American Association on Health and Disability

AAHD

Dedicated to better health for people with disabilities through health promotion and wellness

Annotated Bibliography on

Emergency Preparedness and Response

For People with Disabilities

EMERGENCY PREPAREDNESS AND PEOPLE WITH DISABILITIES

Table of Contents

Target Audiences:

City Government...... 5 – 6

Consumers with Various Disabilities ...... 7 – 20

Consumers with Specific Disabilities or Disorders ...... 21 – 29

Anxiety Disorders . . . 21
Communication and Speech-Related Disabilities. . . 21
Deaf or Hearing Impaired . . . 22 – 24
Developmental or Cognitive Disabilities . . . 25
Environmental or Chemical Sensitivities . . . 25
Learning Disabilities. . . 25 – 26
Life-Support Systems . . . 26
Medical Concerns . . . 26
Mobility Impairments. .. 27
Psychiatric Disabilities . . . 27 – 28
Consumers Using Service Animals or Pets . . . 28
Visual Impairments. . . 28 – 29

Elderly Population ...... 30

Emergency Managers and Emergency Planners ...... 31 – 47

Employees ...... 48 – 49

Employers ...... 50 – 51

Facility Managers ...... 52 – 53

First Responders ...... 54 – 55

Parents and Teachers...... 56

Service Providers...... 57 – 58

Shelter Managers...... 59

Students...... 60

State Resources...... 61 – 62

Target Audience: City Government

Product
Format / Product & Description / Contact Information
Guide /

“An ADA Guide for Local Governments: Making Community Emergency Preparedness and Response Programs Accessible to People with Disabilities by the U.S. Department of Justice, Civil Rights Division, Disability Rights Section”—this guide discusses how local governments should make emergency preparedness and response programs accessible to people with disabilities in their plans for notification, evacuation, sheltering, and returning people to their homes.

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Report / A report on a survey of Texas cities on emergency preparedness for people with disabilities conducted by the Governor's Committee from the Office of the Governor of Texas, Rick Perry—this brief report lists survey results, as well as strengths of some cities, such as working with the Red Cross, challenges including a need to involve people with disabilities directly in emergency planning and training efforts, and training needs. /
Report / “Oklahoma City—Seven Years Later: Lessons for Other Communities” by the Oklahoma City National Memorial Institute for the Prevention ofTerrorism (MIPT) (2002)—this report captures the most important points from the Oklahoma City bombing from some of the thousands of people–professionals and volunteers–who helped the people of Oklahoma City recover from the disaster. The booklet offers 32 half-sized pages of bulleted points, and each copy contains a CD-ROM which offers more detailed accounts of the experiences of many individuals, a study of communication flows before, during, and after the incident, and a book-length study by the American Psychological Association of the mental health response to the Oklahoma
City bombing. It was distributed to governors, city mayors, and emergency officials across the nation. /
Resolution / “Resolution # 2002-01 Urging the Purchase of Emergency Evacuation Chairs for the City and County of San Francisco” by the Mayor's Disability Council of the City and County of San Francisco—in light of the September 11 tragedy, this resolution urges the Mayor of San Francisco and his staff to invest in emergency evacuation chairs for all City-owned multi-story buildings, to seek emergency response funding from the state and Federal governments to assist with these costs, and to incorporate training for their use in Emergency Evacuation Plans. /

Target Audience: Consumers with Various Disabilities:

First-Hand Accounts

Product
Format / Product & Description / Contact Information
Newsletter / “September 11, 2001: A Day to Remember” New Mobility by Josie Byzek and Tim Gilmer—here are the stories of two men, Ed Beyea and John Abruzzo--both wheelchair users--who were working on separate floors of the World Trade Center on Sept. 11, 2001. One lived and one died, but their stories remain as a tribute to the friends and coworkers who risked their lives to help them. /

Target Audience: Consumers with Various Disabilities:

