Steering Committee Meeting Minutes Monday, July 16, 2012

Group C: Community Supports

Matt Attending

Larry Regret

Nancy Attending

Phil Absent

Group S: Screening

Lucy Regret

Lin Nelson Attending

Melissa Absent

Group H: Health Care

Ron Regret

Baldev Singh Attending

Kathy Service Attending

Julie Regret

Kathie Attending
Seth Attending

Dawna Attending

Nabih Absent

Advocacy

Mary Regret

Leone Attending

  1. National Alzheimer's Plan

Matt said they are meeting next week. Unfortunately, it doesn't look like anyone from NTG will be able to attend. We hope to connect with the big national plan and go to Washington. We should all see a large influx related to Alzheimer's and an awareness campaign. Could we use the brochure to kick off our awareness campaign? FAQ will be available soon.

We will need to promote and encourage organizations that we will work with. Dawna spoke of National Behavioral Health conference 10/9 to 10/12.

Madeline Will needs to be contacted.

  1. CARF - Matt and Seth have had some discussions with them about developing some guidelines and standards for agencies and providers. Next week we will be talking to them regarding the where, when and how.
  1. NTG Webinar Series - Seth surveyed the group for topics. Kathy Bishop will be leaving 12/31/12 at University of Rochester. She wants to continue working with aging and NTG. She is interested in working on the webinars.

Roy Brown with IASSID Academy is also very interested.

  1. Group S - Matt said Lucy has had two or three centers complete their forms. She has 16 specific ones already returned to her: Lucy will be speaking on the results at Chicago in September.
  1. Group H-Kathy Bishop sent close to a final draft to Seth. She is looking for feedback. She sent it out last week. Seth suggested distributing to just the steering group.

Seth said Julie Moran's document is near completion but she is very busy. Seth said he thinks we may take it to help her and move it forward. Julie will remain the lead author.

Matt suggested AAIBD Journal or even a special issue dedicated to the topics. Kathy feels it is really needed in the field.

  1. Group C –Nancy, Matt and others continue to work on the Group C document.
  1. Seth spoke of reinvigorating the NTG. We should send out an updated update of our accomplishments. Matt and Seth will work on a brief update to distribute.
  1. AADMD -NTG now under special projects.
  1. NTG workshops:

The Charlotte Workshop was well attended.

Arizona also went well and money received was used to support the speakers

Send Seth information regarding Community Law Center and 10/15 conference. Seth will be in Louisville for training

Lin - regarding the 10/17 meeting in LA - will have it first planning meeting tomorrow evening. Format, content and issues regarding the LA area will be set up. It will be held at UCLA.

Colorado Springs – 11/14/2012. Seth will be working with AOA to do in an initial presentation and then the next day will be an all-day workshop on IDD and aging

9/13 – 9/14/12-Down's Syndrome and Alzheimer's- Lucy will be speaking in Chicago Illinois.

  1. Website – Seth will work on getting NTG link on the front.
  1. The next meeting will be held 8/20/2012 at 8 PM

Meeting adjourned at 9:1 2 PM

Respectfully submitted,

Leone Murphy