this could be launched as part of a
joint conference if that idea goes forward.
Action: Catherine to continue to liaise
15. Date of Next Meeting
22 November 2017 at the North Stafford Hotel in Stoke-on-Trent 10.00am to
4.00pm.