Supplementary data of “Factors influencing public participation in biobanking”
Table 1S. Characteristics of the study population.
Study sample (%)N = 3196 a
Gender
Males / 1647 (51.5)
Females / 1549 (48.5)
Total / 3196 (100)
Age
18-29 / 964 (30.1)
30-39 / 915 (28.6)
40-49 / 627 (19.6)
50-59 / 271 (8.5)
60 and above / 419 (13.1)
Total / 3196 (100)
Education
Elementary or less / 614 (19.2)
Preparatory to high school / 1638 (51.3)
Diploma and above / 944 (29.5)
Total / 3196 (100)
Income a
Less than JD300 / 1495 (47.1)
Between 300 and 599 / 1227 (38.7)
JD 600 and above / 452 (14.2)
Total / 3174 (100)
Marital status
Single / 1495 (47.1)
Married / 1227 (38.7)
Otherb / 452 (14.2)
Total / 3196 (100)
a Since 22 respondents refused to declare their income, the total responses of the income category were 3174.
b This category included divorced, widow/widower, and separated.
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Table 2S. The influence of "unavailability of personalized results" in association with demographics?
Positive (%) / Negative (%) / No effect (%) / Don’t know (%)bTotal responses (3196)a / 217 (6.8) / 1498 (46.9) / 1412 (44.2) / 69 (2.1)
Gender
Males (1647) / 101 (6.1) / 765 (46.4) / 744 (45.2) / 37 (2.24)
Females (1549) / 116 (7.5) / 733 (47.3) / 668 (43.1) / 32 (2.06)
2 (P) c / 2.320 (0.073) / 0.244 (0.323) / 1.358 (0.129)
Age
18-29 (964) / 61 (6.3) / 478 (49.6) / 410 (42.5) / 15 (1.55)
30-39 (915) / 80 (8.7) / 427 (46.6) / 397 (43.3) / 11 (1.20)
40-49 (627) / 35 (5.6) / 286 (45.6) / 289 (46.0) / 17 (2.71)
50-59 (271) / 19 (7.0) / 123 (45.6) / 126 (46.5) / 3 (1.10)
60 and above (419) / 21 (5.0) / 184 (43.9) / 191 (45.6) / 23 (5.48)
2 (P) c / 9.436 (0.051) / 5.038 (0.283) / 3.110 (0.540)
Education
Elementary or less (614) / 31 (5.0) / 253 (41.2) / 294 (47.9) / 36 (5.86)
Preparatory to high school (1638) / 116 (7.1) / 770 (47.0) / 722 (44.1) / 30 (1.83)
Diploma and above (944) / 69 (7.3) / 475 (50.3) / 396 (41.9) / 4 (0.42)
2 (P) c / 3.574 (0.167) / 12.431 (0.002)* / 5.325 (0.070)
Incomea
Less than 300 (1495) / 80 (5.4) / 689 (46.1) / 671 (44.9) / 55 (3.67)
300 to 599 (1227) / 103 (8.4) / 597 (48.7) / 517 (42.1) / 10 (0.81)
600 and above (452) / 33 (7.3) / 204 (45.0) / 211 (46.6) / 4 (0.88)
2 (P) c / 10.037 (0.007)* / 2.547 (0.280) / 3.450 (0.178)
Marital status
Single (635) / 40 (6.3) / 298 (46.9) / 287 (45.2) / 10 (1.57)
Married (2338) / 164 (7.0) / 1102 (47.1) / 1025 (43.8) / 47 (2.01)
All others (223) / 12 (5.4) / 98 (44.1) / 100 (45.0) / 13 (5.82)
2 (P) c / 1.100 (0.577) / 0.729 (0.695) / 0.455 (0.796)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 3S. The influence of "availability of general results" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 1252 (39.2) / 367 (11.5) / 1501 (47.0) / 76 (2.4)
Gender
Males (1647) / 609 (37.0) / 179 (10.9) / 824 (50.0) / 35 (2.12)
Females (1549) / 643 (41.5) / 188 (12.1) / 677 (43.7) / 41 (2.64)
2 (P) c / 6.888 (0.005)* / 1.264 (0.143) / 12.820 (<0.001)*
Age
18-29 (964) / 396 (41.1) / 104 (10.8) / 446 (46.3) / 18 (1.86)
30-39 (915) / 378 (41.3) / 111 (12.1) / 411 (44.9) / 15 (1.63)
40-49 (627) / 237 (37.8) / 69 (11.0) / 302 (48.2) / 19 (3.03)
50-59 (271) / 100 (36.9) / 27 (10.0) / 141 (52.0) / 3 (1.10)
60 and above (419) / 141 (33.7) / 55 (13.2) / 200 (47.8) / 23 (5.48)
2 (P) c / 9.431 (0.051) / 2.688 (0.611) / 5.064 (0.281)
Education
Elementary or less (614) / 207 (33.7) / 64 (10.4) / 309 (50.3) / 34(5.53)
Preparatory to high school (1638) / 654 (39.9) / 176 (10.7) / 770 (47.0) / 38 (2.31)
Diploma and above (944) / 391 (41.4) / 127 (13.5) / 422 (44.7) / 4 (0.42)
2 (P) c / 10.071 (0.007)* / 5.162 (0.076) / 4.724 (0.094)
Income
