Public Benefit and Privacy Panel Applications 2016-2017
As at 31 March 2017
Application Reference / Applicant / Application Title / Outcome / Level Of approval1516-0673 / Walesby / Geographical variation in dementia in the 1947 Scottish Mental Survey population. / Approved / Tier 1
1516-0254 / Whiteley / The health economics of alteplase in acute stroke: long term follow up of the IST-3 trial / Approved / Tier 1
1516-0464 / Baird / Intermediate Care data collection pilot / Approved / Tier 1
1516-0523 / Wood / Transfer of MBRRACE enhanced surveillance data on perinatal deaths to ISD / Approved / Tier 1
1516-0363 / Steiner / Investigating long term adverse outcomes associated with antenatal exposure to medication with anti-hypertensives, asthma therapeutics, and psychotropic agents / Approved / Tier 1
1516-0502 / Evans / BADBIR – The British Association of Dermatologists Biologic Interventions Register / Approved / Tier 1
1516-0378 / Purkayastha / Opportunities for opportunistic oral cancer screening / Approved / Tier 1
1516-0391 / Murray / Educational outcomes in offspring having undergone elective induction of labour compared with expectant management / Approved / Tier 1
1516-0095 / Higgins / Suicide Information Framework: Tayside (SIFT) / Approved / Tier 1
1516-0444 / Crosby / Children and Young People with Cancer (CYPC) Enhanced Cancer Registry / Approved / Tier 1
1516-0458 / Jones / Statistical modelling of the impact of social factors on the occurrence of stillbirth in Brazil and the UK. / Approved / Tier 1
1516-0522 / Mason / Medical and Surgical Outcome Review / Approved with conditions / Tier 2 Out of Committee
1516-0294 / Mason / Child Health Clinical Outcome Review / Approved with conditions / Tier 2 Out of Committee
1516-0022 / Kumari / Understanding Society − The UK Household Longitudinal Study (UKHLS) Health Linkage / Approved with conditions / Full Committee
1516-0417 / Douglas / Healthy Ageing in Scotland(HAGIS) / Approved / Tier 2 Out of Committee
1516-0452 / Barnett / Examining the impact of multimorbidity across the cancer control continuum using SPIRE data: a feasibility study / Approved / Tier 1
1516-0094 / Day / Demographic Profile and Referral Patterns Amongst New Amputees in Scotland (2012-2015) / Approved / Tier 1
1516-0366 / Mackay / Scottish Autoimmune Neurological Diseases (SAND) Encephalitis register / Approved / Tier 1
1516-0075 / Lambrelli / Preterm Birth and associated outcomes in the Scottish population / Approved / Full Committee
1516-0595 / Stock / Quids: Quantitative Fibronectin to help decision making in women with preterm labour / Approved / Tier 1
1516-0241 / Clegg / Out of Hospital Cardiac Arrest Study / Approved with conditions / Tier 1
1516-0398 / Curtis / Recession, austerity and health: changing area socio-economic conditions and their relationship to individual health and wellbeing outcomes in Scotland / Approved / Tier 1
1516-0377 / Evans / Scottish Participation in UK 100,000 Genomes Initiative / Approved / Tier 2 Out of Committee
1516-0439 / McGregor / Linkage of GP Out of Hours Data (GP OOH) to Unscheduled Care Datamart (UCD) / Approved / Tier 1
1516-0477 / Saeed / Cancer survival in Scotland-does geography matter? / Approved / Tier 1
1516-0472 / Wilkens / Use of BSUG Database by Scottish Gynaecologists to audit surgical outcomes of procedures for prolapse and incontinence / Approved with conditions / Tier 1
1516-0194 / Sarica / Evaluating the health burden of multisystem autoimmune disease: An epidemiological analysis of comorbidities in anti-neutrophilcytoplasmic antibody-associated vasculitis and systemic lupus erythematosus / Approved / Tier 1
1516-0387 / Chapman / Linking antenatal maternity data to non-communicable disease data in children and adults. / Approved / Tier 1
1516-0622 / Edwards / BTS Interstitial Lung Disease (ILD) Registry Programme / Approved / Tier 1
