Breast Cancer – Patient Materials

Screening

Common Breast Changes: Things to Know

This 8-page publication answers the most common question women have: “What if my mammogram shows something abnormal?” Its message is that not all breast changes mean cancer, and describes common conditions, test results and follow-up care. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Breast Cancer Screening: PDQ Fact Sheet for Patients

This online resource gives a definition of screening, breast cancer and three ways to find breast cancer (mammogram, clinical breast exam and breast self-exam). It can be viewed and printed from:

Abnormal Results & Biopsy Information

Understanding Breast Changes: Health Guide for Women

This 42-page booklet is designed for women who prefer more detailed information, or those women having biopsies. It describes types of changes that are not cancer, abnormal mammogram results, follow-up testing, types of biopsies and results, follow-up care, diagnosis of cancer and getting support. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Diagnosis of Cancer

What You Need to Know About Breast Cancer

This 73-page booklet provides a thorough overview of breast cancer, from risk factors and screening, to cancer diagnosis, staging, treatment and follow-up care. Also provides a dictionary of common medical terms the patient will encounter. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Treatment Decisions

Breast Cancer Treatment: PDQ Fact Sheet for Patients

This online resource gives general breast cancer information, staging, an overview of treatment options, including inflammatory and recurrent breast cancer. It can be viewed and printed from:

Surgery Choices for Women With Early-Stage Breast Cancer

This 15-page booklet, available in both English and Spanish, uses a decision aid format and outlines 5 steps to help patients sort through complex questions pertaining to their specific cancer type and treatment options. It compares the three treatment options and answers common questions about breast-sparing surgery, mastectomy and mastectomy with breast reconstruction surgery. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

(English version)

(Spanish version)

Quick Reference: Doctors the patient will likely see for treatment
Breast-Sparing Surgery / Mastectomy Surgery / Mastectomy and Breast Reconstruction Surgery
  • Oncologist
  • Surgeon
  • Radiation oncologist
/
  • Oncologist
  • Surgeon
  • Radiation oncologist
/
  • Oncologist
  • Surgeon
  • Radiation oncologist
  • Reconstructive plastic surgeon

Breast Cancer – National Organizations

Federal or National Organizations

National Cancer Institute

  • Cancer Information Service
    Gives up-to-date information on cancer to patients and their families, health professionals, and the general public. Information specialists explain scientific information in plain language and respond in English or Spanish.

Toll-free: / 1-800-4-CANCER (1-800-422-6237)
TTY: / 1-800-332-8615
Chat online: /
click on "Need Help?" then "LiveHelp"

  • The National Cancer Institute's Web site contains information about cancer causes and prevention, screening and diagnosis, treatment, symptom management, and survivorship; clinical trials; statistics, funding, and training; and the NCI's programs and research activities.

NationalResearchCenter for Women & Families

Provides information, such as questions to ask your doctor and treatment options; geographic, financial, and personal issues influencing breast cancer surgery; and advantages and risks of breast reconstruction surgery.

Web site: /

Office on Women's Health

National Women's HealthInformationCenter
Provides information about breast cancer, including questions to ask your doctor.

Web site: /

Agency for Healthcare Research and Quality (AHRQ)

Provides information on breast cancer screening and prevention.

Web site: /

National Lymphedema Information

National Lymphedema Network

Provides education and guidance to lymphedema patients, health care professionals, and the general public by disseminating information on the prevention and management of primary and secondary lymphedema.

Phone: / 510-208-3200
Toll-free: / 1-800-541-3259
E-mail: /
Web site: /

Breast Reconstruction Surgery and Implants

American Cancer Society

Phone: / 404-320-3333
Toll-free: / 1-800-227-2345 (I-800-ACS-2345)
Web site: /

National Library of Medicine

Resources about breast reconstruction.

U.S. Food and Drug Administration

Center for Devices and Radiological Health
Information about breast implants.

