Sexuality and Young People with Chronic and Life-Limiting Illness

Sexuality

Sexuality and Young People with Chronic and Life-Limiting Illness

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Development of sexuality & sexual identity

1.Whipple, B., Koch, P. B., Moglia, R. F., Owens, A. F.Samuels, H. (2007). The Health Benefits of Sexual Expression. Planned Parenthood Federation of America.

2.Bukatko, D. (2007). Child and Adolescent Development: A Chronological Approach.

3.Bekaert, S. (2004) Adolescents and Sex: The Handbook for Professionals Working with Young People.

4.Coleman, J. Roker, D. (1998) Teenage Sexuality: Health, Risk and Education.

5.British Association for Sexual Health & HIV (BASHH) (2006) National Guidelines for consultations requiring a sexual history taking.

6.WHO (2001). Counselling Skills Training in Adolescent Sexuality and Reproductive Health – A Facilitator’s Guide.

Sex education in British Schools

1.SRE Guidance DfEE 0116/2000.

2.2010 Report: SRE- Views from teachers, parents and governors.

3.See: Sex Education Forum. Confidentiality in Schools Factsheet for more detailed information.

4.

Main Reports & SRE Overviews

5.Department for Education and Employment (2000) Sex and Relationship Education Guidance.

6.Ofsted (2002) Report on Sex and Relationship Education.

7.What is taught in schools? Summary of learning outcomes Ofsted Report of Sex and Relationships (2002).

8.Family Planning Association (2010) Factsheet Sex and Relationships. Education

9.Sex Education Forum (2008).Young People’s Survey on SRE – Key Findings.

10.Sex and Relationship Education – Views form teachers, parents and governors (2010).

Age-appropriate curriculum & resources

Primary

11.Sex Education Forum (2001) Sex and Relationship Education for Primary Age Children.

12.Sexual Education Forum. SRE Curriculum Content Age 3-6.

13.Sexual Education Forum SRE Curriculum Content Age 7-8.

14.Sexual Education Forum SRE Curriculum Content Age 9-10.

15.Sexual Education Forum SRE Resource List for Primary Schools.

16.Sexual Education Forum. Samples of Lesson Outlines for Primary Schools, by year

Secondary

17.Sexual Education Forum SRE Resource List for Secondary Schools.

18.Sexual Education Forum SRE Curriculum Content Age 11-13.

19.Sexual Education Forum SRE Curriculum Content Age 14-16.

20.Sexual Education Forum SRE Curriculum Content Age 16+.

21.Sexual Education Forum. Samples of Lesson Outlines for Secondary Schools and 16 +.

Disability & Special Needs

22.Sex Education Forum Factsheet on SRE for Children and Young People with Learning Disabilities (2004)

23.Sexual Education Forum SRE Resources Special Needs and Disability

24.Sexuality Education for Youth with Disability and Chronic Illness. A Resource List.

Parents

25.Sex Education Forum (2001). Talk to your children about sex and relationships, Support for parents.

26.Sexual Education Forum Resource List Parents and Carers.

Other

27.Personal, Social, Health & Economic Education (PSHE) Association. for list of resources and local advisors

28.Birmingham Health Education Service (‘Centre of Excellence’with national reputation in the planning and delivery of PSHE (Personal, Social and Health Education) and Citizenship education initiatives.

29.Sex Education Forum Factsheet on Faith, Values and Sex and Relationship Education(SRE)(2004).

Sexual health

Statistics, Sexual Health Guidance & Professional Bodies

30.Sexual Education Forum. Data and Statistics about sexual health in young people.

31.Health Protection Agency (2008). Sexually Transmitted Infections and Young People in the UK.

32.BASHH (2002) guidelines for development of comprehensive sexual health services for young people under 25 years.

33.BASHH (2010).Guidelines for Management of STIs and Related Conditions in Children and Young People.

34.Faculty of Sexual and Reproductive Healthcare (FSRH) (2010) Contraceptive Choices for Young People.

35.Department of Education. Teenage Pregnancy guidance.

36.Manual of the Society of Sexual Health Advisers (2004)

37.Faculty of Sexual and Reproductive Health.

38.British Association for Sexual Health and HIV.

39.Society of Sexual Health Advisers.

40.

Sexual Health Information for Young people

41.Like it is –

42.NSPCC –

43.Family Planning Association –

44.Brook Centers -

45.Gay Youth UK -

46.BPAS “You think you may be pregnant?” information sheet for young people

Where to find Sexual Health services

47.NHS Choices for listing of Sexual Health Clinics for Young People.

48.Brook Centres -

49.BPAS – leading private provider of abortion services,

Genetic testing

50.UK Network for Genetic Testing

51.Database of Genetic Testing Services

52.Association for Genetic Nurses and Counsellors

Confidentiality Resources

53.General Medical Council. 0-18. Guidance for all doctors.

54.Feming, (2006), C. Risk Management and the Fraser Guidelines. Confidentiality and Consent.

55.Department of Health (2004) Best Practice Guidance for Doctors and other HealthProfessionals on the Provision of Advice and Treatment to Young People under 16 on Contraception, Sexual and Reproductive Health.

Sexual health and disability

56.L, Sadlo G, Cross V (2010) Proposing a new sexual health model of
practice foruse by physical disability teams: The Recognition Model.International Journal of Therapy andRehabilitation17 (6) 290-299 (absract under

Helping teenagers and young people express themselves sexually

Books

57.Sexual Function in People with Disability and Chronic Illness- Marca L. Sipski and Craig J. Alexander 1997 Aspen Publishers Inc

58.The Ultimate Guide to Sex and Disability– by Miriam Kaufman, M.D., Cory Silverberg and Fran Odette 2003 Cleis Press

59.T he New Joy of Sexby Susan Quilliam 2009

60.The Sex Bookby Suzi Godson with Mel Agace, 2002 Cassell

61.Joannides, P. (2009) The Guide to Getting It On.

Disease-specific information

Multiple Scelerosis

62.

Cystic Fybrosis

63.

Muscular Dystrophy

64.

65. Article

66.

67.Sexperts Sex Info Online

Outsiders

68.

Cancer

69.

70.

Teen Info on Cancer and Sexuality

71.

72.

73.

General Information on Disability & Sex:

74.Sexual Health & Disability Alliance

75.Patient Self Help Group affiliated to SHADA

76.

Contact a Family: Sex and Relationship Education for Young People with Physical Disabilities, also available in audio format

77.

78.

79. add in parents section

80. add in sex ed section

81.British Association for Sexual Educators

82.

83.

84.

85.

86.

87.Lovers' Guide Online

88.Leonard Cheshire Disability

Disability friendly reputable sex shops who offer information & support

,

89. disability articles

90.

Disability friendly sex toys

91.

92. tips on adapting sex toys

93.Spokzwebsite selling sex toys for disabled people

94.

95.ShiriZinnoffers to hand-make sex aids for people with disabilities

Communication skills

Books

96.Bukatko, D. (2007). Child and Adolescent Development: A Chronological Approach.

97.Bekaert, S. (2004). Adolescents and Sex: The Handbook for Professionals Working with Young People.

98.Coleman, J. Roker, D. (1998) Teenage Sexuality: Health, Risk and Education.

Other materials

99.British Association for Sexual Health & HIV (BASHH) (2006) National Guidelines for consultations requiring a sexual history-taking

100.WHO (2001). Counselling Skills Training in Adolescent Sexuality and Reproductive Health – A Facilitator’s Guide