FOR IMMEDIATE RELEASE
Oct. 00, 2015
RE: Cystinosis Research Foundation
Contact: Zoe Solsby
949-223-7610
Art Barrett
714-309-3700
Cystinosis Benefit Golf Tournament Raises A Record $390,000
IRVINE, California – The eighth annual Natalie’s Wish Fore a Cure Golf Tournament raised more than $390,000 through generous donations and sponsorships by more than 200 companies and individuals. Cystinosis is a rare, metabolic disease that afflicts about 500 children and young adults in the United States and 2,000 worldwide.
“The exceptional support and generosity of our friends and community has enabled CRF to make significant advances in the treatment of cystinosis. CRF-funded researchers at institutions around the globe are making important breakthroughs toward the cure. We are honored to be part of the progress to help Natalie’s Wish become a reality by contributing to cystinosis research,” said Vince Ciavarella, the CRF’s tournament chairman.
Since 2007, the Fore a Cure golf tournaments have contributed $2,623,585 to cystinosis research and the quest for a cure. This year’s tournament was held at the world-class Pelican Hill Golf Club on Oct. 19. The record-setting proceeds from this year’s tournament are committed entirely for research aimed at finding a cure and improved treatments for the disease.
Leading the event’s list of supporters was Oltmans Construction, returning for a fourth year as Presenting Sponsor.
Silver Sponsors were: Fidelity National Title, TLG Paving Company, Silverline Construction and SARES•REGIS Group.
Bronze Sponsors were: Allen Matkins, Bank of America Merrill Lynch, Bank of the West, Ben’s Asphalt Inc., Berkeley Point, Brad Bierbaum, Brian DeRevere and Ryan Peterson of CBRE, Bristol Group, Commercial Roof Management, Contract Carpet Corp., DeRevere & Associates, Eagle Construction, Fashion Furniture Rental, First American Title, FullScale Demolition Inc., General Underground Fire Protection, Gorman Roofing Services, Bert L. Howe & Associates Construction Consultants, Howard Roofing Company, J.P. Morgan Asset Management, Joe McKay and Mike Wolfe of Lee & Associates, Moran & Company, Norm Wilson & Sons General Contractors, RGA Office of Architectural Design, Sanders &Wohrman, Sullivan Curtis Monroe Insurance Services, TCA Architects, TLG Paving Company, Villa Park Landscape and Vulcan Materials Company.
Underwriters were: Link, Murrel & Company, Manly Stewart Finaldi, Alabout Fire, Partner Engineering and Science, Integrated Services, Steve Bellitti and Tom Taylor of Colliers International, Chuck Beldon of Cushman & Wakefield, R. J. Noble, Fletcher Jones Motorcars, Traditional Jewelers, John Schumacher, Val Achtemeier, Darla Longo and Barbara Emmons of CBRE, Multihousing Pro Magazine, Berkeley Point, The Dot Printer, GuardTop, Mechanical Air Control, Champion Fire Systems, J.P. Morgan Asset Management, CommerceWest Bank, Lincoln Property Company, Bluewater Grill, Conservice, General Underground Fire Protection, SkyCo Skylights, GEI, Bank of the West and International City Bank.
“This year’s event brought many past participants, as well as many new supporters. We are grateful to everyone who participated,” Ciavarella said. “The tournament’s reputation as ‘the best in Orange County’ was yet again confirmed as golf sponsorships were sold out several months before the event, and because of our dynamic golf committee nearly all of the underwriting opportunities were sold by tournament day.
Cystinosis is a metabolic disease that slowly destroys every organ in the body, including the liver, kidneys, eyes, muscles, thyroid and brain. There is a medicine that prolongs children’s lives, but there is no cure.
The CRF of Irvine, California, is the leading funding source for bench, clinical and translational investigations of cystinosis research worldwide. CRF has raised more than $29 million and funded 131 cystinosis research studies and fellowships in 12 countries. All of the foundation’s administrative costs are privately underwritten.
The foundation was formed in 2003 by Nancy and Geoffrey Stack, a managing director of SARES•REGIS Group, a real estate company in Irvine. Their daughter Natalie, 24, was diagnosed with cystinosis at infancy.
For more information about the event and the Cystinosis Research Foundation, visit their Facebook page www.facebook.com/CystinosisResearchFoundation or website www.cystinosisresearch.org.
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