Policy Implications and Next Steps—Advocacy for Arizona’s Children
Facilitators: Dana Wolfe Naimark, MPP; John A. Pope, MD
Breakout Group: “Autism”
- Working together with Autism
- Advocacy
- Transition to Adult
- Policy
- Bridging education/health
- Expanding network of diagnosticians
- Job placement improvements
- ALTCS Gap
- No support
- (lot of support)
- Centralized changes come through legislation
- Three united messages to legislators
- 1. AZEIP Medical Home payment model incentives to medical providers
- 2. Web based communications
- 3. Parent to Parent support & Ed.
- More open access to supports
- Common-information resource “warehouse” (lots of groups)
- Central Care Coordinator (too many coordinators)
- Incentive for doctors is quantity rather than quality (medical complexity)
- Value based care in one place
- Medical home coordinates records
- Advocacy to secure funding for needs to centralize
- Involve more family members
- Reallocation of treatment money to early intervention
Breakout Group: “AHCCCS/Medicaid”
- Unified message with facts, with addressing money concerns
- Void of ideology
- Highlight-educate-clarify what/who is Medicaid
- Integration of behavioral/physical health
- Address social determinants of health
- Prevention:
- On-boarding early intervention
- Long-term/short-term outcomes
- Changing models of payment related to outcomes
- Investing early to see higher outcomes with less support long-term
- AHCCCS image dispelling myths/stigma
- Share stories
- “Market” the message
- Transparent/ more user-parent friendly system that is accessible and equipped with adequate provider capacity
- Based on individual need
- Care coordination:
- Physician-patient streamline health plan
- Medicaid Ambassadors
- Consumers, members, families, caregivers
- Legislative advocacy ambassadors
- Bring PURPOSE/MEANING to families resilient stories (pride)
- Necessary-life saving
- Medical Services unaffordable
- Financial implications
Breakout Group: “Transitions”
- Integrated care with behavior
- Vision & Dental
- Mindful early planning with the whole team
- From the individual standpoint
- From the medical standpoint
- Portal available with healthcare professionals are willing to take the young adults transitioning
- Video/Visual of educational content for the youth
- VR
- Watching the content during appointments
- Using what other states are already doing
- Sharing of ideas
- Get a “customized” email list going
- Schools need to be involved to help include the child
- How would this help rural areas with limited services?
- Bridge the gap and advocate with legislature to move the date for applying for adult SSI moved up from 17 ¾ to 17 and 16
- Make sure all covered services carry over “no gap”
- Clear information, timeline clear for all age groups