Minutes Template DOC
Nordic Kidney Group
Third annual meeting
24-Nov-2005, 10.00 am at Radisson SAS Airport Hotel, Gardemoen Airport
Present:
Nordic transplantation/nephrolic departments:
Magnús Bödvarsson - Landspitali
Jesper Melchior Hansen - Amtssygehuset i Herlev
Lauri Kyllönen - Helsingin Yliopistollinen Keskussairaala
Torbjörn Lundgren – Karolinska Universitetssjukhuset
Melvin Madsen – Skejby Sygehus
Lars Mjörnstedt – Sahlgrenska Universitetssjukhuset
Bengt von zur Mühlen – Akademiska sjukhuset
Nils H. Persson – Universitetssjukhuset MAS
Anna Varberg Reisæter - Rikshospitalet
Nordic uremic registries:
Páll Asmundson - Islandske uræmiregister
Torbjørn Leivestad – Norsk Nefrologiregister
Hans Løkkegaard – Dansk Uremi register
Staffan Schön - Svenskt Register för Aktiv Uremivård
Scandiatransplant:
Arnt Jakobsen
Frank Pedersen
Absent:
Niels Grunnet - Scandiatransplant
Niels Rohr - Odense Universitetshospital
Søren Schwarts Sørensen - Rigshospitalet
I. Meeting called to order at 10.00 am by Torbjørn Leivestad.
Leader of the meeting: Anna Varberg Reisæter
. Minutes from last meeting approved.
Further maters to the agenda;
- Terminology regarding deceased donors.
- Which data to distribute, and to whom.
II. SINCE LAST MEETING
A. Chairman Group.
No activity
B. Code Group.
No activity.
C. Publications.
American Transplant Congress 2005 Seattle, WA, 23-May-2005.
Abstract Title: "70+ KIDNEY DONORS - ACCEPTABLE LONG TERM GRAFT SURVIVAL."
III. DECISIONS
A. Articles of association for NKG (Nordic Kidney Group).
The decisions on Constitution and Publication rules will be rewritten into a separate document by Scandiatransplant, and presented to the “leader group”.
B. Election of leader and leader group for NKG.
Lauri Kyllönen (FI) – Chairman
Torbjørn Leivestad (NO) – Data responsible
Lars Mjörnstedt (SE)
Melvin Madsen (DK)
Magnús Bödvarsson (IS)
C. Codes in Scandiatransplant.
Mapping on EDTA<->ICD-10 . For now there are no conclusive European mapping on the codes, so both will coexist in Scandinavia and the group will make a mapping of their own.
Nomenclature. Scandiatransplant will adapt the suggestions from AOPO on “Terminology regarding deceased donors”.
Cause of Graft loss and Cause of death in Scandiatransplant’s Kidney follow-up is insufficient.
- The “Code group” continues, with the participation of Páll Asmundson, Hans Løkkegaard, Torbjørn Leivestad, Lauri Kyllönen and Staffan Schön.
- Scandiatransplant will implement the ICD-10 code subset in the database alongside EDTA for optional entering.
D. Living Donor Registry.
The Norwegian living donor registry has been imported into Scandiatransplant.
- Uppsala, Stockholm, Malmö, Oslo, Helsinki and København is using the electronic system.
- Reykjavik, Göteborg, Odense and Århus has the data on paper but is not yet entered.
- Scandiatransplant will alter the paper forms, so they match the screens.
- Scandiatransplant will create a User Manual for the new database.
- Hands on education can be requested from Scandiatransplant.
E. Yearly evaluation of exchange obligations.
- The decisions on “Rules for exchange of necro kidney within the Scandiatransplant co-operation” from 02-jun-2005 was accepted with no further addition.
- The is a need to distinguish between Exchange obligation, Pay back and Free kidneys in the statistical outputs.
- The centres must be urged, to enter quality control on kidneys after exchange.
F. Publications.
Melvin Madsen will do an article on base of the Abstract "70+ KIDNEY DONORS - ACCEPTABLE LONG TERM GRAFT SURVIVAL."
G. Updating of Scandiatransplant
- Skejby Sygehus-IT and Oracle Danmark is at the moment defining the existing system, the papers should be ready around Christmas.
- At the beginning of 2006 two workshops will be held, to define requests for the updated system.
- NKG wish to emphasise the need to be able to transfer data from local systems to Scandiatransplant on both on-line and batch basis.
H. The Scandinavian Transplant Society – XXIII Congress, Göteborg.
NKG will be presented at the joint panel session for all registries within Scandiatransplant.
IV. ONGOING ACTIVITIES
A. Changes in exchange obligation criteria.
- The Tissue typers proposal to return to broad B12, B15, B16 and base the math on Bw4/Bw6 as well, was illustrated by Torbjørn Leivestad.
NKG recommends the proposal, that is to be discussed at the upcoming Representative meeting of Scandiatransplant.
- A proposal to do a program on “acceptable mismatch” for The highly sensitized patient (HSP) was approwed by NKG, however it’s the Tissue typers who must carry on further discussions and sugestions.
B. Homepage.
- NKG will have their own area on www.scandiatransplant.org for Article of association, annual reports, scientific papers, specific statistics a.s.o.
D. Codes.
- The code group will decide on Mapping EDTA<->ICD-10.
V. NEXT MEETING
København will be hosting the next meeting preferably at Kastrup Lufthavn on November 23 2006.
Respectfully submitted,
Frank Pedersen, Scandiatransplant