North West
Perinatal and Paediatric Clinical HIV Network Workshop
Thursday 10 May 2007
Keele Hall,
University of Keele, Stoke on Trent
DRAFT
Sponsored by:
Organised on behalf of the North West Specialised Commissioning Group by:
North West Perinatal and Paediatric Clinical HIV Network Workshop
May 2007
Contents1.Introduction / 1
2.Aims and Objectives / 1
3.Presentations / 1
4.Round Table Discussions / 1
5. Seminar Evaluation / 2
6.Future Meetings
6.1Suggested Topics / 2
2
7.Role of the Network / 3
8. General Feedback / 3
Appendices
Appendix A:Contact Details for North West Perinatal and Paediatric HIV Clinical Network Core Group / 3
Appendix B:Workshop Programme / 5
Appendix C:Delegate List / 6
Appendix D:Speaker Profiles / 9
Appendix E:Round Table Discussion Scenarios / 10
For Speaker Presentations, please refer to separate attachments
North West Perinatal and Paediatric Clinical HIV Network Workshop
May 2007
1.INTRODUCTION
The 3rdNorth West Perinatal and Paediatric Clinical HIV Network Workshop was held in the picturesque setting of Keele Hall, University of Keele, Stoke on Trent on Thursday 10 May 2007. The event was generously sponsored by Abbott, Boehringer-Ingelheim, Bristol Myers Squib, Gilead Medical and GlaxoSmithKlineandfacilitated by the North West Perinatal and Paediatric HIV Clinical Network Core Group.(For Core Group contact details please refer to Appendix A). The workshop was organised by Cheshire and Merseyside Specialised Commissioning Team (now the North West Specialised Commissioning Team).
Dr Paddy McMaster, Consultant Paediatric Intensivist from University Hospital of North Staffordshire NHS Trust chaired the morning session, and Dr Toni Tan, Consultant Paediatrician at NorthManchester GeneralHospital, chaired the afternoon session. (Please refer to Appendix B for the programme).
The workshop was well represented with approximately 60 delegates in total. Attending were representatives from a number of health professionals with clinical, nursing and commissioning backgrounds as well as pleasingly high representation from the voluntary sector. (Please refer to list of delegates attached in Appendix C).
2.AIMS AND OBJECTIVES
At the start of the day Dr Paddy McMaster asked all the delegates to identify their aspirations for the day. Some of those identified were:
How to engage with people who aren’t here / Promoting the role of the network / Find out more about HIV and what’s happening nationallyLearn about HIV in children / How to use St Mary’s / Meet people
Discovering key themes / How to provide children centred services / Learning about available treatments
HIV in neonates / Antenatal screening / How to break bad news
Learn more about paediatric HIV/ID / HIV + women in labour and pregnancy / World peace (!)
How networks work / Support for families with HIV / HIV care in DGHs
Who are HIV leads? / Ethical scenarios / Differences between child and adult care
HIV in A&E / Sharing opinions / Sharing knowledge
What services are available? / HIV and adolescence / Building a social and medical bridge
GPs and HIV / Issues around disclosure / HIV and family clinics
GU and adult services / Sexual health
3.PRESENTATIONS
Please refer to copies of the speaker’s profiles in Appendix D. The speaker presentations can be found in the separate attachments, which accompany this report.
4.ROUND TABLE DISCUSSIONS
Following the success of last year’s round table discussions, delegates were again given a number of scenarios to discuss in small groups. Details of the scenarios can be found in Appendix E. The discussion provoked lively debates from a range of issues and delegates commented on how useful it was to hear the opinions of a range of professionals.
