Involving People in Services:

National Involvement Standard Assessment Toolkit

Draft v1.6


Introduction

The National Involvement Standards Toolkit.

The National Involvement Standards Toolkithas been designed to help everyone create, maintain and evaluate high quality involvement opportunities. They reflect the quality measures laid out in the National Involvement Standards.

Building on the directive given by the Scottish Government within the Sexual Health and Blood Borne Virus Framework, in which it is stated that involvement is “core to good practice and should not be considered optional”, this toolkit enables people to measure their involvement to ensure that it is meaningful, comprehensive, well-resourced and appropriately evaluated, and that evaluations are utilised in improvement plans. The toolkit itself is designed to be completed by service providers and service users alike, each responding from their own personal experience and perspective,in order to create a shared response to regional involvement and ensure the results are nationally comparable.

Using the National Involvement Standard Assessment Toolkit

It is suggested that toolkit is first used within the initial 12 months of the initiation of a local involvement initiative for people living with HIV. This will then give a baseline of involvement and provide an action plan for improvement.

This toolkitwill be offered to all HIV-related staff (such as health advisers, consultants, clinical nurse specialists and health promotions specialists) within the specific regional NHS board area, along with staff and volunteers within relevant local third sector organisations. It will also be made available to people living with HIV in the region. This will ensure everyone gets an opportunity to input their perspectives and ensure multi-dimensional results.

The toolkit can be used informally by organisations or groups at any stage to assess involvement. If a more formal assessment is requested, by any organisation or group, then all relevant parties within the region will be invited to complete and return the surveys.

To ensure impartiality, the results of the feedback will be collated by the National Involvement Network team at HIV Scotland with the findings presented to all parties with facilitated discussions offered to ensure any points raised are recognised, acknowledged and addressed.

All responses will be anonymous and no individuals, whether service providers or service users, will be identified at any stage of the assessment procedure. Anonymised quotes from the comments, successes, issues, examples and suggestions for improvementssections may be included in the resulting report to help elaborate on and qualify the survey findings.

The entire process is intended to be transparent and supportive, with the results being made openly available and offered direct to regional and national service providers and commissioners.

Repeating the National Involvement Standards Toolkit

There are 16 questions in this toolkit, and each question relates to a specific aspect of one of the Standards. There are three potential answers to each question – yes, no, or somewhat. There is also a comments box and it would be really useful if you could use this space to give examples, celebrate successes, identify issues, and make relevant comments.

If you mark ‘Yes’ then this provides a score of 1, a ‘No’ is a score of zero and somewhat is a score of 0.5.

If the overall average score from all responses is 0.5 or below then the reassessment will take place 12 months after the original findings from the survey were presented.

If the overall average score from all responses is over 0.5then the reassessment will take place 24 months after the original findings from the survey were presented.

Any questions about the National Involvement Standards Toolkit can be directed to the Rik Hodgson, Information and Involvement Officer at HIV Scotland, , 0131 603 8776.

National Involvement Standards
Assessment Toolkit

Organisation or Service: ______

Region: ______

Date of completion: ______

This survey will provide important information and key research on the involvement of people living with HIV. It contains 16 questions and will take approximately 20-30 minutes to complete, depending on your answers. Please consider each question carefully as your responses will be used to help bring about real change in HIV services, policies and decisions in Scotland.

Thank you for your time.

National Involvement Network (HIV) Contact

Rik Hodgson,

Regional /National Involvement

Are you currently involved locally or nationally?

Are you aware of local/national involvement but not involved?

Are you unaware of local/national involvement but want to be involved?

Are you unaware of local/national involvement and do not want to be involved?

If you are involved please state how below. If you are not involved but would like to be please leave a contact detail below.

Standard 1: Commitment

  • All respondents are asked to complete this section.
  • Please answer all questions from your own personal experience and perspective.
  • If a question is not relevant to you then pass on to the next one.

This section contains 6 questions.

Thinking about how involvement benefits people living with HIV, to what extent do you feel the following statements are true for ______(insert organisation name)______?

Involvement is meaningful: From your personal perspective, the involvement of people living with HIV has been impactful. Change has happened as the consequence of their involvement?

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Opportunities exist within all HIV related services:Whether delivered by NHS, local authority or a local/national charity, from your personal perspective, do you think that people living with HIV can get involved wherever services are provided for them.

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Opportunities exist at all levels within HIV related services:From your personal perspective people living with HIV can get involved wherever decisions are made that affect them.This includes at board level, service delivery level, planning level. Service user reps attend meetings where decisions affecting people living with HIV are made.Can people living with HIV influence policy making?

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Regional and National Involvement: From your personal perspective, regional and National opportunities are created and promoted, and these include the Positive Persons’ Forum and the National Involvement Network, etc?

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Equal Opportunity:From your personal perspective, everyone, regardless of age, gender, race, religion, sexuality can get involved where they want. Barriers to involvement are identified and removed?

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Diversity:From your personal perspective, opportunities to get involved are wide ranging, and people are encouraged to say how, where and when they want to get involved?

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Standard 2: Resources

  • All respondents are asked to complete this section.
  • Please answer all questions from your own personal experience and perspective.
  • If a question is not relevant to you please pass on to the next one.

This section contains 2 questions.

Resources:From your personal perspective, funds are made available to support effective involvement. Meetings and events are financially supported. There is an expenses policy and people know how to claim expenses?

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Training:From your personal perspective, appropriate training is designed and delivered to enable people to feel more confident about being involved?

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Standard 3: Information and Communication

  • All respondents are asked to complete this section.
  • Please answer all questions from your own personal experience and perspective.
  • If a question is not relevant to you then pass on to the next one.

This section contains 5 questions.

Expectations:From your personal perspective, a terms of reference is drawn up which clearly outlines what people can expect to give, to receive and what the outcome of their involvement will be? Role descriptors are drawn up when necessary.

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Communication is clear:From your personal perspective, all involvement communication, posters, emails, minutes etc. are jargon free, written in plain English and can be translated if required.

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Communication is timely:From your personal perspective, all involvement communication is distributed within agreed time limits.

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Communication is inclusive:From your personal perspective, people living with HIV can find out about local involvement, because all involvement communication is widely distributed, or is positioned on dedicated physical and/or virtual involvement noticeboards?

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Named Contacts:From your personal perspective, each organisation has both a named lead and a deputy involvement workers these positions are widely promoted so that people living with HIV can contact them if they need to?

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Standard 4: Evaluation and Development

  • All respondents are asked to complete this section.
  • Please answer all questions from your own personal experience and perspective.
  • If a question is not relevant to you then pass on to the next one.

This section contains 3 questions.

Demonstrable outcomes:From your personal perspective, people can see that their involvement has made a difference. Services have changed, policies have changed as a direct consequence of involvement.

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Evaluation:From your personal perspective, patients, staff, volunteers, services users, carers are regularly asked for their feedback on being involved, and this information is used to improve involvement initiatives. Impact evaluations are regularly undertaken and the outcomes of evaluations are widely distributed and are used to inform involvement action plans.

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Conflict resolution:From your personal perspective, a dispute procedure is agreed and shared and people know how and to whom to complain?

Yes SomewhatNo

Comments, successes, issues, examples and suggestions for improvement:

Additional Information:Please use this final box to ?

Thank you for completing the survey.

If you would like a copy of the survey results please provide your email address:

Please return your completed survey to:

National Involvement Network (HIV)

HIV Scotland

18, York Place,

Edinburgh,

EH1 3EP