Common Clinical Registry Framework Minutes

Date: May 4, 2016

Time: 9:00am – 10:00am EST

Participants:

1 / Anita Walden – Facilitator & Scribe
3 / Rachel Richesson
4 / Russ Leftwich
5 / AbdulMalik Shah
8 / Tom Kuhn
9 / Susan Matney
10 / Sarah Ryan

Quick Highlights

  • The team has an official name: Common Clinical Registry Framework. Floyd, there was a proposal to name the group FLOYD
  • We will invite stakeholders to this meeting to introduce the project and to engage them in the process.
  • Need to get a wiki up so we can point people to our materials

Agenda

Attendance Claire

Review of Action Items Claire

Hot Topics/News Group

PCPI Update

Interoperability Mtg. in DC

Status of Patient Care and Learning

Health System Approval of PSS Russ

Project Name Floyd

Registry Common Framework (RCF)

Registry Interoperability for Quality (RIQ)

Registry Interoperability to Improve Quality (RIIQ)

Registry Interoperability for Sustainable Quality (RISQ)

Performance Improvement via Registries (PIR)

DAM UpdateAbdulMalik

Agenda for HL7 Anita

ACTION Items

Anita will send out a rough draft of a stakeholder communication packet

AbdulMalik will place documents on Google Drive until we have a wiki

Rachel will send out an email to the Quintiles Group inviting them to a call on the 18May

Anita will send PSS to Melva for DESD meeting

Anita will look into a listsev name for the project

Hot Topics

  • CCRC met with PCPI last week. Presented the Use Case to them so they will provide feedback on it. There are also plans to draft a white paper on Registry Interoperability Based on Standards.
  • Interoperability mtg in DC- Russ Reported that the meeting was focused on FHIR. Registries were not the focus even though registry groups attended.
  • PCPI and Pew Trust have assembled a group to develop a policy recommendation for Registry Interoperability. Their focus is around cardiology data elements. This is a great opportunity for HL7 because it will help to understand the use and barriers of the Cardiology data elements they created.

Status of Patient Care and Learning Health System Approval of PSS

  • Russ stated that Patient Care will review the PSS on their call tomorrow.
  • Learning Health System will vote on the PSS at the Montreal meeting but for now they will list themselves as an interested party so that the PSS can be voted on at the DESD mtg in Montreal on Monday night

Project Name

  • Thank you Floyd for the list of suggested project names. A vote was held and this is the name that was selected

Common Clinical Registry Framework

VOTE

Motion: Tom Kuhn – Common Clinical Registry Framework as the name for the Registry Initiative

Russ Leftwich - 2nd

6- Approved

0 -Negative

0 - Abstained

Common Clinical Registry Framework selected

Other Proposed Names

Clinical Registry Common Framework

Registry Common Framework (RCF)

Registry Interoperability for Quality (RIQ)

Registry Interoperability to Improve Quality (RIIQ)

Registry Interoperability for Sustainable Quality (RISQ)

Performance Improvement via Registries (PIR)

DAM Update

  • AbdulMalik is waiting for feedback on the Use Case he created.
  • It was suggested to invite stakeholders to the calls to introduce them to the project then we will ask for feedback on the materials.
  • Rachel will reach out to Quintiles.
  • Sarah will provide a contact for the Rheumatology group.
  • A Communication Document is needed to provide to stakeholders.
  • We need volunteers to assist with developing the communication plan.

Agenda for HL7

  • As a reminder and what was discussed last month.
  • Russ and AbdulMalik will facilitate the Thursday meeting in Montreal
  • No CIC co-chairs will be at Thursday Q4 meeting due to other conflicts.
  • Salima was volunteered to take meeting minutes…:-)
  • Anita will send the Registry Montreal Agenda for the meeting this weekend.

Submitted by: Anita Walden

May 4, 2016