5.SEMINAR EVALUATION
Approximately 60 delegates (including speakers) attended. Of those attending, 41 completed and returned the evaluation form. Feedback received regarding the presentations was overall excellent. Specific comments received for each presentation are as follows:
Breaking Bad News
Well presented
Useful case studies
Occasionally difficult to hear
Voluntary and Community Sector Support
Well presented, very enthusiastic
Needed more time a bit rushed
Adolescents and Family Clinic
Very well presented and down to earth, learned a lot
Interesting, thought provoking
Best speaker of the day
Testing for HIV
Informative, good delivery
Very informative, thought provoking issues
6.FUTURE MEETINGS
It is hoped that these educational workshops will continue to take place on a yearly basis. Delegates were asked if they had any other topic suggestions for future events. Comments provided are as follows:
6.1Suggested Topics for Future Meetings
Horizontal transmission
School education
Training for midwives
Clinical protocols / testing techniques / best practise
HIV disclosure and the law
Rapid testing on the labour ward
Women’s rights vs. rights of the unborn child
- ROLE OF THE NETWORK
Delegates were asked to suggest areas in which the network can provide support. Reported areas were:
Training issues for ‘outlying hospitals’
Feedback to hospitals from specialist centres on the outcome of pregnancies
Engagement with commissioners
Producing unified guidelines
Involvement of primary care
8.GENERAL FEEDBACK
The majority of delegates had described the whole day as inspiring, worthwhile, educational, stimulating, thought provoking, interesting, focussed and good for networking. Delegates were also very pleased by the lovely venue and excellent food. During the afternoon session the identified aspirations for the day were revisited, delegates reported that the majority of these had been met. Others were noted by the network and listed for future meetings.
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North West Perinatal and Paediatric Clinical HIV Network Workshop
May 2007
Appendix A
CONTACT LIST FOR NORTH WEST PERINATAL AND PAEDIATRIC HIV CLINICAL NETWORK CORE GROUP
Name / Title / Trust / Zone / Telephone /Dr Toni Tan / Consultant Paediatrician / Pennine Acute Hospitals NHS Trust
North Manchester General Hospital
Delaunays Road
ManchesterM8 5RB / Gtr Man / 0161 720 2618 / /
Dr Paddy McMaster / Consultant Paediatrician / PICU, UniversityHospital of North Staffordshire NHS Trust,
City General Hospital
Newcastle Road
Stoke on Trent ST4 6QG / Shrops
Staffs / 01782 553170 / 2751 / /
Dr Andrew Riordan / Consultant in Paediatric Infectious Diseases and Immunology / Royal Liverpool Children's NHS Trust
Alder Hey Children's Hospital
Eaton Road
LIVERPOOLL12 2AP / C&M / 0151 252 5764 / /
Cath Benson / Immunology and infectious disease associate nurse specialist / Royal Liverpool Children's NHS Trust
Alder Hey Children's Hospital
Eaton Road
LIVERPOOLL12 2AP / C&M / 0151 252 5079 / /
Roz Jones / Specialised Commissioning Manager & Lead Commissioner for Childrens Services / North West Specialised Commissioning Team
Quayside
WilderspoolPark
Greenalls Avenue
Stockton Heath
Warrignton
WA4 6HL / North West / 01925 406128 / /
Simon Henning / Commissioner for Sexual Health Services (C&M) / C/o Wirral PCT
St Catherine's Hospital,
Church Rd
Tranmere, Wirral
CH42 0LQ / C&M / 0151 488 7775 /
