Appendix A. Search Results

  1. Duhamel F, Dupuis F, Reidy M, Nadon N. A qualitative evaluation of a family nursing intervention. Clin Nurse Spec. 2007;21(1):43-49.
  2. Dracup K, Evangelista LA, Doering L, Tullman D, Moser DK, Hamilton M. Emotional well-being in spouses of patients with advanced heart failure. Heart Lung. 2004;33(6):354-361.
  3. Saunders MM. Factors associated with caregiver burden in heart failure family caregivers. West J Nurs Res. 2008;30(8):943-959.
  4. Pressler SJ, Gradus-Pizlo I, Chubinski SD, et al. Family caregiver outcomes in heart failure. Am J Crit Care. 2009;18(2):149-159.
  5. Saunders MM. Family caregiver support and hospitalizations of patients with heart failure. Home Healthcare Nurse. 2008;26(10):624-632.
  6. Bakas T, Pressler SJ, Johnson EA, Nauser JA, Shaneyfelt T. Family caregiving in heart failure. Nurs Res. 2006;55(3):180-188.
  7. Nauser JA. Heart failure family caregivers: Psychometrics of a new quality of life scale and variables associated with caregiver outcomes. Doctoral dissertation 2007.
  8. Saunders MM. Indicators of health-related quality of life in heart failure family caregivers. J Community Health Nurs. 2009;26(4):173-182.
  9. Saunders MM. Influence of heart failure caregiving on caregiver burden, caregiver health-related quality of life and patient hospitalizations. Doctoral dissertation 2006.
  10. Luttik ML, Blaauwbroek A, Dijker A, Jaarsma T. Living with heart failure: Partner perspectives. J Cardiovasc Nurs. 2007;22(2):131-137.
  11. Hagan N, Currey J. Living with heart failure: Partner perspectives. Aust Crit Care. 2007;20(3):113-115.
  12. Van den Berg B, Spauwen P. Measurement of informal care: An empirical study into the valid measurement of time spent on informal caregiving. Health Econ. 2006;15(5):447-460.
  13. Chubinski SD. Physical and emotional health among caregivers of heart failure patients. Doctoral dissertation 2007.
  14. Honea NJ, Brintnall R, Given B, et al. Putting evidence into practice: Nursing assessment and interventions to reduce family caregiver strain and burden. Clin J Oncol Nurs. 2008;12(3):507-516.
  15. Luttik ML, Jaarsma T, Lesman I, Sanderman R, Hagedoorn M. Quality of life in partners of people with congestive heart failure: Gender and involvement in care. J Adv Nurs. 2009;65(7):1442-1451.
  16. Clark AM, Reid ME, Morrison CE, Capewell S, Murdoch DL, McMurray JJ. The complex nature of informal care in home-based heart failure management. J Adv Nurs. 2008;61(4): 373-383.
  17. Luttik ML, Jaarsma T, Tijssen JGP, van Veldhuisen DJ, Sanderman R. The objective burden in partners of heart failure patients; development and initial validation of the Dutch Objective Burden Inventory. Eur J Cardiovasc Nurs. 2008;7(1): 3-9.
  18. Boyle AJ. Are ventricular assist devices underutilized? J Card Surg. 2010;25(4):421-424.
  19. Hwang B, Luttik ML, Dracup K, Jaarsma T. Family caregiving for patients with heart failure: Types of care provided and gender differences. J Card Fail. 2010;16(5):398-403.
  20. Penrod J, Hupcey JE, Baney BL, Loeb SJ. End-of-life caregiving trajectories. Clin Nurs Res. 2011;20(1):7-24.
  21. Agren S, Evangelista L, Stromberg A. Do partners of patients with chronic heart failure experience caregiver burden? Eur J Cardiovasc Nurs. 2010;9(4):254-262.
  22. Garlo K, O’Learty JR, Van Ness PH, Fried TR. Burden in caregivers of older adults with advanced illness. J Am Geriatr Soc. 2010;58(12):2315-2322.
  23. Chung ML, Pressler SJ, Dunbar SB, Lennie TA, Moser DK. Predictors of depressive symptoms in caregivers of patients with heart failure. J Cardiovasc Nurs. 2010;25(5):411-419.