1516-0597 / Welsh / An assessment of the efficacy and cost effectiveness of routine measurement of high-sensitivity troponin T and troponin I to predict cardiovascular events / Approved / Tier 1
1516-0594 / Reynolds / Maternal Pre-pregnancy obesity and mental disorders in offspring / Approved / Tier 1
1516-0565 / Tod / Burden of Disease Project – Phase 2 and update of Data for Phase 1 / Approved / Tier 1
1516-0567 / Palmer / SHARE – research register - Using National Data to assess cohort feasibility / Approved / Tier 1
1617-0004 / Lynn & Rodgers / Trends in incidence, morbidity and mortality of congenital heart disease in Scotland 1986 -2015 / Approved / Tier 1
1516-0136 / Bruhn / Health Care Reform: the iMpact on practice, oUtcomes and costs of New roles for health pROfeSsionals (MUNROS). Work package 7: Have new professions, or new roles of existing professions, any association with key outcomes from medical treatment and care? / Approved / Tier 1
1617-0056 / Mackay / Association between UV radiation exposure and health events / Approved / Tier 1
1516-0317 / Wotherspoon / WOSCAN Clinical Audit: Collect data to inform WOSCAN of number of patients seen for dental assessments / Approved / Tier 1
1516-0518 / Nyathi / The management and risk of patients with personality disorder prior to suicide and homicide / Approved with conditions / Tier 2 Out of Committee
1516-0514 / Bennie / Analyses of new anticoagulants in thromboprophylactic treatment in Scotland (XRB14086) / Approved / Tier 1
1617-0001 / Mackay / Association between UV radiation exposure and health events and education outcomes / Approved / Tier 1
1516-0298 / Playford / Maternal Anxiety and Depression and Filial Educational Outcomes / Approved with conditions / Tier 2 Out of Committee
1516-0556 / McNamee / The role of telecare in health and social care use variations / Approved / Tier 1
1516-0482 / Morris / Developing a sustainable route for the provision of medical / healthcare data for research across Europe / Approved / Tier 1
1617-0025 / Rudd / Establishing the incidence of Tako-tsuboCardiomyopathy in Scotland – the STARR study (Scottish Tako-tsubo Network/Registry) / Approved / Tier 1
1617-0007 / MacLeod / Source (Formerly HSCDIIP) / Approved / Tier 1
1617-0030 / Perry / British Orthopaedic Surgery Surveillance (BOSS) Study: A nationwide service evaluation and nested cohort study. / Approved / Tier 1
1516-0360 / Will / Transfusion Medicine Epidemiology Review (TMER) / Approved / Tier 1
1617-0069 / Turner / Using hospital admission data to study associations between early life conditions and later outcomes / Approved / Tier 1
1617-0109 / Roe / Demographic information to support analysis of Genetic Testing / Approved / Tier 1
1516-0611 / Ingarfield / Inequalities in the survival of head and neck cancer patients / Approved / Tier 1
1516-0626 / Jackson / Psychiatric illness and physical chronic disease co-morbidity in Scotland: a feasibility and pilot study / Approved / Tier 1
1516-0556 / McNamee / The role of telecare in health and social care use variations / Approved / Tier 1
1516-0599 / Cairns / Point Prevalence Survey of HAI and AM Prescribing (PPS) / Approved with conditions / Tier 1
1617-0086 / Cairns / Point Prevalence Survey of HAI and AM Prescribing (PPS) – Gold Standard Validation / Approved / Tier 1
1516-0587 / Quirk / Surveillance of rare childhood psychiatric disorders and events, the Child and Adolescent Psychiatric Surveillance System (CAPSS):data flows from Scotland / Approved with conditions / Tier 1
1617-0012 / Rutherford / Interactions and pathways between health and social care: a linked data analysis. / Approved / Tier 1
1516-0420 / Stanners / Impact of quantitative Faecal Immunochemical Test (QFIT) as a first line test on oncology and surgery services in Scotland / Approved / Tier 1