Neil Jenkinson / Commissioner for Sexual Health Services (Gtr Man) / North Manchester PCT
2nd Floor Newton Silk Mill
Holyoak Street
Newton Heath
Manchester M40 1HA / Gtr Man / 0161 219 9468 / /
Juliet Ramage / Children Services Manager / Barnardos Health Through Action Project
The Progress Centre
Carlton Place
Hardwick
Manchester M12 6HS / Gtr Man / 0161 273 2901 / /
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North West Perinatal and Paediatric Clinical HIV Network Workshop
May 2007
Appendix B
North West Perinatal andPaediatric
HIV Clinical Network
PROGRAMME
Thursday 10th May 2007
Keele Hall, University of Keele, Stoke on Trent, ST5 1PP
9:00Registration with Tea and Coffee
Morning Chair:Dr Paddy McMaster
9:30Welcome and Introduction
Dr Paddy McMaster, University Hospital of North Staffordshire
9:45 Breaking bad news: practical support
Cathryn Benson, Immunology & Infectious Diseases Nurse Specialist, Royal Liverpool Children’s Hospital - Alder Hey
10:15Voluntary and Community Sector Support
Magda Conway, National Children’s Bureau
11:00Coffee Break
11:15Adolescents and Family Clinic
Dr Sam Walters, Senior Lecturer in Paediatric Infectious Diseases, Imperial College and Consultant Paediatrician, St Mary’s Hospital, London
12:00Testing for HIV: antenatal, neonatal and paediatric
Christina Hanley, Paediatric HIV Nurse Specialist, St Mary’s Hospital, London
12:45Lunch
Afternoon Chair:Dr Toni Tan
13:45 Round Table Discussions
Scenarios:
- The mother who declines HIV testing antenatally
- The father who declines HIV testing of his child on paediatric ward
- Social problems: support from CVS
- Depressed adolescent
- Diagnosis of child
- Role of North West Paediatric & Perinatal HIV Network
14:45Tea Break
15:00Feedback from Round Table Discussions
16:00Role of North West Paediatric & Perinatal HIV Network
Dr Toni Tan, NorthManchester GeneralHospital
Dr Andrew Riordan, Alder Hey Children’s Hospital
Dr Paddy McMaster, University Hospital of North Staffordshire
16:45Closing Remarks
17:00Departure
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North West Perinatal and Paediatric Clinical HIV Network Workshop
May 2007
Appendix C
DELEGATE LIST
1
North West Perinatal and Paediatric Clinical HIV Network Workshop
May 2007
Name / Title / Address / Address / Tel No. / emailDr Paddy McMaster / Speaker - Consultant Paediatrician / University Hospital of North Staffordshire / PICU, CityGeneralHospital,
Newcastle Road
Stoke on Trent
ST4 6QG / 01782 715 444 /
Dr Toni Tan / Speaker - Consultant Paediatrician / The Pennine Acute Hospitals NHS Trust / Fairfield General Hospital
Rochdale Old Road
Bury, Lancs
BL9 7TD / 0161 720 2618 /
Cathryn Benson / Speaker - Nurse Specialist / Royal Liverpool Children's NHS Trust / Alder Hey Children's Hospital
Eaton Road
Liverpool
L12 2AP / 0151 252 5079 /
Christina Hanley / Speaker / St Mary's / London /
Sam Walters (Dr) / Speaker / St Mary's Hospital / London /
Magda Conway / Speaker / National Children Bureau / London / 020 7843 1911 / 077 250 74552 /
Andrew Riordan / Speaker - Consultant Paediatrician / Royal Liverpool Children's NHS Trust / Alder Hey Children's Hospital
Eaton Road
Liverpool
L12 2AP / 0151 282 4517 /
Roz Jones / Specialised Commissioner / Specialised Services Commissioning Team / Countess of Chester Health Park
Liverpool Road
ChesterCH2 1HJ / 01244 650370 /
Jenny Dodd / Ass Specialised Commissioner / Specialised Services Commissioning Team / Countess of Chester Health Park
