Maine Quality Counts -Consumer/Patient Engagement Framework

Patient/Consumer Interest / Patient/Consumer Role / Options for Involvement / Supports Needed / Key Characteristics/ Skills
Level A:
  • Improve one’s own health
  • Improve health of family member
/ Active partner in care /
  • Engage in self-management, goal-setting
  • Participate in shared decision making
  • Participate in Living Well program
  • Participate in support group
  • Participate in health-related social networking site
  • Know how to access your medical records and make changes if required
  • Increasing progression on the Behavior Engagement Framework
  • Use of personal health record or other tracking tools
/
  • Evidence-based guidelines on recommended treatments, goals (e.g. Pathways)
  • Living Well program (group, online)
  • Information on action steps, trusted support programs
  • Information on how to access health records and how to make changes/edits
/
  • Self-awareness re: personal role in managing health
  • Ability to identify, communicate treatment preferences
  • Willingness to communicate with care team
  • Ability to track and organize personal health records and information

Level B:
  • Get information to make informed choices about care
/ Active partner in care /
  • Access GetBetterMaine and other info on health care quality, costs
  • Help others access information
  • Understand issues of healthcare safety and advocate with providers to adhere to safety guidelines
/
  • Trusted information on health care quality & costs
  • Resources to answer questions
/
  • Desire to seek out information
  • Ability to distinguish between valid & erroneous information sources
  • Ability to discuss choices, ask questions

Level C:
  • Work with others to help improve their health
/ Peer supporter /
  • Serve as Living Well instructor
  • Serve as peer-to-peer support, mentor
  • Understand Behavior Engagement Framework and how you can assist others with specific behaviors
  • Serve as patient navigator in your health care system
/
  • Training programs
  • Peer support
  • Patient navigation training
/
  • High degree of empathy
  • Good communicator
  • Ability to maintain confidentiality

Level D:
  • Work directly with health care providers to help improve the delivery, quality, experience of care
/ Practice Change Advisor /
  • Work with primary care practice redesign team (“Practice Partner”)
  • Serve on health care Patient Advisory Council (e.g. for primary care practice, hospital)
  • Participate in provider committees
/
  • Training programs (e.g. mtg facilitation, leadership, knowledge, QI methods)
  • Peer support & coaching
/
  • Commitment to improve care and value team goals over individual interests
  • Ability to maintain confidentiality
  • Desire to gain knowledge re: health care quality
  • Comfortable articulating patient insights & bringing patient feedback to improvement team
  • Receptive to views of others
  • Good communicator

Level E:
  • Work with stakeholders to drive system, policy, payment changes to transform care
/ Policy advisor, champion for change /
  • Serve on QC Board
  • Serve on QC Consumer Advisory Council
  • Serve on HIN Consumer Committee
  • Get involed in meetings with local providers
  • Participate on State Workgroups
  • Participate in local community forums on healthcare quality and cost
/
  • Training programs (e.g. mtg facilitation, leadership, knowledge, QI methods)
  • Peer support & coaching
/
  • Commitment to improve care and value team goals over individual interests
  • Foundational understanding of health care quality
  • Ability to seek out & synthesize information on complex topics
  • Receptive to views of others
  • Excellent communicator
  • Ability to problem-solve in inclusive manner that addresses issues from myriad of perspectives

February 2012 Adapted from Humboldt County AF4Q