Guidelines, Recommendations and Tips for Cold Temperatures

Product
Format / Product & Description / Contact Information
Tips / “Emergency Preparedness: Tips for Citizens with Special Needs” by The Kitsap County, Washington Department of Emergency Management— provides tips for citizens with disabilities during periods of severe cold spells, freezing or below freezing temperatures, ice and snow, and low wind chills. /

Target Audience: Consumers with Various Disabilities:

Guidelines, Recommendations and Tips for Earthquakes

Product
Format / Product & Description / Contact Information
Guide / “Prepare for What Will Happen” developed by Disabled People and Disaster Planning” (DP2)—a guide describing what to do before and during an earthquake. It also includes links to web pages that will provide more generalized information to help prepare for an earthquake. DP2 is a group of people primarily from Los AngelesCounty who met during 1996 and 1997 and formulated recommendations to reduce or eliminate problems with accessibility that many people with disabilities experienced after the Northridge Earthquake of 1994. /
Tips / 1) “Earthquake Tips for People with Disabilities”—includes: establishing a personal support network; conducting an "Ability Self-Assessment"; collecting supplies to keep at all times; collecting disability-related supplies for emergency kits; maintaining a seven-day supply of essential medications; keeping important equipment and assistive devices in consistent, convenient and secured places; and practicing assertiveness skills.
2) “Earthquake Tips for Creating an Emergency Health Information Card”—communicates to rescuers what they need to know if they find a person with disabilities unconscious or incoherent or need to quickly help evacuate the person. Details what card should contain, gives examples and recommends where to keep copies.
3)”Earthquake Tips for Collecting Emergency Documents”— details important information typically needed after a disaster.
4) “Earthquake Tips for People with Specific Disabilities”:

People with Visual Disabilities
People who are Deaf or Hearing Impaired
People with Communication and Speech Related Disabilities
People with Psychiatric Disabilities
People with Developmental or Cognitive Disabilities
People with Environmental Illness or Multiple Chemical Sensitivities
People who Use Life Support Systems
People with Mobility Disabilities
People with Psychiatric Disabilities
Service Animal and Pet Owners

/ (can be viewed online)
:
18 pages, $20. Item # 96-3
Send order to:
Resources
June Isaacson Kailes
Disability Policy Consultant
6201 Ocean Front Walk, Suite 2
Playa delRey, California90293-7556
Phone 310-821-7080, Fax 310- 827-0269

Tips / “Disabled People and DP2 Disaster Planning”—while this website deals with people with disabilities and access in earthquakes, it has useful information for other situations. "Disabled People and Disaster Planning" (DP2) is a group of people primarily from Los Angeles County who met during 1996 and 1997 and formulated recommendations to reduce or eliminate problems with accessibility that many people with disabilities experienced after the Northridge Earthquake of 1994. /
Training and Guide / “Living and Lasting on Shaky Ground: an Earthquake Preparedness Guide for People with Disabilities”—this 147-page guide provides practical and disability-specific information used as a preparation tool for individuals with disabilities, their friends, families and service providers. Guide also serves as a training tool kit for disability-related organizations who offer workshops on earthquake preparedness for people with disabilities. Topics include: understanding why preparation is important, creating practical plans, identifying resources, developing strategies and putting plans into practice. /

Target Audience: Consumers with Various Disabilities:

Guidelines, Recommendations and Tips for Fire Disasters

Product
Format / Product & Description / Contact Information
Tips / “Fire Safety” developed by the Tempe Fire Department— lists suggestions of ways in which to evacuate for individuals with mobility, visual, hearing, and mental impairments. It also includes suggestions on assistive devices and fire safety do’s and don’ts. /

Target Audience: Consumers with Various Disabilities:

Guidelines, Recommendations and Tips for Hurricanes

Product
Format / Product & Description / Contact Information
Guide / “Hurricane Preparedness for People With Disabilities or Mobility Limitations:Hurricane Planning And Preparations – A Necessity” developed by the Virginia BeachOffice of Emergency Management—provides information for people with disabilities on how to plan for a hurricane, evacuation, transportation, and shelter. /
Guide / “Hurricane Season Mitigation and Preparations Guide” developed by How Eliminating Limited Perceptions Unifies Us (HELPU Fire and Life Safety)—lists preparation ideas and a mitigation schedule calendar for stocking up on preparations and supplies for the hurricane and severe weather seasons. /
Tips / “Hurricane Planning for People with Special Needs”by Lee County, Florida Division of Public Safety (2001)—a tip sheet for people with special needs including information on how to plan before a hurricane hits, what to do if evacuated, and what to do after the storm. /

