NNLM PNR Executive Committee Meeting, Nov 29, 2017
NOTES on questions or comments from PNR Exec Committee members (paraphrased)
Present:
EC:
Lynn Baird, Dean, University Libraries, University of Idaho, ID
Ann Marie Clark, Library Director, Fred Hutchinson Cancer Research Center, Seattle, WA
Erik Van Eaton, MD, Department of Surgery, University of Washington
Isaac Gilman, University Librarian/Library Director, Pacific University, Forest Grove, OR
Mary Anne Hansen, Prof/Rsch & Instruction Librarian, Montana State Univ,Bozeman, MT
Kathy Murray, Director, Alaska Medical Library, Anchorage, AK
PNR Staff:
Tania Bardyn (TB)
Catherine Burroughs (CB)
Patricia Devine (PD)
Ann Glusker (AG)
Ann Madhavan (AM)
Carolyn Martin (CM)
Susan Meyers
Maddie Romansic
Guest:
Michele Spatz, Interprofessional Education Outreach Coordinator, Pacific University
Regrets, EC Committee:
Jevin West
Carlos De La Peña
Cathy, Welcome and Introductions Q&A
Kathy Murray: How does All of Us relate to other projects, such as the National Geographic Genographic Project?
CB: There are no overt partnerships with National Geographic Genographic Project that I know of.
TB: The six geographic areas for direct enrollment in the beta stage are across the country, not in our area alone, correct?
CB: Right, including one in the Portland area. Regional medical centers will be recruiting for All of Us, so these direct enrollment areas will be areas lacking infrastructure, such as medical centers involved in recruitment. Partners such as Walgreens will be assisting in the direct enrollment areas.
Michele: Are the medical centers data sites for the study?
CB: Yes, the University of Pittsburgh is one example.
Kathy M.: Is this a long-term study? Are their age limits for subjects?
CB: It’s a long-term study, but there are no age limits. However, at the time, children are not accepted as subjects.
TB: We’re excited that membership is increasing, and we want to bring more data organizations into our membership – we’re interested in how to make NNLM interesting to data organizations. More on that in the future.
Ann G./Ann M., PNR Data Needs Survey Report Q&A
PD: Regarding data-related free resources, I would rather get a recommendation from “the Anns” than look around online.
AG: A look at online tools and courses would be a good topic for a webinar or Dragonfly column.
Michele Spatz: I’d like to see a toolkit of data management resources.
AM: And we realize that one size does not fit all.
Ann Marie Clark: A library of samples, examples of how data is handled, would be useful.
AM: Case studies would be worthwhile.
AG: We could put templates in there too. Real-life examples are eye-opening.
CB: Did that one response to your survey indicate that researches need help with their workflow?
AG: No, not workflow. We need to visualize data flow, how to store and process it.
AM: Researchers need help organizing data, making it more useful – support for data management throughout the data life cycle.
Kathy M.: If you make data tools available, that would entice data organizations to join NNLM. Are you thinking of expanding to include universities without medical programs, like UA Fairbanks?
AG: We’re thinking about it.
TB: Data-related training is not always a success. We need to think about how to nurture people who are being given data literacy/data management roles. Follow-up by people like “the Anns” – a support system following training – would be valuable, so we don’t “lose” people in those roles. Lack of follow-up is a problem.
AM/AG: Ann Glusker has suggested supporting people who take classes and are overwhelmed. Maybe make content more accessible with a “wraparound club” for the harder classes, provide basic info supporting the content. A way to approach the content with support.
Michele: The Health Literacy listserv really helps me, maybe start something similar for data management? Or virtual meetings for data managers. Also, support such as the “wraparound club” can’t mean additional work.
AM: Some NLM classes and MOOCs have discussion groups attached to them.
Michele: I’d like a Data for Dummies platform to jump from.
AG: The “Secrets of a Data Whisperer” class is meant to be that.
Lynn Baird: Have you looked at the DataONE training modules? Can you adapt those, maybe?
AM: Yes, we don’t want to reinvent the wheel. We’re excited to make site visits to see the data management challenges, successes in academic and hospital settings.
Michele: Site visits to researchers too?
AM: No, we’re supporting librarians…how can we help librarians help researchers.
AG: It would be valuable to work with researches via librarians.
Kathy M.: We could bring researchers into a meeting at a site visit. I know there’s research being done at UAA, but I don’t know what’s happening to the data produced. UAF would have more of a need than UAA.
Pat, Access and Outreach Subcommittee Report Q&A
CB: I’m struck by the integrative emphasis, the team-based practice.
TB: What are the challenges related to that?
PD: Tori Koch, a public librarian, would like to teach medical reference to staff but says there’s no time.
AG: It’s also a question of lack of control over your time, when you’re a public librarian.
Michele: Tori thought it should be part of her staff agenda, doling out medical reference lessons in small chunks, because it’s important.
Kathy M.: What about these microtutorials I’m hearing about?
PD: Carolyn’s investigating microtutorials. People like learning in small chunks. We’re working on the necessary technology to teach NLM resources in small pieces.
CM: I’ve developed six tutorials for NIH Senior Health that are 30 seconds to three minutes long. They’re quick and basic and can be watched in any order, they’re about how to use resources more efficiently – that’s what’s of interest to many people. Accessibility is one barrier – anything we post has to be accessible.
Kathy M.: I have colleagues who use Screencast-O-Matic.
Michele Spatz, “Knowledge Is Health” Subaward Report Q&A
Kathy M.: I’m jealous and want to copy you. Does NLM know about the resources you’ve created?
TB: There will be opportunities in the next two or three years to showcase our subawards, so we’re “saving” that.
Michele: We’re developing low-literacy materials that are hard to find. We’re thinking about how best to share them.
Kathy M.: In the past we’ve brought in immigrant women, shared the information with them, and they went on to develop other materials. I’m going to look into IPE on the UAA campus. How similar are your toolkits to each other?
Michele: We see them as separate – the Health Literacy eToolkit is more for educating health professionals.
TB: Have you gotten any feedback from your institution on your work?
Isaac Gilman: The focus on extramural funding is very positive. Our subaward work has definitely allowed us to broaden our impact on the institution.
CB: Was the health literacy component a way to engage with Pacific University health programs?
Isaac: Yes, it’s another way to partner with them.
Michele: Health literacy was taught implicitly before. Now the conversation is around how to teach it explicitly. The faculty is receptive.
General Q&A
Kathy M.: About the Public Library Initiative – do we want to start doing more with public libraries? We’ve backed off in the last couple of years. Are we back to helping public libraries field health questions now?
CB: Correct. We have the opportunity to revisit help for public librarians, to bring on PLA as a more formal partner.
Kathy M.: There were classes for public librarians in the past – are we looking at those again?
CB: We’re working on resources we can share.
CM: There’s concern that classes are not geared to public librarians’ needs. We have focus groups looking at how to make public librarians more comfortable answering health questions. There’s an ALA Midwinter session on this topic for public librarians.
PD: NLM still offers classes to public librarians.
Kathy M.: Public librarians don’t have the time. Pre-conference sessions are best for them.
TB: There’s a resurgence in partnering with state librarians as well, regarding All of Us. So any relationships with state librarians are of interest to us.
Michele: In my experience, the problem is that public librarians lack confidence in dealing with health questions – this is what we need to address.
TB: Agree.