Less than 300 (1495) / 568 (38.0) / 139 (9.3) / 732 (49.0) / 56 (3.74)
300 to 599 (1227) / 529 (43.1) / 149 (12.1) / 533 (43.3) / 16 (1.30)
600 and above (452) / 148 (32.7) / 76 (16.8) / 223 (49.3) / 5 (1.10)
2 (P) c / 16.699 (<0.001)* / 20.161 (<0.001)* / 9.614 (0.008)*
Marital status
Single (635) / 243 (38.2) / 72 (11.3) / 310 (48.8) / 10 (1.57)
Married (2338) / 928 (39.7) / 271 (11.6) / 1085 (46.4) / 54 (2.30)
All others (223) / 81 (36.3) / 24 (10.8) / 105 (47.3) / 13 (5.82)
2 (P) c / 1.273 (0.529) / 0.136 (0.934) / 1.178 (0.555)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 4S. The influence of "non-specified research" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 199 (6.2) / 1431 (44.8) / 1499 (46.9) / 67 (2.1)
Gender
Males (1647) / 98 (6.0) / 700 (42.5) / 816 (49.5) / 33(2.00)
Females (1549) / 101 (6.5) / 731 (47.2) / 683 (44.1) / 34 (2.19)
2 (P) c / 0.444 (0.276) / 7.182 (0.004)* / 9.526 (0.001)*
Age
18-29 (964) / 56 (5.8) / 453 (47.0) / 445 (46.2) / 10 (1.03)
30-39 (915) / 71 (7.8) / 407 (44.4) / 424 (46.3) / 13 (1.42)
40-49 (627) / 28 (4.5) / 283 (45.1) / 293 (46.7) / 23 (3.66)
50-59 (271) / 20 (7.4) / 127 (46.9) / 121 (44.6) / 3 (1.10)
60 and above (419) / 23 (5.5) / 161 (38.4) / 215 (51.4) / 20 (4.77)
2 (P) c / 8.315 (0.081) / 9.291 (0.054) / 4.359 (0.360)
Education
Elementary or less (614) / 26 (4.2) / 239 (38.9) / 314 (51.1) / 35(5.70)
Preparatory to high school (1638) / 100 (6.1) / 735 (44.9) / 775 (47.3) / 28 (1.70)
Diploma and above (944) / 73 (7.7) / 456 (48.3) / 410 (43.4) / 5 (0.52)
2 (P) c / 7.884 (0.019)* / 13.262 (0.001)* / 8.938 (0.011)*
Income
Less than 300 (1495) / 74 (4.9) / 647 (43.3) / 721 (48.2) / 53 (3.54)
300 to 599 (1227) / 97 (7.9) / 585 (47.7) / 533 (43.4) / 12 (0.97)
600 and above (452) / 27 (6.0) / 190 (42.0) / 233 (51.5) / 2 (0.44)
2 (P) c / 10.128 (0.006)* / 6.906 (0.032)* / 10.879 (0.004)*
Marital status
Single (635) / 38 (6.0) / 280 (44.1) / 308 (48.5) / 9(1.41)
Married (2338) / 152 (6.5) / 1060 (45.3) / 1078 (46.1) / 48 (2.05)
All others (223) / 8 (3.6) / 91 (40.8) / 112 (50.5) / 12 (5.38)
2 (P) c / 2.990 (0.224) / 1.838 (0.399) / 2.369 (0.306)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 5S. The influence of "participation of international researchers" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 735 (23.0) / 473 (14.8) / 1905 (59.6) / 83 (2.6)
Gender
Males (1647) / 372 (22.6) / 243 (14.8) / 995 (60.4) / 37 (2.24)
Females (1549) / 363 (23.4) / 230 (14.8) / 910 (58.8) / 46 (2.96)
2 (P) c / 0.336 (0.295) / 0.006 (0.490) / 0.839 (0.189)
Age
18-29 (964) / 215 (22.3) / 137 (14.2) / 602 (62.5) / 10 (1.03)
30-39 (915) / 232 (25.3) / 104 (11.4) / 557 (60.9) / 22 (2.40)
40-49 (627) / 138 (22.0) / 100 (15.9) / 367 (58.4) / 22(3.50)
50-59 (271) / 74 (27.3) / 44 (16.3) / 147 (54.2) / 6 (2.21)
60 and above (419) / 76 (18.2) / 89 (21.3) / 232 (55.4) / 22 (5.25)
2 (P) c / 11.732 (0.019)* / 23.927 (<0.001)* / 10.705 (0.030)*
Education
Elementary or less (614) / 106 (17.3) / 116 (18.9) / 355 (57.8) / 37 (6.02)
Preparatory to high school (1638) / 373 (22.8) / 214 (13.1) / 1013 (61.8) / 38 (2.31)
Diploma and above (944) / 257 (27.2) / 143 (15.1) / 537 (56.9) / 7 (0.74)
2 (P) c / 20.949 (<0.001)* / 12.158 (0.002)* / 7.124 (0.028)*
Income
Less than 300 (1495) / 312 (20.9) / 226 (15.1) / 893 (59.8) / 64 (4.28)
300 to 599 (1227) / 327 (26.7) / 186 (15.2) / 697 (56.8) / 17 (1.38)
600 and above (452) / 92 (20.4) / 59 (13.1) / 299 (66.0) / 2 (0.44)
2 (P) c / 14.778 (0.001)* / 1.338 (0.512) / 11.698 (0.003)*
Marital status
Single (635) / 171 (26.9) / 88 (13.9) / 366 (57.6) / 10(1.57)
Married (2338) / 517 (22.1) / 345 (14.8) / 1419 (60.7) / 57 (2.43)
All others (223) / 48 (21.6) / 41 (18.4) / 120 (53.8) / 14 (6.27)
