The 3rd Qualitative Research on Mental Health Conference
“The disabled self: theoretical and empirical approaches to stigma and recovery”
Jubilee Campus, the University of Nottingham, EnglandWednesday August 25th – Friday August 27th 2010
Wednesday PM / This afternoon session overlaps with theBritish Psychological Society's Qualitative Methods in Psychology Section (QMiP) Annual Conference 2010
which will have been held on the same site during earlier days of the week. The two sets of organisers have worked together to arrange a conjunction between these conferences. There is a clear overlap of interests and this joint session will be an opportunity to meet one another and create some new connections.
14.00 - 15.00 / Plenary: Sue Wilkinson
Sue is Professor of Feminist Studies at LoughboroughUniversity. She is Editor-in Chief of Feminism and Psychology: An International Journal. Her books include Heterosexuality (1993), Representing the Other (1996)and Feminist Social Psychologies: International Perspectives (1996). She has authored numerous peer reviewed publications concerning Conversation Analysis, Equal Marriage, Feminism and Gender, Focus Group Methodology, Health and Illness, and Sexualities. Sue's presentation will be the British Psychological Society's Qualitative Methods in Psychology Section Winners Event. Her final title will be announced.
15.00 - 15.15 / Break
15.15 - 16.15 / Plenary: Betsy Ettore
An autoethnography of talking with women drug users: the need for researchers' reflexivity as sensitising the 'I'
Elizabeth (Betsy) Ettorre holds a PhD in Sociology from the London School of Economics. She is currently Professor of Sociology in the School of Sociology and Social Policy, University of Liverpool. Over the years, she has developed a focus on women and health with specific interests in reproduction, drugs, sexuality, embodiment, depression and most recently, autoethnography. Her most recent publications are:
Culture, Bodies and The Sociology of Health (Ashgate, 2010) and Revisioning Women and Drugs: Gender Power and the Body (Palgrave 2007).
16.30-17.30 / Plenary: Andrew Roberts
Andrew is responsible for the website StudyMore which presents work by the Survivors History Group; collective methods of qualitative research by mental health systems users and survivors. This is a unique collection of material illustrating, amongst other things, experiences of UK mental health services from the 19th century onwards. His final title will be announced
Thursday AM / 9.10-9.15 / Opening Remarks
9.15-9.55 / Plenary: Richard Jenkins
What interactionism can teach us: towards a model of distributed vulnerability
Richard is Professor of Sociology, University of Sheffield, England and author of Social Identity, now in its third edition.
10.00-11.00 / Papers A / Team working in Mental Health
Stigma 1 / Recovery 1 / Constructions 1
Angela Sweeney
Social Care Institute for Excellence, London, England
Feeling afraid: How stigma, discrimination and powerlessness lead to fear in the lives of service users / Mary Leamy
King’s College London, England
A conceptual framework for personal recovery in mental health / Laura McGrath
London South Bank University, England
The role of space in service users' experiences of community mental health care / Contributions from Aston Business School, the National Mental Health Development Team, the National Development Team for Inclusion and Real World Group, Bradford School of Management, England
Dawn Leeming
University of Huddersfield, England
Managing shame in relation to psychiatric diagnosis
/ Kati Jane TurnerUniversity of London, England
Developing an integrated understanding of recovery and PD through collaborative research / Anthony Papathomas
Loughborough University, England
The role of narrative incoherence in the persistence of mental illness
Lynne McCormackUniversity of Nottingham, England
The humility of shameful growth:Decades of betrayal following modern warfare. A phenomenological interpretation / Kaisa Ketokivi
University of Helsinki, Finland
The wounded self and the relational dynamics of agency / Barbara Schneider
University of Calgary, Canada
Hearing (our) Voices: Recovering the self through participatory action research
Jonathan Leach
The Open University, England
Students with mental health issues: managing stigma and identity / Simon Bailey
University of Nottingham, England
Multiple meanings of recovery among inpatient mental health service users / Lee Quinney
University of Glamorgan, Wales
The social location of personality disorder
11.00 – 11.15 / Break
Thursday AM / 11.15 – 11.55 / Plenary: Laura Griffith
Laura is responsible for the module concerning Schizophreniaon the website Healthtalkonlinefor the health charity DIPEx. DIPEx has a unique database of qualitative personal and patient experiences. Laura has been interviewing individuals from a wide variety of backgrounds with the diagnosis of schizophrenia. Her final title will be announced.
