Reading and Resources
Patient and Public Involvement Solutions Ltd.
Jessie Cunnett
Last updated: 05/05/2017
Reading
Andersson E., Tritter J., Wilson R., (Eds.) (2006): Healthy Democracy, The Future of Involvement in Health and Social Care – Inolve and the NHS National Centre for Involvement
Arnstein S. (1969): A Ladder of Citizen Participation. JAIP, Vol. 35, No. 4, July 1969 (pp 216-224)
Barns M., Skelcher C., Beirens H. et al. (2008): Designing Citizen-centred Governance – Joseph Rowntree Foundation
Bisognano M., Schummer D. (2014): Flipping Healthcare
Campbell F. (2008): Reaching Out, Community Engagement in Health – I&DEA
Chisolm A., Redding D., Cross P., Coulter A. (2007):Patient and Public Involvement in PCT Commissioning: A Survey of Primary Care Trusts – Oxford: Picker Institute Europe
Communities and Local Government (2008): Communities In Control, Real People, Real Power
Communities and Local Government (2008): Community Power Pack – Communities and Local Government Publications
Coulter A., Collins A. (2011): Making Shared Decisions a Reality, No Decisions About Me Without Me – Kings Fund
Coulter A. (2011): Engaging Patients in Healthcare – Open University Press
Creasy S. (Ed) (2007): Participation Nation, Reconnecting Citizens to the Public Realm – Involve
Cunnett J. (2008): Putting People at the Heart of Public Services: Can we make it a reality this time? – International Journal of Leadership Vol. 4 Issue 2
Dazde-Arthur A. (2008):Engaging People in Healthcare Regulation, A Route Map for Action – National Consumer Council
Department for Business (2008): Enterprise and Regulatory Reform: Code of Practice on Consultation – Crown
Department of Health (2006):The Principles and Practice of Service User Payment and Reimbursement in Health and Social Care – Reward and Recognition
Department of Health (2008):High Quality Care for All, NHS Next Stage Review – Final Report
Department of Health (2008): Real Involvement, working with People to Improve Services
Donaghy I.: Dear Dementia: the Laughter and the Tears – ‘for those living with dementia, their carers and all professional staff’
Goldstar (2007): The Good Practice Handbook – promoting good practicing in managing volunteers from socially excluded groups
Hanley B., Staley K.: User and Carer Involvement, A Good Practice Guide – Long-term Medical Conditions Alliance
Hogg C. (1999):Patients, Power and Politics: From Patients to Citizens – London: Sage
Hogg C. (2008): Citizens, Consumers and the NHS: Capturing Voices (Palgrave Macmillan (97800230550636) – This book provides and analysis of the concepts underlying debates about public and patient involvement
Innovation Unit: Only radical change involving patients and practitioners can save the NHS (accessed 25th June 2015) – Reading and Resources June ’14 Patient and Public…
Mayo M. (1994): Communities and Caring: The Mixed Economy of Welfare – Hampshire: Macmillan Press Ltd.
McKenzie A., Hanley B. (2006): Greenbook, Consumer and Community Participation in Health and Medical Research – A practical guide for health and medical research organisations
Motsi G. (2009): Evaluating Citizen Engagement in Policy Making – A paper presented at the Canadian Evaluation Society Conference on June 2nd 2009, Ottawa
NHS Alliance (2007): Practice Based Commissioning and Patient and Public Involvement, The New Frontier
Pacesetter Programme (2007):Dialogue of Equals, The Pacesetters Programme Community Engagement Guide
Popple K. (1995): Analysing Community Work: Its Theory and Practice – Buckingham: Open University Press
Sang B., Drinkwater C. (2008): LINks and HOSTs: fit for PPI purpose? – British Journal of Healthcare Management Vol. 14 No. 4
Skidmore P., Bound K., Lownsbrough H. (2006): Community Participation: Who Benefits? – York: Joseph Rowntree Foundation
Stephens L., Ryans-Collins J., Boyle D. (2008): A Manifesto for Growing the Core Economy – New Economics Foundation
Thompson N. (1998): Promoting Equality: Challenging Discrimination and Oppression in the Human Services – Hampshire: Palgrave
WHO (1978): Report of the International Conference on Primary Health Care – Alma Ata
Resources
Lots of useful links to helpful resources can be found on the PPI Solutions Twitter page –
Useful Websites and Blogs
The Centre of Public Scrutiny:
Engagement Cycle:
Healthwatch England:
Social Value UK:
Social Care Online:
The Learning Environment (NHS):
Health Mapper – an app to track your health:
Hospital University – free, cooperative health:
HQIP - Healthcare Quality Improvement Partnership:
Healthwatch – On the board toolkit:
A Roadmap for Patient and Family Engagement in Healthcare:
The Patients Association:
The Point of Care Foundation:
Chest Heart & Stroke Scotland – Voices Scotland:
NESTA, DIY toolkit – practical tools to help planning:
NHS Improvement – patient experience headlines tool:
NICE Patient and Public Involvement pages:
INVOLVE – promoting public involvement in research in NHS, public health and social care research:
Nuffield Trust- The new structure of NHS England:
Institute for Healthcare Improvement:
The Patient Patient:
Future Patient:
Nurture Development – A blog on Asset Based Community Development:
NHS Networks Weekly Blog – hilarious and often unnervingly true weekly blog about the NHS:
Helpful Articles, Blog Posts and PDFs
Health Gain: the true test of quality for the 21st century healthcare – Bob Sang (one of Bob’s final pieces before his untimely death):
Community Engagement Scotland – Comprehensive How-to Guides:
Public Officials and Community Engagement – this study examines community involvement in local services with an emphasis on the role of public officials, officers and managers employed by public bodies:
Armchair Involvement – helping you to use new technology to engage people in service improvement:
Can we rate care on the principles of eBay using social media?
