Engaging with NHS Choices:
Improving the Quality of Neurological Information
At the information session hosted by NHS Choices on 12 May 2009at the ImperialWarMuseum, it was agreed that the immediate focus for collaborative working would centre on the review of the website’s Health A-Z.
The Health A-Z is a major part of the NHS Choices website, attracting some 2 million visitors each month. The editorial team at NHS Choices is currently undertaking a review of all 750 conditions contained in the A-Z, and over the next 12 months will include the 48 neurological conditions currently listed.These neurological conditions will be reviewed in four batches (see below).
It was agreed that Neurological Alliance members interested in taking part in the review would provide some initial thoughts, suggestions and advice regarding specific conditions. Given the volume of
If you would like to provide some initial input to the review of conditions listed in Batch 1, please complete the attached short questionnaire and return to Tahani Saridar () by Friday 24 July. Updated content will go live approximately two months after this deadline.
Further, similar communications to this will take place around Batches 2, 3 and 4.
Batch 1 (August / September)Brain tumour
Neurofibromatosis
Chronic fatigue syndrome
Headache
Dementia
Aneurysm
Dystonia
Muscular dystrophy
Restless leg syndrome
Ataxia
Autistic spectrum disorder
Hughes syndrome / Batch 2 (October / November)
Parkinson’s disease
Meniere’s disease
Creutzfeldt-Jakob disease
Head injury, minor
Head injury, severe
Subarachnoid haemorrhage
Neuromyelitis optica
Stroke
Polio and post-polio syndrome
Multiple sclerosis
Epilepsy
Alzheimer’s disease
Batch 3 (December / January)
Cerebral palsy
Migraine
Narcolepsy
Charcot-Marie-Tooth disease
Attention deficit hyperactivity disorder
Meningitis
Acoustic neuroma
Fibromyalgia
Neuralgia
Bell’s palsy
Behcet’s disease
Spina bifida / Batch 4 (February / March)
Tuberous sclerosis
Reye’s syndrome
Guillan-Barre syndrome
Huntington’s disease
Aphasia
Encephalitis
Tremor, essential
Hydrocephalus
Motor neurone disease
Tourette’s syndrome
Dyspraxia (childhood)
Spinal muscular atrophy
Engaging with NHS Choices:
Improving the Quality of Neurological Information
1. YOUR CONDITION
What is the name of the condition you represent?
2. CONTENT
If there are any key aspects of your condition not covered in the Health A-Z, please provide a brief description.
a)
b)
c)
3. LINKS
If your organisation providesany of the following services, please provide the correct URL to the page on your website.
a) Telephone advice line
b) Local support group
c) On-line community
If your organisation offers other services that you wish to see highlighted, please provide a short description and the correct URL
a)
b)
c)
4. CASE STUDIES
Are you able to provide suitable case studies (for example individuals living with a particular condition, their carer and/or experts involved in the field)? These will be used to develop personal stories, including videos. Please provide a brief description below (appropriate recognition of your organisation will be provided).