s
Field name / Comments/notes
Title / End of Life Care for People with Chronic and Long Term Conditions: Level 5
Code / NA2116
Level / 5
Credit rating / 20
KSF Skills / 1, 3, 4, 5, 6.
Pre-requisites / Course entry requirements apply.
Type of module / Extensive – 10 Days – one day a week over the semester
Aims / To explore the challenges and potential solutions that people with life threatening illness other than cancer experience at the end of life.
To recognise that although the end of life care management of people with chronic and long term conditions may have some comparisons to the management of people with cancer there are explicit needs of these people as identified by the document Reaching Out: Specialist Palliative Care for Adults with Non-Malignant Diseases (2004) National Council for Palliative Care. London
To apply the principles of end of life care to the specific needs of those people living with and dying from advanced non-malignant disease with specific focus on the care of people with chronic obstructive pulmonary disease (COPD), heart disease, neurological conditions and renal failure.
Learning outcomes/objectives / At the end of the module students will:
· Demonstrate the ability to apply the principles and philosophy of end of life care.
· Reflect on the notion of equity, choice and justice at a personal and societal level
· Explore the political and social influences on the management of long term chronic conditions
· Consider the concept of spirituality in relation to end of life care
· Apply therapeutic interventions following the assessment of symptoms experienced by people with advanced chronic obstructive pulmonary disease, heart failure, neurological conditions and renal failure at the end of life.
· Discuss the importance of the carers role: lay carer, professional carer and support groups
· Demonstrate an understanding of ‘service user involvement’
· Explore resource allocation in relation to treatment, care and management
Content / · Philosophy and principles of end of life care
· Reflective practice
· Equity, choice and justice: The disadvantaged dying
· Governmental initiatives/political dimension
· Palliative care pathways
· The sociological perspective
· Spirituality: Meaning and impact
· Symptom management – Advanced COPD, Heart Disease, Neurological Conditions and Renal failure
· Service user involvement: The patient/carers’ voice
· Care of the carers/support groups
· Resource allocation
Teaching and learning strategies / Module hours
60 hours taught
40 hours student directed learning
100 hours learning in practice to include assessment of practice and reflection
Total 200 hours
Teaching and learning strategies will include key note delivery from course lecturers and specialists in palliative care practice, the use of humanities, including critical analysis of film media, small group work, service user involvement, discussion, reflection on experience, indicative reading/websites and the use of student central. Mentors will support the students learning (clinical link activities) in clinical practice
Learning support / Reading List:
Addington-Hall, J. and I.J. Higginson. 2001. Palliative Care for Non-cancer Patients. Oxford: Oxford University Press.
Ahmedzai, S. 2004. Supportive Care in Respiratory Disease. Oxford: Oxford University Press.
Department of Health. 2005. The National Service Framework for Long-term Conditions. London: Department of Health.
Department of Health. 2006. Our Health Our Care Our Say. (2006) London: DoH.
Department of Health. 2007. The National Service Framework for Renal Services. London: DoH.
Department of Health. 2008. The National Service Framework Chronic Obstructive Pulmonary Disease. London: DoH.
Olivere, D. and B. Munroe. 2004. Death, Dying and Social Differences. Oxford: Oxford University Press.Pain, S. and C. Ellis-Hill. 2001. Chronic and Terminal Illness. Oxford: Oxford University Press.
Payne, S., J. Seymour and C. Ingleton. 2004. Palliative Care Nursing Principles and Evidence for Practice. Millton Keynes: Open University.
Small, N. and P.Rhodes. 2000. Too Ill to Talk? User involvement and palliative care. London: Routledge.
Stewar, S. and L. Blue. 2001. Improving Outcomes in Chronic Heart Failure. London: BMJ Books..
Surrey and Sussex Primary Care Alliance. 2005.Transforming Chronic Care Programme.
Journals
Journal of Palliative CareInternational Journal of Palliative Care
Palliative Medicine
European Journal of Palliative Care
Web sites
www.hospice-spc-council.org.ukwww.hospiceinformation.co.uk/directory/directory.asp
www.macmillan.org.uk
www.palliative-medicine.org
Assessment tasks / There is an assessment of both theory and practice.
Theory 50%
Demonstrating a holistic approach students should discuss the end of life care needs of a patient with a chronic or long term condition (2,500 words)
Practice 50%
Clinical Link Activities (CLLA)
In practice you are required to complete two of the following clinical link activities ( 500 words per CLLA).
Show how you used communication skills in supporting a relative at a difficult time.
Analyse your role in initiating a patient service. For example respite care.
Chose a symptom and discuss your role in it’s management.
Analyse how your organisation utilises service user involvement i.e. the patient’s voice.
With reference to a definition of ‘quality of life’ apply this definition to a patient you have cared for and write short notes to show how you helped to achieve this.
NB. A 40% pass must be achieved in each assessment part.
Brief description of module content and/or aims (maximum 80 words) / The main focus of the module is to apply the principles of end of life care to the specific needs of those people living with and dying from chronic and long term conditions. This will consider the physical, social, spiritual and emotional needs of those people at the end of life. There will be a focus on the care of people with chronic obstructive pulmonary disease (COPD) heart disease, neurological conditions and renal failure. A sound theoretical underpinning will be provided regarding key issues/concepts which affect practice enabling students to develop knowledge and competence.
Area examination board to which module relates / UGCPD AEB
Module team/authors/ coordinator / Patrick Cunningham, Liz Watson, Module Leader, Paul Watters
Semester offered, where appropriate / Semester Two
Site where delivered / Brighton – to be rotated to Hastings
Date of first approval
Date of last revision
Date of approval of this version / 26/11/10
Version number / 1
Replacement for previous module / Palliative Care Management of People with End-Stage Non-Malignant Disease Level 5 - NH297
Field for which module is acceptable and status in that field / Nursing & Midwifery
Course(s) for which module is acceptable and status in course / Optional/mandatory
BSc Hons/Diploma in Professional Practice
School home / Nursing and Midwifery
External examiner / Jane Appleton (expires December 2008)
Pauline Turner (commencing January 2009)