  24. Young LE, Molzahn A, Starzomski R, Budz B. Families and transplantation: reversing the trajectory of end stage heart disease. Can J Cardiovasc Nurs. 2010;20(2):6-17.
  25. Saunders MM. Working and caregiving: A comparison of employed and unemployed caregivers of older heart failure patients. Holistic Nurs Prac. 2010;24(1):16-22.
  26. Molloy GJ, Johnston DW, Johnston M, et al. Using the demand-control model of job strain to predict caregiver burden and caregiver satisfaction in the informal caregivers of heart failure patients. Brit J Health Psychol. 2008;13(Pt 3):401-417.
  27. Gure TR, Kabeto MU, Blaum CS, Langa KM. Degree of disability and patterns of caregiving among older Americans with congestive heart failure. J Gen Int Med. 2008;23(1):70-76.
  28. Luttik ML, Jaarsma T, Veeger N, Tijssen J, Sanderman R, van Veldhuisen DJ. Caregiver burden in partners of heart failure patients; limited influence of disease severity. Eur J Heart Fail. 2007;9(6-7):695-701.
  29. Molloy GJ, Johnston DW, Witham MD. Family caregiving and congestive heart failure. Review and analysis. Eur J Heart Fail. 2005;7(4):592-603.
  30. Luttik ML, Jaarsma T, Veeger NJ, van Veldhuisen DJ. For better and for worse: Quality of life impaired in HF patients as well as in their partners. Eur J Cardiovasc Nurs. 2005;4(1):11-14.
  31. Howlett JG. Palliative care in heart failure: Addressing the largest care gap. Curr Opin Cardiol. 2011;26(2):144-148.
  32. Sanford J, Townsend-Rocchicciolli J, Horigan A, Hall P. A process of decision making by caregivers of family members with heart failure. Res Theory Nurs Prac. 2011;25(1):55-70.
  33. Lainscak M, Blue L, Clark AL, et al. Self-care management of heart failure: practical recommendations from the Patient Care Committee of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Failure, 2011;13(2):115-126.
  34. Brush S, Budget D, Alharethi R, et al. End-of-life decision making and implementation in recipients of a destination left ventricular assist device. J Heart Lung Transplan. 2010;29)12):1337-1341.
  35. Jaarsma T, Johansson P, Agren S, Stromberg A. Quality of life and symptoms of depression in advanced heart failure patients and their partners. Curr Opin Supportive Palliative Care. 2010;4(4):233-237.
  36. Jeon YH, Jowsey T, Yen L, et al. Achieving a balanced life in the face of chronic illness. Aust J Primary Health, 2010;16(1):66-74.
  37. Fredericks S. Commentary by Fredericks. Clin Nurs Res. 2010;19(3):230-232.
  38. Hupcey JE, Fenstermacher K, Kitko L, Penrod J. Achieving medical stability: Wives’ experiences with heart failure. Clin Nurs Res. 2010;19(3):211-229.
  39. Rosland AM, Heisler M, Choi HJ, Silveira MJ, Piette JD. Family influences on self-management among functionally independent adults with diabetes or heart failure: do family members hinder as much as they help? Chronic Illness. 2010;6(1):22-33.
  40. Freydberg N, Strain L, Tsuyuki RT, McAlister FA, Clark AM. “If he gives in, he will be gone…”: the influence of work and place on experiences, reactions and self-care of heart failure in rural Canada. Soc Sc Med, 2010;70(7):1077-1083.
  41. Quinn C, Dunbar SB, Higgins M. Heart failure symptom assessment and management: Can caregivers serve as proxy? J Cardiovasc Nurs, 2010;25(2):142-148.
  42. Yeh PM, Bull M. Influences of spiritual well-being and coping on mental health of family caregivers for elders. Res Gerontolog Nurs. 2009;2(3):173-181.
  43. Boyd KJ, Worth A, Kendall M, et al. Making sure services deliver for people with advanced heart failure: A longitudinal qualitative study of patients, family carers, and health professionals. Palliative Med. 2009;23(8):767-776.
  44. Annema C, Luttik ML, Jaarsma T. Reasons for readmission in heart failure: Perspectives of patients, caregivers, cardiologists, and heart failure nurses. Heart Lung. 2009;38(5):427-434.