1516-0556 / Woolner / The impact of birth-related perineal injury on future pregnancies: a Scottish population-based cohort study / Approved / Tier 1
1516-0233 / Lewsey / Evaluation of legislation to reduce the drink drive limit in Scotland: a natural experiment / Approved / Tier 1
1617-0082 / McDonald / Enhanced Recovery After Surgery / Approved / Tier 1
1617-0096 / Dunlop / The SCOTTY Study – Whole Genome Sequencing of young colon cancer patients and their parents / Approved / Tier 1
1617-0060 / Gallagher / Multiple sclerosis Outcomes after Disease modifying treatment Evaluating Regional differences After TimE (MODERATE) – Phase 1 / Approved / Tier 1
1617-0033 / Ford / Evaluating Acceptance and Commitment Therapy (ACT) as a Low-Intensity, Manual-Based, Guided Self-Help Intervention for Anxiety and Depression: A Pilot Study / Approved / Tier 1
1516-0606 / Day / Evaluation of the Role of Inflammation in non pulmonary disease manifestations in Chronic Airways disease (ERICA) / Approved / Tier 1
1617-0087 / Haines / Intestinal microbiome and large bowel cancer study / Approved with conditions / Tier 1
1617-0160 / Tingay / Using health record linkage in the UK Millennium Cohort Study to investigate childhood obesity, asthma and infections / Approved / Tier 1
1516-0554 / McGowan / Scottish Down Syndrome Outcome Study / Approved / Tier 1
1516-0370 / Broek / Adhesion-related hospital readmissions after abdominal and pelvic surgery: An update of the SCAR studies / Approved / Tier 1
1516-0579 / Levin / SSTEP Followup Study / Approved / Tier 1
1516-0440 / Jackson / Investigating long-term outcome in the Edinburgh Stroke Study / Approved / Tier 1
1516-0570 / Vasishta / Clinicians approaching patients to invite them to consider joining SHARE- The Scottish Health Research Register. / Approved / Tier 1
1516-0166 / Rees / The recovery model for patients within a high security setting: 20 year follow-up / Approved / Tier 1
1617-0107 / Tham / National investigation into suicide in children and young people / Approved with conditions / Tier 2 Out of Committee
1617-0146 / Goudie / Incidence of Idiopathic Intracranial Hypertension in Scotland / Approved / Tier 1
1617-0061 / McNair / National Cancer Diagnosis Audit (NCDA) – Scotland / Approved / Tier 1
1516-0526 / McCollum / Economic change and internal population dynamics: an innovative study of new residential mobilities in Scotland / Approved with conditions / Full Committee
1516-0508 / Landsberg / Survey of Mental Health of children and young people / Approved with conditions / Tier 2 Out of Committee
1617-0176 / Heather / HIC use of national CHI for data project support / Approved / Tier 1
1516-0351 / Williamson / Serially missed appointments in the NHS: a linkage pathfinder project to inform future interventions. / Not Approved / Full Committee
1617-0073 / Pearson / GoDARTS-Scotland / Approved with conditions / Tier 1
1516-0411 / Turner / How do co-existing health conditions affect stroke / Approved / Tier 1
1516-0259 / Campbell / Second primary cancers: a mixed-methods study to understand pathways to diagnosis, patient and provider experiences, and survival outcomes / Approved / Tier 1
1617-0079 / Mansouri / An investigation into tumour and host determinants of outcomes in patients with colorectal cancer in a post screening era / Approved / Tier 1
1516-0489 / McLeary / Developing a national learning health system for asthma / Approved / Tier 1
1617-0196 / Wickham / Intraoperative Hypotension in Elder Patients (IHypE): Observational Study of Intraoperative Hypotension in Elder Patients in UK Hospitals / Approved / Tier 1
1516-0557 / Gabel / ADVOCATE - Added Value for Oral Care / Approved / Tier 1
1617-0157 / Figueroa / Breast cancer susceptibility in the Generation Scotland Cohort study / Approved / Tier 1
