Workshop on laying foundations for future co-operation in the field of
disorders of sex development (DSD) in Bulgaria
24 - 25 January 2014,
Medical University - Varna,
Auditorium 3, floor 4
24.01.2014:
Arrival and accommodation.
Ist SESSION. MODERATORS: V. Iotova and St. Drop.
14.20 – 14.30 – WELCOME. PRESENTING OF ALL PARTICIPANTS AND THEIR BACKGROUND.
14.30 – 15.15 INTRODUCTION ON DISORDERS OF SEX DEVELOPMENT. DSD. Prof. Dr. Stenvert Drop, ESPE E-learning Director
15.15 – 15.30 – case presentation (Pediatric Endocrine Clinic, Sofia)
15.30 – 15.45 – case presentation (Pediatric Clinic, Pleven)
15.45 – 16.00 – break.
IInd SESSION. MODERATORS: I. Stoeva and A. Dessens.
16.00 – 16.45 – ISSUES RELATED TO THE RARE DSD PATIENTS IN BULGARIA – PRYSMATIC OWN EXPERIENCE VIEW. Prof. Dr. Violeta Iotova, Varna.
16.15 – 16.30 – case presentation (Pediatric Endocrine Clinic, Varna)
16.30 – 17.15 – DSD IN SEMARANG, INDONESIA. Mrs. Arianne Dessens, psychologist, Erasmus University, Rotterdam
17.15 – 17.45 – GENETIC STUDIES IN DSD IN BULGARIA . Dr. Silvia Andonova, National Molecular Genetic Laboratory, Sofia
17.45 – 18.00 – case presentation (Pediatric Clinic, Plovdiv)
18.00 – 18.30 – IS THERE ANY PSYCHOLOGICAL CARE OF FAMILIES OF DSD CHILDREN IN BULGARIA. Kaloyan Kukov, Varna
18.30 – 19.00 – OUR EXPERIENCE IN THE SURGICAL TREATMENT OF DSD. Prof. Dr. St. Ivanov, gynaecologist, Varna
19.00 – 19.30 – GENERAL DISCUSSION. DIFFICULTIES AND WAYS TO OVERCOME THESE FROM NEONATOLOGISTS, RADIOLOGISTS, SURGEONS, GENETICISTS, PSYCHOLOGISTS, ALL PRESENT.
20.00 ч. – dinner
25.01.2014:
08.30 – 10.00 – WHAT CAN WE LEARN FROM TWO KIDS AND THEIR FAMILIES’ EXPERIENCE. St. Drop and A. Dessens – interactive session with case presentation and voting by the participants.
10.00 – 10.30 – E-LEARNING – case presentation – Prof. Dr. St. Drop
10.30 - 11.00 – THE NATIONAL CAH SCREENING IN BULGARIA AND ITS ROLE IN DSD CARE. Assoc. Prof. Iva Stoeva, National Screening Laboratory, Sofia
11.00 – 12.00 – ACCEPTING THE FINAL DOCUMENT OF THE GROUP OF PARTICIPANTS FOR THE WAY FORWARD. All participants.
13.00 – lunch and departure.