Online Resource 1: Search strategies
Database: Ovid MEDLINE(R) <1946 to April Week 4 2015>
Search Strategy:
______
1 exp Brain Neoplasms/ (122739)
2 exp neoplasm metastasis/ or neoplasm recurrence, local/ (232226)
3 1 and 2 [****Brain neoplasms metastasis***] (10231)
4 exp Brain Neoplasms/sc [****Brain metastasis subheading****] (10936)
5 (brain adj2 metast*).ti,ab. (7843)
6 or/3-5 [****Brain metastasis terms****] (21457)
7 consumer health information/ or health literacy/ or patient education as topic/ (75184)
8 (supportive adj2 care).mp. (9050)
9 "quality of life"/ or culture/ or acculturation/ or cross-cultural comparison/ or cultural characteristics/ or cultural competency/ or cultural diversity/ or psychosocial deprivation/ or community networks/ or social support/ or social isolation/ or loneliness/ or social alienation/ (262454)
10 counseling/ or directive counseling/ or pastoral care/ (32996)
11 Hotlines/ (2298)
12 "attitude of health personnel"/ or attitude to death/ or attitude to health/ or health knowledge, attitudes, practice/ (233996)
13 adaptation, psychological/ or feedback, psychological/ or anger/ or rage/ or anxiety/ or catastrophization/ or fear/ or panic/ or frustration/ or guilt/ or shame/ or happiness/ or hope/ or hostility/ or jealousy/ or loneliness/ (166781)
14 stress, psychological/ or burnout, professional/ (96416)
15 psychology, social/ or trust/ (10804)
16 self concept/ (46608)
17 ethics/ or bioethical issues/ or bioethics/ or ethics, clinical/ or principle-based ethics/ or beneficence/ or personal autonomy/ or social justice/ or social responsibility/ or moral obligations/ (58201)
18 self care/ or blood glucose self-monitoring/ or self administration/ or self medication/ (41825)
19 "activities of daily living"/ or independent living/ or social participation/ (53299)
20 Life Style/ (44460)
21 or/7-20 [****Supportive care terms****] (906211)
22 adult children/ or caregivers/ or proxy/ or siblings/ or spouses/ or terminally ill/ (42427)
23 terminally ill/ or patients/ or inpatients/ or outpatients/ or patient dropouts/ or survivors/ (65958)
24 advance care planning/ or advance directives/ or living wills/ or patient-centered care/ or progressive patient care/ or patient navigation/ (20115)
25 home nursing/ or respite care/ (8740)
26 Palliative Care/ or Terminal Care/ (58347)
27 exp family/ or family conflict/ or intergenerational relations/ or professional-family relations/ or exp professional-patient relations/ (360063)
28 or/22-27 [****patient or caregiver terms****] (494726)
29 6 and 21 and 28 [****Base clinical set****] (130)
30 limit 29 to (english language and yr="2000 -Current") (92)
Database: Embase <1974 to 2015 April 30>
Search Strategy:
------
1 brain metastasis/ or (brain adj2 metast*).ti,ab. (21431)
2 metastasis/ or metasta*.ti,ab. (520181)
3 exp brain tumor/ (138345)
4 2 and 3 (24777)
5 1 or 4 [****Brain metastasis terms****] (30075)
6 consumer health information/ or information literacy/ or patient information/ or health education/ or death education/ or health literacy/ or patient education/ (192687)
7 (supportive adj2 care).mp. (16758)
8 "quality of life"/ or "ferrans and powers quality of life index"/ or "gastrointestinal quality of life index"/ or "international classification of functioning, disability and health"/ or quality adjusted life year/ or "quality of life index"/ or "quality of life assessment"/ or short form 36/ or functional status assessment/ or short form 12/ or short form 20/ or short form 8/ (298298)
9 cultural anthropology/ or cultural factor/ or (cross adj2 cultur* adj2 comparis*).ti,ab. or (cultur* adj2 characteristic*).ti,ab. or cultural competence/ or (cultur* adj2 divers*).ti,ab. (101109)
