In Person Support Meetings
USA and Canada
THE MULTIPLE SYSTEM ATROPHY (MSA) COALITION, INC.
9935-D Rea Road #212, Charlotte, NC 28277 USA
Toll free: 1-866-737-4999 or 1-866-737-5999
Contact Us or Find us on Facebook
DONATE NOW
“United to Defeat MULTIPLE SYTEM ATROPHY”The Multiple System Atrophy (MSA) CoalitionTM is a 501(c)3 charitable organization
(EIN: 74-2926378) devoted to a four pillar mission:
• Supporting patients and caregivers affected by multiple system atrophy
• Educating patients, caregivers and healthcare professionals
• Financing and facilitating research aimed to identify a cause and find a cure for MSA
• Advocating for issues important to the MSA community, including creating greater awareness
SUPPORT
The Multiple System Atrophy Coalition offers a toll free support line staffed by former MSA caregivers.
Contact:Larry Kellerman
Toll free US and Canada: 866-737-5999
Please Visit our MSA Resources Page / EDUCATION
The MSA Coalition hosts an annual conference for MSA patients and families (usually October) in a different US city each year.
See our YouTube Channel for past conference recordings. DVD’s of past conferences are available to order, just Contact Us
Download: “MSA - What you Need to Know”
RESEARCH
The Multiple System Atrophy Coalition is the leading nonprofit funder of global MSA research. Since 2013 we have funded over $1.25 million in research projects. Find out more here.
Patients please register in the Global MSA Registry / ADVOCACY & AWARENESS
The MSA Coalition highlights the month of March as MSA Awareness Month and October 3rd as World MSA Day. As a member of the National Organization for Rare Disorders and the Coalition of Patient Advocacy Groups we stay abreast of issues important to the MSA community.
BOARD OF DIRECTORS
Chair / Cynthia Roemer / Howell NJ USA / 866-737-4999x207 /Vice Chair / Don Crouse / Charlotte NC USA / 866-737-4999x203 /
Treasurer / Carol Langer / Boston MA USA / 866-737-4999x205 /
Secretary / Pam Bower / Halifax NS CANADA / 866-737-4999 x204 /
Philip Fortier / Detroit MI USA / 866-737-4999x206 /
Larry Kellerman / Washington IL USA / 866-737-4999 x209 /
Patient Representative / Hadley Ferguson / Missoula MT USA /
Steve Klisares / IL USA /
Neil Versel / Chicago IL USA /
SCIENTIFIC ADVISORY BOARD
Chair / David Robertson, M.D. / Nashville TN USA /Thomas Chelimsky, M.D. / Milwaukee WI USA /
Phillip Low, M.D. / Rochester MN USA /
Steven Vernino, M.D., Ph.D. / Dallas TX USA /
Gregor K. Wenning, M.D., Ph.D. / Innsbruck Austria /
Note: The following list represents support groups compiled by the MSA Coalition that are designated for individuals dealing with MSA and/or other related neurological disorders. In our effort to support MSA patients and their care partners everywhere, we are pleased to provide information and resources about MSA to all the groups listed. We welcome friendships with all, especially groups and organizations that offer support to thosediagnosed with autonomic and movement disorders. Every effort is made to ensure meeting times & dates are accurate, however we do suggest that you contact the facilitator first before attending a meeting for the first time.