  45. Quinn C, Haber MJ, Pan Y. Use of concordance correlation coefficient when examining agreement in dyadic research. Nurs Res. 2009;58(5):368-373.
  46. Usher BM, Cammarata K. Heart failure and family caregiver burden: An update. Prog Cardiovasc Nurs. 2009;24(3):113-114.
  47. Clark AM, Freydberg CN, McAlister FA, Tsuyuki RT, Armstrong PW, Strain LA. Patient and informal caregivers’ knowledge of heart failure: Necessary but insufficient for effective self-care. Eur J Heart Fail. 2009;11(6):617-621.
  48. Currow DC, Agar M, Smith J. Abernethy AP. Does palliative home oxygen improve dyspnea? A consecutive cohort study. Palliative Med. 2009;23(4):309-316.
  49. Sebern M, Riegel B. Contributions of supportive relationships to heart failure self-care. Eur J Cardiovasc Nurs. 2009;8(2):97-104.
  50. Kolbe N, Schnepp W, Zegelin A. Living with limitations: People afflicted with heart failure – A qualitative study. Pflege. 2009;22(2):95-103.
  51. Lui CY, Alexander N. Prolonged survival in 2 nonagenarians with heart failure and severe aortic stenosis. Texas Heart Institute J. 2008;35(3):321-322.
  52. Antonicelli R, Testarmata P, Spazzafumo L, et al. Impact of telemonitoring at home on the management of elderly patients with congestive heart failure. J Telemed Telecare. 2008;14(6):300-305.
  53. Rizzieri AG, Verheijde JL, Rady MY, McGregor JL. Ethical challenges with the left ventricular assist device as a destination therapy. Philosophy, Ethics, Humanities in Med. 2008;3:20.
  54. Dunbar SB, Clark PC, Quinn C, Gary RA, Kaslow NJ. Family influences on heart failure self-care and outcomes. J Cardiovasc Nurs. 2008;23(3):258-265.
  55. Wingate S. Commentary on “Conceptualizing self-care in heart failure: A life course model of patient characteristics.” J Cardiovasc Nurs. 2008;23(3):221-222.
  56. Schwarz KA, Mion LC, Hudock D, Litman G. Telemonitoring of heart failure patients and their caregivers: A pilot randomized controlled trial. Prog Cardiovasc Nurs. 2008;23(1):18-26.
  57. Piette JD, Gregor MA, Share D, Heisler M, Bernstein SJ, Koelling T. Improving heart failure self-management support by actively engaging out-of-home caregivers: Results of a feasibility study. Congest Heart Fail. 2008;14:12-18.
  58. Kaholokula JK, Saito E, Mau MK, Latimer R, Seto TB. Pacific Islanders’ perspectives on heart failure management. Patient Educ Counsel. 2008;70(2):281-291.
  59. Pattenden JF, Roberts H, Lewin RJ. Living with heart failure: Patient and carer perspectives. Eur J Cardiovasc Nurs. 2007;6(4):273-279.
  60. Jurgens CY, Dumas MA, Messina BA. Psychosocial aspects of heart failure management. Prog Cardiovasc Nurs. 2007;22(3):169-172.
  61. Brannstrom M, Ekman I, Boman K, Strandberg G. Being a close relative of a person with severe, chronic heart failure in palliative advanced home care -- a comfort but also a strain. Scandinavian J Caring Sciences. 2007;21(3):338-344.
  62. Rausch SM, Baker K, Boonmee J. Sleep disturbances in caregivers of patients with end-stage congestive heart failure: Part II—assess and intervene. Prog Cardiovasc Nurs. 2007;22(2):93-96.
  63. Swidler RN, Seastrum T, Shelton W. Difficult hospital inpatieint discharge decisions: Ethical, legal and clinical practice issues. Am J Bioethics. 2007;7(3):23-28.
  64. Rausch SM, Baker K, Boonmee J. Sleep disturbances in caregivers of patients with end-stage congestive heart failure: Part I—The problem. Prog Cardiovasc Nurs. 2007;22(1):38-40.
  65. Formiga F, Olmedo C, Lopez-Soto A, Navarro M, Culla, Pujol R. Dying in hospital of terminal heart failure or severe dementia: The circumstances associated with death and the opinions of caregivers. Palliative Med. 2007;21(1):35-40.