Liverpool Road
ChesterCH2 1HJ / 01244 650584 /
Simon Henning / Network Co-ordinator / C & M Sexual Health Network
Wirral PCT / Admin Block, St Catherine's Hospital
Church Road
Birkenhead CH42 0LQ / 0151 488 7775 /
Moira Grobicki / Advanced Nurse Practitioner - Sexual Health / Mid Cheshire Hospitals NHS Trust / Leighton Hospital
Middlewich Road
Crewe Cheshire. CW1 4QJ / 01270 612255 /
Carole O'Leary / Health Advisor/Nurse Practitioner / Sexual Health Centre / Leighton Hospital
Middlewich Road
Crewe Cheshire. CW1 4QJ / 01270 612255 /
Philip Blakemore / Nurse Practitioner/Health Advisor / Mid Cheshire Hospitals NHS Trust / Leighton Hospital
Middlewich Road
Crewe Cheshire. CW1 4QJ / 01270 273737
Allison Levinson / Drug Liaison Midwide / Infectious Disease Co-ordinator / WirralHospital NHS Trust / Arrowe Park Hospital
Arrowe Park Road
Upton,
Wirral CH49 5PE / 0151 604 7040 /
Nicola Fairhurst / Clinical Specialist / Wirral Drug Service / St Catherines Community Hospital
Derby Road
Tranmere
Wirral. CH42 0LQ / 0151 604 7330 /
Ignatious Losa (Dr) / Consultant Paediatrician / East Cheshire NHS Trust / Macclesfield District General Hospital
Victoria Road
Macclesfield
Cheshire SK10 3BL / 01625 661326 /
Caroline Kerrison / SpR Paediatrics / Mersey Deanery Trainee / Warrington Community Paediatrics / 7968204538 /
Enitan Carrol (Dr) / Consultant Paediatrician/Senior Lecturer / University of Liverpool Institute of Child Health / Alder Hey Children's Hospital
Eaton Road
Liverpool
L12 2AP / 0151 252 5160 /
Cath Rollinson / Substance Misuse Midwife / St Helens & Knowsley NHS Trust / Whiston Hospital
Warrington Road
Whiston L35 5DR / 0151 430 1494 /
Gerry Docksey / Outpatient Manager / St Helens & Knowsley NHS Trust / Whiston Hospital
Warrington Road
Whiston L35 5DR / 0151 430 1493 /
C Robinson / Midwife / Whiston Hospital
Warrington Road
Whiston L35 5DR
Donal Manning / Consultant Paediatrician / WirralHospital NHS Trust / Arrowe Park Hospital
Arrowe Park Road
Upton,
Wirral CH49 5PE / 0151 678 5111 /
C Berry / S/N / Alder Hey Children's Hospital
Eaton Road
Liverpool
L12 2AP
J Peacey / S/N / Alder Hey Children's Hospital
Eaton Road
Liverpool
L12 2AP
A O'Sullivan / Barnardos / Health Through Action Project
Gregory's Place,
69 Ardwick Green
Manchester M12 6ES
Juliet Ramage / Manager / Barnardos / Health Through Action Project
Gregory's Place,
69 Ardwick Green
Manchester M12 6ES / 0161 273 2901 /
Hester Cox / Social Worker / Barnardos / Health Through Action Project
Gregory's Place,
69 Ardwick Green
Manchester M12 6ES / 0161 273 2901 /
Jill Hellings / Social Worker / Barnardos / Health Through Action Project
Gregory's Place,
69 Ardwick Green
Manchester M12 6ES / 0161 273 2901 /
Donna Havill / Team Leader / Barnardos / Health Through Action Project
Gregory's Place,
69 Ardwick Green
Manchester M12 6ES / 0161 273 2901 /
Fatima Katergi / Services Adviser / George House Trust / 77 Ardwick Green
Manchester
M12 6FX / 0161 274 4499 /
Sharon Wilson / HIV Specialist Midwife / Manchester Specialist Midwifery Service / Zion Community Centre
339 Stretford Road
Hulme, Manchester
M15 4ZY / 0161 226 6669 /
Mr Koon L Chan / Consultant in Fetal & Maternal Medicine / Central Manchester & Manchester Children's University Hospitals NHS Trust / Saint Mary's Hospital for Women & Children
Hathersage Road
Manchester M13 0JH / 0161 276 6181 /
Elisabeth Jameson / SHO in Nephrology / Central Manchester & Manchester Children's University Hospitals NHS Trust / Royal Manchester Children' Hospital