UNITED STATES
ALABAMA
CHICKASAW
Informationupdated as of Dec 2016: No Meeting Phone/email Support Only
Contact: JanieceNaberMartindale 251-300-1196
ARKANSAS
LITTLE ROCK
Information updated as of Dec 2016: For anyone affected by PSP,CBD or MSA
Location: Alzheimer’s Arkansas 201 Markham Center Drive, Little Rock, AR 72205 (ask front desk for room details, 501-224-0021
Meeting Time: 4th Thursday of every months from 1:00pm-2:30pm
Facilitator: Randi Haley 870-703-6417
ARIZONA
GILBERT
Informationupdated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Tandy King
CALIFORNIA
BAKERSFIELD
Information updated as of Dec 2016: Anyone affected by PSP,CBD, MSA
Location: Denny’s restaurant, Banquet Room, 8710 Rosedale Highway, Bakersfield CA
Meeting Time: 1st Wednesday of every month from 1:00pm-3:00pm
Facilitator: Cathy Nichols
BURLINGAME
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Candy Welsh
FOUNTAIN VALLEY
Information updated as of Dec 2016: For family members and caregivers dealing with Atypical PD+ Disorders
Location:Orange coast Memorial Medical Center, Classroom C, 9920 Talbert Ave, Fountain Valley, CA 92708
Facilitator: Justin Aquines 714-907-0074
FREMONT
Non-profit for MSA
Cure MSA – Kathy Shih Memorial Foundation
P.O. Box 15088
Fremont, CA 94539 USA
Contact: Lily Shih (Executive Director)
FREMONT
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Sandy Bierman 510-656-6897
Lily Shih 510-226-0453
GOLETA
Information updated as of Dec 2016: No Meeting Phone/email Support Only after 11am EST
Contact: George Relles 805-683-4829
IRVINE
Information updated as of Dec 2016: For patients, caregivers and families affected by Parkinson’s, PSP, CBD, MSA and other atypical Parkinsonian disorders.
Location: Atria Woodbridge Assisted Living, 1 Witherspoon, IrvineCA 92604
Meeting Time: Every Tuesday 10:30am -12:00pm
Location: Lakeview Senior Center, 20 Lake Road, Irvine, CA 92604
Facilitator: Don Perdue
LIVERMORE
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Carol
LOS ANGELES
Information updated as of Dec 2016: The Los Angeles Parkinsonian Disorders Supportforpeople with PSP, CBD, MSA, and PD and theirfamily members& friends
Location: UCLAMedical Plaza Bldg. 300 in the Marisa Leif Conference Room on the 3rdfloor,Los Angeles, Calif.
Meeting Time: 1st Friday of every month from 2:00pm-4:00pm
Facilitator: Loretta Mazorra RN, NP, MN,
To RSVP and for Further Information contactDolly r phone: 310-206-2154.
Note: Our 2017 meetings will begin on February 3rd
MODESTO
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Janeice Partridge
NORTHERN/SAN MATEO
Information updated as of Dec 2016: Neurodegenerative movement disorder group (MSA PSP, CBD, etc.) – caregivers only. Contact facilitator for more info.
Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404
Meeting Time(s): Every six weeks (call or e-mail for schedule) from 5:00pm - 7:00pm
Facilitator: Robin Riddle 650-814-0848
SACRAMENTO
Information updated as of Dec 2016: For caregivers dealing with PSP, CBD, MSA and Parkinson’s
Location: Shriner’s Hospital on the UC Davis Medical Center Campus, 7th Floor Board Room,
2425 Stockton Blvd, Sacramento, CA
Meeting Time 4th Wednesday of every month 7:00pm-9:00pm
Facilitator: Edward Fargusson. He can be reached through the Alzheimers Association Sacramento Phone: 916-930-9080
SAN DIEGO
Information updated as of Dec 2016: For patients/caregivers dealing with Atypical Parkinsonian Disorders like MSA, PSP, CBD, OPCA, SND, SDS
Location: University of California San Diego (UCSD), East Campus, Medical Center Modular 1 (MCM1)Room 140 (conference room)9423 Health Sciences Dr, La Jolla, CA 92037
Meeting Time(s): Third Monday of each month at 1 pm
Facilitator:Darlene Gerow 619-806-9649
SAN DIEGO
Information updated as of Dec 2016: For ONLY caregivers dealing with Atypical Parkinson Disorders (MSA, PSP, CBD, OPCA)
Location: Conference RM Tri City Wellness Center, 6250 El Camino Real, Carlsbad, CA 92009
Meeting Time(s): Every other month on the first Wednesday from 11:00am - 1:00pm
Facilitator: Judy Chamuler 619-788-3584
Note Next Meeting: January 4, 2017.
