Minutes of Personal and Public Involvement (PPI)

Service User Panel held on Friday 14thOctober 2016 at 10.30am in the Promoting Wellbeing Training Room, St Luke’s Hospital, Armagh, BT61 7NQ

Present:

Sharon Doherty Carer, Panel Co-Chair

Seamus McKennaLARG, Willowbank, Dungannon

Peter DonnellyLARG, Willowbank, Dungannon

Andrew MartinService User

Ray HamiltonService User

Ruth HamiltonSupport Worker

Ian StaffordService User

Annie BurrellService User

Willie McKeownService User

Peter MurrayService User

Cheryl McCauleyPPI Officer, PCC

Carolyn AgnewHead of User Involvement and Community Development

Morgan BranniganUser Involvement Development Officer

Neil GillanUser Involvement Development Officer

Apologies:

Maureen McNulty

In attendance:

______

1.0Welcome, Introductions

1.1Sharon opened the meeting and welcomed everyone. Particular welcome was given to Morgan and Neil, the recently appointed User Involvement Development Officers, who were attending their first PPI Panel meeting.

2.0Apologies

2.1As listed above.

3.0Minutes of last meeting (10/06/16)

3.1Willie identified an issue in section 7.6 of the minutes (……Willie gave an update and spoke of the concerns of UCSIG Members of the PARIS system). This should have read ‘Willie gave an update and spoke of the concerns of Mental Health Forum Members of the PARIS system’.

3.2Otherwiseall agreed as a true record.

4.0Matters Arising

4.1TOR/Membership –communications plan - Sinead has forwarded the Induction & Information pack to all members for comment. Action: Neil & Morgan to organise a follow up meeting to progress.

4.2PPI Performance Management Report – report received and circulated. Very good feedback from PHA. Emails also from senior management congratulating all involved in the process. There was a discussion around different levels of PPI being achieved regionally, and this is being followed up by the Permanent Secretary. Peter Murray complimented the PPI Panel on its achievements and noted that not all health committees established under previous councils had been restored under current arrangements. There is a lack of information coming through at ground level. Sharon felt that the Ambulance Service should be included in the monitoring programme and noted that they did not attended the strategic Regional PPI Forum meeting in September.

4.3PPI Research reports – Carolyn reported that the launch of this research had been delayed, and it was due to be launched in the autumn.Action: Carolyn to advise Panelif any further information regarding a launch date is forthcoming.

4.4Additional PPI post.- Neil Gillan has been appointed to this post, covering the Acute and OPPC directorates and Morgan Brannigan was covering for Sinead Hughes dealing with the Mental Health /Disability and CYP directorates.Action: Sharon to draft a letter on behalf of the Panel thanking Sinead for her efforts during her time as User Involvement Development Officer.

4.5R&S training for panel members –information has been circulated again, and there had been one response. There was a discussion of the benefits of users being on selection panels and Sharon recommended that others consider this.

5.0PPI Panel Action Plan 16/17

5.1PPI Annual Report 15/16- The report has been developed in line with the regional standards and information from the performance management report has been used to populate it. Thanks to members for their comments. Report approved at SMT and all involved congratulated on the content and format.Action: Morgan and Neil to upload on Trust website and circulate widely

5.2PPI Panel Action Plan 16/17 – action plan agreed at last meetinghas been circulated to members.Action: Carolyn asked for any progress updates to be sent on to her.

5.3PPI Panel Induction Training for new members –Sinead had sent out material for induction training for comment. Sharon asked new and existing members to consider this. Willie expressed an interest. Action: Neil and Morgan to follow up responses. Training to be planned for late January 2017.

5.4PPI Strategy Review – Carolyn completed a first draft. The general strategy is fine but needs to be updated to take into accountthe standards and further guidancecirculars that came in after the initial strategy was published.

5.5PPI Toolkit- Carolyn thanked members for their comments on this. Morgan and Neil are reviewing the draft.The fact sheets need to be up- dated and included in the Toolkit. Action: Morgan and Neil for forward comments and suggestions and Carolyn to circulate final draft.

5.6Consultation scheme –Carolyn has completed a first draft and is awaiting agreement from thePHA and the Department on the final regional template. There is a disparity with expected consultation times. Sharon felt that more neededto be done by other Trusts as service users can receive services from a number of Trusts. Carolyn advised that she had met with a representative from WH&SCT, and had shared our TORs with Belfast Trust. A meeting has been arranged with representatives from the NHSCT. All our information and resources have been and continue to be shared regionally, however it is not for the Southern Trust to comment on or advise other Trusts on their PPI structures. Action: These issues to be progressed at a regional level.

