Web page corrections:

  1. Title: National cancer control and registration (NCCR)

Background: Cancer is one of the most important health problems worldwide.The cancer registry is an organization for the systematic collection, storage, analysis, interpretation and reporting of data on subjects with cancer. There are two main types of cancer registry: hospital-based and population based cancer registries Estimated cancer cases were unknown inSudan becauseof the absence of population- base cancer registry.The fist cancer registry was functional from the earlysixties (1960s) to the early eighties (1980s) It was based on histopathologicallyconfirmedcases diagnosed mainly at the National Health Laboratoriesof public health in Khartoum (Stack).

Along with a hospital based cancer registry in RICK since 1967to early 80sTotal of 60.138 patients were registered in Radiation and Isotope Center Khartoum (RICK) during the years 1966-2006. In the year 2007 about 4856 cancer patient were treated in (RICK). Sudan National Cancer Registry was established in May 2009.

Offices:

  • Data management office
  • Research office
  • Training office
  • M&E and Planning office.
  • Administrative office

Activities:

  • Hospital Visits: All governmental and privet hospitals were visits by the national cancer registry staff
  • Collaborative statisticians were assigning in each hospital to collect cancer data.
  • Conducted cancer registration form standardization workshop.
  • Assigned a coordinator in every governmental hospital.
  • Conducted training workshop for hospitals coordination statisticians.
  • Coordination with Non communicable diseases (NCD) for im PACT mission IAEA visit of Sudan- 2012.
  • Hosting of (African women in Science) visit- 2011.
  • Hosted jointly with NCD the WHO NCDs mission for Sudan (2013)

Cancer strategic plan: PDF file

Aims and objectives:

( Aims and objectives In cancer plan)

  • To determine the prevalence and incidence of cancer in Sudanese population
  • To establish and maintain good quality records of cancer cases in Sudan
  • To rise fund for cancer research.
  • To conduct research in cancer etiology in Sudan
  • To establish cancer prevention program.

Sources of information’s

  • Radiation and Isotope Center Khartoum (RICK)
  • Governmental and private Hospitals
  • National cancer institute(NCI), Wad madani, Sudan.
  • Private Clinics.
  • Histopathology , hematology and cytology laboratories.

Types and goals of Cancer registration:

  • Two major types of registries:
  1. Hospital-based registries,
  2. Population-based registries
  3. Cancer registration in Sudan depends greatly on the hospital-based recoding system
  4. Population –based registry:-
  5. Essential for assessing the context of cancer burden in a specified geographic area
  6. Cancer prevention
  7. Screening
  8. Early detection
  9. Determination of cancer rates and trends
  10. Patterns of care and outcomes
  11. Research
  12. Cancer Survival

Priorities:

Cancer prevention and control.

Capacity building

Expansion of registration in five states (in addition to Khartoum)

Improvement of cancer registration in health information system

Establishment of cancer information networking

Publicity (published cancer incidence and prevalence reports)

Provision of evidence-based data for breast cancer treatment

Surveys and screening in breast cancer

Identification of risk factors and risk population

Establishment of network between the center and States on cancer data collection and research.

Collaborate with the World health organization (WHO) and International agency of research on cancer, Lyon, France (IARC) in conducting research and capacity building.

Cancer registration methodology:

Sudan National cancer registry is designed to be pubulation base cancer registry which registered confirmed cancer cases. The aim of a population-based cancer registry is to collect information on

every case of cancer identified within a specified population over a given period of time. To ensure this, it is necessary to guarantee that the following basic

requirements are fulfilled before setting up a population-based cancer registry:

(a) Clear definition of the catchment population. The registry should be able to distinguish between residents of the area and those who have come from outside and it should be able to register cases in residents treated outside the area.

(b) Availability of reliable population denominators from the census or

other statistical offices.

(c) Generally available medical care and ready access to medical facilities, so that the great majority of cancer cases will come into contact with the health care system at some point in their illness and, therefore, will be correctly diagnosed.

(d) Easy access to case-finding sources such as hospitals, pathology departments, death certificates and other sources of clinical data within the catchment area and in the surrounding areas.

Data collection:

Data was collected using active and passive methods. The information is collected from these sources by either active collection or passive reporting. Active collection involves registry personnel actually visiting the different sources and abstracting the data on special forms. This is the usual method in registries in developing countries. Passive reporting involves health-care workers completing the notification forms developed and distributed by the registry, or sending copies of discharge abstracts to the registry.

registry to each patient. If a patient has more than one primary tumour, thesame number is given to each tumour. Multiple primaries are then distinguished on the basis of their incidence date and their topography and morphology.

Other identification items such as name, sex and date of birth (or, approximate age, if the date of birth is not known) are important to avoid multiple registrations of the same patient or tumour, to obtain follow-up data and to conduct any type of record linkage. Patient’s usual address is essential for

establishing the residence status, to exclude all non-residential patients, to conduct analysis by area of residence and for follow-up of the patients. Data on ethnicity is important in populations containing distinct ethnic groups. The incidence date is primarily the date of first consultation or admission

to a hospital or clinic for cancer, as this is a definite, consistent and reliable point in time which can be verified from records. Quality assessment of data was conducted to confirm completeness and its validity before data entry. Missing information forms were getting back to source to complete data. Data was entered and analyzed using CanReg 5 program that is recommended by WHO.

Staff:

Director:

Dr.Ahmed Hashim M. Salih

Head of National Cancer Registry

MD, clinical doctorate dental public health Sudan, medical specialization board

Email:

Tel: 00249123390222

DR. Omer…….

Manager Deputy

Qualifications: University of Joba- MBBC

E_mail:

Ommniyah Elfatih Yousif

Position: Researcher

Master degree of Molecular Biology Institute of Endemic Diseases, University of Khartoum

Email:

Ammar Abdalla Gismaseed

Public health officer

BSc Khartoum University

E-mail:

Mona Siddig Muhammed Numairy

Statistician

MSc. University of Khartoum

Email:

Hamza Abdelbagi

BSc University of Khartoum, Faculty of Economics

Public health officer

Email:

Salah……….

Administration office

Abdelaziz Dfaalla

Statistician

Sarah Ali Hassenf

Statistician

BSc. Omdurman Islamic University , faculty of Economics

E.mail:

Nissren Kojaly

Statistician

BSc of Economic sciences

International Events:Photos

  • IARC summer SCHOOLcourse, Lyon, France (2010_2011_2012)-
  • AORTIC meeting, Cairo, Egypt (2011)
  • Cancer Survival Course , London school of hygiene and tropical medicine, London, UK (2010-2013).
  • Cancer Registration Training Course, Izmir- Turkey (2013).
  • Regional meeting on Cancer Control and Research Priorities, Doha- Qatar (2013).