Pain Control

National Cancer Institute

  • Cancer Information Service
    Gives up-to-date information on cancer to patients and their families, health professionals, and the general public. Information specialists explain scientific information in plain language and respond in English or Spanish.

Toll-free: / 1-800-4-CANCER (1-800-422-6237)
TTY: / 1-800-332-8615
Chat online: /
click on "Need Help?" then "LiveHelp"

  • The National Cancer Institute's Web site contains information about cancer causes and prevention, screening and diagnosis, treatment, symptom management, and survivorship; clinical trials; statistics, funding, and training; and the NCI's programs and research activities.

Cervical Cancer – Patient Materials

Screening

Cervical Cancer: What You Can Do To Protect Yourself

This 38-page booklet, written in both Spanish and English,contains basic facts about cervical cancer, causes, when to have a Pap test and payment information. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Cervical Cancer: What Vietnamese Women Should Know

This 19-page booklet, written in both Vietnamese and English, contains basic facts about cervical cancer, causes, when to have a Pap test and payment information. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Cervical Cancer Screening: PDQ Fact Sheet for Patients

This online resource gives basic information on cervical cancer screening and Pap testing. It can be viewed and printed from:

Abnormal Results & Biopsy Information

Understanding Cervical Changes: Health Guide for Women

This 24-page booklet is designed for women who prefer more detailed information, or those women having biopsies. It describes types of changes that are not cancer, abnormal Pap test results, follow-up testing, types of biopsies and results, follow-up care, diagnosis of cancer and getting support. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Diagnosis of Cancer

What You Need to Know About Cervical Cancer

This 55-page booklet provides a thorough overview of cervical cancer, from risk factors and screening, to cancer diagnosis, staging, treatment and follow-up care. Also provides a dictionary of common medical terms the patient will encounter. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Treatment Decisions

Cervical Cancer Treatment: PDQ Fact Sheet for Patients

This online resource gives general cervical cancer information, staging and an overview of treatment options, including recurrent cervical cancer. It can be viewed and printed from:

Cervical Cancer – National Organizations

[need more info from main cancer.gov list here]
Prostate Cancer – Patient Materials

Abnormal Results & Biopsy Information

Understanding Prostate Changes: A Health Guide for Men

This 21-page booklet serves as an introduction to the prostate and its function, common non-cancerous conditions, information about prostate cancer, its symptoms and testing for prostate cancer, including biopsy. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Diagnosis of Cancer

What You Need To Know About Prostate Cancer

This 55-page booklet provides a thorough overview of prostate cancer, from risk factors and screening, to cancer diagnosis, staging, treatment and follow-up care. Also provides a dictionary of common medical terms the patient will encounter. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Treatment Decisions

Prostate Cancer Treatment: PDQ Fact Sheet for Patients

This online resource gives general prostate cancer information, staging and an overview of treatment options, including recurrent prostate cancer. It can be viewed and printed from:

Treatment Choices for Men With Early-Stage Prostate Cancer

This 24-page booklet is a decision aid to help men sort through questions pertaining to early-stage prostate cancer and treatment. It compares the three treatment options (watchful waiting, surgery and radiation) and answers common questions about what happens during treatment, side effects and risks. Also gives questions to ask and tips for talking with the medical team. Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Radiation Therapy and You: A Guide to Self-Help

During Cancer Treatment

This 68-page booklet describes what to expect with all types of radiation therapy (internal and external) and information on managing side effects. . Brochures can be requested by calling NCI at 1-800-4-CANCER. The document can also be viewed and printed from:

Prostate Cancer – National Organizations

National Cancer Institute

You can find out more from these free NCI services:

Cancer Information Service (CIS)
Toll-free ...... 1-800-4-CANCER (1-800-422-6237)
TTY ...... 1-800-332-8615
NCI Online ......
Chat Online ......
Clinical Trials ......