6.0PPI Action Plan – Feedback from relevant fora

6.1Patient Client Experience Committee – Waiting times had been discussed, including for cancer, cardiac and autism services. Cancelled operations were also an issue. P Donnelly also expressed surprise at issues which were not discussed, like the, gas leak andsewage issue recently. A. Burrell felt that there was too much of a disparity between the two sides of the table and expressed frustration that the meetings were not more focussed on things that are important to service users and carers. There was consensus among the PPI Panel reps that the issues on the PCEC agenda have been well discussed previously, and that what is needed now is action, information on the learning and what improvements have been made.

6.1.1Peter Murray mentioned ambulance response times (emergency and transport) as a particular issue to be addressed, and also highlighted attacks on staff by drunken patients as an issue, particularly at weekends.

6.1.2There was also some confusion as to whether this was the correct forum for bringing up such concerns. Sharon felt that the regional approach to waiting times should be notified to the PCC and put on Trust websites. Ray suggested sending an email to ensure any items went onto the agenda for this group.

6.1.3 It was agreed that it would be helpful for the Panel reps to meet the new chairto discuss the format of the meetings and agree a mechanism for the Panel reps to influence the agenda. Action: Carolyn to follow up with Gerard to arrange

6.2Trust Carer’s Reference Group –Still places available for carers on thisgroup. It would be useful to maintain a link with the Panel. Action: Carer members to email Carolyn if interestedand Cheryl to advertise the opportunity in the PCC’s next Newsletter.

6.3Older People’s Strategy Redevelopment –Living Your Life to the Full – Annie said that there has been nothing from this in a while. Action: Carolyn to follow this up.

6.4Race Equality Forum-No meeting in the last quarter.

6.5Patient Client Experience Steering Group –Andrew felt that this had been quite good however there was a heavy focus on process. Members would like to know more about 10,000 Voices and the PCEprogramme and the difference it is making and the opportunity to contribute to the agenda.Action: Carolyn to contact Mairead for information on the current programmeand the changes previous programmes have brought about with specific examples and to request Panel reps have opportunity to contribute to agenda.

6.6Mental Health Forum- UCSIG – Willie said that he had not attended the last UCSIGmeeting as it clashed with his OCN L2 Advocacy Training, but had attended the Mental Health Forum.

6.6.1Forum members have written tothe Director andInformatics re their concerns about information available under the PARIS system. He said that staff in Trasna have similar concerns. Willie said that people were told three years ago that information about users and patients would beshared on a ‘need to know’ basisand that concerns had arisen as this does not appear to be the case.

6.6.2Three peer support posts had been advertised, and another 5 are under way for each ward in Bluestone and Addiction Unit.

6.6.3Recovery College, Wellbeing Hub and Talking Therapies launch on 13/10/16 had been attended. The Recovery College will operate on a pop up basis. The prospectus is out for training with 9 courses on offer, and Willie advised that 44 staff and service users have completed their ‘Training for Trainers’. All courses have been co-produced and will be co-delivered. Further information is available on the Trust and Mental Health Forum websites:

6.6.4Free Trust wifi while welcomecurrently does not provide a very good connection.

6.7Car ParkingAndrew has been attending these meetings regularly. Sharon attended one meeting. Ian attended one meeting and will not be attending again. There was discussion on the benefit of attending these meetings. Panel members feel they are not being listened to; minutes not reflecting discussions; date of the next meeting not being provided early enough and/or meeting cancelled at last minute and this causes problems for those who need to organise transport.

6.7.1Peter Murray said that there were similar car parking issues with Daisy Hill.Action:Carolyn to contact Kate Corley and see if she is available to meet with the Panel to provide an overview and agree a suitable mechanism for service user/carers involvement.

6.8Social Work Strategy- Ray Hamilton continues to circulate the message of the week and willprovide an update at the next meeting. Action: Ray to give update to panel members at next meeting

1.1.1Peter Donnelly attended a meeting in DHH around a social work post qualifying course on social enterprise. Actions: Peter to share position paper.

