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Palliative Care Resources
National Consensus Project for Quality Palliative Care
(A task force of the American Academy of Hospice and Palliative Medicine)
Clinical Practice Guidelines for Quality Palliative Care
Center to Advance Palliative Care List of Palliative care providers
Institute for Clinical System Improvement
(Health Care Guideline for Palliative Care)
Fourth edition, November 2011
Hospice and Palliative Care Nurse Association
Hospice and Palliative Care Association of Michigan
Michigan Coalition for Honoring Healthcare Choices
National Hospice and Palliative Care Organization
Children’s Project on Palliative/Hospice Services (ChiPPS)
NHPCO’s pediatric leadership council
Concurrent Care for Children Implementation Toolkit: Section 2302 of the Patient Protection and Affordable Care Act (Medicaid Laws & Care Algorithms)
NHPCO’s Standards for Pediatric Palliative and Hospice Care: Advancing Care for American’s Children
Patient Education:
What is Palliative Care? (Patient brochure)
National Hospice and Palliative Care Organization
How can Palliative Care Help Me? (Patient brochure)
National Hospice and Palliative Care Organization
How to Support Someone Caring for Another (Patient brochure)
National Hospice and Palliative Care Organization
How to Support Someone Caring for Another (Patient Brochure – Spanish)
National Hospice and Palliative Care Organization
The Dying Process: A Guide for Family Caregivers (Patient booklet)
National Hospice and Palliative Care Organization
End-of-Life Decisions (Patient booklet)
National Hospice and Palliative Care Organization
Conversations before the Crisis (Patient booklet)
National Hospice and Palliative Care Organization
Artificial Nutrition (Food) and Hydration (Liquids) at the End of Life (Patient brochure)
National Hospice and Palliative Care Organization
Communication End-of-Life Wishes (Patient booklet)
National Hospice and Palliative Care Organization
Pediatric Patient Education:
Talking with Your Child about His or Her Illness
or_Her_Illness.pdf
Spanish:
When Your Child is in Pain
Spanish:
Talking to Your Child’s Doctor: When Your Child Has a Serious Illness
Spanish:
Care Manager Resources:
What is Palliative Care? Information and Resources for Healthcare Professionals
National Hospice and Palliative Care Organization
Talking about Treatment Options and Palliative Care: A Guide for Clinicians
National Hospice and Palliative Care Organization
Storing Your Advance Directives
MICHIGAN: Advance Directive, Planning for Important Health Care Decisions (State Advance Directives)
Partnering for Children: Pediatric Outreach Guide
Planning Ahead Resources for providers and families
Pediatric Palliative Care Resources
Children’s Hospice & Palliative Care Coalition (CHPCC)
(An initiative that advocates for policies impacting access to community-based services; collect, develop and share best practices; initiate research for pediatric palliative care; create innovative models of care; and provide an environment for providers to learn from one another)
The Initiative for Pediatric Palliative Care (ippc)
National Hospice and Palliative Care Organization (NHPCO) –Pediatric Palliative Care
American Academy of Child and Adolescent Psychiatry
Facts for Families: Children and Grief (pdf handout)
The Compassionate Friends
The Grief of Grandparents
National Alliance for Grieving Children
About Childhood Grief
National Association of School Psychologists
Helping Children Cope with Loss, Death, and Grief; Tips for Teachers and Parents
Eve's Place
(Bereavement Support for children of all ages, group sessions). Located in Lansing, Grand Rapids and Ann Arbor, MI
Rainbows
Guiding Kids through Life's Storms (Parent Brochure)
Center to Advance Palliative Care
Pediatric Palliative Care (Multiple Resources for Providers)
Pregnancy Loss and Infant Death Alliance (PLIDA)
PLIDA supports health care practitioners and parent-advocates in their efforts to improve care for families who experience the death of a baby during pregnancy, birth, or infancy.
Videos Explaining Palliative Care
Palliative Care: What is it and who it for? 3:00
Palliative Care and the Human Connection- Ten Steps for what to say and Do – how to lead a discussion 5:00
Experts: Palliative Care Lower Costs 3:51
Amy Abernathy MD, Palliative Care Its Time for a National Conversation. 6:20
The Critical Conversation on Palliative Care 2:566
Pallaitive Care Versus Hospice Care 1:50
Pallative Care – Lynne Taylor MD4:12
Pediatric-focused videos:
Kaiser: Special Needs, Special Care: Palliative Care Helps Families Navigate Unfamiliar Medical Terrain 3:24
End of Life Issues - Pediatrics 7:19 (Good overview of care for various ages)
LIFE Before Death Pediatric Palliative Care 5:26
Samantha (from "My Life, My Illness") 6:18
Portraits of Life, Love and Legacy through Pediatric Palliative Care 5:39
Grief and nurses working in pediatric palliative care (for the nurses caring for ill / dying children) 4:09
Principles of Pediatric Palliative Care (comprehensive overview of Pedi concepts and care) 1:05:12