12.00 – 13.00 / Papers B / Team working in Mental Health continued
Stigma 2 / Recovery 2 / Constructions 2
Eleanor Wilson
University of Nottingham, England
Secrecy and silence in Huntington’sdisease / Lynn Tang
The University of Warwick, England
Exploring the social conditions for recovery:the experience of Chinese mental health service users in the UK / Hosam Abed
Nottinghamshire Healthcare NHS Trust, Nottingham, England
What factors affect the lifestyle choices of people with a diagnosis of schizophrenia? / Contributions from Aston Business School, the National Mental Health Development Team, the National Development Team for Inclusion and Real World Group, Bradford School of Management, England
Sarah Hamilton and Valdeep Gill
Rethink, London, England
How do peer interviewers impact the data? A comparative discourse analysis of interviews carried out by peer interviews and non-peer interviewers / Renata Kokanovic
MonashUniversity, Melbourne, Australia
Postnatal depression: The journey to recovery / Beverley Smith
Birmingham University, England
Social inclusion or further exclusion? An exploration of the effect of UKmental health
Linda McMullen
University of Saskatchewan, Saskatoon, Saskatchewan, Canada
Maybe yes, maybe no: Arguments about stigma and depression in interviews with family physicians / Robert Mackay
RobertGordonUniversity, Aberdeen, Scotland
Overcoming stigma through a storied approach to recovery:The use of personal narratives on the journey to wellbeing / Caroline Laker
Service User Research Enterprise, London, England
Staff and service user views of acute settings
Alireza Momeni
IranUniversity of Medical Sciences, Tehran
Factors influencing mental illness stigma in Iran: A qualitative study / Theo Stickley
University of Nottingham, England
The arts, identity and belonging: A longitudinal study / Jane Youell
University of Northampton, England
Living with dementia: Accounts of intimacy and relationship in older couples experiences
Thursday PM / 14.00 – 14.40 / Plenary: Jan Wallcraft
The capabilities approach in mental health - what is it, and what are the implications for research and outcome measurement?
Jan is Visiting Fellow at the Centre for Mental Health Recovery at the University of Hertfordshire, England, Honorary Fellow at the Centre of Excellence in Inter-Disciplinary Mental Health at the University of Birmingham, England, a service-user researcher with long experience and
co-editor of Mental Health Still Matters.
14.45 – 15.45 / Themed Sessions
Michelle Lloyd
and Colleagues
Equally Connected, Health in Mind, Scotland
Learning from black and minority ethnic communities to improve mental health and well-being
Details to follow / Jarl Wahlström
and Colleagues
University of Jyväskylä, Finland
Multiple displays of agency in counselling and therapy talk
Paper 1
Jarl Wahlström
Department of Psychology
University of Jyväskylä, Finland
Multiple displays of agency in counselling and therapy talk
Paper 2
Minna-Leena Pulkkinen
Outpatient Mental Health Services, City of Tampere, Finland
Narration of repeated drunk driving in mandated counseling –analysis of agency positions
Paper 3
Katja Kurri
Finnish Association for Mental Health Education Centre, Psychotherapy Clinic, Helsinki, Finland
You me and ‘the illness’. Moral order and agency in couple therapy
Paper 4
Leena Ehrling
Finnish Association for Mental Health Education Centre, Psychotherapy Clinic, Helsinki, Finland
Viewing agency talk from two different perspectives / Michael Larkin
and Colleagues
The University of Birmingham, England
The phenomenology of caring: culture, meaning and experience
Paper 1
Michelle Palmer, Karen Barton, Mark Bernard, & Michael Larkin,
University of Birmingham, England
Exploring the meaning of caring: insights from Written Emotional Disclosure data.
Paper 2
Leah Tomkins & Virginia Eatough,
Birkbeck University of London, England
Care[e]r: What does it mean to balance work and care?
Paper 3
Divya Chadha & Jan Oyebode,
University of Birmingham, England
South Asian carers' views of places of care for their relative with dementia.
