Appendix B: Search Strategies from Electronic Databases (Medline via OVID, EMBASE, PsycInfo, Sociological Abstracts, CINAHL, and Conference Paper Index)

  1. Search Strategies Medline via OVID Date last searched 7/15/2015

# Search History Results

1 / Biomedical research* or clinical research* or population health research* or public health* or health services research* / 331143
2 / Biomedical research/ or public health/or health services research/ / 134031
3 / 1 or 2 / 331143
4 / (Patient* or citizen* or user* or user advocate* or consumer* or consumer advocate* or knowledge user* or public* or lay* or client* or communit* or partner* or collaborator* or representative*).mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 6514924
5 / Patients/ / 16629
6 / 4 or 5 / 6514924
7 / (patientadvocac* or consumer advocac* or public advocac* or patient activat* or collaborat* or partner* or engagement* or involv* or represent* or partner* or collaborat* or voice* or unvoiced* or knowledge* or skill* or readiness for meaningful engagement* or process and impact of patient engagement* or consult* or contribut* or input* or epatient*).mp. [mp = title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary word, unique identifier] / 1214274
8 / Patient advocacy/or consumer advocacy/ or collaborative behavior/ / 25715
9 / 7 or 8 / 1238783
10 / Model* or framework* / 2790105
11 / (Belief* or Attitude* or perception* or perspectiv* or viewpoint* or opinion* or concept* or idea* or self perception* or self-esteem*).mp. [mp=title, abstract, original title, name of substance word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 1382108
12 / Attitude/ or Perception/ or Public Opinion/ or Self Concept/ / 120580
13 / 11 or 12 / 1382108
14 / 9 and 10 and 13 / 36267
15 / # 3 and 6 and 14 / 1714

# = Aim and objectives results

/ = MESH or subject heading terms

.mp. = title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier

  1. Search Strategies EMBASE via OVID Date last searched 7/15/15

# Search History Results

1 / Biomedical research* or clinical research* or population health research* or public health* or health services research* / 439175
2 / Biomedical research/ or public health/or health services research/ / 337310
3 / 1 or 2 / 599387
4 / (Patient* or citizen* or user* or user advocate* or consumer* or consumer advocate* or knowledge user* or public* or lay* or client* or communit* or partner* or collaborator* or representative*).mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 8754313
5 / Patients/ / 1180977
6 / 4 or 5 / 8754313
7 / (patientadvocac* or consumer advocac* or public advocac* orcollaborat* or partner* or engagement* or involv* or represent* orconsult* or contribut* or input* or patient activat* or knowledge* or skills* or readiness for meaningful engagement* or voice* or unvoiced* or epatient*).mp. [mp = title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary word, unique identifier] / 4811865
8 / Patient advocacy/or consumer advocacy/ / 19235
9 / 7 or 8 / 4811865
10 / Model* or framework* / 3287348
11 / (Belief* or Attitude* or perception* or perspectiv* or viewpoint* or opinion* or concept* or idea* or self perception* or self-esteem*).mp. [mp=title, abstract, original title, name of substance word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 1642429
12 / Attitude/ or Perception/ or Public Opinion/ or Self Concept/ / 199431
13 / 11 or 12 / 1642429
14 / 9 and 10 and 13 / 127188
15 / # 3 and 6 and 14 / 8241

# = Aim and objectives results, unfiltered

/ = MESH or subject heading terms

.mp. = search as key terms

  1. Search StrategiesPsycInfo via EBSCO Interface Date last searched 07/15/15

# Search History Results

1 / Biomedical research* or clinical research* or population health research* or public health* or health services research* / 149604
2 / Experimentation/ or public health/ / 161832
3 / 1 or 2 / 203356
4 / (Patient* or citizen* or user* or user advocate* or consumer* or consumer advocate* or knowledge user* or public* or lay* or client* or communit* or partner* or collaborator* or representative*).mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 1274273
5 / Patients/ / 581757
6 / 4 or 5 / 1274273
7 / (patientadvocac* or consumer advocac* or public advocac* or collaborat* or partner* or engagement* or involv* or represent* or consult* or contribut* or input* or patient activat* or knowledge* or skills* or readiness for meaningful engagement* or voice* or unvoiced* or epatient*).mp. [mp = title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary word, unique identifier] / 1301098
8 / advocacy/ / 11787
9 / 7 or 8 / 1306223
10 / Model* or framework* / 639334
11 / (Belief* or Attitude* or perception* or perspectiv* or viewpoint* or opinion* or concept* or idea* or self perception* or self-esteem*).mp. [mp=title, abstract, original title, name of substance word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 1348534
12 / Attitudes/ or Perception/ or Public Opinion/ or Self Concept/ / 773927
13 / 11 or 12 / 1348534
14 / 9 and 10 and 13 / 123871
15 / # 3 and 6 and 14 / 5653