1617-0059 / Bird / Variation on permissions [PAC 49/13]: Validation of strong age-relatedness in methadone-specific deaths and powerful investigation of the age-relatedness of methadone-clients’ non drugs-related deaths (non-DRDs) by ICD10 chapter. / Approved / Tier 1
1516-0338 / Howard / The LENS Trial-Lowering Events in Non-proliferative retinopathy in Scotland / Approved / Tier 1
1516-0581 / Colvin / Data and Measurement for Chronic Pain Services. A Pilot Study to Inform National Service Improvement / Approved / Tier 1
1617-0199 / Lone / Community prescribing of potentially nephrotoxic drugs and risk of acute kidney injury requiring renal replacement therapy in critically ill adults: a national cohort study / Approved / Tier 1
1516-0044 / Hay / Teenage Pregnancy among Looked After Young People (LAYP) & Care Leavers in Fife: a data linkage study / Approved / Tier 1
1516-0576 / Levin / POPADAD Followup Study / Approved / Tier 1
1617-0233 / Williamson / Serially missed appointments in the NHS: a PILOT linkage project to inform future interventions. / Approved / Tier 2 Out of Committee
1617-0249 / Mason / Medical and Surgical Clinical Outcome Review Programme / Approved / Tier 1
1617-0237 / McLean / Outcomes after Kidney Injury in Surgery: 1-year follow up (OAKS-2) / Approved / Tier 1
1617-0126 / Moonsinghe / The 2nd Sprint National Anaesthesia Project (SNAP-2): Epidemiology of Critical Care provision after Surgery (EpiCCS) / Approved / Tier 1
1516-0438 / Harrison / Admission to a care home from hospitals across Scotland – exploring practice and the role of dementia / Approved / Tier 2 Out of Committee
1516-0040 / Cannings-John / Evaluation of the Effectiveness of the Family Nurse Partnership Programme in Scotland: a natural experiment / Approved with conditions / Tier 2 Out of Committee
1617-0225 / Warrilow / Development of a global neurodevelopmental risk score predictive of life adversity. / Approved with conditions / Tier 1
1617-0108 / Stewart / Validation of an Older Persons Prehospital Early Warning Score (VOPPES) / Approved / Tier 1
1617-0131 / Emerson / Equity of Access: A Geospatial Analysis of Intensive Care Unit Admission Rates and Mortality in Scotland / Approved / Tier 1
1617-0184 / Ramsay / Reoperation for recurrence following laparoscopic and open inguinal hernia repairs: A population-based cohort study / Approved / Tier 1
1617-0120 / Morris / MODIFY - Mode of Delivery and Infection in Youth - the impact of mode of delivery on childhood hospital admissions for infections / Approved / Tier 1
1617-0215 / Drake / National Audit of Small Bowel Obstruction / Approved / Tier 1
1617-0164 / Morrison / Measuring Harm in Scottish Hospitals / Approved / Tier 1
1617-0051 / Agnew / NHSScotland Shared Services Radiology Programme / Not Approved / Tier 1
1617-0037 / Stewart / Evaluation of Cost of Nosocomial Infection (ECONI) Phase 1 / Approved / Tier 1
1617-0127 / Morrow / Scottish audit of therapeutic mammoplasties / Approved / Tier 1
1617-0259 / Pell / Trends in the health and healthcare of children with learning disabilities and children with autism / Approved / Tier 1
1617-0221 / Leslie / Scotland-wide study of adherence with cardiovascular medication / Approved / Tier 1
1617-0125 / McMahon / Protecting Teeth@3 study– data linkage study / Approved / Tier 1
1617-0076 / Keenan / Whole System Patient Flow Programme – IHO Project Wave 2 / Approved / Tier 1
1516-0179 / Thomson / EPOCH trial- emergency laparotomies / Approved / Tier 1
1617-0195 / Waugh / Administrative Data based population and household estimates / Approved with conditions / Tier 2 Out of Committee
1617-0207 / Ramsay / Characterising Emergency General Surgery Workload and Outcomes in Scotland / Approved / Tier 1
1617-0016 / Mackle / TIME Study / Approved / Tier 1
1617-0273 / Matthews / Examining the potential impact of the seizure and investigation of illegal drug consignments on local communities. / Not Approved / Tier 2 Out of Committee
