The Peninsula Network Site Specific Group for Upper GI (Oesophago-Gastric & Hepatobiliary) Cancer
Network Annual Report
2016
Acting Chair: Tawfique Daneshmend
Date Approved:
Annual report of the Network Site Specific Group for Upper GI (Oesophago-Gastric & Hepatobiliary) Cancer
14-1C-104f / 13-1C-104n
Agreement cover sheet
The annual report of the Network Site Specific Group for Upper GI (oesophago-gastric & hepatobiliary)l cancer has been agreed on behalf of group members by:
Name / Role / DateDr Tawfique Daneshmend / Chair of Upper GI NSSG
This annual report relates to the period from January 2015 to December 2015 and is compiled to give an overview of the outcomes, achievements and challenges of the Peninsula Cancer Network Site Specific Group for Upper GI (oesophago-gastric & hepatobiliary) Cancer
Table of Contents
1.Introduction 4
2.Network Configuration (14-1C-101f / 13-1C-101n) 4
3.Network Group Membership (14-1C-102f / 13-1C-102n) 4
4.Terms of Reference (14-1C-102f / 13-1C-102n) 4
5.Meetings (14-1C-103f / 13-1C-103n) 4
5.1 Meeting Attendance 2014/15 5
6.Clinical Guidelines (14-1C-105f / 13-1C-105n) 7
7.Patient Pathways (14-1C-107f / 13-1C-107n) 7
8.Audit (14-1C-109f / 13-1C-109n) 7
9.Pancreatic Study Day 8
10.Patient Representation (14-1C-108f / 13-1C-108n) 8
11.Living With and Beyond Cancer (14-1C-108f / 13-1C-108n) 8
12.Research and Clinical Trials (14-1C-110f / 13-1C-110n) 8
12.1 Recruitment by Site 2015/16 8
1.Introduction
The Peninsula Upper GI (OG & HPB) Cancer Network Site Specific Group (NSSG) has been re-established, not having met for several years due to a national cut-back in network support. A Peninsula Cancer Network Manager and Administrative Support were funded for an initial year by the South West Strategic Clinical Network (SWSCN) and a bid for future funding submitted to participating trusts.
Despite the large geographical area covered by the NSSG, the group works very well together and has set up a strong clinical focus. Members are keen to share the outcomes of good practice and local developments which will enable the group to develop effective clinical pathways of care.
2.Network Configuration (14-1C-101f / 13-1C-101n)
The Peninsula Upper GI Cancer Network covers the total catchment population (1.718m) of the following organisations:
Organisation / Referring CCGPlymouth Hospital NHS Trust / NEW Devon CCG
Northern Devon Healthcare NHS Trust / NEW Devon CCG
Royal Cornwall Hospitals NHS Trust / Kernow CCG
South Devon Healthcare NHS Foundation Trust / South Devon & Torbay CCG
Royal Devon & Exeter NHS Foundation Trust / NEW Devon CCG
Note: NEW Devon CCG (Northern, Eastern and Western Devon CCG)
3.Network Group Membership (14-1C-102f / 13-1C-102n)
The Upper GI NSSG membership is comprised of clinicians, nurses and diagnostic staff representing the MDTs at the above organisations together with nominated user representatives.
4.Terms of Reference (14-1C-102f / 13-1C-102n)
The Upper GI NSSG Terms of Reference were adopted by the members present at the meeting held 25th March 2015. Dr Tawfique Daneshmend agreed to take on the role of Chair for the group. The final document has been posted on the network website: http://www.swscn.org.uk/networks/cancer/site-specific-groups/peninsula-site-specific-groups/upper-gi-ssg/peninsula-upper-gastro-intestinal-cancer-ssg-information-for-members/
5.Meetings (14-1C-103f / 13-1C-103n)
The first meeting of the new NSSG was held on 25th March 2015 and attended by a wide representation of clinical and diagnostic members from all five peninsula trust. A further meeting was held on 30th September 2015. The 2016 meetings have been scheduled for 16th March and 28th September. Copies of the notes of the meetings and supporting documents can be found on the Peninsula Cancer Network website at:
http://www.swscn.org.uk/networks/cancer/site-specific-groups/peninsula-site-specific-groups/upper-gi-ssg/peninsula-upper-gastro-intestinal-cancer-ssg-meeting-archive/
5.1 Meeting Attendance 2014/15
Organisation / First Name / Surname / Job Title / 25.03.15 / 30.09.15Northern Devon Healthcare NHS Trust / Jennifer / MacPherson / Lead Cancer Clinician / Present / Apologies
Northern Devon Healthcare NHS Trust / Alex / Moran / Consultant Gastroenterologist / Apologies
Northern Devon Healthcare NHS Trust / Mary / Alexander / Consultant Histopathologist / Apologies
Northern Devon Healthcare NHS Trust / Nicolas / Ward / Consultant Histopathologist
Northern Devon Healthcare NHS Trust / Sarah / Dowson / Clinical Nurse Specialist / Present / Present
