Regional Audit of Rehabilitation Needs of Lung Cancer Patients

Regional Audit of Rehabilitation Needs of Lung Cancer Patients

This audit is focusing on the rehabilitation needs of all patients with lung cancer. We would be grateful if you would complete the following questions and return it to:

1) Palliative Care Community MDT

Not ApplicablePalliative Care ConsultantPalliative Care Associate SpecialistCNS communityCNS hospitalCNS hospicePhysiotherapistOccupational therapistSocial WorkerPharmacistPastoral Care WorkerOther

If other state below:

2) Please state main place of work

Select from listClatterbridge Centre for OncologyAintree Hospitals NHS TrustWoodlands CommunitySt. Johns CommunityMarie Curie inpatientWirral University Hospital TrustWoodlands inpatientWoodlands Day HospiceOther

If other state below:

3) Do you perceive that lung cancer patients discussed at your MDT have rehabilitation needs?

Select from listYes - oftenYes - sometimesYes - occasionallyNo - neverDon't know

In your opinion, what rehabilitation needs may patients with lung cancer experience?” (Please tick all that apply)

PainBreathing difficulties/coughFatigue/tirednessDysphagiaAnorexia/cachexiaWeight lossAnxiety/Stress

Impaired mobility/exercise toleranceImpaired functioning/activities of daily livingCommunication DifficultiesDifficulties with work/leisure

Equipment needsOther

If other please indicate below:

4) For lung cancer patients who are referred to rehabilitation services, what performance status would they tend to have? (please tick all that apply)

ECOG 0 or 1 (i.e. fully active / only restricted in physically strenuous activity)

ECOG 2 (up and about more than 50% of waking hours)

ECOG 3 (confined to bed or chair more than 50% of waking hours)

ECOG 4 (totally confined to bed or chair)

All of the above

5) At which phase of their illness, would lung cancer patients, who are discussed at your MDT, get referred to rehabilitation services? (please tick all that apply)

At diagnosis Pre-treatment Post treatment During palliative phase

At end-of-life Other – please state

6) Are patients rehabilitation needs discussed at your MDT?

Yes - oftenYes - sometimesYes - occasionallyNo - never

If No please state why:

Select from listNot MDT responsibilityNo timeNot consideredNot in-keeping with function of MDTNot qualified to discuss rehab needsPatients do not have rehabilitation needsNot important

Comment:

If Yes: Do you initiate referral of patients with lung cancer to rehabilitation services following discussion of their needs at your MDT?

Select from listRegularlyOccasionallyRarelyNever

Comment:

7) In your opinion who is most responsible for arranging referral of lung cancer patients to rehabilitation services?

Select from listLung Cancer Nurse SpecialistsCommunity Palliative Clinical Nurse SpecialistHospital Palliative Clinical Nurse SpecialistPalliative Care Medical TeamRespiratory Medical TeamAllied Health ProfessionalsLung MDTPalliative Care MDTGPDistrict NurseCommunity MatronOther

If other please state below:

8) Which of the following health care professionals can provide rehabilitation services for patients with lung cancer?(Please tick all that apply)

PhysiotherapistsOccupational TherapistsDietitians

Speech & Language TherapistsPodiatristsOrthotists (appliance officer)

Therapy RadiographersLymphoedema Therapists

Oral Health SpecialistsStoma TherapistsPsychosexual Councillor

Other

If other please state below:

9) In your opinion what barriers exist in referring patients with lung cancer to rehabilitation services?(Please tick all that apply)

Waiting listsNo services available

Don’t know what rehabilitation services are available locally

Don’t know how to referNo time to fill in referral forms

Patients don’t want rehabilitation services

Patients unlikely to benefit from rehabilitation services

Patients can manage rehabilitation needs independently

Comment

10) Do you consider rehabilitation beneficial for long term care in your patients with lung cancer?

Select from listYesNoDon't know

11) Do you feel the rehabilitation service at your trust is adequate?

Select from listYes NoDon't know

12) Do you have enough information regarding rehabilitation services in your locality to initiate referrals appropriately?

Select from listYesNo

Any other comments?