Paper 4
Kuljit Heer, John Rose, Ivan Burchess, & Michael Larkin,
University of Birmingham, England
The cultural context of care giving: South Asian carers’ experiences of caring for a child with developmental disorders. / Eugenie Georgaca
and Colleagues
AristotleUniversity of Thessaloniki, Greece
Dimensions of voices and silences in qualitative mental health research
Paper 1
Pauline Mottram
University of Liverpool, England
Dialogues and silences between refugees and asylum seekers and statutory mental health services
Paper 2
Odysseas Anastasopoulos and Eugenie Georgaca
Psychiatric Hospital of Thessaloniki and AristotleUniversity of Thessaloniki, Greece
Exploring the contribution of participants’ perspectives to mental health practice: An ethnographic study of physical restraint in a psychiatric unit
Paper 3
Evrinomy Avdi
AristotleUniversity of Thessaloniki, Greece
Voices and silences in therapy: Examining the not-said in a family therapy
Paper 4
China Mills
Manchester Metropolitan University, England
Recovering governable ‘souls’: The ‘economic tribunal’ of recovery
15.45 – 16.00 / Break
16.00 – 16.40 / Plenary: Swaran Singh
‘It was a relief knowing’: Ethnic and cultural determinants of help-seeking in first episode psychosis
Swaran is Professor of Social and Community Psychiatry, University of Warwick, England, and Consultant Psychiatrist in the Early Intervention Service, Birmingham & Solihull Mental Health Foundation Trust. He is leading on several national research programmes including the:
ENRICH Programme grant to improve pathways to care for Black and Minority Ethnic communities, AMEND project to assess the impact of the Amendments to the Mental Health Act (2007), ENDEAVOUR trial to improve vocational outcomes in early psychosis and TRACK study on the transition of care from child to adult mental health services.
16.50 – 17.30 / Plenary: Marius Romme
Hearing voices: What does the experience itself teach us?
Marius is renowned for his work with Sandra Escher in establishing the Hearing Voices Network. Marius will give a keynote address drawing on material also found in the recently published Living With Voices. 50 Stories of Recovery in which individuals describe how they have altered relationships with unwelcome voices, and recovered their sense of self.
Friday AM / 9.10 – 9.55 / Plenary: Anne Rogers
Using qualitative research to understand change in the management and ‘work’ of mental health
Anne is Professor of the Sociology of Health Care and Head of the Primary Care Research Group, University of Manchester, England; co–author of A Sociology of Mental Illness, other books and papers and currently, qualitative studies and sociologically informed processes in the area of long term condition management.
10.00 – 11.00 / Papers C
Stigma 3 / Recovery3 / Professional Perspectives 1 / Experiences 1
Christopher Newell
Cornwall NHS, England
Dis-abling Self,
en-abling personhood; a theological and experiential perspective of the relational
/ Rubina JasaniENRICH Programme, Birmingham, England
‘I am in my own territory when I’m at home’:Shifting meanings of geographies of care / Alberto Diaz
State University of Campinas, Sao Paulo, Brazil
Experience, narrative and knowledge: the perspective of the patient and of the psychiatrist / Chrys Muirhead
Peer Support Fife, Scotland
Navigating the System
Dariusz Galasinski
University of Wolverhampton, England
Fatherhood and psychosis: An exploratory study / Sonja Antoine
University of Northampton, England
‘Jus’ how me pick up me roof jus’ so they want me to pick up me life too, you hear dat’A thematic analysis of the experiences of adolescents following hurricane Ivan in Grenada / Kristina Bennert
University of Bristol, England
Obstacles to making shared decisions about treatment for depression in primary care: the views of doctors and patients / Jutyna Ziolkowska
WroclawFaculty, Poland
The patients’ perception of illness manifestations during the psychiatric interview
Ulla Buchert
Rehabilitation Foundation, Helsinki, Finland
Immigrants and equality within the Finnish Mental Health System / Vania Ranjbar
The University of Edinburgh, Scotland
“Set me Free...”; The role of belief, blame, and respect when recovering from sexual abuse / Lucy Holmes
Missing People, London, England
Missing: Whose decision? Consent, capacity and confidentiality for missing adults with mental health problems / Rebecca Hutten
University of Sheffield, England
Patient experience of the ‘Improving Access to Psychological Therapies’ (IAPT) Initiative: first steps towards a psycho-social understanding
Julie Ridley
University of Central Lancashire, England
A Qualitative approach to understanding experiences of compulsion: A cohort study of early experiences of the Mental Health (C&T) (Scotland) Act 2003
11.00 – 11.15 / Break
Friday AM / 11.15 – 11.55 / Plenary: Bradley Lewis
Narrative psychiatry: How stories shape clinical encounters
Bradley Lewis is Associate Professor at NYU's Gallatin School of Individualized Study with affiliated appointments in the Department of Psychiatry and the Department of Social and Cultural Analysis. He is the author of Moving Beyond Prozac, DSM, and the New Psychiatry: Birth of Postpsychiatry and Narrative Psychiatry: How Stories Shape Clinical Practice (forthcoming).
