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Appendix: Sample Survey Questions

  1. How many times in the past six months have you ordered genetic testing for patients?
  • None
  • 1-5 times
  • 6-10 times
  • 11-15 times
  • 16-20 times
  • More than 20 times
  1. In the past six months, how many times have your patients asked about genetic testing?
  • None
  • 1-5 times
  • 6-10 times
  • 11-15 times
  • 16-20 times
  • More than 20 times
  1. Do you have a geneticist/genetic counselor to whom you can refer patients?
  • Yes
  • No
  1. Have you ever received commercial advertisements from genetic testing laboratories?
  • Yes
  • No
  1. Have any of your patients ever:

5a.Declined genetic testing?

  • Yes
  • No

5b. Asked you not to document genetic information?

  • Yes
  • No

5c. Had genetic testing under a pseudonym?

  • Yes
  • No
  1. Have patients ever inquired about direct to consumer genetic testing (e.g., 23andme, Knome, etc.)?
  • Yes
  • No
  1. On a scale of 1-5 (with 1 very poor and 5 very good), how would you rate your knowledge of genetics?

7a. Personal Knowledge of Genetics

  • 1 (Very poor)
  • 2
  • 3
  • 4
  • 5 (Very good)
  1. To what extent do you agree or disagree with the following statements?

8a.I am confident in my knowledge of how to order/where to send tests.

  • Strongly Disagree
  • Somewhat Disagree
  • Neither Agree nor Disagree
  • Somewhat Agree
  • Strongly Agree

8b. My patients have a low understanding of genetics.

  • Strongly Disagree
  • Somewhat Disagree
  • Neither Agree nor Disagree
  • Somewhat Agree
  • Strongly Agree

8c. Genetic tests can psychologically harm patients.

  • Strongly Disagree
  • Somewhat Disagree
  • Neither Agree nor Disagree
  • Somewhat Agree
  • Strongly Agree
  1. Do you feel you could use more training in:

9a. How to interpret test results?

  • Yes
  • No
  1. On a scale of 1-5 (with 1 None and 5 High), to what degree would the following facilitate your effective use of genetic testing?

10a. Better understanding of statistics

  • 1 (None)
  • 2 (Very Low)
  • 3 (Low)
  • 4 (Moderate)
  • 5 (High)
  1. Compared with current practices in neurology, do you think genetic testing should be performed...?
  • More often
  • Less often
  • About the same