August 2011
Joanne M. Hilden, MD
Curriculum Vitae
Office AddressDirector of Clinical Services
Center for Cancer and Blood Diseases
Associate Chief, Section of Pediatric Hematology/Oncology/BMT
Children’s Hospital Colorado
13123 East 16th Street B115
Aurora, CO 80045
Phone 720 777-8857
Fax 720 777-7279
Education1975-77 BS University of Minnesota (Medical Technology)
1983-88 MD University of MinnesotaSchool of Medicine, Mpls, MN
1985-86 Pre-doctor fellowship in Immunobiology, lab of Dr. Fritz
Bach, University of Minnesota
Post-graduate and1988-91 Pediatric Residency, University of Minnesota
Fellowship TrainingDepartment of Pediatrics
1991-94Fellowship, Pediatric Hematology/Oncology/BMT,
University of Minnesota, Department of Pediatrics,
Section of Hematology/Oncology/BMT
Faculty Appointments1994-95Instructor, Department of Pediatrics, University of Minnesota School of Medicine
1995-01Assistant Professor, Department of Pediatrics, University of MinnesotaSchool of Medicine
2004-07Associate Professor, Department of Pediatrics, ClevelandClinicLernerCollege of Medicine at CaseWesternUniversity
2009-11Clinical Professor of Pediatrics, Cincinnati Children’s Hospital, CincinnatiOH, affiliate of St. Vincent, Indianapolis
2011Visiting Professor of Pediatrics, University of Colorado, Denver, CO
Hospital and other1994-01Staff Hematologist/Oncologist, St. Paul Children’s Professional Hospital, St. Paul, Minnesota
Positions 2001-07Chair, Department of Hematology/Oncology, The Children’s Hospital at The Cleveland Clinic.
2001-07Faculty, TaussigCancerCenter, Cleveland Clinic
2001-07Faculty, Brain Tumor Institute, Cleveland Clinic
2002-07Medical Director, Pediatric Palliative Medicine, The Children’s Hospital at The Cleveland Clinic.
2008-11Attending Physician, Hospice of the Western Reserve, Cleveland, OH
2007-11Executive Medical Director, Peyton Manning Children’s Hospital at St. Vincent, Indianapolis, IN
2007-11Attending Physician, Pediatric Hematology/Oncology
2007-11Medical Director, Pediatric Palliative Medicine, and attending Hospice Physician, Peyton Manning Children’s Hospital, Indianapolis, IN
2011Director of Clinical Services, Center for Cancer and Blood Diseases
Associate Chief, Section of Pediatric Hematology/Oncology/BMT. Children’s Hospital Colorado.
Honors, special1979BA in Medical Technology with High Distinction
recognitions, and(class valedictorian)
awards1984-88MedicalSchool honors
University of MN Ruth Boynton Memorial Scholarship
University of MN W. Boutell Memorial Scholarship
University of MN Bell-Evans Book Award in Pathology,
awarded to top student in pathology year 2 of SOM
1987Alpha Omega Alpha
1988Minnesota Medical Foundation Undergraduate Research Award
1993University of Minnesota Fellow Research Award
1993-94Clinical Fellow, American Cancer Society
1994-95ASCO Young Investigator Award
2001Faculty Scholar, Soros Project on Death in America
2005-11Best Doctors in America
2006Cleveland Clinic Spirit of Children’s Hospital Chairman’s Award
2006-07DrexelUniversity, Fellow, Executive Leadership in Academic Medicine
Membership inLocal Societies
ProfessionalMinnesotaState Commission on End of Life Care 2000-01
OrganizationsAmerican Cancer Society;Ohio Board of Trustees 2005-07
National Societies
AmericanAcademy of Pediatrics
American Society of Pediatric Hematology/Oncology
Bylaws committee 2004-07
Board of Trustees, elected, 2005-08
Chair, Professional Development Committee 2010-
Quality/Safety Institute working group 2011-
American Society of Hematology
American Society of Clinical Oncology
Task force on cancer care at the end of life 1997-00
Ethics Committee 2002-05
AmericanCollege of Physician Executives