10 social environment/ or community/ or community living/ or community care/ or home environment/ or neighborhood/ or psychosocial environment/ or social care/ or social support/ or emotional deprivation/ or loneliness/ or social isolation/ (225373)
11 counseling/ or bereavement counseling/ or directive counseling/ or family counseling/ or nutritional counseling/ or patient counseling/ or patient guidance/ or (pastoral adj2 (care or counsel*)).ti,ab. (85755)
12 hotline*.ti,ab. (1083)
13 health personnel attitude/ or audiologist attitude/ or dental assistant attitude/ or dietitian attitude/ or nurse attitude/ or occupational therapist attitude/ or pharmacist attitude/ or physician assistant attitude/ or physician attitude/ or physiotherapist attitude/ or protocol compliance/ or psychotherapist attitude/ (139001)
14 attitude/ or attitude to death/ or attitude to health/ or attitude to illness/ or attitude to life/ or cultural sensitivity/ or social worker attitude/ (152523)
15 patient compliance/ or dietary compliance/ or medication compliance/ (108483)
16 patient attitude/ or patient participation/ or patient preference/ or patient satisfaction/ or refusal to participate/ or treatment refusal/ (173988)
17 behavior/ or adaptive behavior/ or exp emotion/ or help seeking behavior/ or illness behavior/ (555054)
18 anger/ or hate/ or rage/ or anxiety/ or fear/ or anticipatory anxiety/ or grief/ or anticipatory grief/ or mourning/ or sorrow/ or guilt/ or shame/ or happiness/ or helplessness/ or hope/ or hopelessness/ or hostility/ or jealousy/ or mental irritation/ or nervousness/ or bruxism/ or patient worry/ or pleasure/ or unhappiness/ (220579)
19 mental stress/ or stress/ or burnout/ or emotional stress/ or family stress/ or home stress/ or interpersonal stress/ or life stress/ (190116)
20 social psychology/ or trust/ (78015)
21 self concept/ or body image/ or ego/ or identity/ or self control/ or self esteem/ (113071)
22 ethics/ or bioethics/ or institutional ethics/ or medical ethics/ or equipoise/ or ethical decision making/ or research ethics/ or beneficence/ or personal autonomy/ or social justice/ or morality/ or (social adj2 responsibil*).ti,ab. (184141)
23 self care/ or self care agency/ or self help/ or self medication/ or blood glucose monitoring/ or drug self administration/ (75623)
24 human activities/ or daily life activity/ or independent living/ or social participation/ (65171)
25 "lifestyle and related phenomena"/ or lifestyle/ or lifestyle modification/ (99120)
26 or/6-25 [****Supportive care terms****] (2144375)
27 adult child/ or grandparent/ or nuclear family/ or daughter/ or only child/ or sibling/ or son/ or spouse/ or caregiver/ or caregiver burden/ or caregiver support/ or proxy/ (92201)
28 patient/ or cancer patient/ or hospital patient/ or outpatient/ or outpatient care/ or terminally ill patient/ or patient dropouts/ or survivor/ (1353090)
29 ((progressive* or advance*) adj2 care adj2 plan*).ti,ab. or living will/ or (("patient-cent" or (patient adj2 cent*)) adj2 care).ti,ab. (12181)
30 home care/ or respite care/ or visiting nursing service/ (50367)
31 palliative therapy/ or cancer palliative therapy/ or terminal care/ or ("end-of-life" or eol).ti,ab. (95089)
32 family relation/ or family conflict/ or sibling relation/ or (intergeneration* adj2 relation*).ti,ab. or ("professional-family relation*" or (professional adj2 family adj2 relation*)).ti,ab. or (professional adj2 patient adj2 relation*).ti,ab. (12362)
33 or/27-32 [****patient or caregiver terms****] (1549414)
34 5 and 26 and 33 [****Base clinical set****] (934)
35 limit 34 to (english language and yr="2000 -Current") (856)
Database: PsycINFO <1806 to April Week 4 2015>
Search Strategy:
------
1 brain neoplasms/ or glioma/ (2681)
2 (brain adj2 (glioma* or neuroblastoma* or carcinoma* or cancer* or neoplas* or tumour* or tumor* or malignan*)).ti,ab. (2362)