Target Audience: Consumers with Various Disabilities:

Guidelines, Recommendations and Tips for Terrorist Attacks

Product
Format / Product & Description / Contact Information
Article / “Unsafe Refuge: Why Did So ManyWheelchair Users Die on Sept 11?” by Josie Byzek and Tim Gilmer in New Mobility, December 2001,p21-22, 24—a concerted effort by the disability community is needed to increase awareness and overcome lax attitudes toward evacuation preparedness. This article includes a discussion on the use of evacuation chairs. /

Target Audience: Consumers with Various Disabilities:

Guidelines, Recommendations and Tips for Disasters in General

Product
Format / Product & Description / Contact Information
Article / Emergency Preparedness Issues for People with Disabilities Will Be Discussed—this article by John Williams discusses a webcast aired on April 30, 2004 of a panel meeting to discuss the needs of people with disabilities during an emergency. This webcast, the first of a series of town meetings, was aired by TVWorldwide.com on its HomelandDefenseTV channel ( The panel includes Eric L. Qualkenbush, Director of School of Environmental and Emergency Center for Terrorism Preparedness ( Michael L. Webber of the University of Findlay's Center for Terrorism Preparedness, Bill Brobst of the University of Findlay's School of Environmental and Emergency Management, and Ms.
Elizabeth Davis of the National Organization on Disability for its Emergency Preparedness Initiatives (EPI). Daniel Sutherland, Civil Rights & Civil Liberties, Department of Homeland Security (DHS) was invited to discuss DHS's plans to assist people with disabilities during a crisis. The panel discussed EPI's two objectives: 1) to make sure that the special needs of people with disabilities are adequately addressed prior to an emergency to minimize the adverse impact on them and their communities, and 2) to ensure that people with disabilities are included in the emergency planning process so they can offer their insights, knowledge, and resourcefulness. /
Checklist / “Emergency Preparedness for People with Disabilities” developed by the Arizona Office for Americans with Disabilities—this checklist includes suggestions on how to plan ahead in the event of a disaster, how to plan evacuation, tips for service animals and pet owners, and a list of important items to have on hand. /
Factsheet / “People with Disabilities” developed by the U.S. Fire Administration (USFA)—the USFA has developed factsheets geared toward people with disabilities and their caregivers, people with special needs, the visually impaired and the hearing impaired to help them increase their chances of surviving a fire by practicing proven fire safety precautions. USFA encourages individuals with special needs to read and use the fire safety tips on this Web page to help protect themselves and their home from fire. /
Guide / “Are You Ready? A Guide to Citizen Preparedness” developed by the Federal Emergency Management Agency (FEMA). Are You Ready?will help individuals prepare themselves and their families for disasters by providing a step-by-step outline on how to prepare a disaster supply kit, emergency planning for people with disabilities, how to locate and evacuate to a shelter, and even contingency planning for family pets. /
Guide / “Disaster Preparedness for People With Disabilities”—in 1984, the Los Angeles Chapter of the American Red Cross created a booklet titled “Disaster Preparedness for the Disabled and Elderly.” That booklet, which is no longer in print, served as the foundation for material contained in this 46-page guide designed for use by anyone who has a disability or who works with, lives with, or assists a person with a disability. Has information on possible disaster effects, assessing personal needs and abilities, suggestions about forming a personal support network, and fill-in-the-blank checklists. / and

