Minutes of the of T RAC Meeting

Minutes of the of T RAC meeting taken

On Thursday 28th June 2012. at the

University of Glamorgan.

1 Who was there?

Victoria Jones. Lynne Evans.

Emma Alcock. Sandy Tinklin.

Sheilagh Guaston. John Martin.

Davey Bennett. Liz Holwell.

Mark Hatherall. Catherine Hart.

Lorraine Watkins Phillip Morgan.

Nigel Turner. Catherine Hart.

Ruth Davies. John Edwards.

Justin Leek support worker (Nick.)

Daniel Marsden is a nurse from East Kent.

Who couldn’t make it?

Laura. Jean Francis.

Victoria showed us the trophy that Victoria and TRAC had

won, from University of Glamorgan.

Sandy chaired the meeting and Nigel co-chaired.

3  Conferences.

Victoria and Joyce went to a conference in Bangor

to look at researching with people with learning disability.

This was the first time they had a conferences that

Involved people with a learning disability.

There were about 35 people with learning disability there.

4. Research.

Forgotten voices Victoria has been trying to get in touch with Ashleigh. There seems to be a lot of people trying to do the same thing.

Chris O Connell has said we could have a look around Llanfrechfra grange if we would like to go. Liz will find out how many people are able to go.

5 Teaching Nurses.

Lynne felt it went all right.

Phil said it very good.

Lorraine it went very well.

It was a new experience for the other members of Torfaen.

6, planning training about making information

accessible.

The whole training pack should soon be able to be free to download.

7.  Daniel’s Project.

My Healthcare Passport. Some units are not that happy about using the healthcare passport. All wards know where the booklet is.

Daniel works for a big health service. In England they don’t have health boards. Daniel supports doctors and nurses work better with people with learning disability.

In England they have liaison nurses, these are learning disability nurses who support the hospitals to work better with People with learning disability.

In England Mencap had all the hospitals to sign up to the healthcare passport.

Victoria asked the groups to keep sending things in.

Daniel spoke about Participatory Action Research project which is like our Inclusive research project.

·  3 types of research.

·  Asking question.

·  Testing something out and watching to find out the

answer.

·  Involving everyone in the project.

Daniel is trying to find out how to do research in the some way as us about how to use the healthcare passports and how to know if it is working.

We told Daniel about our research project and how people with a learning disability are involved all the way through.

Daniel asked TRAC for their advice about how he can get people involved.

Lorraine asked if we could pay a visit to Daniel hospital in

Kent

7.  Website update.

Victoria asked the group to keep sending thing in.

8.  Any other business.

Photosymbols have produced some research

symbols.

Rob and Neil came to say congratulations on the trophy

that has been awarded.

Date of next meeting:

Monday 20th August.

10.00 am to 3.00.

Room 7117.

All day meeting to look at what we want to do to celebrate 10 years.