Northern Devon Healthcare NHS Trust / Martin / Peters / Specialist Nurse Practioner
Plymouth Hospitals NHS Trust / Somaiah / Aroori / Consultant HPB Surgeon / Apologies / Apologies
Plymouth Hospitals NHS Trust / Richard / Beresford / Consultant Thoracic Surgeon / Apologies / Apologies
Plymouth Hospitals NHS Trust / Grant / Sanders / Consultant Upper GI Surgeon / Apologies
Plymouth Hospitals NHS Trust / Saed / Ramzi / Consultant
Plymouth Hospitals NHS Trust / Matthew / Cramp / Consultant Histopathologist
Plymouth Hospitals NHS Trust / Sean / Cochrane / Consultant Gastroenterologist
Plymouth Hospitals NHS Trust / David / Stell / Consultant HPB Surgeon / Apologies
Plymouth Hospitals NHS Trust / Christopher / Briggs / Consultant HPB Surgery
Plymouth Hospitals NHS Trust / Matthew / Bowles / Consultant / Present
Plymouth Hospitals NHS Trust / Tim / Wheatley / Consultant Upper GI Surgeon / Apologies / Apologies
Plymouth Hospitals NHS Trust / David / Sheriff / Consultant Oncologist / Apologies / Apologies
Plymouth Hospitals NHS Trust / Geoffrey / Cogill / Consultant Oncologist / Apologies / Apologies
Plymouth Hospitals NHS Trust / Simon / Jackson / Consultant Radiologist / Apologies / Apologies
Plymouth Hospitals NHS Trust / Claire / Downing / Clinical Nurse Specialist / Apologies / Present
Plymouth Hospitals NHS Trust / Marilyn / Bolter / Clinical Nurse Specialist / Apologies / Apologies
Plymouth Hospitals NHS Trust / John / Shirley / Consultant Radiologist
Plymouth Hospitals NHS Trust / Simon / Jackson / Consultant Radiologist / Apologies
Plymouth Hospitals NHS Trust / Tim / Bracey / Consultant Histopathologist (OG) / Apologies
Plymouth Hospitals NHS Trust / Jemimah / Denson / Consultant Histo-pathologist (HPB) / Apologies
Royal Cornwall Hospitals NHS Trust / Paul / Peyser / Lead Cancer Clinician (MDT Lead)
Royal Cornwall Hospitals NHS Trust / William / Stableforth / Lead Cancer Clinician (MDT Lead)
Royal Cornwall Hospitals NHS Trust / Nick / Michell / Consultant Gastroenterologist
Royal Cornwall Hospitals NHS Trust / Ian / Finlay / Consultant Upper GI
Royal Cornwall Hospitals NHS Trust / Michael / Clarke / Consultant Surgeon
Royal Cornwall Hospitals NHS Trust / Richard / Ellis / Consultant Clinical Oncologist / Apologies
Royal Cornwall Hospitals NHS Trust / Giles / Maskell / Consultant Radiologist / Apologies
Royal Cornwall Hospitals NHS Trust / John / Hancock / Consultant Radiologist
Royal Cornwall Hospitals NHS Trust / Lorna / Kennedy / Clinical Nurse Specialist / Present / Left post
Royal Devon & Exeter NHS Foundation Trust / Tawfique / Daneshmend / Lead Cancer Clinician /Gastroenterologist / Present / Present
Royal Devon & Exeter NHS Foundation Trust / Antonio / Manzelli / Consultant Upper GI & HPB Surgeon
Royal Devon & Exeter NHS Foundation Trust / Shyam / Prasad / Consultant Gastroenterologist
Royal Devon & Exeter NHS Foundation Trust / Liz / Toy / Consultant Clinical Oncologist / Apologies / Apologies
Royal Devon & Exeter NHS Foundation Trust / Nicole / Dorey / Consultant Clinical Oncologist
Royal Devon & Exeter NHS Foundation Trust / Saj / Wajed / Consultant Upper GI
Royal Devon & Exeter NHS Foundation Trust / Davide / Di Mauro / Consultant
Royal Devon & Exeter NHS Foundation Trust / Mark / Napier / Oncologist
Royal Devon & Exeter NHS Foundation Trust / Frances / Robinson / Clinical Nurse Specialist / Apologies
Royal Devon & Exeter NHS Foundation Trust / Kevin / Mitchell / Clinical Nurse Specialist / Present
Royal Devon & Exeter NHS Foundation Trust / Simon / Harries / Consultant Radiologist
Royal Devon & Exeter NHS Foundation Trust / Laura / Gellett / Consultant Radiologist / Apologies
Royal Devon & Exeter NHS Foundation Trust / Richard / Thomas / Consultant Radiologist
Royal Devon & Exeter NHS Foundation Trust / Trupti / Mandalia / Consultant Histopathologist
Royal Devon & Exeter NHS Foundation Trust / Ian / Chandler / Consultant Histopathologist / Apologies
South Devon Healthcare NHS Foundation Trust / Alan / Desmond / Lead Cancer Clinician / Apologies / Apologies
South Devon Healthcare NHS Foundation Trust / Cathryn / Edwards / Consultant Gastroenterologist
South Devon Healthcare NHS Foundation Trust / Keith / George / Consultant Gastroenterologist
South Devon Healthcare NHS Foundation Trust / Louise / Medley / Consultant Medical Oncologist
South Devon Healthcare NHS Trust / Helen / Greedus / Clinical Nurse Specialist
South Devon Healthcare NHS Foundation Trust / Clare / Harker / Clinical Nurse Specialist / Present / Apologies
