/ Strategic Health IT Advanced Research Projects (SHARP)
Research Focus Area: 4. Secondary Use of EHR Data - Project Charter
Project Title/Name: / Data Normalization and Evaluation
Project Leads: / Dr. Christopher Chute, Dr. Stan Huff
Project Manager / Lacey Hart
Date: / July 20, 2010 – December 2010
To be completed during Project Approval Process
Portfolio:
Mayo Clinic Research - BSI PMO / Program:
SHARP Area 4 / Project Number:
Projects 1 & 6

Brief Project Background & Description: (What will this project do?) (255 characters):

  • Data liquidity requires transformation of non-standard patient data into comparable consistent formats
  • In practice, clinical data and provider information is unstructured and non-standard
  • Overall Aim: Develop an open-source, dynamically configurable services framework to transform health information into standards-conforming, comparable, and consistent data

Objectives: (Problem or Opportunity Statement / Background of Project Need)

  • Build generalizable data normalization pipeline
  • Semantic normalization annotators involving LexEVS
  • Establish a globally available resource for health terminologies and value sets
  • Establish and expand modular library of normalization algorithms
  • Consistent and standardized common model to support large-scale vocabulary use and adoption
  • Support mapping into canonical value sets
  • Normalize the data against CEMs.
  • Normalize retrospective data from the EMRs and compare it to normalized data that already exists in our data warehouses (Mayo Enterprise Data Trust, Intermountain).
  • Iteratively test normalization pipelines, including NLP where appropriate, against normalized forms, and tabulate discordance.
  • Use cohort identification algorithms in both EMR data and EDW data.
  • Sharing data through NHIN Connect and/or NHIN Direct
  • Comparison of data processed through SHARP to data in existing Mayo and Intermountain data trust, EDW, AHR
  • Evaluation of NLP outputs and value? Focus on a specific domain: X-rays, operative notes, progress notes, sleep studies?

Project Scope:

IN Scope / OUT of Scope
List items/functionality to be accomplished here / List all exclusions (out of scope) here
Use case evaluation for data element extraction / Scientific use case validation
Data class identification/prioritization / New information models
Generalizable data normalization pipeline / Disease specific widgets?
Normalization annotators
standardized common model & mapping
Iteratively test normalization pipeline
NHIN connection

Preliminary Timeline: (Enter any applicable milestone or deliverable dates)

Milestone or Deliverable / Target Completion Date
Charter Approved / 7/27/2010
Identify Use Cases / 7/27/2010
Seek Common data elements and classes of data / 8/11/2010
Prioritize list of classes & desired widgets / 8/18/2010
Evaluate normalization tools & models (i.e. Regenstrief) / 9/1/2010
Define normalization templates (invoke CEMs, etc) / 9/1/2010
PAD& T2D Widgets for HTP Team / 10/2010
PE & PNA Widgets for HTP Team / 12/2010
Define infrastructure information model framework / TBD
Define role of normalized data in NHIN connect / TBD

Roles and Responsibilities: (Enter the estimated resources needed to initiate the project)

Team Roles / Resource Skill Set Needed / Name / FTE needed
Lead / Christopher Chute / 5%
Lead / Stan Huff / 5%
PM / Lacey Hart / 5%
IT Arch / Tom Johnson / 5%
Phenotyping / Jyoti Pathak
Cui Tao
Agilex / Kyle Marchant
Agilex / Les Westberg
MN HIE / Mike Ubl
Peter Haug
Tom Oniki

Dependencies/Assumptions/Risks/Constraints: (Enter any known or anticipated points to communicate)

  • High dependency on NLP, HTP and Infrastructure project resources.
  • Dependent upon IRB approval at both Utah and Mayo

Terms:

•AHR: Analytic Health Repository

•CEM: Clinical Element Model

•Decision Support Related:

–CER: Comparative Effectiveness Research (cost excluded)

–HTA: Health Technology Assessment (cost benefit/effectiveness)

–QI: Quality Improvement (health care operations)

–CDS: Clinical Decision Support (bedside)

•ETL: Extract Transform Load

•NHIN: Nationwide Health Information Network

Endorsement:

Endorsed Not Endorsed Deferred until ______

Comments (Enter endorsement mechanism and any other comments)

Title / Signature / Date
Project Owner(s): / ______/ ______
Project Manager: / ______/ ______

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