AS AN IMMUNOLOGY PATIENT YOU ARE INVITED

TO THE UKPIPS

LONDON & THE SOUTH EAST P.I.D. PATIENT AND CARER DAY

27thFebruary, 2016from 10.00am – 4.00pm

at Croydon Park Hotel, 7 Altyre Road, Croydon CR9 5AA

UKPIPS HAS HELD SEVERAL PATIENT AND CARER DAYS SINCE 2012 AND WE KNOW HOW IMPORTANT IT IS FOR PEOPLE LIVING WITH A PRIMARY ANTIBODY DEFICIENCY OR OTHER PRIMARY IMMUNE DEFICIENCY TO HAVE THE CHANCE TO GET TOGETHER. WE’D LOVE TO SEE YOU THERE AND TO LEARN FROM YOU HOW WE CAN BETTER SUPPORT YOU.

ONE OF THE THINGS MANY PEOPLE TELL US AT THESE EVENTS IS THEY’RE SO GLAD TO MEET OTHERS WITH A PRIMARY IMMUNE DEFICIENCY AND TO ‘COMPARE NOTES’.

IF YOU HAVE THAT FEELING OF ‘ISOLATION’ THERE WILL BE LOTS OF OPPORTUNITIES FOR MEETING OTHER PEOPLE WHO COPE WITH SIMILAR ISSUES TO YOURSELF.

WE REALLY HOPE YOU WILL BE ABLE TO COME AND LOOK FORWARD TO HEARING FROM YOU.

This what one of our Community Members said when asked what UKPIPS Events were like …

Are you thinking of going to any of the UKPIPS events they have planned? I only ask this, because two years ago I was in a difficult place emotionally, awaiting a full diagnosis whilst my life fell apart.

I contacted UKPIPS when they were preparing to hold their first conference near Broadway, in the Cotswolds.

It was miles from my (then) home in London and I was very unwell getting over pneumonia but I went to the event and it literally changed my life.

The UKPIPS support, help and advice got me through a devastating round of disciplinaries at work due to my sick leave. I felt stronger with their backing and was able to stand up for myself. My life is now very different. I'm no longer able to work and we now live elsewhere, but I know who has my back covered, and where to turn to when I have doubts, a ‘down’ day, or questions.

These dear “Zebras” are my friends - although I know only a handful, and I never feel alone or in the dark place I once did.

If you can get to a UKPIPS conference I promise you, it will benefit you hugely.

Laura

OUTLINE PROGRAMME

  • The day will run from 10.00am until 4.30pm.
  • Lunch will be provided.Coffee/Teawill be served after registration and then again during the afternoon.
  • The first item on the Agenda will start at 10.30 PROMPT.
  • We expect to conclude at around 4.30pm.
  • WORKSHOPS. During the day, we will be using some ‘break-out’ rooms to hold workshops that hopefully be of interest to delegates. What the workshops will cover and where the ‘break-out’ rooms are located will be advised when you register on arrival. If you would like to attend any of these workshops – as a couple or individually, you will be requested on arrival to write your name(s) on a board for that particular workshop/break-out room.
  • If you are going to be travelling some distance and feel you might want to overnight at the hotel, we will do our best to see if the hotel is able to offer a discounted Dinner, Bed and Breakfast rate. If you are considering an overnight stay, please contact Ayanna Emery, Conferences Manager at Croydon Park Hotel – tel: 0208 680 9200 (Option 2) to see if a special rate has been negotiated.
  • Ensure you tell Ayanna you are attending the UKPIPS event.

THIS IS THE RESERVATION REQUEST FOR MYSELF AND MY GUEST AT CROYDON PARK HOTEL

Please print this, complete it legibly by hand and mail to reach us by 19th FEBRUARY, 2016AT THE LATEST. Reservations will be made on a strictly first come, first served basis

Replies should be sent to:

UKPIPS Limited De Montfort House 7e Enterprise Way Vale Business Park Evesham Worcs WR11 1GU

T: 01386 421228 E:

Name:
Address:
Town: County: Postcode:
Phone: (Home) Phone: (Mob)
Email:
(Please write clearly)
Apart from yourself, how many other people will accompany you?
Is anyone in your party a wheelchair user or have mobility issues? / YES / NO
If you or your Carer/Guest has any dietary requirements or food allergies, please briefly describe them here. / Please circle any that apply and indicate how many people require this.
Vegetarian / Vegan / Gluten intolerant / Lactose intolerant / Other (please state).
Which hospital do you attend
for your Immunology Clinic?
There will be ….. people
in my party / PATIENT/CARER name: / GUEST name:

Patient signature:………………………………………………………..………. Date: ………………………………………..