Hospital Road
Pendlebury
Manchester M27 4HA / 07861 298377 /
Margaret Kingston / Consultant in Gu Medicine / Central Manchester & Manchester Children's University Hospitals NHS Trust / Manchester Royal Infirmary
Oxford Road
Manchester
M13 9WL / 0161 276 5203 /
Helen Hinchliffe / Antenatal Clinic Manager / CityGeneralHospital -North Staffs Healthcare / City General Hospital
Newcastle Road
Stoke on Trent
ST4 6QG / 01782 553499 /
Lorraine Olley / Senior Staff Nurse / Genito Urinary Medicine / Stafford Hospital NHS Trust
Weston Road
Stafford
ST16 3SA / 01785 230260 /
Kathleen Mansell / Neonatal Midwife / CityGeneralHospital -North Staffs Healthcare / City General Hospital
Newcastle Road
Stoke on Trent
ST4 6QG / 01782 552439
Janet Jones / Neonatal Staff Nurse / CityGeneralHospital -North Staffs Healthcare / City General Hospital
Newcastle Road
Stoke on Trent
ST4 6QG / 01782 552439
Dorothy Taylor / Neonatal Midwife / CityGeneralHospital -North Staffs Healthcare / City General Hospital
Newcastle Road
Stoke on Trent
ST4 6QG / 01782 552439
Christine Pedder / Neonatal Midwife / CityGeneralHospital -North Staffs Healthcare / City General Hospital
Newcastle Road
Stoke on Trent
ST4 6QG / 01782 552439
Rachael Jolley / Student Nurse / KeeleUniversity, School of Nursing & Midwifery / City General Hospital
Newcastle Road
Stoke on Trent
ST4 6QG / 07791 435654 /
Jody Bailey / Nurse Lecturer / KeeleUniversity, School of Nursing & Midwifery / City General Hospital
Newcastle Road
Stoke on Trent
ST4 6QG / 01782 556661 /
Jaine Weaver / Clinical Nurse Specialist HIV / GUM / Royal Shrewsbury Hospital
Mytton Oak Road
Shrewsbury
Shropshire SY3 8XQ / 07974 135744 /
Sharon Lord / Antenatal Screening Co-ordinator / Antenatal Clinic / Royal Shrewsbury Hospital
Mytton Oak Road
Shrewsbury
Shropshire SY3 8XQ / 01743 261265 or 01743 261000 /
Cathy Ormiston / HIV Consultant Nurse Specialist / Sexual Health Service / South Staffordshire PCT
White Lodge
New Penkridge Road
Cannock, Staffs. WS11 1NN / 01543 469759 /
Yvonne Heath / Paediatric Clinical Nurse Specialist / Birmingham Heartlands
Bordesley Green
Birmingham
B9 5SS / 07976 650598 /
Joanne Hales / School Nursing Sister / North Staffs PCT / Ryecroft Health Centre
Broad Street
Newcastle, Staffs
ST5 2BQ / 01782 427309 /
Jacqui Angell / Advanced Neonatal Nurse Practitioner / Royal Shrewsbury Hospital
Mytton Oak Road
Shrewsbury
Shropshire SY3 8XQ / 01743 261217 /
Pamela Jones / Midwife / University Hospital of North Staffordshire NHS Trust / Princess Road
Hartshill
Stoke on Trent
ST4 7LN / 01782 552476 /
Jenny Read / HIV Consellor / Sexual Health Unit, Health Promotion, Piccadilly Project / 59 Piccadilly
Hanley
Stoke on Trent, Staffs
St1 1HR / 01782 425930 /
Karen Davies / Consultant Paediatrician / Royal Wolverhampton Hospitals NHS Trust / New CrossHospital
WolverhamptonRoad
HeathTown
Wolverhampton WV10 0QP / 01902 695172 /
Peter Butler / University Hospital of North Staffordshire NHS Trust / Stoke on Trent
Alison Bridgwood / University Hospital of North Staffordshire NHS Trust / Stoke on Trent
David Walker / Commissioner Sexual Health & HIV / BEN PCT / BEN PCT
Waterlinks House
Richard Street
Aston
Birmingham N7 4AA / 0121 380 9023 /
Jane Webb / Snr S/N GU Medicine / StaffordDistrictGeneralHospital /
Vibha Sharma (Dr) / Consultant Paediatrician / Wrightington, Wigan and Leigh NHS Trust / Royal Albert Edward Infirmary