SANTA BARBARA
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Suzanne Grimmesey
COLORADO
DENVER/ENGLEWOOD
Information updated as of Dec 2016: Neurodegenerative movement disorder group (MSA, PSP, CBD)
Location: Johnson Adult Day Center, 3444 South Emerson St., Englewood, CO 80113
Meeting Time(s): 2nd Friday of each month from 10:00am - 12:00pm for Patients/Caregivers
4th Friday of each month from 10:00am-12:00pm for Caregivers only
Facilitator: Helenn
JOHNSTOWN/LOVELAND
Information: MSA, PSP, CBD Support Group
Location: Northern Colorado Rehabilitation Hospital 4401 Union Street
Johnstown CO 80528
Meeting Time:2ndFriday of each month from 1:00pm - 3:00pm
Facilitator: Ruth Fletcher-Carter
FLORIDA
JACKSONVILLE
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Shirley Snyder 904-207-5501
SOUTHEAST/DEERFIELD BEACH
Information updated as of Dec 2016: For patients/caregivers/families affected by MSA, PSP, CBD and related diseases
Location: North Broward Medical Center, 201 E. Sample Road, Deerfield Beach, FL 33064
1stFloor, Classrooms 7&8 (for directions only: 954-941-8300)
Meeting Time(s): Contact Facilitator for more info
Facilitator: Paul
SOUTHWEST/NAPLES
Information updated as of Dec 2016: For patients/caregivers/families affected by MSA, PSP, CBD and related diseases
Location: Manor Care at Lely Palms, 6135 Rattlesnake Hammock Road, Naples, FL 34113
Meeting Time(s): 2nd Saturday of each month from 2:00pm - 3:30pm
Facilitator:Cindy MacDonald 239-353-3960/239-404-4429
NAPLES
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Tenley Smith 630-337-1314
GEORGIA
ATLANTA
Information updated as of Dec 2016: For care partners only of those living with Atypical Parkinsonism’s, PSP, CBD
Location: Emory Brain Health Center. 12 Executive Park Dr. Room 331 C Atlanta, GA
Meeting Time(s): 2nd Saturday of each month from 10:00am – 11:30am
Facilitator: Lynn Ross
ATLANTA
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Kathy Hansen 678-371-5139
ELLIJAY
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Paula Davis
SMYRNA
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Dan
HAWAII
HONOLULU
Information updated as of Dec 2016: PSP, CBD, MSA or Atypical Parkinson’s
Location: Waikiki Banyan 201 Ohua Ave, Honolulu, HI 96815
Meeting Time(s): 2nd Saturday of each month from 10:00am-11:30am
Facilitator: Ozzie Boyle 206-793-8648
ILLINOIS
CHICAGO AREA
Information updated as of Dec 2016: MSA Support Meeting for Patients/Caregivers
Meeting information: Quarterly meetings. Time and place announced on Facebook NE Central USA Pageor Contact Facilitator.
Facilitator: Pam Getz 847-414-5910
NORTHWESTERN AREA
Information updated as of Dec 2016: For those with PD and other movement disorders
Location: Northwestern Memorial Hospital 251 East Huron, Feinberg Pavilion, 3rd Floor Room A
(free parking at Huron/St. Clair)
Meeting Time(s): 4th Thursday of every month from 1:00-2:00 pm
Facilitator: Pamela Palmentera 312-503-4397
INDIANA
INDIANAPOLIS
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Gary Huddleston 317-501-4899
KOKOMO
Information updated as of Dec 2016: For MSA Patients/caregivers
Contact: Renate Sharp 765-453-5351
Chris Markiewicz 765-513-5219
Francie Hutton
WARSAW
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Terry Shepherd
IOWA
WESTERN IOWA AREA
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Keryn Paul 402-813-7315
KENTUCKY
LOUISVILLE
Information updated as of Dec 2016: Atypical Parkinsonian Disorders (MSA,PSP, CBD)
Location: Parkisnon Center, 315 Townepark Circle, Suite 100
Meeting Time: 2ndTuesday of every month 6:30pm
Facilitator: Dan Heins
LOUISIANA
NEW ORLEANS
Information updated as of Dec 2016: Patients/families/caregivers with PSP/CBD/MSA & related diseases
Location: Little Farms United Church of Christ, 135 Sauve Road, River Ridge, LA 70123
Meeting Time(s): 3rd Thursday of each month from 7:00pm - 8:00pm
Facilitator: Shiela Grose
MAINE
FALMOUTH
Information updated as of Dec 2016: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS
Location: Maine Parkinson’s I&R Center, 5 Bucknam Road, Falmouth, ME
Meeting Time(s): One Sunday per quarter from 1:00pm - 3:00pm. Contact Facilitator for info.