1.1.2There is a meeting with Dr Michael Hoy in South West College on 26th October 12 noon regarding involvement in social work training.A service user presenter has been identified to attend. If anyone is interested in being involved in the programme for next year, please contact: Dr Michael Hoy, Independent Social Worker, HM Health & Social Care Tel: 07541012712 Email: Web site:

6.9Cleanliness Steering Group – Nothing to update

6.10Unscheduled Care Meeting –No-one had be able to attend this meetingAction:Sharon to use the minutes to provide an update

6.11NICON Conference- Peter attended one day of the conference. There was a variety of presentations over the 2 –days. Peter valued the opportunity to access the event but beyond his own personal development not sure of the wider impact. The Bengoa report featured in the discussions and there was an opportunity to put your view. Students from Enniskillen,also carried out interviews seeking participants’ views, which Peter found interesting.

7.0PCC UpdateInformation will be sent out on the PCC’s Coffee Connections. Action: Cheryl to send on information.

8.0Regional PPI Forum Update

8.1Minutes of last meeting 16th May 2016 –circulated to Panel.

8.2PPI Training Programme – e-learning uploaded onto Trust e-learning platform. Good feedback from staff on completion of training. Also available on the Knowledge Exchange website. 224 staff from April – end August completed the e-learning module with a further 144 covering PPI module in Quality Improvement E learning. Total 368.

8.3PPI Conference – Involving You, Improving Care: Our Involvement Story. 22nd June 2016, Riddel Hall, QUB.

8.4Bengoa/Expert Panel Report –No further information – Report is withHealth Minister M O’Neill.Further information expected in the next few weeks.

9.0Any Other Business

9.1Andrew spoke of his involvement with the Trusts Excellence awards He had been involved with judging panels in 2014 and 2015 and he found the experience useful and enjoyable. He was not asked to be involved in the judging panel this year and had emailed Roberta. Andrew asked if Excellence Awards were being planned for 2017 and recommended that Panel members consider if the opportunity for judging is offered. Action: Carolyn to follow up and advise

9.2Sharon raised the Ask Your GP scheme, discussion of which had featured at Stormont. This has been piloted in 4 GP practices and is being rolled out to a further 30. There was said to be a high satisfaction rating, but Sharon had a number of concerns about mental health and disability in terms of people’s vulnerability.

9.3Morgan advised of the Integrated Transport Strategy which is a significant regional and cross departmental initiative which will have very significant implications for service users (particularly those who use Trust transport), carers and Trust transport staff. The plan is to pilot this initiative in our Trust area from Autumn 2017. A Trust Implementation Group is being established to mirror regional actions and implement the preparation for introducing the initiative and the Trust is keen to meaningfully involve service users and carers in this. Carolyn has provided some initial guidance and had offered to raise with the Panel at the meeting today. Peter and Sharon expressed an interest in this. Action: Panel to be updated by Morgan or Carolynwhen further information is received.

9.4Morgan outlined a proposal to include social work students in carrying forth PPI work within the social work teams, and also asked whether the Panel itself could avail of an input from students, who are aiming to meet their course community development requirements. Sharon suggested transport could be an issue for them to examine. Ray expressed an interest in this activity.

Action: Morgan to get back to Panel members with further detail

9.5Copies of the up-dated PPI Information Leaflet for staff were circulated.Action: Panel members to forward and comments to Carolyn by 28th October, 2016

9.6Quality Showcase Event – 19th October 2016 in the Junction, Dungannon. Several Panel members have registered to attend and Peter and Sharon are each chairing a workshop in the afternoon parallel sessions.

10.0Date of Next Meeting

10.1The next meeting is arranged for 2ndDecember 2016 at 10.30am in thePromoting Wellbeing Training Room, St Luke’s Hospital, Loughgall Road, Armagh BT61 7NQ.

Abbreviations:

PPI Personal and Public Involvement

LARGLobbying and Activism Research Group

VOYPICVoice of Young People in Care

PCC Patient Client Council

TORTerms of Reference

E-learninglearning via the internet / online

PHAPublic Health Agency

PCEC Patient Client Experience Committee (sub- committee of Trust Board)

SHSCTSouthern Health and Social Care Trust

PWBPromoting Wellbeing (Team to which Carolyn and Sinead belong)

DHSSPSDepartment of Health, Social Services and Public Safety

PCES Patient Client Experience Standards

UCSIGUser and Carer Service Improvement Group (mental health)

QUBQueen’s University Belfast

SMTSenior Management Team

SLUGSport and Leisure User Group

OPPCOlder People and Primary Care

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