Genetic Support Network of Victoria
Margaret Sahhar Grant 2018
General ApplicationInformation
Purpose
The GSNV Margaret Sahhar Grant is open to all paid, financial members of the GSNV for projects that support the work of a support group in 2018.
Is my support group eligible for the Grant?
You or your support group must be a paid financial member in order to apply for thisgrant in 2018. You can download a membership application through our website or by simply emailing and requesting a membership application. Once this has been processed you are eligible to then apply.
How do I request a grant application form?
Grant application forms can be found on our website. Alternatively, please contact the GSNV office to request a copy of the grant application to be emailed or posted out to you.
What can I apply for?
Margaret Sahhar Grant - $1800.00
This grant will be awarded to a support group for activity, which meets the following criteria
-It must be for something innovative and new – not to support business as usual
-It must be focused on education, advocacy or support
-It must have a clear outcome or intended achievement
-It must benefit people with genetic conditions
-It must explain why it is important and why it must happen now
-It must add to a body of knowledge or information
-It must have a measure of success
Our grants are not awarded for the purchase of aids and equipment for personal use. This funding is designed to provide once off financial assistance to support groups and help that may not be accessible via other grants processes.
Additional Assessment Criteria
- All applicants MUST be a financial member of the GSNV
- All applicants MUST be known to and have communications with the GSNV
- Applications MUST also be assessed according to how they meet with the mission and vision of the GSNV and are compatible with the overall ethos of our organisation in assisting support groups and the community sector.
The Genetic Support Network of Victoria (GSNV) is an incorporated association that is funded by the Department of Health and Human Services. We work to empower people with genetic conditions and those who support them to make informed and important decisions about life and health through support, advocacy and education. We believe in everyone’s right to flourish – providing access to the practical and pathways to the possible.
In Australia, it is estimated that 60% of the population will be affected by a condition which has some genetic background at some point in their lifetime. Current conservative estimates indicate that approximately 6-8% of Australians are affected by a rare disease, 80% of which are genetic in origin. We have currently identified approximately 10,000 rare diseases, a number that is increasing each day. All these statistics can be expected to grow.
We live in an age where we are unlocking some of the secrets of our genomic code, beginning to understand that we have coded sequences that are sometimes optimal, sometimes not – because of the pre-programmed pattern we follow or because of an unexplained genetic change which occurred inexplicably just for us. Discovery can bring hope and possibility; understanding and knowledge; fear and despair. Lack of diagnosis can bring frustration and isolation.
Diagnosis of a genetic condition – challenges and ignites deep and intimate beliefs and questions about ourselves, those who came before us and those who come after.
The GSNV was established in 1997 in recognition of a gap of a broad consumer voice in genetic health, acknowledgement of a gap in support for many genetic conditions, a dearth of community education around genetic conditions and to serve as an interface between the community voice and health professionals.
Our Vision:
Everyone can flourish.
Our Mission:
We empower people to make decisions about their health and wellbeing
We collaborate for equity and cultural change
We provide an interface between people with genetic and rare conditions and health professionals to improve the general patient experience
We facilitate access to the practical and pathways to the possible
- Successful applicants must acknowledge GSNV’s Grantin the following ways in your communications:
- Please develop a feature story telling the community what a Small Grant means to your group and promote in your groups newsletter/bulletins etc.
- Provide that story to the GSNV to be reproduced in its own newsletter
- Provide a formal thank you letter to the GSNV committee addressed to the President Ms Abbie Kinniburgh
- DGR Status is not required for GSNV Small Grants. For accounting reasons, all successful applicants will be asked to prepare an ‘invoice’to the GSNV for the grant amount and also provide confirmation of receipt of the funds on your official group letterhead. Upon request the GSNV can provide a template invoice for groups who have not developed their own.
Project description
In your proposal outline, please provide a basic description of your project. You may wish to include the following:
Your project details
Some aims and objectives
Why this project is important
How your project will meet the criteria and what it will achieve
How you may wish to acknowledge the grant and your association with the GSNV (e.g. in your newsletter, on signs at an event, your brochure, web site etc.).
Application process
Applications Open:Monday 22 January 2018
Applications Close:Friday 16 February 2018
The GSNV will not receive Small Grant applications after 5pm 16 February 2018. The GSNV will formally announce the grant recipientby 1 March 2018 via email with monies made available by mid-March.
GSNV understands that you have many competing demands on your time. The application process has therefore been streamlined to a simple form. You are welcome to attach any additional documentation or letters of support. All project descriptions MUST be on the application form.
The Decision
Final decision will be announced by 1 March 2018. All successful and non- successful applicants will be advised in writing.
The Panel’sdecision is final. The Small Grants Scheme panel is made of GSNV Committee of Management representatives and includes the GSNV Chief Executive Officer
Successful Applicants
Our accounts system requires documentation from successful agencies before we can make payments. A tax invoice must be provided to the GSNV.Payment will be made once we have received a tax invoice from the successful applicant.
Submission
Submissions must be made by5pm Friday 16 February, 2018:
Mail:The Genetic Support Network of Victoria
Murdoch Childrens Research Institute
Flemington Road
Parkville VIC 3052
Email:
More Information
For more information, please phone the GSNV team on (03) 8341 6315 or email to
1 | Small Grant Scheme 2018