Facilitator: Barbi Johnson207-633-0881
WELLS
Information updated as of Dec 2016: No MeetingEmail Support Only
Contact: Gayle Gardner or
MARYLAND
BALTIMORE
Information updated as of Dec 2016: For caregivers affect by Neurodegenerative diseases
Location: Johns Hopkins at Greenspring station, 10753 Falls Road, Pavillion II, Café Conference
Room, Lutherville, MD 21093
Meeting Time 1st Thursday of every month from 10:00am-12:00pm
Facilitator: Becky Dunlop, RN
BEL AIR
Information: For caregiver affected by MSA,PSP,CBD & other neurodegenerative diseases
Location: William McFaul Activities Center 525 West McPhail Road, Bel Air,MD 21014
Meeting Times: 4th Thursday of every month from 2pm-4pm
Facilitator: Bailey Vernon410-616-2811
EASTON
Information: for caregivers affected by Parkinson’s PSP, CBD, MSA and other Neuro diseases
Location: Eastern Shore Smile Solutions 29267 Erickson Dr. Easton, MD 21601
Meeting Time: 3rd Wednesday of every month from 3:30pm-5:00 pm
Facilitator: Bailey Vernon 410-616-2811
LUTHERVILLE
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Beverly Gorman
PRINCE FREDERICK
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: James
MASSACHUSETTS
BOSTON
Information updated as of Dec 2016: For MSA Patients/Caregivers
Location: Boston University Medical Center; 88 East Newton Street, 2nd floor, Conf Rm C, Boston, MA
Meeting Time: quarterly
Facilitator: Melissa Diggin 339-927-5468
GARDNER
Information: For MSA patients/caregivers
Location: Heywood Hospital in Gardner, MA
Meeting Time: last Wednesday of each month at 2 PM
Facilitator: Marybeth Kumph 978-630-643 Carl Billington 987-632-9682
MICHIGAN
DETROIT
Informationupdated as of Dec 2016: Non Profit for MSA
Defeat MSA & The MSA Shoe
29924 Jefferson Avenue
Saint Clair Shores, MI 48082
Email:
Tel: 586 246-1475
Periodic Meetings--Co-Sponsors: MSA Coalition & Defeat MSA
Location:
Saint Joseph Mercy Oakland Hosp.
44405 Woodward Avenue
Pontiac, MI 48341
Hosts:
Dr Pratik Bhattacharya (Neurology, SJMO) & Philip Fortier (MSAC Board Member; Director, Defeat MSA)
ALMA
Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders
Location: Masonic Pathways, 1200 Warwick Drive, Alma, Michigan, Diog Conference Center (below chapel)
Meeting Time(s):4th Wednesday of every month
Facilitators: Robbie and Keith Virgo989-681-6321
DELTON
Information updated as of Dec 2016: For patients,caregivers and families with PSP, CBD, MSA and other atypical parkinsonian disorders
Location: 1137 Floria Drive, Delton, MI 49046 (park in church parking lot)
Meeting Time(s): 2nd Saturday of each month (March thru December only) 2:00pm-3:30 pm
Please contact facilitator if you plan to attend
Facilitator: Mary Meagher 269-267-3117
MINNESOTA
MINNEAPOLIS
Information: For patients and families dealing with PSP, CBD, MSA
Location : Struther's Parkinson's Center 6701 Country Club Drive, Golden Valley, MN 55427
Meeting Time: 2nd Wednesday of every month from 1:00pm -2:30pm
Facilitator: Joan Hlas 952-993-6650
MINNEAPOLIS
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Jean Wayne 612-419-2573
MONTANA
KALISPELL
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Gary Cuthbertson
NEBRASKA
OMAHA
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Keryn Paul 402-813-7315
LINCOLN
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Susie Luxford 402-525-7367
NEVADA
LAS VEGAS
Information: No Meeting Phone/email Support Only
Contact: Marty Koppel 702-914-8041 please leave message if no answer
NEW JERSEY
TRI-STATE AREA
Information updated as of Dec 2016: Non profit support group covering the tri-state area
MSA NJ
P.O. Box 773 Howell, NJ 07731
Contact: Cynthia
Meets the second Saturday of the month 11 a.m. - 1:00 p.m.
