Utah Health Data Committee Meeting
Tuesday, May 13, 2014
3:00 p.m. – 5:00 p.m.
Utah Department of Health, Room 125
Minutes
Members Present: Kevin Potts, Pat Richards, Vaughn Holbrook, Tanji Northrup (representing Todd Kiser), Sharon Donnelly (phone), Lynette Hansen, Jim VanDerslice, Scott Baxter, Jim Tabery, Alan Ormsby
Members Not Present: Lauren Florence, Christopher Woods
UDOH Staff Present: Norman Thurston, Wu Xu, David Arcilesi, Keely Cofrin Allen, Victoria Brimhall Charles Hawley, Jamie Martell, John Morgan, Kimberly Partain-McNamara, Sterling Petersen, Lori Savoie, Marissa Sowards, Sheila Walsh-McDonald
Guests: Jeff Black (HealthInsight), John Borer (University of Utah), Jim Murray (SelectHealth), Jan Root (Utah Health Information Network)
Excused: Keith Tintle, Bill Crim, David Purinton
1. Approval of March 4, 2014 Minutes
There were two corrections that needed to be made to the March meeting minutes. In the section about the Best Uses of HDC Data, “time” needed to be corrected to “timely” and “some kind a way” needed to be changed to “some kind of way.”
Vaughn Holbrook motioned to approve the 3-4-14 minutes. James VanDerslice seconded. The motion was approved unanimously.
2. Staff Tutorial – The value in making HDC data available to researchers and institutions
Charles took a few minutes to talk about Cycle III and sharing APCD data through the grant. CHDI has teamed up with Center for Clinic and Translation Science (CCTS) at the University of Utah and we’ll be sharing APCD data with them. They will help us with QA of the data and will map data into their tools so they can develop things there. We will adopt them here after all of the bugs are worked out and then provide access of de-identified data to researchers.
3. Rule Review
The overall goal of the rule review was to make sure our data access policy was written into our rules. In doing so, we found lots of other things that needed to be updated.
One of those things was to make Rule 428-2 our administrative section now. That way we don’t have to repeat that information over and over again, so that rules 10, 11, 12, 13, and 15 can focus on the data.
OHCS defined the difference between a public use dataset and a research dataset, and made the decision to explain what “minimal” means in the policy, rather than the rule.
Rule 428-2-8 went over the difference of approving public use and research data sets, and stated that the committee has deputized the Data Use Subcommittee to act on their behalf.
Pat Richards motioned to approve the rules with additional proposed changes. Tanji Northrup (for Todd Kiser) seconded, but the vote was suspended to discuss the Data Access Policy.
*Jim Tabery joined the meeting at this time.
4. Subcommittee Reports
The Committee went over the proposed changes to the Data Access Policy.
Norman clarified the definitions of “minimal” and “approved use”, “internal vs. external”, defined what qualifies as “routine”, and added the definition of what a “limited data set” is.
*Alan Ormsby joined the meeting at this time.
Other changes included granting requests based on the competency of the research and researcher, allowing redistribution if the requirements (HDC approval, IRB approval) are met first, adding additional steps for new data sets and expanding the checklist, and adding in “as developed in coordination with the Data Use Subcommittee” and having the payer attend those subcommittee meetings for the first three months.
The motion to adopt the rules was brought back and restated for those members who weren’t there to hear it the first time. Alan Ormsby motioned to approve the Rules and the changes to the Data Access Policy. Jim VanDerslice seconded. The motion passed unanimously.
5. Adoption of a plan to release de-identified APCD data this summer
Sterling Petersen went over the proposed data elements in the DIADS project. The objective is to provide information to a lot of users with limited controls. All that would be required would be the approval of the director of OHCS, since the data would be de-identified in the sense that there isn’t specific provider, patient, or claims information, and sophisticated software and a statistical background is needed to understand it.
We need to make sure that the users of the data know that just because it’s called “Public Use,” it doesn’t mean they can just give it to someone else because they might be able to use it.
Sterling will get an updated dataset to Payer Task Force at their June meeting.
Scott Baxter motioned for Sterling to continue work and give the Payer Task Force the ability to push it forward during their June meeting. Lynette seconded. The motion passed unanimously.
6. Best Uses Work – Focus on prioritizing areas where the data are strong and analytic resources exist
The Committee ran out of time, so the discussion was deferred to a future meeting.
7. Administrative Issues
· The Committee agreed to discussion the election proposal via email.
· Norman will continue working on State Health Data Plan.
· Norman will circulate an email around to HDC members about whether or not to have a meeting in July.
The meeting was adjourned at 4:57 p.m.