# = Aim and objectives results, unfiltered

  1. Search Strategies Sociological Abstracts Database Date last searched 7/15/15

# Search History Results

1 / Biomedical research* or clinical research* or population health research* or public health* or health services research* / 58377
2 / Biomedical research/ or public health research/or health services/ / 37982
3 / 1 or 2 / 68565
4 / (Patient* or citizen* or user* or user advocate* or consumer* or consumer advocate* or knowledge user* or public* or lay* or client* or communit* or partner* or collaborator* or representative*).mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 407485
5 / Patients/ / 14287
6 / 4 or 5 / 407485
7 / (patientadvocac* or consumer advocac* or public advocac* or collaborat* or partner* or engagement* or involv* or represent* or consult* or contribut* or input* or patient activat* or knowledge* or skills* or readiness for meaningful engagement* or voice* or unvoiced* or epatient*).mp. [mp = title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary word, unique identifier] / 346155
8 / advocacy/ / 4565
9 / 7 or 8 / 347718
10 / Model* or framework* / 163676
11 / (Belief* or Attitude* or perception* or perspectiv* or viewpoint* or opinion* or concept* or idea* or self perception* or self-esteem*).mp. [mp=title, abstract, original title, name of substance word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 404679
12 / Attitudes/ or Perceptions/ or Public Opinion/ or Self Concept/ / 109159
13 / 11 or 12 / 404679
14 / 9 and 10 and 13 / 32698
15 / # 3 and 6 and 14 / 2554

# = Aim and objectives results, unfiltered

  1. CINAHL Database Date last searched 7/15/15

# Search History Results

1 / Biomedical research* or clinical research* or population health research* or public health* or health services research* / 106897
2 / public health/or health services/ / 231825
3 / 1 or 2 / 262261
4 / (Patient* or citizen* or user* or user advocate* or consumer* or consumer advocate* or knowledge user* or public* or lay* or client* or communit* or partner* or collaborator* or representative*).mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 1482536
5 / Patients/ / 692007
6 / 4 or 5 / 1482536
7 / (patientadvocac* or consumer advocac* or public advocac* or collaborat* or partner* or engagement* or involv* or represent* or consult* or contribut* or input* or patient activat* or knowledge* or skills* or readiness for meaningful engagement* or voice* or unvoiced* or epatient*).mp. [mp = title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary word, unique identifier] / 565287
8 / Patient advocacy/or consumer advocacy/ / 13892
9 / 7 or 8 / 565287
10 / Model* or framework* / 329634
11 / (Belief* or Attitude* or perception* or perspectiv* or viewpoint* or opinion* or concept* or idea* or self perception* or self-esteem*).mp. [mp=title, abstract, original title, name of substance word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 459219
12 / Attitude/ or Perception/ or Public Opinion/ or Self Concept/ / 187170
13 / 11 or 12 / 459219
14 / 9 and 10 and 13 / 37691
15 / # 3 and 6 and 14 / 5166

# = Aim and objectives results, unfiltered

/ = MESH or subject heading terms

.mp. = search as key terms

  1. Conference Papers Index Date Last Searched 7/15/15

# Search History Results

1 / Biomedical research* or clinical research* or population health research* or public health* or health services research* / 500930
2 / public health/or health services/ / 138186
3 / 1 or 2 / 500930
4 / (Patient* or citizen* or user* or user advocate* or consumer* or consumer advocate* or knowledge user* or public* or lay* or client* or communit* or partner* or collaborator* or representative*).mp. [mp=title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 454011
5 / Patients/ / 131026
6 / 4 or 5 / 454011
7 / (patientadvocac* or consumer advocac* or public advocac* or collaborat* or partner* or engagement* or involv* or represent* or consult* or contribut* or input* or patient activat* or knowledge* or skills* or readiness for meaningful engagement* or voice* or unvoiced* or epatient*).mp. [mp = title, abstract, original title, name of substance word, subject heading word, keyword heading word, protocol supplementary concept word, rare disease supplementary word, unique identifier] / 134611
8 / Patient advocacy/or consumer advocacy/ / 116
9 / 7 or 8 / 134611
10 / Model* or framework* / 254813
11 / (Belief* or Attitude* or perception* or perspectiv* or viewpoint* or opinion* or concept* or idea* or self perception* or self-esteem*).mp. [mp=title, abstract, original title, name of substance word, protocol supplementary concept word, rare disease supplementary concept word, unique identifier] / 71448
12 / Attitude/ or Perception/ or Public Opinion/ or Self Concept/ / 15748
13 / 11 or 12 / 71448
14 / 9 and 10 and 13 / 339
15 / # 3 and 6 and 14 / 10