and
Not Another Consultation – making community engagement informative and fun:
Health and Social Care Bill (2011) – Combined Impact Assessments:
Communities and Local Government – A plain English guide to the localism bill:
Rosabeth Moss Kanter blog – Seven Truths about Change to Leady By and Live By (2010):
The Kings Fund Online Toolkit - Experience-Based Co-Design, working with patients to improve health care:
Julian Dobson – Living with Rats: Wake up, the big society cavalry aren’t coming:
Involve and Consumer Focus - ‘Making the case for public engagement’, a toolkit that demonstrates how to make the case for public participation in monetary terms:
Bibby A. (2014) – The History of the British Cooperative Movement timeline:
Coulter A. (2014) – Collecting data on patient experience is not enough: they must be used to improve care (accessed 28th June 2014):
15-year-old girl talks about what ‘patient centred’ is – and isn’t:
Goldcare B. – Let’s see a register of Doctor’s interests:
West M. – The NHS is a national treasure, we must continue to guard it:
The Original NHS Leaflet -
Stephen Thornton Blog – Three ideas for improving care from a barely coping carer:
The Patient Patient– Does it matter how we acquire knowledge and expertise?:
Launer J. – Waiting rooms and the unconscious:
Essays collected by the All Party Parliamentary Health Group, A Guided Tour of the New NHS:
Wood C., Leighton D. – Measuring Social Values:
The King’s Fund – Patient Centred Leadership:
Moynihan R. – The future of medicines lies in truly shared decision making:
KPMG – Something to teach, something to learn, global perspectives on healthcare:
NESTA – People Powered Health, The Business Case for People Powered Health:
Arnstein S. – Ladder of Citizen Participation:
Division of Medical Education at BMS – A new digest of Masters dissertations exploring change in leadership and commissioning of health and social care:
Step by Step Guide to Patient and Public Engagement in Commissioning:
BMJ – Patients are still bewildered by NHS complaints system:
Gawande A. – How do we heal medicine?:
Thinking Differently – NHS Institute for Innovation and Improvement:
Making sense of the Francis focus on leadership:
Richards T. – When doctors and patients disagree:
Patient and Public Engagement – Plan on a Page:
Dixon-Woods et al. (2006) – Conducting a critical interpretive synthesis of the literature on access to healthcare by vulnerable groups:
Greenhalgh T. (2014) – Stories or numbers or stories and numbers? -
Foot C et al. (2014) – People in control of their own health and care:
People Helping People – The Future of Public Services:
RSA – Person-to-Person Social Justice, where new and old power combine (July 2015):
IPPR – Powerful people, reinforcing the power of citizens and communities in heakth and care:
Involvement – NHS Midlands and Lancashire Commissioning Support Unit, a range of guides to support effective engagement:
Socratic Dialogue – A guide to this useful methodology to come to a group truth on a universal question:
4pi National Involvement Standards:
Guide to Patient and Family Engagement in Hospital Quality and Safety:
Australian Commission on Safety and Quality in Health Care – Engaging Patients in Communication at Transitions of Care:
The Beryl Institute – State of Patient Experience 2015, a Global Perspective on the Patient Experience Movement:
Macmillan Cancer Improvement Partnership – User involvement:
National Voices – Six principles for engaging people and communities:
The King’s Fund – patients as partners:
Nesta – Putting community at the heart of person-centred care:
Future Patient Blog – musings on patient-led healthcare:
Homeward Bound Educational Resource – following a personal experience, Lesley Goodburn worked with a partnership to develop this education resource to help people work with those experience end of life care:
NESTA – realising the value:
Wessex Voice – get your involvement plan sketched out with this simple planning tool:
NHS England – Patient and Public Participation in Commissioning and Health Care: Statutory Guidance:
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