3 1 or 2 (3850)
4 metasta*.mp. (2181)
5 3 and 4 [****Brain metastatis terms****] (237)
6 psychological endurance/ or psychological stress/ or "resilience (psychological)"/ or stress reactions/ or psychological needs/ (26576)
7 health education/ or client education/ or health knowledge/ or health literacy/ or client education/ (19240)
8 (supportive adj2 care).mp. (1031)
9 "quality of life"/ or life changes/ or life satisfaction/ or lifestyle/ or daily activities/ or lifestyle changes/ or well being/ or "culture (anthropological)"/ or cross cultural psychology/ or cultural sensitivity/ or traditions/ or acculturation/ or culture change/ or cross cultural communication/ or cross cultural psychology/ or cultural sensitivity/ or marginalization/ or multiculturalism/ or (cultural adj2 (character* or competen* or divers*)).mp. or psychosocial factors/ (146586)
10 social networks/ or online social networks/ or social interaction/ or social support/ or support groups/ or community services/ or social isolation/ or social deprivation/ or patient seclusion/ or alienation/ or psychological distance/ (81722)
11 counseling/ or cross cultural counseling/ or pastoral counseling/ or counseling psychology/ or counselors/ or group counseling/ (34305)
12 hot line services/ or hotline*.mp. (1204)
13 health personnel attitudes/ or therapist attitudes/ or psychotherapist attitudes/ or counselor attitudes/ or psychologist attitudes/ or therapist role/ (22264)
14 death attitudes/ or "death and dying"/ or advance directives/ or death anxiety/ or treatment withholding/ (28095)
15 health attitudes/ or health knowledge/ or "physical illness (attitudes toward)"/ or illness behavior/ (18044)
16 (psycholog* adj2 adapt*).mp. or emotional states/ or emotions/ or affection/ or alienation/ or exp anger/ or exp anxiety/ or exp aversion/ or dissatisfaction/ or distress/ or emotional trauma/ or exp fear/ or frustration/ or gratitude/ or grief/ or guilt/ or exp helplessness/ or hope/ or hopelessness/ or jealousy/ or loneliness/ or optimism/ or pessimism/ or pleasure/ or pride/ or regret/ or restlessness/ or sadness/ or shame/ or abandonment/ (206484)
17 psychological stress/ (7761)
18 psychological stress/ or burnout.mp. (16684)
19 social psychology/ or "trust (social behavior)"/ (19274)
20 self concept/ or self confidence/ or self esteem/ or self perception/ or social identity/ (85162)
21 ethics/ or bioethics/ or professional ethics/ or integrity/ or morality/ or social responsibility/ or beneficence.mp. or "independence (personality)"/ or social justice/ or social responsibility/ (56165)
22 self care skills/ or self medication/ or drug self administration/ (5710)
23 "activities of daily living"/ or adaptive behavior/ or daily activities/ or independent living programs/ or participation/ or client participation/ (17839)
24 or/6-23 [****Supportive care terms****] (665814)
25 adult offspring/ or family members/ or cousins/ or daughters/ or grandchildren/ or grandparents/ or inlaws/ or siblings/ or brothers/ or sisters/ or sons/ or spouses/ or husbands/ or wives/ or couples/ or only children/ or significant others/ (55394)
26 caregivers/ or caregiver burden/ or home care/ or respite care/ (25952)
27 terminally ill patients/ or advance directives/ or palliative care/ or terminal cancer/ or treatment refusal/ or treatment withholding/ (13038)
28 client centered therapy/ or ("patient-centered care" or (patient adj2 cent* adj2 care)).mp. (3507)
29 family conflict/ or family relations/ or family intervention/ or home environment/ or intergenerational relations/ or generational differences/ or ("professional-family relation*" or (professional adj2 family adj2 relation*) or "professional-patient relation*" or (professional adj2 patient adj2 relation*)).mp. (47012)