AmericanAcademy of Hospice and Palliative Medicine
American Board of Hospice & Palliative Medicine
National Hospice & Palliative Care Organization Pediatric State Leaders Policy Group: IndianaState Representative 2011
Major committeeNational Scientific Committees
and service
responsibilitiesChildren’s Oncology Group (COG):
Infant Acute Lymphoblastic Leukemia Committee (1953)
Biology chair 1994 – 00
Infant ALL Task Force for Successor Protocol 1997-05
Infant ALL 9407, Vice Chair 2004 - 07
Infant ALL, Chair of AALL0631 2005 - present
High Risk CNS PNET Committee (99701) 1996-07
Infant Brain Tumor Protocol (99703) 1997 – 04
Down Syndrome/AML Committee (A2971), Vice-Chair 1997-04
Founder and Co-Chair, COG Palliative Care Subcommittee 1999-05
Cancer Control Steering Committee 2000-05
Member, Infant Brain Tumor Task Force 2000- 08
Cancer Control Committee Liaison to Young Investigator Committee
2002-04
Voting Body Steering Committee, (elected) 2005-07
ALL Executive Committee 2006 – present
Young Investigator Mentoring Program 2006-08
Committee for treatment of CNS AT/RT ACNS0333 2008 – present
High Risk ALL Alternative Therapies Task Force: chair 2008-11
Rhabdoid Tumor Working Group Oct 2010-present
High Risk ALL committee AALL1131 2011-
Institute of Medicine Committee on Care for Children Who Die and Their Families 2001-02
Advisory Board: National Advanced Illness Coordinated Care Program
2000-02
National Consensus Project Advisory Council: Palliative Care Steering Committee 2002-04
National Pediatric Palliative and End-of-Life Care Leadership Group Co- Chair 2002-04
National Coalition for Cancer Survivorship: Advisory Panel for Essential Care 2003-04
National Academic Committees
Accreditation Council for Graduate Medical Education: Advisory Committee for Hospice and Palliative Medicine2006-10
Executive Leadership in Academic Medicine 2007-08
Alumni group 2008 -
Appointed mentor for cohort 7 2008 –
University
Cleveland Clinic Children’s Hospital, Chair, Search Committee Pediatric Nephrology Section Head 2003-05
Admissions Committee, ClevelandClinicLernerCollege of Medicine at Case Western Reserve University 2003-04
Review Committee, Cleveland Clinic Immunology Chair 2003-04
The Cleveland Clinic General Clinical ResearchCenter (GCRC)
Advisory Committee, M01 RR018390 from NationalCenter for Research Resources (NCRR), National Institute of Health, 2003
Hospital and Department
Children’s Health Care, Minneapolis and St. Paul, MN:
CultureBuilding Committee 1994-96
Institutional Review Board 1994-01
Task Force: “Dying Well in the Hospital” 1997-98 Hospital Advisory Board 1009-00
Cleveland Clinic (CC) TaussigCancerCenter Executive Committee 2001-03
CC Clinical Trials Scientific Review Committee 2002-03
Cleveland Clinic Children’s Hospital (CCCH) Hospital Committee
2002-07
CCCH Research Day Judge 2002-06
CCCH Editor, Pediatric Perspectives 2003-06
Cleveland Clinic Nurse-Physician Partnership Initiative for Magnet Status: Pediatric physician representative 2003-04
CCCH Strategic Planning Committee Core Group 2003-05
CC Medical Records Committee 2004-5
Cleveland Clinic (CC) World Class Service Rewards
& Recognition Team 2005-05
CC World Class Service Team Leader 2005-07
Director/Manager Committee, Peyton Manning Children’s Hospital
(PMCH) 2007-11
PMCH Peer Review Committee 2007-11
PMCH Quality/Safety Committee, Chair, 2007-11
St. VincentIndianapolisHospital (SVIH) Medical Executive Committee 2007-11
SVIH Medication Safety Committee, co-chair 2008-11
SVIH Department Chairs Committee 2007-11
SVIH Executive Peer Review Committee 2007-11
SVIH Quality and Safety Committee 2007-11
SVIH Physician Mentorship group 2007-11
SVIH Building The Best: Mentor’s team 2009-11