Local Red Cross chapters can order in packages of 5 as stock number A5091 for a nominal fee. Also available on-line.
Guide / “Disaster Preparedness for People With Disabilities” Audio Cassette. Two standard cassette tapes in one package. Provides information from printed booklet (ARC 5091) in verbal form. /
Local Red Cross chapters can order as stock number A5091C for a nominal fee.
Guide / “Disaster Preparedness—Reasoning WHY Physical, Emotional and Financial Preparation for Disabled Citizens” developed by How Eliminating Limited Perceptions Unifies Us (HELPU Fire and Life Safety)—discusses the reasoning for disaster preparedness by people with disabilities. It includes information on physical, emotional, and financial preparations. /
Guide / “Emergency Evacuation Preparedness: Taking Responsibility For Your Safety, A Guide For People with Disabilities and Other Activity Limitations” developed by
The Center for Disability Issues and the Health Professions (CDIHP) at Western University of Health Sciences in Pomona, California—a 36-page guide to help people with disabilities better prepare for large or small-scale emergencies. The guide’s focus helps people with disabilities take responsibility for their own safety during emergencies and evacuations and work effectively with first responders. /
This Guide is available at no cost at , or to order a hard copy, send a check payable to: CDIHP for $24.00 (includes shipping, handling and applicable tax) to CDIHP, 309 E. 2nd Street, Pomona, CA 91766-1854. Contact CDIHP for pricing on bulk or international orders at Phone: (909) 469.5380, TTY (909) 469-5520, Fax: (909) 469-5407, Email: .
Guide / “Emergency Preparedness Guide For Citizens With Disabilities” developed by the city of Texas City, Texas— lists several things that can be done before a disaster hits in order to reduce its effects; describes the importance of developing a support system, emergency and medical information lists and disaster supply and first aid kits; and lists what to do during and after specific disasters such as tornadoes, floods, and hurricanes. /
Guide / Emergency & Disaster Preparedness for People with Disabilities—these guidelines were developed by the City of North Las Vegas Fire Department Division of Emergency Management to help ensure the well-being of citizens with special needs. /
Guide / “Emergency Preparedness for People with Disabilities” byCity of Los Angeles Department on Disability—this 46-page guide lists things that are good to have on hand before a disaster and provides special information for people with visual, mobility, and hearing disabilities, in addition to owners of service animals. /
Guide / Emergency Preparedness for People with Disabilities by the Ohio Legal Rights Service—this guide discusses how to plan for an emergency and rights of people with disabilities during emergencies and provides links to emergency preparedness information. /
Guide / “New York City’s Guide to Emergency Preparedness for Seniors and Persons with Disabilities”—this 16-page guide covers developing a personal plan; what to do if you are at home, work, or school; evacuation; and links to other resources. /
Guide / “Using a Generator When Disaster Strikes” developed with technical advice from the National Fire Protection Association (publisher of the National Electric Code®)—
includes information on what type of generator to choose and how to use a generator safely. /
Resources / Emergency Preparedness page of DisabilityInfo.gov—DisabilityInfo.gov, mandated by President George W. Bush’s New Freedom Initiative, is a gateway to the federal government's disability-related information and resources. This user-friendly Web portal contains links to information of interest to people with disabilities, their families, employers, service providers and other community members. This page provides links to fact sheets, plans, tips, and resources on emergency preparedness and people with disabilities. /
Resources / Resources for Emergency Planning Regarding Persons with Disabilities provided by the Research Information on Independent Living (RIIL)—this website lists links to websites that are sources of information for disaster preparedness for people with disabilities, as well as examples of information available from these websites. /
Tips / Basic Tips in Emergency Preparedness for Seniors and People with Disabilities, developed by the Bay Area Emergency Preparedness Coalition For Seniors and People with Disabilities—lists tips for before, during, and after a disaster such as what supplies to have on hand, how to prepare one’s house for disaster, and evacuation needs. /
Tips / “Disaster Preparedness for People with Disabilities” developed by the Federal Emergency Management Agency (FEMA)—this brief tip sheet discusses the importance of being prepared, lists what disaster supplies one should have on hand, and stresses the importance of creating a self-help network of relatives, friends or co-workers to assist in an emergency. Special tips are also given for people with a severe speech, language, or hearing impairment, as well as people using wheelchairs. /