2 (P) c / 6.828 (0.033)* / 2.717 (0.257) / 5.278 (0.071)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 6S. The influence of "indefinite storage of samples" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 291 (9.1) / 676 (21.2) / 2158 (67.5) / 71 (2.2)
Gender
Males (1647) / 126 (7.7) / 347 (21.1) / 1135 (68.9) / 39 (2.36)
Females (1549) / 165 (10.7) / 329 (21.2) / 1023 (66.0) / 32 (2.06)
2 (P) c / 8.691 (0.002)* / 0.014 (0.470) / 2.913 (0.048)*
Age
18-29 (964) / 95 (9.9) / 214 (22.2) / 646 (67.0) / 9 (0.93)
30-39 (915) / 100 (10.9) / 176 (19.2) / 624 (68.1) / 15 (1.63)
40-49 (627) / 44 (7.0) / 123 (19.6) / 439 (70.0) / 21 (3.34)
50-59 (271) / 26 (9.6) / 64 (23.6) / 178 (65.7) / 3 (1.10)
60 and above (419) / 26 (6.2) / 99 (23.6) / 271 (64.8) / 23 (5.48)
2 (P) c / 11.916 (0.018)* / 6.176 (0.186) / 3.840 (0.428)
Education
Elementary or less (614) / 38 (6.2) / 152 (24.8) / 388 (63.2) / 36 (5.86)
Preparatory to high school (1638) / 161 (9.8) / 320 (19.5) / 1129 (68.9) / 28 (1.70)
Diploma and above (944) / 92 (9.7) / 204 (21.6) / 641 (67.9) / 7 (0.74)
2 (P) c / 7.815 (0.020)* / 7.456 (0.024)* / 6.783 (0.034)*
Income
Less than 300 (1495) / 113 (7.6) / 342 (22.9) / 985 (65.9) / 55(3.67)
300 to 599 (1227) / 136 (11.1) / 268 (21.8) / 808 (65.9) / 15 (1.22)
600 and above (452) / 41 (9.1) / 61 (13.5) / 348 (77.0) / 2 (0.44)
2 (P) c / 10.096 (0.006)* / 18.951 (<0.001)* / 21.836 (<0.001)*
Marital status
Single (635) / 58 (9.1) / 143 (22.5) / 424 (66.8) / 10 (1.57)
Married (2338) / 218 (9.3) / 485 (20.7) / 1586 (67.8) / 49(2.09)
All others (223) / 14 (6.3) / 47 (21.1) / 147 (66.2) / 15 (6.72)
2 (P) c / 2.241 (0.326) / 0.945 (0.623) / 0.420 (0.810)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 7S. The influence of "lack of monetary benefit" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 485 (15.2) / 217 (6.8) / 2436 (76.2) / 58 (1.8)
Gender
Males (1647) / 288 (13.8) / 118 (7.2) / 1262 (76.6) / 21 (1.27)
Females (1549) / 257 (16.6) / 99 (6.4) / 1174 (75.8) / 19 (1.22)
2 (P) c / 4.683 (0.017)* / 0.754 (0.212) / 0.306 (0.304)
Age
18-29 (964) / 146 (15.1) / 76 (7.9) / 731 (75.9) / 11 (1.14)
30-39 (915) / 141 (15.4) / 50 (5.5) / 716 (78.2) / 8 (0.87)
40-49 (627) / 99 (15.8) / 27 (4.3) / 485 (77.4) / 16 (2.55)
50-59 (271) / 47 (17.3) / 14 (5.2) / 207 (76.4) / 3 (1.10)
60 and above (419) / 52 (12.4) / 50 (12.0) / 296 (70.8) / 21 (5.01)
2 (P) c / 3.637 (0.457) / 29.295 (<0.001)* / 9.152 (0.057)
Education
Elementary or less (614) / 89 (14.5) / 48 (7.8) / 449 (73.1) / 28 (4.56)
Preparatory to high school (1638) / 241 (14.7) / 100 (6.1) / 1275 (77.8) / 22 (1.34)
Diploma and above (944) / 155 (16.4) / 68 (7.2) / 712 (75.4) / 9 (0.95)
2 (P) c / 1.628 (0.443) / 2.499 (0.287) / 5.939 (0.051)
Income
Less than 300 (1495) / 246 (16.5) / 111 (7.4) / 1093 (73.2) / 45 (3.01)
300 to 599 (1227) / 187 (15.2) / 80 (6.5) / 950 (77.4) / 10 (0.81)
600 and above (452) / 50 (11.1) / 26 (5.7) / 373 (82.5) / 3 (0.66)
2 (P) c / 7.825 (0.020)* / 1.862 (0.394) / 18.556 (<0.001)*
Marital status
Single (635) / 96 (15.1) / 57 (9.0) / 471 (74.2) / 11(1.73)
Married (2338) / 352 (15.0) / 144 (6.2) / 1802 (77.0) / 40 (1.71)
All others (223) / 38 (17.0) / 15 (6.8) / 163 (73.4) / 7 (3.13)
2 (P) c / 0.630 (0.730) / 6.288 (0.043)* / 3.296 (0.192)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 8S. The influence of "lack of health benefits" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 400 (12.5) / 417 (13.0) / 2319 (72.6) / 60 (1.9)
Gender
Males (1647) / 195 (11.8) / 221 (13.4) / 1196 (72.6) / 35 (2.12)
Females (1549) / 205 (13.2) / 196 (12.7) / 1123 (72.5) / 25 (1.61)
2 (P) c / 1.418 (0.128) / 0.412 (0.278) / 0.006 (0.486)
Age
