BSG Scotland Members Event 25 February 2005

British Society of Gerontology Scotland

Networking Seminar

Living with dementia: evidence from research and implications for policy

Conference Room (Level 0)

Edinburgh Centre for Carbon Innovation

University of Edinburgh

12.00 – 16.30

Tuesday 22nd March, 2016

Programme

12.00 – 12.45 / Buffet lunch
12.45 – 13.00 / Welcome and introduction
13.00 – 13.45
13.45 – 14.15 / Prof. Julian Hughes, University of Newcastle
Palliative care, personhood, souls and ethics in dementia
David Berry, Directorate for Health and Social Care Integration/Dementia Innovations Unit, Scottish Government
Overview of current and anticipated future dementia policy landscape in Scotland
14.15 – 14.45
14.45 – 15.00 / Rosalie Ashworth, Research Fellow, University of Stirling; Clinical Studies Officer, Scottish Dementia Clinical Research Network
Experiences of Alzheimer’s disease: Stigma and Future Outlook
Tea and coffee
15.00 – 15.30 / Anne MacDonald, Scottish Dementia Working Group
Living with Dementia
15.30 – 16.00
16.00 – 16.30 / Dr. Barbara Sharp, Alzheimer Scotland / University of West of Scotland
Stress in dementia: an insider perspective
Discussion, news and close

Speaker biographies and presentation abstracts

Julian C. Hughes

Julian is a Consultant in Psychiatry of Old Age and Honorary Professor of Philosophy of Ageing

Northumbria Healthcare, NHS Foundation Trust& PEALS Research Centre, Newcastle University. He has edited, co-edited or co-authored books including: Dementia: Mind, Meaning, and the Person (OUP 2006), Palliative Care in Severe Dementia (Quay Books 2006), Ethical Issues in Dementia Care: Making Difficult Decisions (Jessica Kingsley 2006) and Supportive Care for the Person with Dementia (OUP 2010). His single-author books are Thinking Through Dementia (OUP 2011), Alzheimer’s and Other Dementias (OUP 2011) and How We Think About Dementia (Jessica Kingsley 2014). In 2013, he was appointed a member of the Nuffield Council on Bioethics having served on the working party in 2009 which produced the report Dementia: Ethical Issues. In 2015, Julian was appointed Deputy Chair of the Council.

David Berry

Policy Officer, Dementia Innovations Unit, Scottish Government

Overview of current and anticipated future dementia policy landscape in Scotland, including: diagnosis and post-diagnostic support; integrated home care; acute and specialist NHS care; palliative and end of life and residential care. How clinical, social and other research and data inform and influence policy and practice.

Rosalie Ashworth

Research Fellow at the University of Stirling and a Clinical Studies Officer for the Scottish Dementia Clinical Research Network

Rosie’s research background focuses on people’s experiences of living with dementia. She has a particular interest in how a biopsychosocial perspective can enhance our understanding of the condition, and how people learn to live well with dementia. She recently completed a mixed-method PhD exploring how people with Alzheimer’s disease perceive stigma and look to the future. People with early and late-onset Alzheimer’s disease participated to explore how age influenced experiences. The key findings of the PhD highlight that across participants there was a shared focus on remaining positive and managing one day at a time. She is currently working on a project exploring carers’ time use among people supporting older adults with care needs. In addition, she works for the Scottish Dementia Clinical Research Network to assist in the uptake and delivery of clinical research studies for dementia and other neurodegenerative conditions.

Anne MacDonald

Anne has been a member of Scottish Dementia Working Group (SDWG) since November 2014. She was elected as Vice Chair January 2016 and is also vice –chair of research sub-group of SDWG and is a reporter on Dementia Diaries funded by The Dementia Engagement & Empowerment Project (DEEP)

Anne realised something was not right at the age of 51. After a long journey she was diagnosed with Posterior Cortical Atrophy in 2014. She was pointed in the direction of the SDWG, which was a lifeline. She has met a great group of friends campaigning for things to be better for people coming after them. She realised she was still herself and able to do many things; particularly challenge assumptions about dementia, pro-actively. She believes passionately that people with dementia can educate others and should be heard as the expert voice of living with dementia.

Dr Barbara Sharp

Barbara is a member of Alzheimer Scotland’s public policy team and is seconded to the Alzheimer Scotland Centre for Policy and Practice at University of the West of Scotland for two days per week where she participates in Centre projects and teaching. Her recently completed doctorate was an interpretive phenomenological analysis responding to the need for a better understanding of stress as experienced by people with dementia. In partnership with the University of the West of Scotland (UWS), Barbara is part of the teaching team who train Scotland’s national dementia champions and she supports Alzheimer Scotland’s network of Dementia Nurse Consultants in the NHS. Barbara has led delivery of a range of programmes for NHS Education for Scotland and the Scottish Social Services Council as part of the national dementia strategic objectives.

We aim to provide plenty of opportunity for members to network and exchange news and views. We would like you to bring posters, leaflets and other materials about your work so that these can be displayed at the meeting – please let us know if you would like a table or poster board for this.

The seminar is £30 for waged and £15 for unwaged and students.

Please complete the attached registration form, enclosing payment if applicable (cheques made payable to BSG Scotland), and return by Friday 11th March, 2016:

Jo Alexjuk

Lecturer in Dementia

School of Health in Social Science

The University of Edinburgh

Teviot Place

Edinburgh

EH8 9AG

Alternatively, payment can be made via BACS transfer. Please contact Jo Alexjuk for details:

The venue isthe Conference Room, Level 0, Edinburgh Centre for Carbon Innovation, High School Yards, Edinburgh EH1 1LZ

For details of location and directions see

The venue is a short walk from Edinburgh Waverley train station.

If you are not a member of BSG and would like to join or re-join, please visit the website:

Twitter users: If you would like to help us publicise our event before and during the seminar, please use our hashtag #Livingwithdementia

BSG Scotland Networking Seminar 22nd March, 2016

Registration form

Would you like to attend the buffet lunch? Yes/No

Do you have any special requirements? (Dietary, access etc.)

If so, please specify….

Would you like to display a poster? Yes/No

Contact details

Your name: ……………………………………………………………….

Are you a BSG Member? Yes/No

Address: ………………………………………………………………….

Email address: ……………………………………………………………

Contact phone no: ………………………………………………………..

Payment enclosed (£30 waged, £15 unwaged): Yes/No

Please make cheques payable to ‘BSG Scotland’

or to pay via BACS contact Jo Alexjuk:

Please return by Friday 11th March, 2016 to