12.00 – 13.00 / Papers D
Young People’s Mental Health 1 / Women’s Mental Health 1 / Experiences 2 / Professional Perspectives 2
Mervi Issakainen
University of Eastern Finland
Young people's views of their depression in relation to the concept of illness / Jennifer Casson
University of Liverpool, England
Talk about Inclusion: The views of women with mental health needs / Jeremy Dixon
University of the West of England, Bristol
Service Users subject to s. 41 of the Mental Health Act 1983 - their views of risk and risk assessments / Victoria Stanhope
New York University, USA
Provider perspectives on the relationship between housing and mental health needs
Samuel Thomson
Nottinghamshire Healthcare NHS Trust, Nottingham England
Adolescents with a diagnosis of Anorexia Nervosa: Primary caregivers’ experience of recognition and deciding to seek help / Kristin Klindworth
University of Northampton, England
Culture, faith and embodiment: Young British Muslim women’s accounts of corporeal identities and eating practices / Lesley-Ann Smith
University of Northampton, England
‘Mad, bad and dangerous to know’: the pervasive nature of socio-medical boundaries within mental health day centres / Lee Quinney
University of Glamorgan, Wales
The social location of Personality Disorder
Emma Lindley
University of Manchester, England
Adolescent understandings of mental illness and the development of anti-discrimination education / Virletta Bryant
Coppin StateUniversity, Baltimore, Maryland, USA
Crisis of faith: Religion and depression among African American women / Cheryl Hunter
University of Manchester, England
“I can’t bring it into my own mind, why it’s all happened, why it could’ve happened at that time” – exploring the experience of self and services after self-harm / Bridget Roberts
MonashUniversity, Melbourne, Australia
Meanings of ‘dual diagnosis’ policy for services and sufferers
Tamara Kayali
University of Cambridge, England
Making Sense of melancholy: the Role of perceived triggers in women’s experiences of Depression / Kristian Pollock
University of Nottingham, England
‘Being suicidal’ as a coping mechanism: the presentation of suicidality among callers to a national emotional support helpline / Eugenie Georgaca
AristotleUniversity of Thessaloniki, Greece
Psychiatrists’ views on the treatment of persons with dual diagnosis: a study in mental health and drug rehabilitation services of the Psychiatric Hospital of Thessaloniki
Friday PM / 14.00 – 14.40 / Plenary: Julie Repper
The impact of policy on practice: Using organisational case studies to assess the implementation of mental health nursing policy
Julie is Associate Professor and Reader in the School of Nursing at the University of Nottingham, England, and Recovery Lead, Nottinghamshire Healthcare NHS Trust. She is co-author of Social Inclusion and Recovery: A Model for Mental Health Practice, other publications and currently reporting upon an evaluation of implementing the Chief Nursing Officer’s Review of Mental Health Nursing.
14.45 – 15.45 / Papers E
Womens’ Mental Health 2 / Experiences 3 / Young People’s Mental Health 2 / Professional perspectives 3
Jodie Allen
University of Cambridge, England
From “thinspiration” to narrative therapy: How individuals with eating disorders use ED memoirs in recovery / Roy Langmaid and Nicky Forsythe
Market Research Society, London, England
Therapy Retail: Can qualitative market research amongst users help deliver better outcomes in therapy? / Amy Wadlow and Jane Callaghan
University of Northampton, England
Communication between young people with autism and their care-givers / Mark Freestone
North East London Forensic Personality Disorder Service, England
Rehabilitating ethnography into forensic mental health
Silvia Krumm
Ulm University, Germany
Biography and desire for children among women with mental disorders / Eli Buchbinder
University of Haifa, Israel
Spouses’ coping with the first psychiatric hospitalization of their partner / James Costelloe & Rachel Maunder
LlanarthHospital, Gwent, Wales and the University of Northampton, England
Using theraplay to address attachment difficulties in adoptive families: exploring parent, child and therapist perspectives / Michelle La France
St. Thomas University, New Brunswick, Canada
Mental illness as ‘brain disease’: The promise and perils of a biomedical narrative for reducing stigma
Jane Callaghan
University of Northampton, England
Working with 'the community': Student accounts of community based work in South Africa / Tony Gill
Leeds University, England
The lived experiences of people with Schizophrenia prescribed atypical antipsychotic medication / Rivka Tuval-Mashiach
Bar-IlanUniversity, Tel Aviv, Israel
In the eye of the holder: Parents coping with a child's eating disability / Deivisson Vianna
State University of Campinas, Sao Paulo, Brazil
Mental health evaluative research: instruments to improve psychotropic drugs’ use and training of mental health workers
Patsy Staddon
University of Plymouth, England
Stigma and delight: making sense of women’s alcohol use / Sanna Rikala
University of Tampere, Finland
Middle-aged Women Negotiating the Meanings of Depression
15.45 – 16.00 / Break
Closing Remarks