Institutional National Initiatives and Committees:
Ascension Health Children’s Healthcare Quality Initiative
Team leader: Medication Safety Collaborative 2010-11
ABP Maintenance of Certification Project leader:
Ascension Ventilator-Associated Pneumonia 2010-8/11
Ascension Bloodstream Infections 2010-11
Ascension Optimization of Time to Antibiotics 2010-11
Community and National Service
US News & World Report/NACHRI: America’s Best Children’s Hospitals Committees 2007-present
Cancer committee 2007-10 (Chair 2010
Appointed to Senior Advisory 2011 (one of 3 members)
Licensure and
Board Certification
BoardDate of
Board CertificationCertificate #Certification
American Board of Hospice & Palliative Medicine18001/01
American Board of Medical specialties: 12/08, exp 12/18
Hospice and Palliative Medicine
American Board of Pediatric Hematology/Oncology11092/95; recert 5/00, 10/08, exp 12/15
American Board of Pediatrics4682011/91; recert 11/05; exp 12/12
Diplomate, National Board of Examiners3402797/89
Date of IssueExpiration
Colorado8/2011
Indiana6/30/07 6/30/12
Inventions, intellectual property, and patents: none
Review and refereeEditorial Board:
workJournal of Clinical Oncology, 2006-09
Co-editor, Child & Adolescent Psychiatric Clinics of North America, “Pediatric Palliative Medicine,” 2006
Ad hoc reviewer for:
Journal of Pediatric Hematology/Oncology
Blood
Cancer
Journal of Clinical Oncology
Pediatric Blood & Cancer
Journal of Pediatrics
Journal of the American Medical Association
Journal of Palliative Medicine
Special work on “Palliative Review Series,” 2005
Institute of Medicine
Current Oncology Reports, Pediatric Section Editor, 2003-05
Abstract reviewer for 2003 Pediatric Academic Societies Annual Meeting 2003.
Reviewer: Senate/Congressional Draft Palliative Care Legislation for Kennedy, DeWine, and Pryce, 2003.
Scientific Review Council; Grant Reviewer: St. Baldrick’s Grants (for pediatric cancer, $25M/year, 2007 – present
InvitedLocal and regional
lectures, presentations,1. Quantum Home Heath Services Nursing Continuing Education Series: and visiting “Follow-Up Care of Bone Marrow Transplant Patients,” MplsMN1992
professorships2. Oncology Nursing Society Annual Meeting, Duluth, MN: “Overview of Pediatric Oncology,” 1996
3. American Cancer Society Nursing Conference: “Pediatric Oncology,” Mpls.MN1997
4. Nursing Education Conf: “The Special Needs of the Adolescent OncologyPatient,” Riverwood Healthcare Ctr, Aitkin, MN 1997
5. Topics and Advances in Pediatrics Peds CME: “Lunch With the Professor,” Pediatric Oncology, St. Pauland Mpls Children’s 1997
6. Family Medicine Grand Rounds: Leukemia in Infants, Children, and Adolescents. St. Mary’s Medical Ctr, Duluth MN. 1997
7. Association of Pediatric Oncology Nurses Annual Conference, Mpls, MN: Ethics in Pediatric Oncology Care, 1998
8. University of Minnesota Grand Rounds: Hemophagocytic Lymphohistiocytosis, 1998
9. Children’s Hospitals & Clinics Grand Rounds: Hospice and High- Tech? The Ethics of Ventilators, Trachs, and Life Support Technology in Hospice Care, Mpls.MN1998
10. Children’s Hospitals & Clinics Grand Rounds: “End-of-Life Care Controversies: What about Pediatrics?,” Mpls. MN 2000
11. AugsburgCollege Symposium: “Reclaiming the Soul of Medicine.” Breakout Session: “How to Survive Caring for Dying Children and Adults,” Mpls MN 2000
12. Children’s Hospitals & Clinics of MN Grand Rounds: “Stem Cell Rescue in Peds Malignancy” Mpls MN 2000
13. Cleveland Clinic Pediatric Grand Rounds: “Pediatric Oncology: Sources of Success and Future Trends,” Cleveland, OH 2001
14. Pediatric Grand Rounds, The Children’s Hospital for Rehabilitation: “Palliative Care for Children: It’s Time,” Cleveland, OH June 2002
15. Internal Medicine Grand Rounds, The Cleveland Clinic: “Pediatric Palliative Medicine,” Cleveland, OH, 2002
16. LorainFamilyHealthCenter: “Pediatric Palliative Care,” Loraine, OH Oct 2002
17. Brain Tumor Institute Retreat, The Cleveland Clinic Foundation: “Pediatric Brain Tumor Rerview” 2002.
18. Fairview Family Practice Conference, FairviewHospital: “Pediatric Palliative Care Issues,” Cleveland, OH 2002
19. Children’s Hospital for Rehabilitation, The Cleveland Clinic “Shelter from the Storm: Caring for a Child with a Life- Threatening Condition.” 2003
20. Cleveland Clinic Primary Care Physician Partnership Series: Advancement in Pediatric Care. “Cancer in the Child & Adolescent: Presentation & Diagnosis in the Era of Molecular Genetics – What Should the Primary Care Physician Know?,” 2003
21. The ClevelandClinicBeachwoodFamilyHealthCenter, Pediatric Conference: “Cancer in the Child & Adolescent: What Every Primary Care Physician Should Know,” 2003
22. Association of Pediatric Oncology Nurses Ohio Spring Meeting, ClevelandOH, 4/03
23. Family Medicine Conf: “Adolescent Cancer,” IndependenceOH 2003
24. Case Weatherhead Professional Fellows Society: “Palliative Care for Grown-ups and for Children,” CaseWesternUniversity, Cleveland, OH 2003
25. Children’s Hospital at The Cleveland Clinic Pediatric Grand Rounds: “Outcomes in Childhood Malignancies” 2004
26. Palliative Medicine in the 21st Century: From Art to Science: Cleveland Clinic Children’s Hospital Regional Pediatric Conference (organizer and speaker). “Pediatric Palliative Medicine: State of the Science” Cleveland, OH2004.
26. The Cleveland Clinic Brain Tumor Institute: “Pediatric Brain Tumors” 2004
27. Cleveland Clinic Pediatric Grand Rounds “Medication Safety and errors: Processanalysis, blame-free reporting, and talking to parents” 2004
28. The Cleveland Clinic Medical Division Grand Rounds: “Cancer at the Interface of Pediatric and Medical Oncology: Striving to Understand and Improve Outcomes” 2005
29. HillcrestHospital Pediatric Grand Rounds: “Pediatric & Young Adult Brain Tumors: A New Era in Diagnosis & Treatment,” Mayfield HeightsOH2006
30. Cleveland Clinic Children’s Hospital Grand Rounds: “Morbidity and Mortality of Transfusion Practice,” 2006
31. Family Medicine Grand Rounds: “Adolescent and Young Adult Oncology: Update on Outcomes for Cancer” Willoughby Hills, OH2006
32. The Cleveland Clinic Division of Pediatrics Research Seminar: “Acute Lymphoblastic Leukemia: Translational Research, True Bench to Bedside Story” 2006
33. The Cleveland Clinic Cancer Center Grand Rounds: “Translational Research in Childhood Cancer: The MLL gene: bench to bedside in Infant ALL in 20 years,” 2006.
34. FairviewHospital Family Medicine Grand Round: “Pediatric Hematology/Oncology Update” ClevelandOH2006.
35. HillcrestHospital Pathology Conference: “A case of stillbirth due to congenital leukemia.” Mayfield Heights, OH 2006
36. Pediatric Grand Rounds, Peyton Manning Children’s Hospital: Transfusion Medicine 2008
37. Eighth Annual PMCH Fall Pediatric CME Conference (Organizer) Speaker on: Measurable Outcomes in Pediatric Care. Indianapolis, IN 2008
38. Midwest Pediatric Hospital Medicine Conference. Speaker and Panelist: Forum on Hospital Medicine. Indianapolis, IN2009
38. NinthAnnual PMCH Fall Pediatric CME Conference (Organizer) Speaker on: Quality and Safety in Pediatric Care. Indianapolis, IN 2009 39. Pediatric Grand Rounds, Riley Children’s Hospital, Indiana University Indianapolis: Pediatric Palliative Care. IN 2009
40. St. Vincent Pediatric Grand Rounds: Pediatric Palliative Medicine; Current Topics and Literature Review 2011
National
1. Society for Pediatric Pathology Annual Meeting: Symposium on current topics in pediatric hematopathology: Molecular Biology of Infant Leukemias, MplsMN1997
2. EPEC Trained: Education of Physicians in End-of-Life Care Train the Trainers Session, Chicago, IL. Presentation of (and originator of) EPEC Pediatric Content, 1999
3. MeritCareRogerMarisCancerCenter Symposium on Primary Care and Cancer: “End-of-Life Care Issues in Pediatric Oncology,” Fargo ND2000
4.National Cancer Policy Board: “End of Life Care in Pediatric Oncology,” Cape Cod, MA July 2001.
5. National Soros PDIA Palliative Medicine Annual Meeting: “A Medical Triumph in Childhood Acute Lymphoblastic Leukemia,” “How to Talk to Children (about Adults) and Adults (about Children),” and two workshops on “Understanding Children’s Grief,” Lake Tahoe NE 2002
6. Children’s Oncology Group Spring Meeting, Nursing Discipline Plenary Session: “Pediatric Oncology and Palliative Care,” Tampa FL 2002
7. Children’s Oncology Group Spring Meeting, Hematology/Oncology Discipline Committee: “Palliative Care and Phase I Therapies,” Co- presenter with Dr. Peter Adamson, Chair of Phase I Therapeutics. Tampa FL 2002
8. Visiting Professor, Children’s Hospital of Pittsburgh: 2002
Pediatric Grand Rounds, “Pediatric Palliative Care: The Time has Come.”
Children’s Nursing Plenary Session: “Planning Pediatric Palliative Care Service.”
Resident Noon Lecture: Case Discussion on “Difficult Pediatric Palliative Care Cases.”
Tumor Board Conference: “Institute of Medicine Pediatric Palliative Care Report Research and Clinical Care Recommendations.”
9. Pediatric Academic Societies Annual Meeting and joint ASPHO 1 5th Annual Meeting: “End-of-Life Palliative Care,” Baltimore, MD 2002
10. National Institute of Cancer Research/National Institute of Health: “Institute of Medicine Guidelines for Pediatric Palliative Care,” Presenting for the IOM Committee on the Care of Children Who Die, Washington, DC 2002.
11. Children’s Oncology Group Fall 2002 Meeting: Neuroblastoma Developmental Therapeutics Panel. “Palliative Care Studies,” DallasTX
12. Scientific Reunion Symposium at The University of MinnesotaCancerCenter; Biology and Therapy of Leukemias and Other Cancers: “Update on Infant Leukemia,” Minneapolis, MN2003
13. Cleveland Clinic Pediatric National Board Review Symposium, “Signs & Prognostic Factors of Common Pediatric Tumors,” Cleveland OH2003
14. Visiting Professor, University of New Mexico Health Sciences Center, 2003:
Pediatric Grand Rounds, “Pediatric Palliative Care.”
Geriatric Fellows Grand Rounds, “Grief in Children & Adolescents.”
Neonatology Faculty/Fellows Meeting & Discussion, “Pediatric Palliative Care.”
15. Visiting Professor, Memorial Sloan-Kettering Cancer Center, New York, 2003
Pediatric Grand Rounds, Program start-up on “Pediatric Palliative Care.”
Pediatric Fellows Luncheon & Informal Discussion on “Pediatric Palliative Care.”
- ASCO Annual Meeting Education Session New Orleans, LA 2004.
“Complementary & Palliative Care in the Treatment of Pediatric Cancer,” Invited session moderator, and speaker on:
“Pediatric Palliative & Hospice Care: Definitions and Implementation in Childhood Cancer Care”
17. AmericanAcademy of Hospice & Palliative Medicine’s Current Concepts in Palliative Care: Update & Review Course: “Pediatric Issues in Hospice & Palliative Medicine,” Chicago IL 2004.
18. Cleveland Clinic National Pediatric Board Review Symposium: “Presenting Signs & Prognostic Factors of Common Pediatric Tumors,” ClevelandOH 2004
19. American Society of Hematology Annual Meeting: “CCG 1953: Acute Lymphoblastic Leukemia in Infants: Analysis of Prognostic Factors: A Report from the Children’s Oncology Group” Atlanta GA 2005
20. Annual Association of Pediatric Oncology Social Workers Conference: “Creating Hope for Tomorrow”: Compassionate & Competent Practice in Pediatric Oncology Social Work” Speaker on Pediatric Pain PanelNorfolk, VA2005
21. Visiting Professor, Schneider Children’s Hospital at North Shore: Irene Lefton Memorial Lectureship “Pediatric Palliative Care,” Manhasset, NY, Dec. 2005
22. Cleveland Clinic National Pediatric Board Review Symposium: “Presenting Signs & Prognostic Factors of Common Pediatric Tumors,” 2005
23. Visiting Professor, AflacCancerCenter, Atlanta, GA 2005
Tools for Living Symposium: Plenary Talk “Pediatric Palliative Medicine”
Breakout Session“Shelter from the Storm”
Oncology lecture: “Infant Leukemia: Molecular Genetics & Outcomes”
24. Cleveland Clinic’s National Pediatric Board Review Symposium: “Presenting Signs & Prognostic Factors of Common Pediatric Tumors,” 2006
25. Visiting ProfessorMontefioreMedicalCenter, Bronx, NY, 2006
Pediatric Grand Rounds, “Pediatric Palliative Medicine: Integration into Mainstream Health Care.”
Palliative Care Team/Meeting and Discussion
Residents & Fellows/Humanistic Care Discussion
Oncology Staff/ Meetings “Palliative Care” and “Infant Leukemia.”
26. ASCO Education Session: Pediatric Palliative Medicine. Invited session chair and speaker, Chicago, IL Speaker for: Pediatric Palliative Medicine and Decision-Making.” 2007.
27. ASPHO Presidential Symposium; Invited Chair and organizer of Session: Infant Leukemia: Epidemiology, Treatment, Biology.
Speaker for: “How Should I Treat Infant ALL?” Toronto, Canada 2007
28. American Society of Pediatric Hematology/Oncology annual meeting: Young Investigator Workshop: Grant Writing, and Ethical Dilemmas Encountered in Manuscript Preparation and Publication. San FranciscoCA 2008
29. American Society of Pediatric Hematology/Oncology annual meeting: Moderator; Young Investigator Symposium: Contracts and Negotiations, Finding Mentorship, and Work-Life Balance. Speaker: Contracts and Negotiations. San FranciscoCA 2008
30. Families for Hope National Symposium on Holoprosencephaly annual national symposium: Making Difficult Decisions for Your Child. Indianapolis, IN2008
31. Visiting Professor Texas Children’s Houston TX 2009
Research Symposium: Pediatric Palliative Medicine.
Fellows’ symposium: “Lunch With a Leader” Baylor University.
32. American Society of Pediatric Hematology/Oncology annual meeting: Young Investigator Symposium: Career pathways San Diego, CA 2009
32. American Society of Pediatric Hematology/Oncology 2010 Annual Meeting: Young Investigator symposium: Selecting your Path and Taking the Critical First Steps Toward a Successful Career Montréal, Quebec, Canada2010
33. American Society of Pediatric Hematology/Oncology 2010 Annual Meeting: Panel participantCareer Development and Increasing Diversity in Pediatric Hematology/Oncology. Montréal, Quebec, Canada2010
International
1. 15th International Congress on Care of the Terminally Ill: “When Every Moment Counts: Pediatric Palliative Care,” Montreal, Quebec, 2004.
Teaching recordPresentations to medical students, residents, and fellows
United Family Practice Resident Education Series: “Pediatric End-of- Life Care: Goals of Therapy, and the Last Hours of Living,” St. Paul, MN Annual talk 2000 and 2001.