18-29 (964) / 135 (14.0) / 132 (13.7) / 681 (70.6) / 16(1.65)
30-39 (915) / 116 (12.7) / 113 (12.3) / 676 (73.9) / 10 (1.09)
40-49 (627) / 75 (12.0) / 63 (10.0) / 472 (75.2) / 17 (2.71)
50-59 (271) / 36 (13.3) / 35 (12.9) / 196 (72.6) / 4 (1.47)
60 and above (419) / 37 (8.9) / 74 (17.7) / 294 (70.3) / 14 (3.34)
2 (P) c / 7.429 (0.115) / 13.726 (0.008)* / 5.752 (0.218)
Education
Elementary or less (614) / 65 (10.6) / 80 (13.0) / 441 (71.8) / 28 (4.56)
Preparatory to high school (1638) / 193 (11.8) / 220 (13.4) / 1196 (73.0) / 29 (1.77)
Diploma and above (944) / 141 (14.9) / 117 (12.4) / 683 (72.4) / 3 (0.31)
2 (P) c / 7.940 (0.019)* / 0.568 (0.753) / 0.357 (0.836)
Income
Less than 300 (1495) / 195 (13.0) / 210 (14.1) / 1046 (70.0) / 44 (2.94)
300 to 599 (1227) / 156 (12.7) / 162 (13.2) / 899 (73.3) / 10 (0.81)
600 and above (452) / 47 (10.4) / 39 (8.6) / 360 (79.6) / 6 (1.32)
2 (P) c / 2.316 (0.314) / 9.178 (0.010)* / 16.775 (<0.001)*
Marital status
Single (635) / 91 (14.3) / 89 (14.0) / 443 (69.8) / 12(1.88)
Married (2338) / 285 (12.2) / 299 (12.8) / 1712 (73.2) / 42 (1.79)
All others (223) / 24 (10.8) / 29 (13.0) / 165 (74.3) / 5 (2.24)
2 (P) c / 2.771 (0.250) / 0.669 (0.716) / 3.313 (0.191)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 9S. The influence of "lack of monetary cost" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 786 (24.6) / 141 (4.4) / 2216 (69.4) / 53 (1.6)
Gender
Males (1647) / 395 (24.0) / 68 (4.1) / 1150 (69.8) / 34 (2.10)
Females (1549) / 391 (25.2) / 73 (4.7) / 1066 (68.9) / 19 (1.22)
2 (P) c / 0.682 (0.216) / 0.646 (0.237) / 0.347 (0.291)
Age
18-29 (964) / 242 (25.1) / 55 (5.7) / 657 (68.2) / 10 (1.03)
30-39 (915) / 241 (26.3) / 24 (2.6) / 642 (70.2) / 8 (0.87)
40-49 (627) / 154 (24.5) / 17 (2.7) / 440 (70.1) / 16 (2.55)
50-59 (271) / 70 (25.8) / 8 (3.0) / 190 (70.1) / 3 (1.10)
60 and above (419) / 80 (19.1) / 37 (8.9) / 287 (68.7) / 15 (3.57)
2 (P) c / 8.516 (0.074) / 36.066 (<0.001)* / 1.252 (0.870)
Education
Elementary or less (614) / 135 (22.0) / 28 (4.6) / 423 (68.9) / 28 (4.56)
Preparatory to high school (1638) / 406 (2.84) / 64 (3.9) / 1147 (70.0) / 21 (1.28)
Diploma and above (944) / 245 (26) / 49 (5.2) / 647 (68.5) / 3 (0.31)
2 (P) c / 3.260 (0.196) / 2.366 (0.306) / 0.703 (0.703)
Income
Less than 300 (1495) / 369 (24.7) / 72 (4.8) / 1013 (67.8) / 41(2.74)
300 to 599 (1227) / 310 (25.3) / 56 (4.6) / 852 (69.4) / 9 (0.73)
600 and above (452) / 104 (23.0) / 11 (2.4) / 334 (73.9) / 3 (0.66)
2 (P) c / 0.905 (0.636) / 4.867 (0.088) / 6.160 (0.046)*
Marital status
Single (635) / 155 (24.4) / 40 (6.3) / 429 (67.6) / 11 (1.73)
Married (2338) / 578 (24.7) / 95 (4.1) / 1631 (69.7) / 34 (1.45)
All others (223) / 53 (23.9) / 6 (2.7) / 157 (70.4) / 7 (3.13)
2 (P) c / 0.094 (0.954) / 7.582 (0.023)* / 1.234 (0.540)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 10S. The influence of "re-contact" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 725 (22.7) / 271 (8.5) / 2133 (66.7) / 67 (2.1)
Gender
Males (1647) / 360 (21.9) / 137 (8.3) / 1117 (67.8) / 33 (2.00)
Females (1549) / 365 (23.6) / 134 (8.7) / 1016 (65.6) / 34 (2.19)
2 (P) c / 1.347 (0.132) / 0.117 (0.390) / 1.788 (0.097)
Age
18-29 (964) / 242 (25.1) / 70 (7.3) / 638 (66.2) / 14(1.45)
30-39 (915) / 217 (23.7) / 97 (10.6) / 588 (64.3) / 13 (1.42)
40-49 (627) / 130 (20.7) / 36 (5.7) / 445 (70.9) / 16 (2.55)
50-59 (271) / 57 (21.0) / 17 (6.3) / 194 (71.6) / 3 (1.10)
60 and above (419) / 80 (19.1) / 50 (12.0) / 268 (64.0) / 21 (5.01)
2 (P) c / 8.564 (0.073) / 21.454 (<0.001)* / 11.788 (0.019)*
Education
Elementary or less (614) / 122 (19.9) / 53 (8.6) / 408 (66.4) / 31 (5.04)
Preparatory to high school (1638) / 365 (22.3) / 121 (7.4) / 1122 (68.5) / 30 (1.83)
Diploma and above (944) / 238 (25.2) / 97 (10.3) / 603 (63.9) / 6 (0.63)
2 (P) c / 6.430 (0.040)* / 6.459 (0.040)* / 5.790 (0.055)
Income
Less than 300 (1495) / 330 (22.1) / 120 (8.0) / 994 (66.5) / 51 (3.41)
300 to 599 (1227) / 310 (25.3) / 110 (9.0) / 796 (64.9) / 11 (0.89)
600 and above (452) / 82 (18.1) / 39 (8.6) / 325 (71.7) / 6 (1.32)
2 (P) c / 10.248 (0.006)* / 0.781 (0.677) / 7.042 (0.030)*
Marital status
Single (635) / 156 (24.6) / 48 (7.5) / 423 (66.6) / 8 (1.25)
Married (2338) / 515 (22.0) / 210 (9.0) / 1566 (67.0) / 47 (2.01)
All others (223) / 55 (24.7) / 13 (5.8) / 144 (64.6) / 11 (4.93)
2 (P) c / 2.371 (0.306) / 3.492 (0.174) / 0.537 (0.765)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 11S. The influence of "access to medical files" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 651 (20.4) / 305 (9.5) / 2176 (68.1) / 64 (2.0)
Gender
Males (1647) / 327 (19.9) / 172 (10.4) / 1112 (67.5) / 36 (2.18)
Females (1549) / 324 (20.9) / 133 (8.6) / 1064 (68.7) / 28 (1.80)
2 (P) c / 0.556 (0.241) / 3.189 (0.042)* / 0.541 (0.243)
Age
18-29 (964) / 197 (20.4) / 93 (9.7) / 661 (68.6) / 13 (1.34)
30-39 (915) / 190 (20.7) / 79 (8.6) / 633 (69.2) / 13 (1.42)
40-49 (627) / 125 (19.9) / 62 (9.9) / 423 (67.4) / 17 (2.71)
50-59 (271) / 57 (21.0) / 24 (8.9) / 187 (69.0) / 3 (1.10)
60 and above (419) / 82 (19.6) / 47 (11.2) / 271 (64.8) / 19 (4.53)
2 (P) c / 0.384 (0.984) / 2.505 (0.644) / 2.899 (0.575)
Education
Elementary or less (614) / 122 (19.8) / 44 (7.2) / 415 (67.6) / 33 (5.37)
Preparatory to high school (1638) / 336 (20.5) / 149 (9.1) / 1127 (68.8) / 26 (1.58)
Diploma and above (944) / 193 (20.4) / 113 (12.0) / 634 (67.2) / 4 (0.42)
2 (P) c / 0.131 (0.936) / 10.854 (0.004)* / 0.829 (0.661)
Income
Less than 300 (1495) / 329 (22.0) / 114 (7.6) / 1000 (66.9) / 52 (3.47)
300 to 599 (1227) / 257 (20.9) / 143 (11.7) / 817 (66.6) / 10 (0.81)
600 and above (452) / 61 (13.5) / 48 (10.6) / 342 (75.5) / 1 (0.22)
2 (P) c / 15.879 (<0.001)* / 13.194 (0.001)* / 13.676 (0.001)*
Marital status
Single (635) / 129 (20.3) / 69 (10.9) / 426 (67.1) / 11 (1.73)
Married (2338) / 472 (20.2) / 224 (9.6) / 1598 (68.3) / 44 (1.88)
All others (223) / 49 (22.1) / 13 (5.9) / 151 (67.7) / 10 (4.48)
2 (P) c / 0.444 (0.801) / 4.769 (0.092) / 0.379 (0.827)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 12S. The influence of "allowed withdrawal" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 994 (31.1) / 312 (9.8) / 1815 (56.8) / 75 (2.3)
Gender
Males (1647) / 506 (30.7) / 160 (9.7) / 943 (57.3) / 38 (2.30)
Females (1549) / 488 (31.5) / 152 (9.8) / 872 (56.3) / 37 (2.38)
2 (P) c / 0.228 (0.330) / 0.009 (0.486) / 0.301 (0.304)
Age
18-29 (964) / 313 (32.5) / 107 (11.1) / 536 (55.7) / 8(0.82)
30-39 (915) / 304 (33.2) / 68 (7.4) / 528 (57.6) / 15 (1.63)
40-49 (627) / 193 (30.7) / 55 (8.8) / 359 (57.2) / 20 (3.18)
50-59 (271) / 100 (36.9) / 21 (7.7) / 148 (54.6) / 2 (0.73)
60 and above (419) / 83 (19.9) / 63 (15.0) / 244 (58.2) / 29 (6.92)
2 (P) c / 31.718 (0.001)* / 22.656 (0.001)* / 1.688 (0.793)
Education
Elementary or less (614) / 140 (22.8) / 71 (11.6) / 364 (59.3) / 39 (6.35)
Preparatory to high school (1638) / 543 (33.2) / 149 (9.1) / 921 (56.2) / 25 (1.52)
Diploma and above (944) / 311 (32.9) / 93 (9.9) / 529 (56.0) / 11 (1.16)
2 (P) c / 24.659 (0.001)* / 3.082 (0.214) / 1.983 (0.371)
Income
Less than 300 (1495) / 391 (26.2) / 162 (10.8) / 880 (58.9) / 62 (4.14)
300 to 599 (1227) / 444 (36.2) / 124 (10.1) / 647 (52.7) / 12 (0.97)
600 and above (452) / 157 (34.7) / 23 (5.1) / 270 (59.7) / 2 (0.44)
2 (P) c / 34.296 (0.001)* / 13.360 (0.001)* / 12.513 (0.002)*
Marital status
Single (635) / 202 (31.8) / 74 (11.7) / 347 (54.6) / 12 (1.88)
Married (2338) / 727 (31.1) / 221 (9.4) / 1341 (57.3) / 49 (2.09)
All others (223) / 64 (28.8) / 18 (8.1) / 126 (56.8) / 15 (6.72)
2 (P) c / 0.684 (0.710) / 3.551 (0.169) / 1.469 (0.480)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 13S. The influence of "existence of signed consent" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 633 (19.8) / 417 (13.1) / 2078 (65.0) / 68(2.1)
Gender
Males (1647) / 316 (19.2) / 209 (12.7) / 1088 (66.0) / 34 (2.06)
Females (1549) / 317 (20.5) / 208 (13.4) / 990 (63.9) / 34 (2.19)
2 (P) c / 0.821 (0.194) / 0.384 (0.285) / 1.558 (0.113)
Age
18-29 (964) / 204 (21.2) / 131 (13.6) / 617 (64.0) / 12 (1.24)
30-39 (915) / 189 (20.6) / 120 (13.1) / 593 (64.7) / 13 (1.42)
40-49 (627) / 126 (20.1) / 60 (9.6) / 423 (67.4) / 18 (2.87)
50-59 (271) / 48 (17.8) / 32 (11.8) / 187 (69.0) / 4(1.47)
60 and above (419) / 65 (15.5) / 73 (17.5) / 258 (61.6) / 23 (5.48)
2 (P) c / 7.145 (0.128) / 14.589 (0.006)* / 6.048 (0.196)
Education
Elementary or less (614) / 108 (17.6) / 86 (14.0) / 388 (63.2) / 32 (5.21)
Preparatory to high school (1638) / 318 (19.4) / 195 (11.9) / 1094 (66.8) / 31 (1.89)
Diploma and above (944) / 207 (21.9) / 135 (14.3) / 596 (63.1) / 6 (0.63)
2 (P) c / 4.734 (0.094) / 3.695 (0.158) / 4.629 (0.099)
Income
Less than 300 (1495) / 270 (18.1) / 206 (13.8) / 966 (64.6) / 53 (3.54)
300 to 599 (1227) / 282 (23.0) / 160 (13.0) / 773 (63.0) / 12 (0.97)
600 and above (452) / 81 (17.9) / 47 (10.4) / 321 (70.9) / 3 (0.66)
2 (P) c / 11.630 (0.003)* / 3.507 (0.173) / 9.063 (0.011)*
Marital status
Single (635) / 125 (19.7) / 90 (14.2) / 410 (64.6) / 10(1.57)
Married (2338) / 456 (19.9) / 295 (12.6) / 1533 (65.5) / 54 (2.30)
All others (223) / 43 (19.3) / 32 (14.4) / 135 (60.5) / 13 (5.82)
2 (P) c / 0.052 (0.974) / 1.439 (0.487) / 2.304 (0.316)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 14S. The influence of "religious permission" on decision to participate in biobanking in association with demographics?
Total responses (3196)a / 1955 (61.2) / 49 (1.5) / 1134 (35.5) / 58 (1.8)
Gender
Males (1647) / 1006 (61.1) / 19 (1.2) / 585 (35.5) / 37 (2.24)
Females (1549) / 949 (61.3) / 49 (1.9) / 549 (35.4) / 2 (0.12)
2 (P) c / 0.011 (0.472) / 3.243 (0.049) / 0.002 (0.497)
Age
18-29 (964) / 578 (60.0) / 17 (1.8) / 358 (37.1) / 11 (1.14)
30-39 (915) / 577 (63.0) / 10 (1.1) / 319 (34.9) / 9 (1.0)
40-49 (627) / 388 (61.9) / 12 (1.9) / 208 (33.2) / 19 (3.03)
50-59 (271) / 175 (64.6) / 2 (0.2) / 88 (32.5) / 6 (2.21)
60 and above (419) / 237 (56.7) / 8 (1.9) / 161 (38.4) / 13 (3.10)
2 (P) c / 6.851 (0.144) / 3.631 (0.458) / 5.475 (0.242)
Education
Elementary or less (614) / 336 (54.7) / 13 (2.1) / 239 (38.9) / 26 (4.23)
Preparatory to high school (1638) / 995 (60.7) / 23 (1.4) / 593 (36.2) / 27 (1.64)
Diploma and above (944) / 624 (66.1) / 12 (1.3) / 303 (32.1) / 5 (0.52)
2 (P) c / 20.535 (<0.001)* / 2.017 (0.365) / 8.270 (0.016)*
Income
Less than 300 (1495) / 888 (59.4) / 18 (1.2) / 545 (36.5) / 44 (2.94)
300 to 599 (1227) / 818 (66.7) / 22 (1.8) / 377 (30.7) / 10 (0.81)
600 and above (452) / 239 (52.8) / 8 (1.8) / 201 (44.5) / 4 (0.88)
2 (P) c / 31.002 (<0.001)* / 1.804 (0.406) / 28.745 (<0.001)*
Marital status
Single (635) / 391 (61.6) / 7 (1.1) / 226 (35.6) / 11 (1.73)
Married (2338) / 1435 (61.4) / 37 (1.6) / 825 (35.3) / 41 (1.75)
All others (223) / 129 (57.8) / 4 (1.6) / 84 (37.8) / 6 (2.69)
2 (P) c / 1.122 (0.571) / 0.916 (0.632) / 0.585 (0.746)
a the total responses the Income category were 3174 where 22 respondents refused to declare their income.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", "no effect", or "don't know" was compared to the other three categories.
* Indicates a significant value (p).
Table 15S. How likely are you to donate biological (blood, urine, or tissue samples) for the [biobanking] project?
Total responses (3196) / 430 (13.4) / 716 (22.4) / 1593 (49.9) a / 446 (14.0)a / 11 (0.3)
Gender
Males (1647) / 222 (13.5) / 358 (21.7) / 831 (50.5) / 227 (13.8) / 9 (0.5)
Females (1549) / 208 (13.4) / 358 (23.1) / 762 (49.2) / 219 (14.1) / 2 (0.1)
r (P) / -0.004 (0.828)
Age
18-29 (964) / 111 (11.5) / 205 (21.3) / 502 (52.1) / 146 (15.1) / 0 (0)
30-39 (915) / 95 (10.4) / 189 (20.7) / 490 (53.6) / 133 (14.5) / 8 (0.9)
40-49 (627) / 81 (12.9) / 135 (21.5) / 325 (51.8) / 85 (13.6) / 1 (0.2)
50-59 (271) / 39 (14.4) / 75 (27.7) / 118 (43.5) / 38 (14.0) / 1 (0.4)
60 and above (419) / 103 (24.6) / 112 (26.7) / 159 (37.9) / 43 (10.2) / 2 (0.5)
r (P) / -0.126 (<0.001)*
Education
Elementary or less (614) / 186 (30.3) / 119 (19.4) / 236 (38.4) / 71 (11.6) / 2 (0.3)
Preparatory to high school (1638) / 201 (12.3) / 341 (20.8) / 847 (51.7) / 248 (15.1) / 1 (0.1)
Diploma and above (944) / 110 (11.7) / 189 (20.0) / 127 (28.5) / 511 (54.1) / 7 (0.7)
r (P) / 0.097 (< 0.001)*
Incomeb
Less than 300 (1495) / 224 (15.0) / 386 (25.9) / 708 (47.5) / 173 (11.6) / 4 (0.3)
300 to 599 (1227) / 143 (11.7) / 238 (19.4) / 644 (52.5) / 202 (16.5) / 0 (0)
600 and above (452) / 59 (13.3) / 89 (20.0) / 230 (51.7) / 67 (15.1) / 7 (1.54)
r (P) / 0.075 (<0.001)*
Marital status
Single (635) / 68 (10.7) / 140 (22.1) / 319 (50.2) / 107 (16.9) / 1 (0.1)
Married (2338) / 318 (13.6) / 520 (22.2) / 1176 (50.3) / 315 (13.5) / 9 (0.4)
All others (223) / 44 (19.7) / 55 (24.7) / 98 (43.9) / 23 (10.3) / 12 (5.4)
r (P) / -0.070 (<0.001)*
a Due to the small number of the category “don’t know,” it was eliminated when calculating r (p).
b The total responses the Income category were 3174 where 22 respondents refused to declare their income.
* indicates a significant value (p <0.05).
Table 16S. The association of factors influencing decision to participate in biobanking to willingness to participate.
Total responses (3184)a / Positive (%) / Negative (%) / No effect (%) / Don’t know (%)bFactor 1: Unavailability of personalized results
215 (6.8) / 1489 (46.8) / 1412 (44.3) / 68 (2.1)
Likeliness
Likely (2039) / 164 (8.0) / 966 (47.4) / 897 (44.0) / 12 (0.58)
Unlikely (1145) / 51 (4.5) / 523 (45.7) / 515 (44.9) / 56 (4.89)
2; phi-coefficient (P)c / 15.000; 0.069(<0.001)* / 0.851; 0.016 (0.356) / 0.266; -0.009 (0.606)
Factor 2: Availability of general results
1251 (39.3) / 360 (11.3) / 1501 (47.1) / 72 (2.3)
Likeliness
Likely (2039) / 913 (44.8) / 170 (8.3) / 937 (45.9) / 19 (0.93)
Unlikely (1145) / 338 (29.5) / 190 (16.6) / 564 (49.2) / 53 (4.62)
2; phi-coefficient (P)c / 71.372; 0.150 (<0.001)* / 49.711; -0.125 (<0.001)* / 3.175; -0.032 (0.075)
Factor 3: Non-specified research
198 (6.2) / 1429 (44.9) / 1491 (46.8) / 66 (2.1)
Likeliness
Likely (2039) / 144 (7.1) / 917 (45.0) / 961 (47.1) / 17 (0.83)
Unlikely (1145) / 54 (4.7) / 512 (44.7) / 530 (46.3) / 49 (4.27)
2; phi-coefficient (P)c / 6.951; 0.047 (0.008)* / 0.02; 0.002 (0.889) / 0.209; 0.008 (0.647)
Factor 4: Participation of international researchers
726(22.8) / 473 (14.9) / 1905 (59.6) / 80 (2.5)
Likeliness
Likely (2039) / 517 (25.4) / 255 (12.5) / 1244 (61.0) / 23 (1.12)
Unlikely (1145) / 209 (18.3) / 218 (9.0) / 661 (57.7) / 57(4.97)
2; phi-coefficient (P)c / 21.012; 0.081 (<0.001)* / 24.743; -0.088 (<0.001)* / 3.284; 0.032 (0.070)
Factor 5: Indefinite storage of samples
290 (9.1) / 676 (21.2) / 2149 (67.5) / 69 (2.2)
Likeliness
Likely (2039) / 199 (9.8) / 361 (17.7) / 1457 (71.5) / 22 (1.07)
Unlikely (1145) / 91 (7.9) / 315 (25.7) / 692 (60.4) / 47 (4.10)
2; phi-coefficient (P)c / 2.933; 0.030 (0.087) / 42.254; -0.115 (<0.001) / 40.984; 0.113 (<0.001)*
Factor 6: Lack of monetary benefit
486 (15.3) / 209 (6.6) / 2434 (76.4) / 55 (1.7)
Likeliness
Likely (2039) / 326 (16.0) / 76 (3.7) / 1631 (80.0) / 6 (0.29)
Unlikely (1145) / 160 (14.0) / 133 (11.6) / 803 (70.1) / 49 (4.27)
2; phi-coefficient (P)c / 2.313; 0.027 (0.128) / 74.394; -0.153 (<0.001)* / 40.069; 0.112 (<0.001)*
Factor 7: Lack of health benefit
400 (12.6) / 417 (13.0) / 2310 (72.6) / 57 (1.8)
Likeliness
Likely (2039) / 261 (12.8) / 210 (10.3) / 1560 (76.5) / 8 (0.39)
Unlikely (1145) / 139 (12.1) / 207 (18.1) / 750 (65.4) / 49 (4.27)
2; phi-coefficient (P)c / 0.301; 0.010 (0.583) / 38.864; -0.110 (<0.001)* / 45.065; 0.119 (<0.001)*
Factor 8: Lack of monetary cost
779 (24.5) / 141 (4.4) / 2216 (69.4) / 50 (1.60)
Likeliness
Likely (2039) / 524 (25.7) / 50 (2.5) / 1460 (71.6) / 5 (0.24)
Unlikely (1145) / 255 (22.3) / 91 (7.9) / 754 (65.9) / 45 (3.93)
2; phi-coefficient (P)c / 4.720; 0.038 (0.030)* / 52.321; -0.128 (<0.001)* / 11.453; 0.060 (0.001)*
Factor 9: Re-contact
725 (22.8) / 262 (8.2) / 2132 (67) / 65 (2)
Likeliness
Likely (2039) / 499 (24.5) / 90 (4.4) / 1438 (70.5) / 12 (0.58)
Unlikely (1145) / 226 (19.7) / 172 (15.0) / 694 (60.6) / 53 (4.62)
2; phi-coefficient (P)c / 9.423; 0.054 (0.002)* / 109.263; -0.185 (<0.001)* / 32.572; 0.101 (<0.001)*
Factor 10: Access to medical file
650 (20.4) / 306 (9.6) / 2167 (68.1) / 61 (1.9)
Likeliness
Likely (2039) / 451 (22.1) / 124 (6.1) / 1454 (71.3) / 10 (0.49)
Unlikely (1145) / 199 (17.4) / 182 (15.9) / 713 (62.2) / 51 (4.45)
2; phi-coefficient (P)c / 10.208; 0.057 (0.001)* / 81.132; -0.160 (<0.001)* / 27.895; 0.094 (<0.001)*
Factor 11: Allowed withdrawal
984 (30.9) / 313 (9.8) / 1815 (57) / 72 (2.3)
Likeliness
Likely (2039) / 199 (9.8) / 361 (17.7) / 1457 (71.5) / 22 (1.07)
Unlikely (1145) / 91 (7.9) / 315 (25.7) / 692 (60.4) / 47 (4.10)
2; phi-coefficient (P)c / 2.933; 0.030 (0.087) / 42.254; -0.115 (<0.001) / 40.984; 0.113 (<0.001)*
Factor 12: Existence of signed consent
632 (19.8) / 417 (13.1) / 2069 (65.0) / 66 (2.1)
Likeliness
Likely (2039) / 453 (22.2) / 206 (10.1) / 1367 (67.0) / 13 (0.63)
Unlikely (1145) / 179 (15.6) / 211 (18.4) / 702 (61.3) / 53 (4.62)
2; phi-coefficient (P)c / 20.075; 0.079 (<0.001)* / 44.587; -0.118 (<0.001)* / 10.467; 0.057 (0.001)*
Factor 1: Religious permission
1948 (61.2) / 48 (1.5) / 1134 (35.6) / 54 (1.7)
Likeliness
Likely (2039) / 1368 (67.1) / 19 (0.9) / 645 (31.6) / 7 (0.34)
Unlikely (1145) / 580 (50.7) / 29 (2.5) / 489 (42.7) / 47 (4.10)
2; phi-coefficient (P)c / 83.076; 0.162 (<0.001)* / 12.657; -0.063 (<0.001)* / 38.979; -0.111 (<0.001)*
a Those who answered "don't know" for the likelihood to donate for biobanking were removed from the analyses.
b Statistical analyses (2) were not perfumed for this category due to its small size.
c Each category of the "positive", "negative", or "no effect", was compared to the other three categories including "don't know" category.
* Indicates a significant value (p).
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