South Devon Healthcare NHS Foundation Trust / Stephen / Harris / Clinical Nurse Specialist / Present
South Devon Healthcare NHS Foundation Trust / Mark / Puckett / Consultant Radioloigst
Private / Veronica / Darby / Patient Representative / Present
Peninsula Research Network / Wendy / Cook / Clinical Research Delivery Manager / Apologies / Present
Peninsula Research Network / Julie / Cunningham / Clinical Research Delivery Manager
Peninsula Cancer Network / Liz / Boylan / Peninsula Cancer Network Manager / Present / Present
Peninsula Cancer Network / Sue / Buddin / PCN Admin Support / Present / Left post
Peninsula Cancer Network / Mel / Chandler / PCN Admin Support / Apologies
6.Clinical Guidelines (14-1C-105f / 13-1C-105n)
The group has reviewed the SWAG (Somerset, Wiltshire, Avon and Gloucestershire) Clinical Guidelines. These have been redrafted to reflect Peninsula requirements and will be taken to the March 2016 meeting for approval
7.Patient Pathways (14-1C-107f / 13-1C-107n)
A number of South West Network (Peninsula and SWAG) meetings have taken place during 2015 to develop a network pathway based on the NICE recommendations. Dates for 2016 meetings are:
· Wednesday 13th January
· Monday 8th February
· Monday 14th March
· Thursday 14th April
The OG Pathways included in the Consensus document are part of the network review and will include pathways for GIST and High / Low Grade Displasia. The HPB Pathways currently followed were agreed December 2104.
In addition a network-wide 2WW Proforma has been developed for each tumour site. The draft forms are currently being reviewed by GPs, CCGs and NSSG Chairs. When agreed they will be sent to trusts for sign off/implementation. There is concern that medical and surgical gastroenterology is all linked together for GP referral. To improve referrals need separate medical and surgical referrals and also need to split HPB and OG.
8.Audit (14-1C-109f / 13-1C-109n)
A review of local audits carried out in last five years will be carried out before decision on which new network wide audits should be undertaken.
9.Pancreatic Study Day
As part of Pancreatic Cancer Awareness Month, Plymouth Hospitals Trust organised a study day on 23rd November 2015. Colleagues from across the network were invited to attend.
10.Patient Representation (14-1C-108f / 13-1C-108n)
Veronica Derby, a member of the Whipples Group, was welcomed to her first NSSG meeting as patient representative. It was noted that the Whipples Group is currently down to only eight members and three of these are interested in attending NSSG meetings and will rotate.
11.Living With and Beyond Cancer (14-1C-108f / 13-1C-108n)
The ‘Living With and Beyond Cancer’ programme was devised to improve outcomes for patients and support practitioners in taking the actions necessary to drive improved cancer survivorship outcomes whilst reducing the numbers of follow-up appointments. Wendi Abraham, Macmillan Patient Pathway Redesign Project Manager, has been invited to attend next meeting and update on progress across the network.
12.Research and Clinical Trials (14-1C-110f / 13-1C-110n)
The group discuss recruitment into clinical trials at each NSSG meeting, a report highlighting the current and proposed recruitment status of each MDT is prepared jointly by the Peninsula Cancer Research Network Delivery Manager and the Sub-Specialty Lead and presented to the group
The Peninsula is supported by:
Duncan Wheatley, Clinical Specialty Lead -
Julie Cunningham, Research Delivery Manager –
Jennifer Hicks, Administrator –
Emma Cattell, Subspecialty Lead –
The next NIHR Clinical Research Symposium entitled ‘Clinical Trials to Clinical Practice will be held on Friday 20th May 2016 at Taunton Conference Centre.
Latest recruitment data and overview of studies currently open can be found in ‘The Upper GI SSG Research Report – March 2015 on the network website: http://www.swscn.org.uk/networks/cancer/site-specific-groups/peninsula-site-specific-groups/upper-gi-ssg/peninsula-upper-gastro-intestinal-cancer-ssg-information-for-members/
12.1 Recruitment by Site 2015/16
Study / ND / PHT / RCHT / RDE / SD15/16 / All / 15/16 / All / 15/16 / All / 15/16 / All / 15/16 / All
CANC-3482 / 1 / 2
ESPAC 4 / 0 / 9 / 0 / 13 / 0 / 3 / 0 / 1
GO2 / 1 / 1 / 0 / 5
OCCAMS / 11 / 76
Orange 11 Plus / 1 / 5
ROMIO feasibility: RCT if minimially invasive or open oesophagectomy v1 / 7 / 71
SIEGE / 1 / 4
TACE-2 / 0 / 4
Upper GI (OG&HPB) Cancer NSSG Network Annual Report 2016 – LB draft 3/2/16