StatsRRTC State-of-the-Science Conference:

The Future of Disability Statistics: What We Know and Need to Know

October 5 and 6, 2006, Doubletree Hotel, CrystalCity

PRELIMINARY PROGRAM

Thursday, October 5

7:30 – 8:30Registration & Continental Breakfast

8:30 – 10:15Session I: Introduction and the Latest Statistics

- Welcome and Overview

David Stapleton, Cornell University Institute for Policy Research

- 2005 Annual Disability Status Report

Andrew Houtenville, Cornell StatsRRTC

- Comments from NIDRR

Steven Tingus, Director, NIDRR

10:15 – 10:45Break

10:45 - NoonSession II: An In Depth Look at Current Statistics: Demographics and Health

- Moderator/Discussant

Gale Whiteneck, CraigHospital

- Who Are People with Disabilities? Demographic Trends

Andrew Houtenville, Cornell StatsRRTC

- A Review of Disability Data for the Institutional Population

Peiyun She, Cornell University Institute for Policy Research

- Health and Functional Status of People with Disabilities in the United States

Gerry Hendershot, Disability Statistics Consultant

Noon – 1:30Lunch and Keynote Address: (Buffet Lunch Provided)

- Keynote Speaker:

Andrew Imparato, President, American Association of People with Disabilities

1:30 – 2:45Session III: An In Depth Look at Current Statistics: Economic Outcomes

- Moderator

Stephen Bell, Abt Associates, Inc.

- Trends in the Employment of Working-Age People with Disabilities: 1980-2004

David Wittenburg, Mathematica Policy Research, Inc.

- Trends in the Income of Working-Age People with Disabilities: 1980-2004

Robert Weathers, Mathematica Policy Research, Inc.

- Trends in the Poverty Rate of Working-Age People with Disabilities: 1980-2004

Richard Burkhauser, CornellUniversity

- Discussant

Pamela Loprest, Urban Institute

2:45 – 3:15Break

3:15 – 4:30Session IV: Identifying the Population with Disabilities in Surveys

- Moderator

Sue Stoddard, InfoUse

- Census Bureau Efforts to Revise Disability-Related Questions in the American Community Survey (ACS)

SharonStern, U.S. Census Bureau

- Bureau of Labor Statistics Efforts to Design Disability-Related Questions in the Current Population Survey

TerenceMcMenamin, Bureau of Labor Statistics

- Report from the ISDS Workgroup on Identifying the Population with Disabilities using Surveys

Barbara Altman, Disability Statistics Consultant

- Discussant

Lois Verbrugge, University of Michigan

4:30 – 4:45Closing Comments – Andrew J. Houtenville

5:00 – 7:00Reception: Windows Over Washington Room

Friday, October 6

8:00 – 8:45Registration and Continental Breakfast

8:45 – 9:00 Welcome

9:00 – 10:15Session V: Improvement of Survey Data Collection Methods

- Moderator

Janice Ballou, Mathematica Policy Research, Inc.

- Comparison of Two Methods for Proxy Respondent Decision

Anne Ciemnecki, Mathematica Policy Research, Inc.

- Examining Quality of Life from Three Perspectives: A Study of Deinstitutionalization of Persons with Disabilities.

Dawn Apgar, Developmental Disabilities Planning Institute, NJIT

Paul Lerman, Developmental Disabilities Planning Institute, NJIT

- The Use of Focus Groups in the Evaluation of Programs for Youth with Disabilities:

Early Lessons from the Youth Transition Demonstration

Alissa Gardenhire Crooks, MDRC

- Discussant

Paul Beatty, NationalCenter for Health Statistics

10:15 – 10:45 Break

10:45 – NoonSession VI: Harnessing Administrative Data: Examples and Potential

-Moderator

David C. Stapleton, Cornell University Institute for Policy Research

- Using Linked Data to Track Participation in the Medicaid Buy-in Program
Henry Ireysand Su Liu, Mathematica Policy Research, Inc.

- Evaluating the Long-Term Earnings Outcomes of Vocational Rehabilitation Participants using Administrative Data Sources

David Dean, University of Richmond

- Filling in the Gaps in Administrative Data: Lessons from the Ticket to Work Evaluation

Paul O’Leary, Social Security Administration

- Discussant

Craig Thornton, Mathematica Policy Research, Inc.

Noon – 1:30Lunch and Keynote Address: (Buffet Lunch Provided)

- Keynote Speaker:

Christine Griffin, Commissioner, EEOC

1:30 – 3:15Session VII: Enhancing Survey Data on People with Disabilities

- Moderator

David Keer, Co-Chair, Interagency Subcommittee on Disability Statistics

- What We Don’t Know about People with Disabilities

Gina Livermore, Cornell University Institute for Policy Research

- Top 10 Ways to Improve Survey Data on People with Disabilities

David Stapleton, Cornell University Institute for Policy Research

- Measuring the Size and Characteristics of the Older Residential CarePopulation:

Evidence from Three National Surveys

Brenda Spillman, Urban Institute

- Discussant

Scott Brown, OSEP

3:15Closing Comments: Andrew Houtenville, Director, Cornell StatsRRTC