Tips / “Disaster Preparedness for People with Disabilities” developed by The California Governor’s Committee for Employment of Disabled Persons—tips for people with disabilities on what to do to prepare to take care of themselves during emergency situations. /
Tips / “Disaster Preparedness for People with Disabilities” developed by The Columbia/Boone (Missouri) County Office of Emergency Management—provides tips for people with disabilities on how to prepare for emergencies, including the importance of developing a personal support system.
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Tips / “Disaster Preparedness and People with Disabilities or Special Health Care Needs”—this article in Iowa’s Early andPeriodic Screening, Diagnosis, and Treatment Program (EPSDT) Care for Kids Newsletter lists tips for preparing for a disaster, such as creating a disaster plan, setting up a support network, and educating members of the network about the disaster plan. /
Tips / “Emergency Preparedness for People with Disabilities”, developed by the Independent Living Resource Center of San Francisco—this booklet offers emergency preparedness tips for people with a variety of disabilities. Included are general tips, tips for creating an Emergency Health Inventory. /
Tips / “Emergency Preparedness for People with Disabilities, Trainer’s Manual”, developed by the Independent Living Resource Center of San Francisco--thisextensive earthquake preparedness Trainer's manual includes Tip Sheets for people with disabilities, training outlines, bibliography and background materials, a WP51 disk and PageMaker masters for copying Tip sheets. /
$20.00 plus postage and handling.Outline of four presentations $5.00
Tips / “Emergency Preparedness: Would You Need Special Help in an Emergency?” by the Vermont Center for Independent Living--lists tips on how to prepare for a disaster and on evacuation. /
Tips / Evacuation For People with Disabilities, developed by Chapman University in Orange, California—lists tips on evacuation of people with visual, hearing, and mobility disabilities. /
Tips / Get a Kit—developed by Ready.gov of the Department of Homeland Security, this list provides tips on how to be prepared for a disaster for those with special needs such as babies, adults, seniors and people with disabilities. /
Tips / In Case of an Emergency–Create a Plan—this article appears in the Winter 2005 issue of the AT Messenger, a quarterly newsletter developed by The Delaware Assistive Technology Initiative (DATI). It stresses the importance of developing a plan in case of emergency by people with disabilities and points to take into consideration when developing a plan. It also provides a link to the Delaware Emergency Management Agency (DEMA). /
Tips / “Prepare Yourself: Disaster Readiness Tips for People with Disabilities”—a pamphlet developed by the National Organization on Disability's Emergency Preparedness Initiative which states that all individuals, with or without disabilities, can decrease the impact of a disaster by taking steps to prepare before an event occurs. Included are many sample planning templates and checklists. /
Tips / “Preparedness Information for People with Disabilities” developed by the Virginia Department of Emergency Management—this brief tip sheet discusses the importance of developing a personal disaster plan and lists action steps to prepare for disaster, as well as online resources. /
Tips / “Preparedness for People with Disabilities” developed by the Pennsylvania Emergency Management Agency—provides tips for people with disabilities on how to prepare for disasters, including evacuation. /
Tips / “SpecialPopulations Emergency Preparedness Planning” developed by the Pennsylvania Department of Health—this list includes tip sheets geared toward children with special needs, owners of service animals, people who are hearing impaired and people who use life support systems, as well as people with cognitive disabilities,visual disabilities, environmental illness or chemical sensitivities, special medical needs, communication and speech related disabilities, psychiatric disabilities, and mobility disabilities. /
Tips / “Twelve Days of Christmas”—developed by the National Organization on Disability’s Emergency Preparedness Initiative, this version of theTwelve Days of Christmas includes twelve tips for people with disabilities on how to become prepared in the event of an emergency. EPI'sTwelve Days of Christmas was inspired by The Twelve Days of Christmas: Preparing Families for Disaster,fromthe web site ofthe Tallahassee, Florida chapter of the American Red Cross. /

Target Audience: Consumers with Various Disabilities: