s
Title / Child- Long term conditions and palliative care
Code / NH3138
Level / 6
Credit rating / 20
Pre-requisites / Admission criteria for the BSc (Hons) Acute Clinical Practice; the BSc (Hons) Professional Practice, and the BSc (Hons) Nurse Practitioner apply
Type of module / Semester 2 Extensive
Aims / This module aims to enhance the quality of disability; continuing, and palliative health care for children, young people and their families, through providing practitioners with the knowledge and skills to enable them to develop holistic proficiency within their roles.
This module aims to provide the opportunity for a variety of professionals involved with children and young people with long term conditions and palliative care, and learn together.
Learning outcomes/objectives
This module covers 4 themes of health care need:
long term conditions,
disability,
continuing health care and palliative care in childhood.
The range of learning outcomes reflects this. / On completion of the module the student will be able to:
  • Examine and critically reflect on values and attitudes to childhood disability, continuing and palliative health care within a children’s rights and best practice framework
  • Construct and appraise the philosophy and concepts of childhood disability, continuing and palliative health care within your own practice setting
  • Examine and critically evaluate how therapeutic interventions within communication approaches, influence each persons experience
  • Identify and integrate the psychological, emotional, physiological, pharmacological, ethical and legal components of pain and symptom assessment and management
  • Examine and critically reflect on the child, young person’s and family’s perspective and narrative within childhood disability, continuing and palliative health care
  • Differentiate between children and young people’s developmental understanding of long term health conditions, death and dying
  • Examine and integrate child bereavement processes inclusive of gender, culture, religion and spiritual dimensions
  • Examine and integrate the impact of social, political and economic factors upon the lives of children and families where a child is living with a long term or a life limiting condition
  • Examine and appraise individual and group methods and processes of professional and personal support when working with children with long term or life limiting conditions and bereavement
  • Examine and debate multi-professional working within childhood disability, continuing and palliative health care service development and provision
  • Debate and integrate local and national policy and guidance to childhood disability, continuing and palliative health care within your own practice setting

Content /

Underpinning philosophy, theory and concepts

The definition of children’s palliative care

  • Children’s Continuing Care Framework & needs assessment
  • The development of hospice care for children
  • Definitions and constructs of disability
  • Definitions and constructs of long term conditions
  • Inclusion: educational and social concepts
  • Ethics, autonomy and empowerment
  • Epidemiology
  • Spiritual dimensions
  • Physiology of the dying process in children and young people
  • Respite care/short breaks
Therapeutic Interventions
  • Communication skills
  • Bereavement skills
  • Giving difficult and painful news/information
  • Teamwork, working multi-professionally
  • Pain and symptom assessment and management,
  • Creative arts therapies
  • Everyday health care support

Focusing on the needs of children

  • Rights, truth telling, decision making and consent
  • Children’s understanding of disability/ long term/life threatening illness/conditions & death
  • Child development within the context of disability, long term health conditions and palliative care
  • Children and young people’s perspectives and narrative
  • Young people and transition
  • The impact on children and staff in schools

Focusing on families

  • Family nursing/family centred care/partnership
  • Individuals’ responses to bereavement, including age, gender, culture and religion
  • Family perspectives and narrative
  • The impact on the family of having a child with a life limiting condition

Education and training of families and support workers in all settings

Information and practicalities

  • Information provision
  • Facilities, resources available
  • Legal issues, organ donation
  • Registering a death, funeral parlour & bereavement suites

Professional /Personal Support

  • Professional roles/boundaries
  • Support for yourself/maintaining emotional health
  • Clinical Supervision

Teaching and learning strategies /
  • Module hours 200
  • Teaching and learning strategies will include delivery from clinical specialists in practice and lecturers within the University of Brighton; small group work; experiential and reflective activities; scenario/case study presentations, and enquiry based learning activities. CD ROM learning activities and video mediums will also be accessed.
  • Students will have a Practice Mentor and an Educational Mentor throughout the module.

Learning support
  • Long term conditions
  • Disability
  • Palliative Care
/
  • Goldman A, R Hain, S Liben ( Eds) 2006 Oxford Textbook of Palliative Care for ChildrenOxfordUniversity Press Oxford
  • Middleton L 1999 Disabled Children: Challenging Social Exclusion Blackwell Science Oxford
  • Pfund R 2007 Palliative care nursing of children & young people Radcliffe Publishing Oxford
  • Read J and L Clements 2001 Disabled Children and the Law Research and Good Practice Jessica Kingsley London
  • Shakespeare T 2006 Disability Rights and Wrongs Routledge London
  • Thomas C 1999 Female Forms: Experiencing and understanding disability Open University Press Buckingham
  • Voute P.A., A Barrett, M.C.G.Stevens and H.N.Caron.(Eds) 2005 Cancer in Children Clinical ManagementOxfordUniversity Press Oxford
  • Worswick J 2000 A House Called Helen The development of hospice care for children Oxford University Press Oxford
Journals
  • Disability and Society
  • European Journal of Oncology Nursing
  • European Journal of Palliative Care
  • Journal of Pain and Symptom Management
  • Palliative Care
  • Palliative Care Research
Websites

Assessment tasks / The student will undertake two assessment tasks: clinical practice (50%) and theory (50%). Both assessments tasks must achieve a minimum of 40% in order to pass the module.
1. Assignment 2000 words:
The aim of the assignment is to examine an aspect of childhood disability, continuing and/or palliative health care that interests the student and/or is identified within their Personal Development Plan. The student can choose from the following:
  • A case study examination and critical reflection
  • A practice development appraisal
  • An extended literature review
2. Clinical Practice 50%
6 Skills submitted
Brief description of module content and/or aims (maximum 80 words) / There are an increasing number of children and young people within our society who have long term conditions, disability and/or palliative health care needs. This module aims to enable all those involved with children who have a long term condition; complex health and disability, and/or a life limiting/life threatening condition, to respond effectively to both the child and family’s needs within a child focused, family partnership, multi-professional and multi-agency approach.
The child, young person and all family members’ narrative are pivotal components of the module.
Area examination board to which module relates / Undergraduate continuing professional education, School of Nursing and Midwifery
Module team/authors/ coordinator / Trudy Ward, Alison Alexander, Dr Carrie Britton, Charlotte Savins, Corine Koppenol, Brother Francis, Lois Pendlebury, Maggie Breen, Maggie Comac, Peter Wells, Janet Lee.
Semester offered / Semester 2
Site where delivered / Brighton
Date of first approval / June 2008
Date of last revision
Date of approval of this version
Version number / one
Replacement for previous module / NA 389
Field for which module is acceptable and status in that field / Undergraduate continuing professional education: optional
Course(s) for which module is acceptable and status in course / BSc (Hons) Acute Clinical Practice – child pathway optional/mandatory
BSc (Hons) Professional Practice- child pathway optional/mandatory
BSc (Hons) Nurse Practitioner- child health pathway optional/mandatory
BSc (Hons) Professional Clinical Practice- optional/mandatory
School home / School of Nursing & Midwifery
External examiner / Doris Corkin (01.09.08-31.08.12)
Knowledge and Skills Framework / Core Dimensions:
  • Communication: L3
  • Develop own knowledge and skills: L3
  • Health, safety and security: L3
  • Service Improvement: L2
  • Quality: L3
  • Equality and diversity: L3
Health and wellbeing (HWB) 1 Promotion: L2
HWB 2 Assessment & Care Planning: L3
HWB 3 Protection: L3
HWB 4 Enablement: L3
HWB 5 Provision of care: L4
HWB 6 Assessment & treatment planning: L3
HWB 7 Interventions & treatment: L3