QI NEGC reapplication notes

January 13, 2012

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1.  Clinical Services Quality improvement core—(Base goal 3 and possibly “scaling up”)

a.  Metabolic centers and DD continue; “scaling-up” activity.

b.  Collaborate with SCD at Boston Med (Kavanaugh).

c.  Learning Collaboratives.

d.  New models of care with MH-Specialty centers.

e.  Genetic assessment tools (heartland) with states with Genetics plans and staff (CT).

  1. Goal 1: NEGC will improve quality of genetic services provided by metabolic centers and genetics centers in New England.
  2. Objective 1. Use IHI Breakthrough Series “Learning Collaborative” model as primary methods. This will be described briefly.
  3. Objective 2. Improve care of patients with PKU, MCADD, and other inborn errors of metabolism by NE Metabolic Centers.
  4. Implement online registry entry at all sites.
  5. Execute HIPPA BAAs with each center.
  6. Customize entry by specific workflow particularities at each site.
  7. Provide data review quality assurance.
  8. Data entry for all sites (by end of year 1).
  9. Ongoing data quality assessments
  10. Provide reporting to each site.
  11. Compare care processes to standard care guidelines
  12. After sufficient data is entered.
  13. Consensus on which published guidelines for care for PKU, MCADD.
  14. Perform analysis of NE center data on recommended protocols.
  15. Feedback at learning collaborative meetings; adjust practice when needed; reassess with data over time.
  16. Add other NBS conditions.
  17. Years 2-5, as decided by participating centers.
  18. Invite participation by other centers and NE.
  19. Address “spread” nationally.
  20. Align, where possible and useful, with ABMG MOC QI modules and activities.
  21. Objective 3. Use technology to facilitate continuous quality improvement.
  22. Shared work software (BaseCamp) to allow for working online.
  23. TIDE-BC collaboration.
  24. Metabolic-Genetics center care support/coaching proposal with Dr. Korson targeting metabolic services provided by non-metabolic specialists.
  25. Goal 2: “Scale up” of DDID QI activities.
  26. Proposed adding NE centers: RI, BU, Baystate, CHB, Tufts, UMass Memorial—essentially all interested programs (Year 1).
  27. Recruitment and training; HIPPA BAAs.
  28. Use IHI BTL Learning Collaborative methods.
  29. Telecommunications: Base Camp work space; asynchronous learning (youtube channel), echo
  30. Collaborate with TIDE-BC (van Karnebeek, Stockler at BC Children’s Hospital, Vancouver BC)
  31. Metabolic evaluation of patient who presents with DDID based on the recent systematic review and Vancouver protocol.
  32. Use of TIDE BC technology (searcheable website and iPad app) as decision support tools in Genetics Clinics for DDID patient QI activity.

Moeschler 1/13/2012