Job title: Prostate Cancer Information Manager – Nurse Specialist
Reports to: Chief Executive -Orchid
Accountable to: Chief Executive - Cancer Black Care
Hours: 9:00-5:30pm, 37.5 hours per week (additional hours may be required)
Annual leave: 25 days per annum, plus public holidays
Location: ORCHID
231-233 North Gower Street
London
NW1 2NR
Salary: £42,000 - £48,000 (Band 6/7) plus pension
This post is funded for 3 years by the Big Lottery Fund as part of the project “Changing lives - engaging black African and Caribbean men at risk of or affected by prostate cancer, as well as men from disadvantaged communities”
About Orchid Cancer Appeal
Over 50,000 men are diagnosed every year in the UK with testicular, prostate and penile cancer. Orchid is the UK’s leading charity working in the area of male-specific cancers.
Established in 1996 by testicular cancer patient Colin Osborne, and the oncologist who saved his life, Professor Tim Oliver, the charity provides support to people affected by or interested in these cancers through funding a world-class research programme, awareness and education campaigns and a range of vital support services. These services include Orchid Male Cancer Information Nurse Specialists, a freephone National Male Cancer Helpline, a Testicular Cancer Counselling Service, a portfolio of information standards accredited publications, an award winning testicular cancer microsite called “Your Privates” and a schools resource pack, a dedicated website, community education Roadshows and a unique Community Golf Programme.
Orchid works closely with health and social care professionals, community groups, schools and universities, other not-for-profit organisations, the business community, MPs and the media to raise awareness of these cancers and to campaign for better care and services. Orchid has achieved significant success in a short space of time and supported thousands of men and their families.
About Cancer Black Care
Cancer Black Care was established in 1995 by Isaac Dweben, following the death of his elder brother from prostate cancer, in response to the lack of appropriate information and level of cancer awareness amongst his African and Caribbean community and the urgent need to redress this gap to avoid further deaths from preventable and treatable cancers by providing a range of support services aimed at raising awareness of cancer within the BME community and influencing the information, care and treatment of cancer to ensure it is appropriate and sensitive to ethnic and cultural need.
Cancer Black Care has extensive experience of engaging with black African and Caribbean communities, delivering high quality cancer support, raising awareness of cancer within the BME community and ensuring it is culturally appropriate and accessible to the communities in need.
About – ‘Changing lives - engaging black African and Caribbean men at risk of or affected by prostate cancer, as well as men from disadvantaged communities’.
Orchid is excited to launch a new 3 year project in collaboration with Cancer Black Care to combine our strengths and expertise to provide focused support to black African and Caribbean men, their families and disadvantaged communities at risk of or affected by prostate cancer, funded by the Big Lottery Fund. To run this project we will be recruiting two new posts; the Prostate Cancer Information Manager – Nurse Specialist and the Project Administrator.
This joint project will assist our two organisations to come together to develop and deliver targeted information and support to overcome the barriers and misunderstandings about prostate cancer amongst black African and Caribbean men and target disadvantaged communities, empowering them with the information they need to deal with risk factors, diagnosis and treatment options, and help them to overcome negative perceptions of the disease and learn how to engage with health services effectively.
This approach will enable our two organisations to make a difference which we could not achieve alone. It will enable us to achieve our shared objectives of tackling the barriers men from black African and Caribbean communities and disadvantaged groups face in seeking help and advice about prostate cancer and delivering better quality information and support for those at risk of or affected by this cancer.
Prostate Cancer Information Manager – Nurse Specialist
Orchid is looking to appoint a Prostate Cancer Information Manager – Nurse Specialist, with extensive experience of developing and delivering services to BME communities. The postholder will play a key role in developing newservices to reach and support black African and Caribbean men at risk of or affected by prostate cancer and men from disadvantaged communities.
Working with Orchid’s small team of part time Male Cancer Information Nurse Specialists and Education Manager and staff from Cancer Black Care, you will be responsible for developing and delivering a comprehensive information and support service for menaffected by prostate cancer, their families, friends and also health and social care professionals with a particular focus on prostate cancer in the target communities of Brent, Lewisham, Lambeth, Newham, Hackney and Tower Hamlets. You will:
- Use a partnership-working approach to liaise with the BME communities in these target areas to improve access to prostate cancer services for black African and black Caribbean men, their families and carers and address barriers to engagement.