Overlook Medical Center
Conference Room #1
Summit, NJ
Other Locations Considered
Email Support Available
Closed Facebook Support Group for MSA NJ community only:
CAPE MAY
Information updated as of Dec 2016: For caregiver dealing with Atypical Parkinson+ disorders
Location: Cape Regional Medical Center, 2 Stone Harbor Blvd, Cape May Court House, New Jersey (exit 10 off the Garden State Parkway, Maruchi Room (first floor of medical center)
Meeting Time: 1st Tuesday of every month 1:00pm -3:00 pm
Facilitator: Bonnie
MOORESTOWN(5 minutes from Philly and 30 from Trenton)
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Rachel Zambrano
NEW MEXICO
ALBUQUERQUE
Information: For patients, caregivers and families affected by PSP, CBD, MSA and Atypical PD
Location: The Flying Star 10700 Corrales Road, Albuquerque, NM
Meeting Time(s): 1st Wednesday of each month from 6:30pm-8:00pm until Sept.
Note:Starting Sept meeting will change to the first Tuesday of each month at same time
Facilitator: Roxi Padrid 312-485-9342
NEW YORK
TRI-STATE AREA
Information updated as of Dec 2016: Non profit support group covering the tri-state area
MSA NJ
P.O. Box 773 Howell, NJ 07731
Contact: Cynthia Roemer
Meets the second Saturday of the month 11 a.m. - 1:00 p.m.
Overlook Medical Center
Conference Room #1
Summit, NJ
Other Locations Considered
Email Support Available
Closed Facebook Support Group for MSA NJ community only:
BUFFALO
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Maureen Conley 716-627-7344
NEW YORK CITY METRO AREA
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Kara
BROOKLYN
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Caitlin Connelly845-901-8411
SYRACUSE/CHITTENANGO
Information: For Anyone with Parkinson or SDS/MSA
Location: Jim Marshall Farm Foundations Facility North Chittenango
Directions to the farm can be found at
Meeting times: 4th Tuesday of each month from 12:30PM-2:30PM
Contact: Wayne Hamilton 315-687-9014
SYRACUSE
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Jackie VandenBerg
NORTH CAROLINA
CHARLOTTE
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Robert Lee
RALEIGH
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Joe Turner
Melissa
ADVANCE
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Tammy Hunt Hauser 336-998-2942
HIGH POINT
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Amy Nissen
OHIO
BEREA
Information updated as of Dec 2016: For patients/families/friends/caregivers affected by PSP, CBD, MSA, Shy-Drager+ Lewy Bodies
Location: Southwest General Hospital, 18697 Bagley Road, Middleburg Heights, OH, Room 15C (basement level)
Meeting Time(s): 2nd Sunday of each month from 1:00pm - 3:00pm
Directions/Parking: Hospital is easy accessed from I-480, I-71 and the Ohio Turnpike - free parking rear garage of hospital.
Facilitator: Dave Potter 440-263-5330 Pat Beekman 440-234-0007
CINCINNATI
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Kathy Griffin 513-208-6621
FAIRFIELD
Information updated as of Dec 2016: No Meeting Phone/email Support Only
Contact: Brenda Reams 513-860-2912
Paul Reams
KETTERING
Information updated as of Dec 2016: For MSA patients/caregivers
Meeting Time(s): A get together is arranged in this area a couple times a year
Contact: Susan Cervone 937-369-9531
WESTERVILLE
Information: For MSA caregivers
Meeting Time(s): Occasional meetings are now being held
Contact: Cathy Rapenport 614-403-1440
OKLAHOMA
GROVE
Information: No Meeting Phone/email Support Only