Other Federal Resources

Medicare
For more information about Medicare benefits, contact:

Toll-free ...... 1-800-MEDICARE (1-800-633-4227)
Online ......

National Kidney and Urologic Diseases Information Clearinghouse
Toll-free ...... 1-800-891-5390
Online ......

Other Organizations

American Cancer Society Man-to-Man Program
This support group of the American Cancer Society offers advice on coping with illness and the side effects of treatment, along with newsletter archives and a directory of prostate cancer publications. Call toll-free 1-800-ACS-2345 (1-800-227-2345) or visit online at

American Urological Association Foundation
The AUA Foundation supports research; provides education to patients, the general public, and health professionals; and offers patient support services for those who have or may be at risk for a urologic disease or disorder. The Foundation provides information on urologic diseases and dysfunctions, including prostate cancer treatment options, bladder health, and sexual function. It also offers prostate cancer support groups (Prostate Cancer Network). Some Spanish language publications are available. Call toll-free 1-800-828-7866 or visit online at

CancerCare
CancerCare is a national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are provided by oncology (cancer) social workers and are available in person, over the telephone, and through the agency's Web site. A section of the CancerCare Web site and some publications are available in Spanish, and staff can respond to calls and e-mail in Spanish. Call toll-free 1-800-813-HOPE (1-800-813-4673) or visit online at

Fertile Hope
Fertile Hope is a national organization that provides reproductive information, support, and hope to cancer patients whose medical treatments present the risk of infertility. The organization offers fertility preservation financial assistance options for patients. Call toll-free 1-888-994-HOPE (1-888-994-4673) or visit online at

Prostate Cancer Foundation
The Prostate Cancer Foundation is a nonprofit organization that provides funding for research projects to improve methods of diagnosing and treating prostate cancer. It also offers printed resources for prostate cancer survivors and their families. The mission of the Prostate Cancer Foundation is to find better treatments and a cure for prostate cancer. Call toll-free 1-800-757-CURE (1-800-757-2873) or visit online at

Us TOO International
Us TOO International Prostate Cancer Education and Support Network is a non-profit education and support group organization with more than 325 chapters throughout the world. It provides men and their families with fellowship, peer counseling, and timely, personalized, unbiased, and reliable information about prostate cancer, enabling informed choices about detection, treatment options, and quality of life after treatment. Call toll-free 1-800-80-USTOO (1-800-808-7866) or visit online at

The Wellness Community
The Wellness Community gives free psychological and emotional support to cancer patients and their families. It offers support groups facilitated by licensed therapists, stress reduction and cancer education workshops, nutrition guidance, exercise sessions, and social events. Call toll-free 1-888-793-WELL (1-888-793-9355) or visit online at

Colorectal – Patient Materials

[need to layout yet]

(NIH Senior Health)

Colorectal Cancer – National Organizations

Coping With Cancer – General Resources

[this section has to be worked on yet to show the cover of the pub, brief description and ordering info; also, we need to discuss how inclusive we want this to be?]

Fatigue

Fatigue (PDQ®)
[patient][healthprofessional]

Pain

Pain (PDQ®)
[patient][healthprofessional]

Pain Control: A Guide for People with Cancer and Their Families

Understanding Cancer Pain

Other Complications/Side Effects

Lymphedema (PDQ®)
[patient][healthprofessional]

Nausea and Vomiting (PDQ®)
[patient][healthprofessional]

Sexuality and Reproductive Issues (PDQ®)
[patient][healthprofessional]

Sleep Disorders (PDQ®)
[patient][healthprofessional]

Nutritional Concerns

Nutrition in Cancer Care (PDQ®)
[patient][healthprofessional]

Eating Hints for Cancer Patients: Before, During, and After Treatment

Emotional Concerns

Anxiety Disorder (PDQ®)
[patient][healthprofessional]

Depression (PDQ®)
[patient][healthprofessional]

Normal Adjustment and the Adjustment Disorders (PDQ®)
[patient][healthprofessional]