  66. Fried TR, Bradley EH, O’Leary J. Changes in prognostic awareness among seriously ill older persons and their caregivers. J Palliative Med. 2006;9(1):61-69.
  67. Fried TR, Bradley EH, O’Leary JR, Byers AL. Unmet desire for caregiver-patient communication and increased caregiver burden. J Am Geriatr Soc. 2005;53(1):59-65.
  68. Steinhauser KE, Clipp EC, Hays JC, et al. Identifying, recruiting, and retaining seriously ill patients and their caregivers in longitudinal research. Palliative Med. 2006;20(8):745-754.
  69. Barnes S, Gott M, Payne S, et al. Characteristics and views of family carers of older people with heart failure. Int J Palliative Nurs. 2006;12(8):380-389.
  70. Daley A, Matthews C, Williams A. Heart failure and palliative care services working in partnership: Report of a new model of care. Palliative Med. 2006;20(6):593-601.
  71. Leff B, Burton L, Mader S, et al. Satisfaction with hospital at home care. J Am GeriatrSoc. 2006;54(9):1355-1363.
  72. Molloy GJ, Johnston DW, Gao C, et al. Eur J Cardiovasc Prevention Rehabil. 2006;13(3):381-387.
  73. Barnes S, Gott M, Payne S, et al. Recruiting older people into a large, community-based study of heart failure. Chronic Illness. 2005;1(4):321-329.
  74. Hooley PJ, Butler G, Howlett JG. The relationship of quality of life, depression, and caregiver burden in outpatients with congestive heart failure. Congestive Heart Fail. 2005;11(6):303-310.
  75. Saito T, Shinno S. How we have treated and cared patients with Duchenne muscular dystrophy and severe congestive heart failure. No to Hattatsu (Brain and Development). 2005;37(4):281-286.
  76. Stewart S. Recognising the “other half” of the heart failure equation: Are we doing enough for family caregivers? Eur J Heart Fail. 2005;7(4):590-591.
  77. Zambroski CH, Moser DK, Roser LP, Heo S, Chung ML. Patients with heart failure who die in hospice. Am Heart J. 2005;149(3):558-564.
  78. Aldred H, Gott M, Gariballa S. Advanced heart failure: Impact on older patients and informal carers. J Adv Nurs. 2005;49(2):116-124.
  79. Baker K, Flattery M, Salyer J, Haugh KH, Maltby M. Caregiving for patients requiring left ventricular assistance device support. Heart Lung. 2010;39(3):196-200.
  80. Perez San Gregorio MA, Martin Rodriguez A, Perez Bernal J. Psychological differences of patients and relatives according to post-transplantation anxiety. Span J Psychol. 2008;11(1):250-258.
  81. Machado RC, Branco JN, Michel JL, et al. Characterization of patients’ caregivers on the waiting list for heart transplant at UNIFESP. Revista B4rasileira de Cirurgia Cardiovascular: orgao Oficial da Sociedade Brasileira de Cirurgia Cardiovascular. 2007;22(4):432-440.
  82. Casida J. The lived experience of spouses of patients with a left ventricular assist device before heart transplantation. Am J Crit Care. 2005;14(2):145-151.
  83. Green A, Meaux J, Huett A, Ainley K. Constantly responsible, constantly worried, constantly blessed: Parenting after pediatric heart transplan. Prog Transplantation. 2009;19:2):122-127.

Other Recent Publications Reviewed

Imes CC, Dougherty CM, Pyper G, Sullivan MD. Descriptive study of partners’ experiences of living with severe heart failure. Heart Lung. 2011;40(3):208-216.

Essue BM, Jowsey T, Jeon Y, et al. Informal care and the self-management partnership: Implications for Australian health policy and practice. Aust Health Rev. 2010;34:414-422.

Chung ML, Moser DK, Lennie TA, Rayens MK. The effects of depressive symptoms and anxiety on quality of life in patients with heart failure and their spouses: Testing dyadic dynamics using Actor-Partner Interdependence Model. J Psychosom Res. 2009;67:29-35.

Mosca L, Mochari-Greenberger H, Aggarwal B, et al. Patterns of caregiving among patients hospitalized with cardiovascular disease. J Cardiovasc Nurs. 2011;26(4):305-311.