1617-0075 / O’Neill / Unique Device Identifiers and Trauma and Orthopaedics Proof of Concept Project for Scottish Government - linkage with NTIG (National Theatres) and SMR01 data marts / Approved / Tier 1
1617-0175 / Pollock / Linkage of National Invasive Cancer Audit (NICA) data with Cervical cancer HPV status / Approved / Tier 1
1617-0264 / Urquhart / Use of copy of SCI-Diabetes Application for end-to-end test of replacement Diabetic Retinal Screening application / Approved with conditions / Tier 1
1617-0202 / McNarry / Evaluation of First Generation Supraglottic Airways (and Anaesthetic Face Masks) to Inform the Decisions of the Clinical Advisory Panel for National Procurement Exercise 178 (2016). / Approved / Tier 1
1516-0592 / Kean / PIVOTAL STUDY / Approved / Tier 1
1617-0294 / McDonald / Enhanced Recovery After Surgery - Generic
/ Approved with conditions / Tier 1
1516-0304 / Knight / National Maternity and Perinatal Audit / Approved / Tier 1
1617-0278 / Watson / WoSCAN / Approved with conditions / Tier 2 Out of Committee
1516-0614 / Dundas / Evaluation of the Healthy Start Voucher Scheme in UK / Approved / Tier 1
1617-0159 / Snowden / A mixed method longitudinal investigation into the impact of a community cancer service / Approved / Tier 2 Out of Committee
1617-0280 / Kennedy / Excellence in Care for Nursing and Midwifery: Phase One Pilt / Approved with conditions / Tier 1
1617-0258 / Imrie / What are the clinical and bacterial genomic risk factors for the development of S. aureusbacteraemias within NHS Scotland? / Approved / Tier 1
1516-0251 / Hall / A natural experiment using Scottish Clinical data to estimate the real -world effectiveness of adjuvant chemotherapy in breast cancer patients / Approved with conditions / Tier 1
1617-0194 / Muir / Scottish Suicide Information Database (ScotSID) / Approved / Tier 1
1617-0168 / Alkhaldi / Benzodiazepines and Z-drugs Prescribing Patterns over Time among the Aberdeen Children of the Nineteen Fifties Cohort (ACONF) / Approved / Tier 1
1516-0537 / Turner / Secondary prevention after stroke: Can we do better. A noval national linkageof stroke registry and dispensing data / Approved / Tier 1
1617-0243 / Mitchell / The National Lifecurve Survey / Approved / Tier 1
1516-0509 / McLean / Antihypertensives as Repurposed Treatments for Mood Disorders: Scottish National linkage and UK Biobank investigation. (“ARTforM” study) / Approved / Tier 1
1617-0312 / Crawley / Evaluation of Anaesthetic Facemasks to Inform the Clinical Advisory Panel for National Procurement Exercise NP178 (2016) / Approved / Tier 1
1617-0369 / Pavis / Preparing NSS data for efficient research dataset creation: a pilot project / Approved / Tier 1
167-0296 / Allik / The health of Looked After Children in Scotland / Approved / Tier 2 Out of Committee
1617-0179 / Thomson / EPOCH trial- emergency laparotomies / Approved / Tier 1
1516-0196 / Wickham / Intraoperative Hypotension in Elder Patients (IHypE): Observational Study of Intraoperative Hypotension in Elder Patients in UK Hospitals / Approved / Tier 1
1617-0244 / Iversen / The Royal College of General Practitioners’ Oral Contraception Study / Approved / Tier 1
1617-0181 / Murchie / NASCAR+: Exploring associations between geography, treatment, follow-up care and survival of cancer patients in Northeast Scotland / Approved with conditions / Tier 1
1617-0246 / Clark / A Phase II Efficacy Study of Intracerebral CTX0E03 DP in Patients with Stable Paresis of the Arm Following an Ischaemic Stroke / Approved / Tier 1
1516-0232 / Scotland / Data analysis for the National Managed Clinical Network (NMCN) for Children with Exceptional Healthcare Needs (CEN) / Approved / Tier 1
1516-0461 / Hawkins / Comparing incidence of gastrointestinal infection in areas of high private water supplies and high failure rates with the rest of the population / Approved / Tier 1