Upper Johnson Ward
Wigan Lane
Wigan WN1 2NN / 01942 822548 / ;
Meera Lama / Consultant Paediatrician / East Lancs Hospitals NHS Trust / Blackburn Royal Infirmary
Haslingdon Road
Blackburn
BB3 2HH / 01254 263555 ex 2744 /
Fiona Eaton / Consultant Paediatrician / Morecambe Bay Hospitals NHS Trust / Royal Lancaster Infirmary
Ashton Road
LancasterLA1 4RP / 01524 771611 /
Dr Javed Iqbal / Consultant Paediatrician / East Lancs Hospitals NHS Trust / Burnley General Hospital
Casterton Avenue
Burnley
Lancs BB10 2PQ / 01282 474188 /
Tim McBride / Consultant Paediatrician / Southport & Ormskirk NHS Trust / Ormskirk & District General Hospital
Wigan Road
Ormskirk L39 2AZ / 01695 656185 /
Jenny Butters / Antenatal Screening Midwife / GlanClwydHospital
Ward 23A, Obstretic Day Unit
Bodelwydden
Rhyl, Denbighshire, LL18 5UJ / 01745 445187 /
Rosie Jackson / HIV Services Team Leader / Staffordshire Buddies
PO Box 473
Hanley
Stoke on Trent
ST1 3JN / 01782 201279 /
Steve Manley / HIV Case Worker / Staffordshire Buddies
PO Box 472
Hanley
Stoke on Trent
ST1 3HX / 01782 201352 /
Janet Lucas / African Communities Support Worker / Staffordshire Buddies
PO Box 472
Hanley
Stoke on Trent
ST1 3HX / 01782 201280 or 01782 201251 /
Joanne Kemsley / Children & Families Development Worker / Staffordshire Buddies
PO Box 474
Hanley
Stoke on Trent ST4 3HX / 01782 201255 /
Fiona Russell / HIV Services Assistant / Staffordshire Buddies
PO Box 474
Hanley
Stoke on Trent ST4 3HX / 01782 201255 /
Stephen Head / Senior MSL / Gilead Sciences Ltd / FlowersBuilding
GrantaPark
Abingdon
Cambridge CB21 6GT / 07768 705945 /
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North West Perinatal and Paediatric Clinical HIV Network Workshop
May 2007
Appendix D
SPEAKER PROFILES
Dr Paddy McMaster(Morning Chair)
Dr Paddy McMaster is the Consultant Paediatrician with a Specialist Interest in Paediatric Infectious Diseases at the University Hospital of North Staffordshire in Stoke on Trent. He is responsible for the medical care of the children with HIV, the children born to mothers with HIV and for advice about testing children for HIV in North Staffordshire and referrals from Shropshire and the north of the West Midlands. His training included a year as a Fellow in Infectious Diseases in Sydney and two years in Papua New Guinea, which often proves useful in Stoke!
Dr Toni Tan (Afternoon Chair)
Dr Tan has been in his current post since February 2002. He is a general paediatrician with interest in HIV, Respiratory Medicine and Neonatology. He is also the Lead Paediatric HIV Consultant for Greater Manchester. His hobbies include SCUBA Diving, Ballroom dancing and he is an avid Liverpool fan!
Cathryn Benson
Nurse Specialist in Paediatric Infectious Diseases and Immunology at the Royal Liverpool Children's Hospital. Hobbies include, watching Liverpool Football Club and listening to Take That !
Magda Conway
Magda has coordinated the Children and Young People HIV Network at the National Children’s Bureau for 4 years. She is author of HIV in Schools (NCB 2004); Developing support services for children, young people and families living with HIV (NCB 2006); Children, HIV, Asylum and Immigration (2006). Prior to this Magda ran a regional teenage pregnancy project across East Sussex, worked for East Sussex, Brighton & Hove Health Promotion both in HIV prevention and sexual health, ran a Community Development Project and worked as a youth worker.