30 or/25-29 [****patient or caregiver terms****] (130754)
31 5 and 24 and 30 [****Base clinical set****] (8)
32 limit 31 to (english language and yr="2000 -Current") (7)
CINAHL
Query / ResultsS1 / (MH "Brain Neoplasms+") / 4,695
S2 / (MH "Neoplasm Metastasis") OR (TX metasta*) / 32,147
S3 / S1 AND S2 / 742
S4 / (MH "Quality of Life") OR (MH "Comfort") OR (MH "Consumer Health Information") OR (MH "Drug Information") OR (MH "Health Information") OR "health literacy" OR (MH "Death Education") OR (MH "Patient Education") / 99,280
S5 / (MH "Culture") OR (MH "Acculturation") OR (MH "Cultural Diversity") OR (MH "Cultural Values") OR (MH "Social Isolation") OR (MH "Loneliness") OR (MH "Social Alienation") OR (MH "Social Networks") OR (MH "Adult Children") OR (MH "Extended Family") OR (MH "Grandchildren") OR (MH "Grandparents") OR (MH "Family Functioning") OR (MH "Dysfunctional Family") OR (MH "Family Coping") OR (MH "Nuclear Family") OR (MH "Daughters") OR (MH "Only Child") OR (MH "Siblings") OR (MH "Sons") OR (MH "Spouses") / 56,051
S6 / (MH "Cultural Competence") OR (MH "Psychology, Social") OR (MH "Attitude of Health Personnel+") OR (MH "Attitude to Death") OR (MH "Attitude to Health") OR (MH "Health Beliefs") OR (MH "Medication Compliance") OR (MH "Patient Compliance") OR (MH "Patient Satisfaction") OR (MH "Attitude to Illness") OR (MH "Treatment Refusal") OR (MH "Attitude to Life") OR (MH "Cultural Bias") OR (MH "Cultural Sensitivity") / 141,360
S7 / (MH "Social Isolation") OR (MH "Loneliness") OR (MH "Social Alienation") OR (MH "Affect") OR (MH "Anger") OR (MH "Anxiety") OR (MH "Anticipatory Anxiety") OR (MH "Anticipatory Grieving") OR (MH "Grief") OR (MH "Chronic Sorrow") OR (MH "Complicated Grief") OR (MH "Bereavement") OR (MH "Fear") OR (MH "Frustration") OR (MH "Guilt") OR (MH "Happiness") OR (MH "Shame") OR (MH "Hopelessness") OR (MH "Hope") OR (MH "Jealousy") OR (MH "Pleasure") OR (MH "Suffering") / 47,532
S8 / (MH "Death Counseling") OR (MH "Anticipatory Guidance") OR (MH "Counseling") OR "pastoral care" OR (MH "Spiritual Care") / 17,475
S9 / (MH "Telephone Information Services") or (TX hotline*) / 5,592
S10 / (MH "Adaptation, Psychological") OR (MH "Ethics") OR (MH "Altruism") OR (MH "Bioethics") OR (MH "Medical Futility") OR (MH "Decision Making, Ethical") / 28,267
S11 / (MH "Life Style") OR (MH "Life Change Events") OR (MH "Catastrophic Illness") OR (MH "Death") OR (MH "Life Style Changes") OR (MH "Morale") OR (MH "Morals") OR (MH "Conscience") OR (MH "Social Responsibility") OR (MH "Refusal to Treat") OR (MH "Psychosocial Aspects of Illness") / 41,798
S12 / (MH "Self Concept+") / 29,762
S13 / (MH "Self Care") OR (MH "Blood Glucose Self-Monitoring") OR (MH "Self Administration") OR (MH "Patient-Controlled Analgesia") OR (MH "Self Medication") / 25,486
S14 / (MH "Activities of Daily Living+") OR (MH "Community Living") / 38,062
S15 / S4 OR S6 OR S7 OR S8 OR S9 OR S10 OR S11 OR S12 OR S13 OR S14 / 395,914
S16 / (MH "Adult Children") OR (MH "Caregivers") OR (MH "Caregiver Burden") OR (MH "Caregiver Support") OR (MH "Siblings") OR (MH "Spouses") OR (MH "Survivors") OR (MH "Cancer Survivors") OR (MH "Widows and Widowers") OR (MH "Terminally Ill Patients") / 46,645
S17 / (TX proxy OR proxies) / 12,166
S18 / (MH "Patients") OR (MH "Cancer Patients") OR (MH "Outpatients") / 52,579
S19 / (MH "Home Health Care") OR (MH "Home Nursing") OR (MH "Terminal Care") OR (MH "Palliative Care") / 43,709
S20 / (MH "Respite Care") / 1,038
S21 / (MH "Family Conflict") OR (MH "Intergenerational Relations") OR (MH "Nurse-Physician Relations") OR (MH "Professional-Family Relations") OR (MH "Professional-Client Relations") OR (MH "Professional-Patient Relations+") / 72,492
S22 / S16 OR S17 OR S18 OR S19 OR S20 OR S21 / 201,919
S23 / S3 AND S15 AND S22 / 18