Post-traumatic Stress Disorder (PDQ®)
[patient][healthprofessional]

Spirituality in Cancer Care (PDQ®)
[patient][healthprofessional]

Taking Time: Support for People with Cancer and the People Who Care About Them

Treatment-Related Issues

Chemotherapy and You: A Guide to Self-Help During Cancer Treatment

Helping Yourself During Chemotherapy

Radiation Therapy and You: A Guide to Self-Help During Cancer Treatment

Complementary and Alternative Medicine

When Cancer Returns

Clinical Trials Information

Understanding Supportive Care Trials

Supportive Care Trial Results

Search for Clinical Trials

Information for Caregivers and Loved Ones

When Someone You Love Is Being Treated for Cancer

When Your Parent Has Cancer: A Guide for Teens

When Your Brother or Sister Has Cancer: A Guide for Teens

Facing Forward: When Someone You Love Has Completed Cancer Treatment

When Someone You Love Has Advanced Cancer: Support for Caregivers

General Cancer Resources

Federal Agencies

National Cancer Institute
Provides current information on cancer prevention, screening, diagnosis, treatment, genetics, and supportive care. Lists clinical trials and specific cancer topics in NCI's Physician Data Query (PDQ®) database.

Web Site: /

Cancer Information Service
Answers questions about cancer, clinical trials, and cancer-related services and helps users find information on the NCI Web site. Provides NCI printed materials.

Phone: / 1-800-4-CANCER (1-800-422-6237)
TTY: / 1-800-332-8615
Web Site: /
Chat online: / Click on "LiveHelp."

Administration on Aging
Provides information, assistance, individual counseling, organization of support groups, caregiver training, respite care, and supplemental services.

Phone: / 1-202-619-0724
TTY: / 1-800-877-8339
Web Site: /

Centers for Medicare and Medicaid Services
Provides information for consumers about patient rights, prescription drugs, and health insurance issues, including Medicare and Medicaid.

Phone: / 1-800-MEDICARE (1-800-633-4227)
Web Site: / (for Medicare information)
or (other information)

Equal Employment Opportunity Commission
Provides fact sheets about job discrimination, protections under the Americans With Disabilities Act, and employer responsibilities. Coordinates investigations of employment discrimination.

Phone: / 1-800-669-4000
TTY: / 1-800-669-6820
Web Site: /

National Association of Area Agencies on Aging
Eldercare Locator
The Eldercare Locator is a nationwide directory assistance service designed to help older persons and caregivers find local resources for support. Areas of support include transportation, meals, home care, housing alternatives, legal issues, and social activities.

Phone: / 1-800-677-1116
Web Site: /

U.S. Department of Labor
Office of Disability Employment Policy
Provides fact sheets on a variety of disability issues, including discrimination, workplace accommodation, and legal rights.

Phone: / 1-866-633-7365
TTY: / 1-877-889-5627
Web Site: /

Private Organizations

Aging With Dignity
Provides information and materials regarding advance directives. You can order the document Five Wishes, which states your end of life decisions for your health care team, and friends and family members.

Toll-Free: / 1-888-5WISHES (1-888-594-7437)
Visit: /

AmericanCancerSociety
NationalCancerInformationCenter
Provides a variety of cancer information and support to patients, families, and caregivers. Also supports research, community education, and advocacy and public policy issues.

Phone: / 1-800-ACS-2345 (1-800-227-2345)
Web Site: /

CancerCare
Offers free support, information, financial assistance, and practical help to people with cancer and their loved ones.

Phone: / 1-800-813-HOPE (1-800-813-4673)
Web Site: /

Cancer Hope Network
Cancer Hope Network matches patients and families with trained volunteers who have recovered from a similar cancer experience.

Phone: / 1-877-HOPENET (1-877-467-3638)
Web Site: /

Family Caregiver Alliance
Family Caregiver Alliance addresses the needs of families and friends who provide long-term care at home.