- Design and deliver prostate cancer education and information promotion activity in the identified communities in the 6 target London boroughs.
- Provide peer support opportunities for black African and black Caribbean men and families affected by prostate cancer and those from disadvantaged communitieswithin the target areas.
- Deliver appropriate prostate cancer education for this client group to health and social care professionals within the boroughs identified.
- Support the development and delivery of Orchid and Cancer Black Care services
You will haveexcellent verbal and written communication skills, experience or proven interest within the cancer field and / or prostate cancer (NHS, private, charity or community setting) and significant experience of addressing the needs of a range of ethnic groups. This role offers a unique opportunity to make a real difference for people affected by or interested in prostate cancer, their friends and families and those who provide key services for this client group such as GPs and other health professionals.
Job purpose
Key duties: To ensure that black African and black Caribbean men, their families and carers and disadvantaged groupsacross Brent, Lewisham, Lambeth, Newham, Hackney and Tower Hamlets are aware of their higher risk of prostate cancer, risk factors, signs and symptoms, how to manage their cancer diagnosis, where to go for peer support and where and when to go for further help.
PROMOTION, NETWORKING & OUTREACH
- Work towards understanding the barriers and gaps in support for this client group, compiling findings as part of a continuous needs assessment for the project and deliveringthe project in a way in which to overcome the identified barriers and gaps.
- Act as a source of expert advice and information on prostate cancerincluding dealing with enquiries from the general public, people affected by male specific cancers, health and social care professionals and the media with a particular focus on prostate cancer.
- Develop and deliver a comprehensive information and support service for black African and Caribbean men and families/carers and men from disadvantaged communitiesaffected by prostate cancer.
- Produce culturally-sensitive literature, in on-line or paper based formatsappropriate to the needs of black African and Caribbean men. This also includes contributing to website section dedicated for use by BME groups and developing an information library for prostate cancer, events and e-bulletin and other appropriate forums.
- Take responsibility for co-ordinating publicity, promotion and dissemination of information about this project, Orchid and Cancer Black Care to this client group and communities within an overall objective of encouraging uptake of the project by black African and Caribbean men, their families and carers.
- Develop and maintain strong links with key stakeholders in local BME services. Liaise with individuals, statutory and voluntary organisations as appropriate and represent the project at relevant meetings, forums and conferences in agreement with Orchid’s CEO.
- Work alongside Orchid/Cancer Black Care staff and partners in co-ordinating translation services (as required) or other support that will assist BME clients in engaging with any of the services provided by the project and Orchid/Cancer Black Care.
- Work with Orchid’s current Male Cancer Information Nurse Specialist team to assist the day-to-day delivery of the male cancer information service including the freephone National Male Cancer Helpline and email service, developing and updating publications, managing website content and the outreach information programme.
- Build relationshipsand meet with the people who make and influence health policy to raise key issues, sharing our expertise and influencing change. This will include working with relevant CCGs, cancer networks, hospices, local cancer information centres, voluntary organisations, the business community including the pharmaceutical industry etc.
- Work with the Chief Executives of Orchid and Cancer Black Care to highlight prostate cancer issues, raise awareness, influence change and improve the outcomes for men affected by prostate cancer. This will include building relationshipsand meeting with the people who make and influence health policy to raise key issues and share our expertise, working collaborativelywith other organisations to push for change and sharing learnings throughpublishing reports, journal papers, and speaking at conferences.
- Work with the Chief Executives of Orchid and Cancer Black Care to provide politicians, NHS managers and commissioners with evidence about the value of specialist services.
TRAINING / COMMUNITY EDUCATION
- Over 3 years to deliver a minimum of 22 Prostate Cancer Education Roadshows in target communities and in locations specific to meeting the needs of black African and Caribbean men and men from disadvantaged communities.
- Over 3 years to set up and deliver 6 peer support groups providing opportunities for black African and Caribbean men and men from disadvantaged communities to benefit from mutual support and education opportunities to find out more about prostate cancer and receive support in their cancer journey.
- Work with Orchid’s current Male Cancer Information Nurse Specialist team to provide cancer information education and training to health and social care professionals and participate in health promotion sessions.
- Develop a Resource Library on prostate cancer for health and social care professionals, men and their families, media and any other parties requiring information.
- Liaise with and support the activities of the Orchid Editorial Board. The Orchid Editorial Board comprises volunteers with expertise or a personal interest in male cancer. They support the development and ongoing review of information.
ENVIRONMENT
- Manage prostate cancer enquiries from the general public, men and their families, health and social care professionals, providing information, support and advice on prostate cancer issues and topics and where relevant to signpost enquirers to an appropriate source of information or support.
- Provide both practical and emotional support to men and families, giving them the opportunity to acknowledge and express their concerns in a safe environment.
- Communicate sensitively and compassionately in highly emotional situations to people who may be distressed.
- Maintain knowledge of clinical and research developments in male cancer through relevant journals, attending conferences and liaison with healthcare professionals.
- Promote user participation in the development of services and facilitate regular user forums as appropriate.
- Manage both the promotion of all project activities via publicity mailings and social media,and the briefing of the relevant PR agency to generate complementary media activity.
MANAGEMENT
- Motivate, support and manage aProject Administrator to achieve project objectives.
- Regularly review performance against project objectives.
- Provide comprehensive progress reports on the project such as the impact of the role on service development and uptake, as required by the Chief Executive of Orchid or Cancer Black Care.
- Oversee project monitoring and provide reports to the Trust Team in line with Big Lottery Fund reporting requirements.
GENERAL AND ADMIN TASKS
- Maintain appropriate records relating to all outreach work and client contact maintainingaccurate recording of all enquiries via the charity database.
- Maintain good communication with the Orchid and Cancer Black Care teams, sharing expertise, information, resources and ideas with colleagues in order to raise the profile of the needs of the client group both within the Orchid team and with partner organisations
- Contribute to Orchid and Cancer Black Care project and team meetings as required.
- To ensure that advancing equality and diversity is central to the project, and providingtraining and guidance to staff and volunteers as required.
- Keep the Orchid library up to date and ensuring the availability of relevant resources on prostate cancer and BME issues for all staff and volunteers.
- Any other tasks as reasonably required by the line manager, Orchid’s Chief Executive and CEO of Cancer Black Care.
The list of duties within the job description is not exhaustive and is intended to outline the main activities of the post. Duties and responsibilities may be subject to change taking into account the development needs and following full discussion with the post holder.
Person Specification
Essential / Desirable / Method of assessment
Qualification / Degree in health related subject
Experience or proven interest in cancer care or service delivery oncology certificate or equivalent experience
RGN or AHP (Agenda for Change Band 6 or 7)
Evidence of continuous professional development / Masters degree level education / Application form / interview/
references
Experience / 3 years’ experience in contact with people affected by cancer, life threatening diseases or long term conditions
or
Face to face or telephone based patient information services
Addressing the needs of a range of BME groups
In-depth understanding of diverse cultures and their differing perspectives on health awareness and health service take up
Experience of receiving and communicating complex information appropriate to the needs of the client group
Networking, planning, promoting and delivering projects/services both individually and in partnership with local people and organisations
Experience of explaining/ providing specialist information materials
Experience of supporting people who are distressed by information received
Interest in cancer awareness/health promotion / Experience of working with people affected by prostate cancer
Familiarity with cancer information materials and facilitating access to them
Experience of charity work
Experience of audit and data collection
Experience of working with and developing volunteer workers / Application form /interview / references
Skills / Ability to provide emotional or psychological support to patients with cancer
Excellent communication skills
Excellent writing skills
Excellent people skills
Ability to work under pressure
Ability to remain calm in stressful situations
Ability to manage own workload/work on own initiative
Self motivated
Computer literate
Innovate and flexible approach to service development
Planning and organisation skills
Ability to participate in internal and external meetings / Experience of designing/ delivering training programmes, particularly communication skills and cancer focussed learning / Application form /interview/ references
Knowledge / Knowledge and understanding of issues pertaining to patients with cancer
Knowledge of National Cancer Plan and National Cancer Reform Strategy / Understanding and experience of service improvement / Interview
Other / Ability to work flexibly / Application form / interview/ references
The competent use of technology and information systems is an essential requirement of this role. Staff are expected to be competent with the use of technology and information systems and understand their duties and responsibilities with regard to the appropriate use of personal data including sensitive personal data.
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